PANDAS

[Guest guest]

This is totally off topic here, but I remember there were some members

of this group with a child (children) with PANDAS?

I have a good friend...also a pediatrician, very frustrated with the

medical system because she is unable to get help, support and accurate

information regarding this diagnosis in her 11 year old son, who is

having lots of pyschiatric and behavioral issues in addition to

abdominal pain, weight loss and joint pain/arthralgias all post

strep/rheumatic fever. This is not something we know much about either.

If anyone has names of experts in this area...or can send me to a

website or support group to help her, or any info, I would greatly

appreciate it.

Feel free to email me off-line. claudiamorris@...