Re: Digest Number 1967

[Guest guest]

> > In a message dated 09/03/2001 5:47:08 AM Central

> > Daylight Time,

> > Rpolychondritis@y... writes:

> >

> > << My normal is in the

> > 96.6 range. When the doc ask if I'm running a fever

> > and I tell them what my

> > normal is they still consider me without fever at

> > 98.8 . This is a temp for

> > me. Do you have any advice on how I can get them

> > realize this. >>

> > Elaine and Ellen,

> > The big weekend is over. And it was WONDERFUL.

> > More about that later. I

> > was just reading a few of the posts and read this

> > one about body temp. My

> > " normal " is 96.6, and I also have problems with the

> > docs when they take my

> > temp and it is 98+. They just can't seem to realize

> > that 98+ is not " normal "

> > for me. It will be interesting to see if others in

> > the group have low normal

> > temps.

> > Love,

> > T.

> >

> I do! Except when I went off MTX and was not on a

> DMARD or immunosuppressent. Then I ran low grade

> temperatures constantly. My " abnormal " normal low is

> between 96-97 degrees. This is interesting! Sharon

>

> =====

>

>

> __________________________________________________

>

[Guest guest]

My boody temp is usually 97. something but I always run a low grade fever, usually 99.2 or 99.4 anything higher than that for me is a full blown fever

love, hugs and hope

Angie

[Guest guest]

My boody temp is usually 97. something but I always run a low grade fever, usually 99.2 or 99.4 anything higher than that for me is a full blown fever

love, hugs and hope

Angie

[Guest guest]

<P>hi all</P>

<P>you can add my name to the list of below

normals. & nbsp; & nbsp; i am usually around 96 to

97. & nbsp; & nbsp; dawn</P>

__________________________________________________

[Guest guest]

<P>hi all</P>

<P>you can add my name to the list of below

normals. & nbsp; & nbsp; i am usually around 96 to

97. & nbsp; & nbsp; dawn</P>

__________________________________________________

[Guest guest]

Hi Elaine,

I was reading with interest the groups last few posts about low body

temperature. I have always had a low temperature, and I don't know if

this is the rp. It is still low, even now. And I am always feeling

cold, even when I have a temperature. I very rarely feel hot. I think

my highest temperature was 106, when I was in the hospital, and they

did the ice bath thing. Luckily, I was really out of it.

danielle

> I wonder if low body temp before the RP is something that is common

through out the group?

> Elaine

> Re: Digest Number 1967

>

>

> In a message dated 09/03/2001 5:47:08 AM Central Daylight Time,

> Rpolychondritis@y... writes:

>

> << My normal is in the

> 96.6 range. When the doc ask if I'm running a fever and I tell

them what my

> normal is they still consider me without fever at 98.8 . This is a

temp for

> me. Do you have any advice on how I can get them realize this. >>

> Elaine and Ellen,

> The big weekend is over. And it was WONDERFUL. More about that

later. I

> was just reading a few of the posts and read this one about body

temp. My

> " normal " is 96.6, and I also have problems with the docs when they

take my

> temp and it is 98+. They just can't seem to realize that 98+ is

not " normal "

> for me. It will be interesting to see if others in the group have

low normal

> temps.

> Love,

> T.

>

>

[Guest guest]

Hi Elaine,

I was reading with interest the groups last few posts about low body

temperature. I have always had a low temperature, and I don't know if

this is the rp. It is still low, even now. And I am always feeling

cold, even when I have a temperature. I very rarely feel hot. I think

my highest temperature was 106, when I was in the hospital, and they

did the ice bath thing. Luckily, I was really out of it.

danielle

> I wonder if low body temp before the RP is something that is common

through out the group?

> Elaine

> Re: Digest Number 1967

>

>

> In a message dated 09/03/2001 5:47:08 AM Central Daylight Time,

> Rpolychondritis@y... writes:

>

> << My normal is in the

> 96.6 range. When the doc ask if I'm running a fever and I tell

them what my

> normal is they still consider me without fever at 98.8 . This is a

temp for

> me. Do you have any advice on how I can get them realize this. >>

> Elaine and Ellen,

> The big weekend is over. And it was WONDERFUL. More about that

later. I

> was just reading a few of the posts and read this one about body

temp. My

> " normal " is 96.6, and I also have problems with the docs when they

take my

> temp and it is 98+. They just can't seem to realize that 98+ is

not " normal "

> for me. It will be interesting to see if others in the group have

low normal

> temps.

> Love,

> T.

>

>

[Guest guest]

> Let's see that's Lucy, Sandy, Ellen, Sharon, , Kathi and me.

That's seven of us and hey, it's all women too.

> So fess up who else is below normal?

>

I'll fess up,..... I too am below normal 96-97

hugs

PS.... Maybe since I've been back from Okieland..I am normal... I'll

have to check.... Nah.... no way!!!! LOL

[Guest guest]

> Let's see that's Lucy, Sandy, Ellen, Sharon, , Kathi and me.

That's seven of us and hey, it's all women too.

> So fess up who else is below normal?

>

I'll fess up,..... I too am below normal 96-97

hugs

PS.... Maybe since I've been back from Okieland..I am normal... I'll

have to check.... Nah.... no way!!!! LOL

[Guest guest]

My body temp is between 97.5 to 98 degrees.

I consider a temp of 98.6 as a low grade fever.

Marilyn R/Savannah

[Guest guest]

My body temp is between 97.5 to 98 degrees.

I consider a temp of 98.6 as a low grade fever.

Marilyn R/Savannah

[Guest guest]

Hi le,

You make the thriteenth in the group.

Thanks for letting us know. Seems like it's a very common thing in the group for something that is supposed to be uncommon.

Elaine

Re: Digest Number 1967

Hi Elaine,I was reading with interest the groups last few posts about low body temperature. I have always had a low temperature, and I don't know if this is the rp. It is still low, even now. And I am always feeling cold, even when I have a temperature. I very rarely feel hot. I think my highest temperature was 106, when I was in the hospital, and they did the ice bath thing. Luckily, I was really out of it. danielle

[Guest guest]

Hi le,

You make the thriteenth in the group.

Thanks for letting us know. Seems like it's a very common thing in the group for something that is supposed to be uncommon.

Elaine

Re: Digest Number 1967

Hi Elaine,I was reading with interest the groups last few posts about low body temperature. I have always had a low temperature, and I don't know if this is the rp. It is still low, even now. And I am always feeling cold, even when I have a temperature. I very rarely feel hot. I think my highest temperature was 106, when I was in the hospital, and they did the ice bath thing. Luckily, I was really out of it. danielle

[Guest guest]

Thanks Angie,

You're number 14! It seems that alot of us had low body temp, but now run about 98-99 since the RP. Very interesting I say.

Elaine

Re: Digest Number 1967

My boody temp is usually 97. something but I always run a low grade fever, usually 99.2 or 99.4 anything higher than that for me is a full blown fever love, hugs and hope Angie DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Thanks Angie,

You're number 14! It seems that alot of us had low body temp, but now run about 98-99 since the RP. Very interesting I say.

Elaine

Re: Digest Number 1967

My boody temp is usually 97. something but I always run a low grade fever, usually 99.2 or 99.4 anything higher than that for me is a full blown fever love, hugs and hope Angie DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

And me...Sue, 97 or so tops

[Guest guest]

And me...Sue, 97 or so tops

[Guest guest]

In a message dated 09/03/2001 8:32:37 PM Central Daylight Time,

OneSuperMema@... writes:

<< They just can't seem to realize that 98+ is not " normal >>

T, how are you? How's your back? God, I hope you are feelig better,

you had us worried.! BTW, my " normal " temp is usually 97.4. But then, no

one ever said I was normal! Love,Judy

[Guest guest]

In a message dated 09/03/2001 8:32:37 PM Central Daylight Time,

OneSuperMema@... writes:

<< They just can't seem to realize that 98+ is not " normal >>

T, how are you? How's your back? God, I hope you are feelig better,

you had us worried.! BTW, my " normal " temp is usually 97.4. But then, no

one ever said I was normal! Love,Judy

[Guest guest]

In a message dated 09/04/2001 5:42:25 AM Central Daylight Time,

bklyn1429@... writes:

<< ( my ear is flaring

right now and has'nt for 8 months) >>

Lillian, that's strange, but on the other hand, you should be thru the flare

pretty soon! Love, Judy

[Guest guest]

In a message dated 09/04/2001 5:42:25 AM Central Daylight Time,

bklyn1429@... writes:

<< ( my ear is flaring

right now and has'nt for 8 months) >>

Lillian, that's strange, but on the other hand, you should be thru the flare

pretty soon! Love, Judy

[Guest guest]

In a message dated 09/04/2001 10:43:59 AM Central Daylight Time,

magic.cottage@... writes:

<< I think that makes at least 5 of us that have this in common. >>

Count me in, too! Love,Judy

[Guest guest]

In a message dated 09/04/2001 10:43:59 AM Central Daylight Time,

magic.cottage@... writes:

<< I think that makes at least 5 of us that have this in common. >>

Count me in, too! Love,Judy

[Guest guest]

,

Is there anything else that you do for your

breathing problems?

Cathy, I've been on methotrexate for 2 months now

and even though I can't say that I'm improved

(because I'm not--I still feel out of breath

after 1.5 blocks) I get these crazy lapses of

normality. I'll be doing something, like walking

or even reading a book and I'll get this feeling

like I'm absolutely normal again. They last only

for a few seconds. Compared to how I've been

feeling since April when my throat problems

started, these lapses have been a great welcome!

so aside from the meds (still on Prednisone too),

I've been on the aggressive the last few weeks as

far as getting tests done: breathing tests,

pulmonary tests, & CT scan. Last week I had a

sleep study done and hopefully will get a CPAP

machine to improve my breathing. Is your father

getting any pulmonary type testing done? What

kind?

Oh, BTW, my CT scan showed that my throat isn't

as bad as they thought, so a stent isn't my only

option. Thank God!

Everyone: I am still getting these nasty

headaches (off and on all last week) and feeling

really achy. I can't take aspirin as it will

react with my NSAID. My usually-normal blood

pressure has been high for the past 2-3 wks so

now I'm on Dyazide (a diuretic--and already I'm

seeing my face is less puffy!). My teeth are

still sensitive and I feel, along with the

headaches, that I'm reaching a breaking point

dealing with all this pain!!!!

I used to take Vioxx but quit about 2 wks ago

(because of the hoopla) and I'm trying out

Relafen (not as longlasting as vioxx). I'm really

tempted to go back on vioxx, at least it took

care of the regular aches and pains. I now wake

up in the mornings coughing like crazy, in pain

because my chest wall/ribs hurt from the RP.

I know we talked about teeth pain before and pain

in general. I'm venting, but I'm also asking for

suggestions, if anyone has any. It seems that

lately, I've taken 5 steps forward only to be

pushed into taking 3 steps back.

It's so frustrating.

=====

When choosing the lesser of two evils,

I always like the one I haven't tried.

-- Mae West

__________________________________________________

[Guest guest]

,

Is there anything else that you do for your

breathing problems?

Cathy, I've been on methotrexate for 2 months now

and even though I can't say that I'm improved

(because I'm not--I still feel out of breath

after 1.5 blocks) I get these crazy lapses of

normality. I'll be doing something, like walking

or even reading a book and I'll get this feeling

like I'm absolutely normal again. They last only

for a few seconds. Compared to how I've been

feeling since April when my throat problems

started, these lapses have been a great welcome!

so aside from the meds (still on Prednisone too),

I've been on the aggressive the last few weeks as

far as getting tests done: breathing tests,

pulmonary tests, & CT scan. Last week I had a

sleep study done and hopefully will get a CPAP

machine to improve my breathing. Is your father

getting any pulmonary type testing done? What

kind?

Oh, BTW, my CT scan showed that my throat isn't

as bad as they thought, so a stent isn't my only

option. Thank God!

Everyone: I am still getting these nasty

headaches (off and on all last week) and feeling

really achy. I can't take aspirin as it will

react with my NSAID. My usually-normal blood

pressure has been high for the past 2-3 wks so

now I'm on Dyazide (a diuretic--and already I'm

seeing my face is less puffy!). My teeth are

still sensitive and I feel, along with the

headaches, that I'm reaching a breaking point

dealing with all this pain!!!!

I used to take Vioxx but quit about 2 wks ago

(because of the hoopla) and I'm trying out

Relafen (not as longlasting as vioxx). I'm really

tempted to go back on vioxx, at least it took

care of the regular aches and pains. I now wake

up in the mornings coughing like crazy, in pain

because my chest wall/ribs hurt from the RP.

I know we talked about teeth pain before and pain

in general. I'm venting, but I'm also asking for

suggestions, if anyone has any. It seems that

lately, I've taken 5 steps forward only to be

pushed into taking 3 steps back.

It's so frustrating.

=====

When choosing the lesser of two evils,

I always like the one I haven't tried.

-- Mae West

__________________________________________________