Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 O.K. so went for our first appointment with a developmental pediatrican yesterday. My daughter is 30 months and with the test registered at about 18-19 months for speech. The Dr. said she was leaning towards apraxia but does not diagnose at this age. We are to return in six months I guess for a re-eval to see what has changed. Today we go to early intervention speech therapy which we have been doing for about 9 months. They have been pestering me about when we were going to this Dr. appointment so I have a feeling that there will be a 'meeting' today. I feel like they are frustrated with Rylan and don't feel like they are getting anywhere with her. She is pretty bull headed. I kinda feel like I am making some progress but then again feel like we are floating somewhere in the middle and fighting not to get lost in the shuffle. Just wondered if anyone had any ideas on how to help me handle EI or any other advice. We did start fish oil in December and have noticed significant changes she is getting a few more words out. I guess I am just frustrated with the world right now. Just want to do the best for my baby girl and feel like everyone thinks I am crazy. Thanks for letting me vent I have been lurking for awhile. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 , You are not crazy. You just have a great motherly instinct. Have you read the late talker? If not, go and read it. It is a complete guide for warning signs and what to do about EI. Apraxics need 3-4 x per week ST. PROMPT is also the type of ST they respond to quickly. EI may not give you more than 2 st visits a week. Apraxics need at least 3. Also, if you are not doing it already, go ahead and get her OT 1-2x per week. That is my therapy schedule and it works nicely. Make an appt with a good nutritionist, Dorfman www.kellydorfman.com she is terrific and got me started on the right track. Go into the folders for apraxic tests, and get them done. Look into biomedical. This is getting us to the " root " of our problem, aluminum. One of the lighter metals. Charlie had 6 approx in Aug 2007 and is now talking in sentences 3-5 words! Go for it! Also check out vit e folder. Colleen Mother of Charlie 30 months [ ] Dev. Pediatrican Appt. O.K. so went for our first appointment with a developmental pediatrican yesterday. My daughter is 30 months and with the test registered at about 18-19 months for speech. The Dr. said she was leaning towards apraxia but does not diagnose at this age. We are to return in six months I guess for a re-eval to see what has changed. Today we go to early intervention speech therapy which we have been doing for about 9 months. They have been pestering me about when we were going to this Dr. appointment so I have a feeling that there will be a 'meeting' today. I feel like they are frustrated with Rylan and don't feel like they are getting anywhere with her. She is pretty bull headed. I kinda feel like I am making some progress but then again feel like we are floating somewhere in the middle and fighting not to get lost in the shuffle. Just wondered if anyone had any ideas on how to help me handle EI or any other advice. We did start fish oil in December and have noticed significant changes she is getting a few more words out. I guess I am just frustrated with the world right now. Just want to do the best for my baby girl and feel like everyone thinks I am crazy. Thanks for letting me vent I have been lurking for awhile. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 Please get the labs in the folders. Please consider NACD and please do not worry about pleasing EI. Concern yourself with what needs to be done. Please do not ignore bullheadedness and look for undelying reasins like gut and allergy stuff and look to eliminate yeast > > O.K. so went for our first appointment with a developmental pediatrican > yesterday. My daughter is 30 months and with the test registered > at about 18-19 months for speech. The Dr. said she was leaning towards > apraxia but does not diagnose at this age. We are to return in six > months I guess for a re-eval to see what has changed. Today we go to > early intervention speech therapy which we have been doing for about 9 > months. They have been pestering me about when we were going to this > Dr. appointment so I have a feeling that there will be a 'meeting' > today. I feel like they are frustrated with Rylan and don't feel like > they are getting anywhere with her. She is pretty bull headed. I kinda > feel like I am making some progress but then again feel like we are > floating somewhere in the middle and fighting not to get lost in the > shuffle. Just wondered if anyone had any ideas on how to help me handle > EI or any other advice. We did start fish oil in December and have > noticed significant changes she is getting a few more words out. I > guess I am just frustrated with the world right now. Just want to do > the best for my baby girl and feel like everyone thinks I am crazy. > Thanks for letting me vent I have been lurking for awhile. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 Colleen, just wanted to congratulate you on being that " warrior " mother that unfortunately, we are forced to be by the incompetence of the districts, EI, etc. You go girl! Carolyn **************Biggest Grammy Award surprises of all time on AOL Music. (http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\ 5 48) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 EI is a very small piece of this puzzle. Use what you can get out of them. As for EI, I just wanted to say that my EI coordinator just fired me! Love it! She was so darn awful. She treated my therapists poorly and then on top of it all did not invite them to charlie's annual review. So, needless to say, I go straight to the top and continue to pound on their *$$ until they hear me and treat my therapists well. Today, I have a new EI coordinator happy to help me. Warrior Mother, Colleen Mother of Charlie 30 months [ ] Re: Dev. Pediatrican Appt. Please get the labs in the folders. Please consider NACD and please do not worry about pleasing EI. Concern yourself with what needs to be done. Please do not ignore bullheadedness and look for undelying reasins like gut and allergy stuff and look to eliminate yeast > > O.K. so went for our first appointment with a developmental pediatrican > yesterday. My daughter is 30 months and with the test registered > at about 18-19 months for speech. The Dr. said she was leaning towards > apraxia but does not diagnose at this age. We are to return in six > months I guess for a re-eval to see what has changed. Today we go to > early intervention speech therapy which we have been doing for about 9 > months. They have been pestering me about when we were going to this > Dr. appointment so I have a feeling that there will be a 'meeting' > today. I feel like they are frustrated with Rylan and don't feel like > they are getting anywhere with her. She is pretty bull headed. I kinda > feel like I am making some progress but then again feel like we are > floating somewhere in the middle and fighting not to get lost in the > shuffle. Just wondered if anyone had any ideas on how to help me handle > EI or any other advice. We did start fish oil in December and have > noticed significant changes she is getting a few more words out. I > guess I am just frustrated with the world right now. Just want to do > the best for my baby girl and feel like everyone thinks I am crazy. > Thanks for letting me vent I have been lurking for awhile. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2008 Report Share Posted January 24, 2008 thanks. Dont give up. I call them daily and get cell numbers and run up everyone's bill! Re: [ ] Re: Dev. Pediatrican Appt. Colleen, just wanted to congratulate you on being that " warrior " mother that unfortunately, we are forced to be by the incompetence of the districts, EI, etc. You go girl! Carolyn **************Biggest Grammy Award surprises of all time on AOL Music. (http://music. <http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp0030000 00025> aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp003000000025 48) Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.