hello everyone

[Guest guest]

Hi Ann,

Glad to see you back. Did you see the Rheumy yet?

Let me know.

Hugs,

Sandy

Hello everyone, I've had alot of messages bouncing.My e-mail was over loaded. My computer has been down for a couple of weeks. Had to get a whole new tower, the other one fried. Haven't had a chance to catch up on everything.Hope everyone had a good time in Okie land. Just wanted you to know I'm back. Ann DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Hi Ann,

Glad to see you back. Did you see the Rheumy yet?

Let me know.

Hugs,

Sandy

Hello everyone, I've had alot of messages bouncing.My e-mail was over loaded. My computer has been down for a couple of weeks. Had to get a whole new tower, the other one fried. Haven't had a chance to catch up on everything.Hope everyone had a good time in Okie land. Just wanted you to know I'm back. Ann DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

In a message dated 9/5/01 5:05:49 PM Pacific Daylight Time,

biglou5685@... writes:

<< Just

wanted you to know I'm back. Ann

>>

Ann, sorry about your computer, but glad you are back with us now.... I had a

wonderful time in OK... wish I was still there.

Hope you are having a good weekend.

hugs

[Guest guest]

In a message dated 9/5/01 5:05:49 PM Pacific Daylight Time,

biglou5685@... writes:

<< Just

wanted you to know I'm back. Ann

>>

Ann, sorry about your computer, but glad you are back with us now.... I had a

wonderful time in OK... wish I was still there.

Hope you are having a good weekend.

hugs

[Guest guest]

Ann, so sorry to hear about your brother and sister in law... Boy, what a

change from AZ to Ohio... But bet they will feel better being closer to

family...

I had a nice week end too... I didn't do much of anything. LOL Worked in the

yard a little and spent most of today catching up on e mail. Boy that will

teach me not to go away for too long.. LOL

It is cooling off here, only in the 60's tonight...

I talked to my sister tonight.. She lives in the mountains and works for the

forestry dept. The fires are real bad near her... They have had no water for

3 days...Poor thing... I don't know how she does it...although she did say

that the pioneer life was not for her. LOL

Hope you have a great week ahead and you can complain anytime. LOL I do all

the time.

hugs

[Guest guest]

Ann, so sorry to hear about your brother and sister in law... Boy, what a

change from AZ to Ohio... But bet they will feel better being closer to

family...

I had a nice week end too... I didn't do much of anything. LOL Worked in the

yard a little and spent most of today catching up on e mail. Boy that will

teach me not to go away for too long.. LOL

It is cooling off here, only in the 60's tonight...

I talked to my sister tonight.. She lives in the mountains and works for the

forestry dept. The fires are real bad near her... They have had no water for

3 days...Poor thing... I don't know how she does it...although she did say

that the pioneer life was not for her. LOL

Hope you have a great week ahead and you can complain anytime. LOL I do all

the time.

hugs

[Guest guest]

In a message dated 9/9/01 10:20:39 PM Pacific Daylight Time, mokie@...

writes:

<< But here lately my memory is about as long as my finger

nails,(and I bite them)So I forget who was who. >>

Ann, your memory and nails sound just like mine. LOL I Forgot who what who

and we had name tags. LOL

I'm still new to the computer so I don't know where any email bounces to....

don't really want to know..LOL Just want to keep my computer up so I don't

go through withdrawls... Have to keep in touch with all of you or I'd go

crazy...

You had better have your throat checked... does this happen often?? Please

don't wait...Call your dr if it doesn't get any better...

I'm always up late, can't sleep... I've been trying to head up those dreaded

stairs for awhile now and keep sitting here answering mail.... LOL Think a

nice hot bath and a good book might put me to sleep....

Thanks for posting... I just love getting to know all of you...There has been

so many newbies that I have to write you all down.. LOL Like I said my

memory is gone...

I have lists for everything...

Please let me know how your night goes with your breathing and get to your dr

if you are no better or get worse.... AND... if you don't have a medic alert

bracelet... GET ONE!!!!!

lots of hugs from the nagger

[Guest guest]

In a message dated 9/9/01 10:20:39 PM Pacific Daylight Time, mokie@...

writes:

<< But here lately my memory is about as long as my finger

nails,(and I bite them)So I forget who was who. >>

Ann, your memory and nails sound just like mine. LOL I Forgot who what who

and we had name tags. LOL

I'm still new to the computer so I don't know where any email bounces to....

don't really want to know..LOL Just want to keep my computer up so I don't

go through withdrawls... Have to keep in touch with all of you or I'd go

crazy...

You had better have your throat checked... does this happen often?? Please

don't wait...Call your dr if it doesn't get any better...

I'm always up late, can't sleep... I've been trying to head up those dreaded

stairs for awhile now and keep sitting here answering mail.... LOL Think a

nice hot bath and a good book might put me to sleep....

Thanks for posting... I just love getting to know all of you...There has been

so many newbies that I have to write you all down.. LOL Like I said my

memory is gone...

I have lists for everything...

Please let me know how your night goes with your breathing and get to your dr

if you are no better or get worse.... AND... if you don't have a medic alert

bracelet... GET ONE!!!!!

lots of hugs from the nagger

[Guest guest]

Hi , Yes I had a very nice weekend. I saw my brother and

sister-in-law from Arizonia.They aren't in very good health so they are

gonna have to move back to Ohio to be near their kids.My brother has

Parkinsons disease and a diabetic. My sister-in-law has MS.I love seeing

them but I hate to think of them moving back to this cold weather. They were

in a bad accident about 10yrs. ago and my brother has so much metal in him

to hold him together. So this weather does a number on him. well did enough

complaining.Hope your weekend was nice also. Ann

Re: Hello Everyone

> In a message dated 9/5/01 5:05:49 PM Pacific Daylight Time,

> biglou5685@... writes:

>

> << Just

> wanted you to know I'm back. Ann

> >>

> Ann, sorry about your computer, but glad you are back with us now.... I

had a

> wonderful time in OK... wish I was still there.

>

> Hope you are having a good weekend.

>

> hugs

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

Hi , Yes I had a very nice weekend. I saw my brother and

sister-in-law from Arizonia.They aren't in very good health so they are

gonna have to move back to Ohio to be near their kids.My brother has

Parkinsons disease and a diabetic. My sister-in-law has MS.I love seeing

them but I hate to think of them moving back to this cold weather. They were

in a bad accident about 10yrs. ago and my brother has so much metal in him

to hold him together. So this weather does a number on him. well did enough

complaining.Hope your weekend was nice also. Ann

Re: Hello Everyone

> In a message dated 9/5/01 5:05:49 PM Pacific Daylight Time,

> biglou5685@... writes:

>

> << Just

> wanted you to know I'm back. Ann

> >>

> Ann, sorry about your computer, but glad you are back with us now.... I

had a

> wonderful time in OK... wish I was still there.

>

> Hope you are having a good weekend.

>

> hugs

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

, I know what you mean about catching up on the e-mail. When

the tech got my computer up and running he couldn't believe I had over a

1000 e-mails but of course most of them were bouncing around out there some

where. Where ever good e-mails go. (ha! ha!) It sure sounds like everyone

had a good time in OK. I sort of wished I had gone. But I haven't worked

since March and when your use to two incomes you sort of watch the pennys.I

enjoyed the pictures everyone posted.At least now I can put a face to some

of the names. But here lately my memory is about as long as my finger

nails,(and I bite them)So I forget who was who.

I couldn't sleep tonight my throat feels like its closing up when I lay

down.So I'm up on the pc.

Love

Ann

Re: Hello Everyone

> Ann, so sorry to hear about your brother and sister in law... Boy, what a

> change from AZ to Ohio... But bet they will feel better being closer to

> family...

>

> I had a nice week end too... I didn't do much of anything. LOL Worked in

the

> yard a little and spent most of today catching up on e mail. Boy that

will

> teach me not to go away for too long.. LOL

>

> It is cooling off here, only in the 60's tonight...

>

> I talked to my sister tonight.. She lives in the mountains and works for

the

> forestry dept. The fires are real bad near her... They have had no water

for

> 3 days...Poor thing... I don't know how she does it...although she did say

> that the pioneer life was not for her. LOL

>

> Hope you have a great week ahead and you can complain anytime. LOL I do

all

> the time.

>

> hugs

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

, I know what you mean about catching up on the e-mail. When

the tech got my computer up and running he couldn't believe I had over a

1000 e-mails but of course most of them were bouncing around out there some

where. Where ever good e-mails go. (ha! ha!) It sure sounds like everyone

had a good time in OK. I sort of wished I had gone. But I haven't worked

since March and when your use to two incomes you sort of watch the pennys.I

enjoyed the pictures everyone posted.At least now I can put a face to some

of the names. But here lately my memory is about as long as my finger

nails,(and I bite them)So I forget who was who.

I couldn't sleep tonight my throat feels like its closing up when I lay

down.So I'm up on the pc.

Love

Ann

Re: Hello Everyone

> Ann, so sorry to hear about your brother and sister in law... Boy, what a

> change from AZ to Ohio... But bet they will feel better being closer to

> family...

>

> I had a nice week end too... I didn't do much of anything. LOL Worked in

the

> yard a little and spent most of today catching up on e mail. Boy that

will

> teach me not to go away for too long.. LOL

>

> It is cooling off here, only in the 60's tonight...

>

> I talked to my sister tonight.. She lives in the mountains and works for

the

> forestry dept. The fires are real bad near her... They have had no water

for

> 3 days...Poor thing... I don't know how she does it...although she did say

> that the pioneer life was not for her. LOL

>

> Hope you have a great week ahead and you can complain anytime. LOL I do

all

> the time.

>

> hugs

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

, My Rheumy knows about my throat. He has ordered a cat scan for it

and my chest, sinus and anything else he can think of. I've had

electocardiogram,echocardiogram,pulmonary test, and blood work done in the

last couple of weeks. He's trying to find out what all is wrong with me so

he can start treating me for it. He made an appointment with a ENT. for me.

He wants me to go to the Drs. He tells me to go to because he wants to make

sure they are knowledgeable about RP. The ENT he is sending me to, is the

sameone Sandy goes to. But yes if I still have problems I will get ahold of

him. I have his phone number plus his e-mail address.

And you can nag anytime.

Ann

Re: Hello Everyone

> In a message dated 9/9/01 10:20:39 PM Pacific Daylight Time,

mokie@...

> writes:

>

> << But here lately my memory is about as long as my finger

> nails,(and I bite them)So I forget who was who. >>

>

> Ann, your memory and nails sound just like mine. LOL I Forgot who what

who

> and we had name tags. LOL

>

> I'm still new to the computer so I don't know where any email bounces

to....

> don't really want to know..LOL Just want to keep my computer up so I

don't

> go through withdrawls... Have to keep in touch with all of you or I'd go

> crazy...

>

> You had better have your throat checked... does this happen often??

Please

> don't wait...Call your dr if it doesn't get any better...

>

> I'm always up late, can't sleep... I've been trying to head up those

dreaded

> stairs for awhile now and keep sitting here answering mail.... LOL Think

a

> nice hot bath and a good book might put me to sleep....

>

> Thanks for posting... I just love getting to know all of you...There has

been

> so many newbies that I have to write you all down.. LOL Like I said my

> memory is gone...

>

> I have lists for everything...

>

> Please let me know how your night goes with your breathing and get to your

dr

> if you are no better or get worse.... AND... if you don't have a medic

alert

> bracelet... GET ONE!!!!!

>

> lots of hugs from the nagger

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

, My Rheumy knows about my throat. He has ordered a cat scan for it

and my chest, sinus and anything else he can think of. I've had

electocardiogram,echocardiogram,pulmonary test, and blood work done in the

last couple of weeks. He's trying to find out what all is wrong with me so

he can start treating me for it. He made an appointment with a ENT. for me.

He wants me to go to the Drs. He tells me to go to because he wants to make

sure they are knowledgeable about RP. The ENT he is sending me to, is the

sameone Sandy goes to. But yes if I still have problems I will get ahold of

him. I have his phone number plus his e-mail address.

And you can nag anytime.

Ann

Re: Hello Everyone

> In a message dated 9/9/01 10:20:39 PM Pacific Daylight Time,

mokie@...

> writes:

>

> << But here lately my memory is about as long as my finger

> nails,(and I bite them)So I forget who was who. >>

>

> Ann, your memory and nails sound just like mine. LOL I Forgot who what

who

> and we had name tags. LOL

>

> I'm still new to the computer so I don't know where any email bounces

to....

> don't really want to know..LOL Just want to keep my computer up so I

don't

> go through withdrawls... Have to keep in touch with all of you or I'd go

> crazy...

>

> You had better have your throat checked... does this happen often??

Please

> don't wait...Call your dr if it doesn't get any better...

>

> I'm always up late, can't sleep... I've been trying to head up those

dreaded

> stairs for awhile now and keep sitting here answering mail.... LOL Think

a

> nice hot bath and a good book might put me to sleep....

>

> Thanks for posting... I just love getting to know all of you...There has

been

> so many newbies that I have to write you all down.. LOL Like I said my

> memory is gone...

>

> I have lists for everything...

>

> Please let me know how your night goes with your breathing and get to your

dr

> if you are no better or get worse.... AND... if you don't have a medic

alert

> bracelet... GET ONE!!!!!

>

> lots of hugs from the nagger

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

In a message dated 9/9/01 11:12:08 PM Pacific Daylight Time, mokie@...

writes:

<< laudia, My Rheumy knows about my throat. He has ordered a cat scan for it

and my chest, sinus and anything else he can think of. I've had

electocardiogram,echocardiogram,pulmonary test, and blood work done in the

last couple of weeks. He's trying to find out what all is wrong with me so

he can start treating me for it. He made an appointment with a ENT. for me.

He wants me to go to the Drs. He tells me to go to because he wants to make

sure they are knowledgeable about RP. T >>

Ann, sounds like you have one wonderful dr...and he really cares to send you

to the best... As you will find out, I " M one of the worriers of the bunch.

LOL just wanted to make sure you didn't wait too long to get some

treatment...

Let us know what you find out...AND,,, you never answered my

question.......DO you have a medic alert bracelet.?????? Nag Nag!!!! (You

said I could) LOL

hugs

[Guest guest]

In a message dated 9/9/01 11:12:08 PM Pacific Daylight Time, mokie@...

writes:

<< laudia, My Rheumy knows about my throat. He has ordered a cat scan for it

and my chest, sinus and anything else he can think of. I've had

electocardiogram,echocardiogram,pulmonary test, and blood work done in the

last couple of weeks. He's trying to find out what all is wrong with me so

he can start treating me for it. He made an appointment with a ENT. for me.

He wants me to go to the Drs. He tells me to go to because he wants to make

sure they are knowledgeable about RP. T >>

Ann, sounds like you have one wonderful dr...and he really cares to send you

to the best... As you will find out, I " M one of the worriers of the bunch.

LOL just wanted to make sure you didn't wait too long to get some

treatment...

Let us know what you find out...AND,,, you never answered my

question.......DO you have a medic alert bracelet.?????? Nag Nag!!!! (You

said I could) LOL

hugs

[Guest guest]

In a message dated 9/10/01 3:07:41 PM Pacific Daylight Time, mokie@...

writes:

<< . He uped my pretisone and wants me to call

him first thing in the morning. He trying to get my appointment with the ENT

>>

Ann, so glad to hear that your dr is trying to help... Now... don't hesitate

to go to the ER if you get worse....

Let us know what you find out. Will keep you in my prayers.

hugs

[Guest guest]

In a message dated 9/10/01 3:07:41 PM Pacific Daylight Time, mokie@...

writes:

<< . He uped my pretisone and wants me to call

him first thing in the morning. He trying to get my appointment with the ENT

>>

Ann, so glad to hear that your dr is trying to help... Now... don't hesitate

to go to the ER if you get worse....

Let us know what you find out. Will keep you in my prayers.

hugs

[Guest guest]

, My Rheumy called back. He uped my pretisone and wants me to call

him first thing in the morning. He trying to get my appointment with the ENT

moved up to tomorrow. If I have any problems tonight to get to the emergency

room of the Cleveland Clinic. Am going to go lay down for awhile. Thanks so

much for being there.

Hugs,

Ann

Re: Hello Everyone

> In a message dated 9/9/01 11:12:08 PM Pacific Daylight Time,

mokie@...

> writes:

>

> << laudia, My Rheumy knows about my throat. He has ordered a cat scan for

it

> and my chest, sinus and anything else he can think of. I've had

> electocardiogram,echocardiogram,pulmonary test, and blood work done in

the

> last couple of weeks. He's trying to find out what all is wrong with me

so

> he can start treating me for it. He made an appointment with a ENT. for

me.

> He wants me to go to the Drs. He tells me to go to because he wants to

make

> sure they are knowledgeable about RP. T >>

>

> Ann, sounds like you have one wonderful dr...and he really cares to send

you

> to the best... As you will find out, I " M one of the worriers of the bunch.

> LOL just wanted to make sure you didn't wait too long to get some

> treatment...

>

> Let us know what you find out...AND,,, you never answered my

> question.......DO you have a medic alert bracelet.?????? Nag Nag!!!! (You

> said I could) LOL

>

> hugs

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

, My Rheumy called back. He uped my pretisone and wants me to call

him first thing in the morning. He trying to get my appointment with the ENT

moved up to tomorrow. If I have any problems tonight to get to the emergency

room of the Cleveland Clinic. Am going to go lay down for awhile. Thanks so

much for being there.

Hugs,

Ann

Re: Hello Everyone

> In a message dated 9/9/01 11:12:08 PM Pacific Daylight Time,

mokie@...

> writes:

>

> << laudia, My Rheumy knows about my throat. He has ordered a cat scan for

it

> and my chest, sinus and anything else he can think of. I've had

> electocardiogram,echocardiogram,pulmonary test, and blood work done in

the

> last couple of weeks. He's trying to find out what all is wrong with me

so

> he can start treating me for it. He made an appointment with a ENT. for

me.

> He wants me to go to the Drs. He tells me to go to because he wants to

make

> sure they are knowledgeable about RP. T >>

>

> Ann, sounds like you have one wonderful dr...and he really cares to send

you

> to the best... As you will find out, I " M one of the worriers of the bunch.

> LOL just wanted to make sure you didn't wait too long to get some

> treatment...

>

> Let us know what you find out...AND,,, you never answered my

> question.......DO you have a medic alert bracelet.?????? Nag Nag!!!! (You

> said I could) LOL

>

> hugs

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

>

[Guest guest]

Ann,

Hope everything goes well. Just know that you are being prayed for in Cincinnati. Cathy

Re: Hello Everyone> In a message dated 9/9/01 11:12:08 PM Pacific Daylight Time,mokie@...> writes:>> << laudia, My Rheumy knows about my throat. He has ordered a cat scan forit> and my chest, sinus and anything else he can think of. I've had> electocardiogram,echocardiogram,pulmonary test, and blood work done inthe> last couple of weeks. He's trying to find out what all is wrong with meso> he can start treating me for it. He made an appointment with a ENT. forme.> He wants me to go to the Drs. He tells me to go to because he wants tomake> sure they are knowledgeable about RP. T >>>> Ann, sounds like you have one wonderful dr...and he really cares to sendyou> to the best... As you will find out, I"M one of the worriers of the bunch.> LOL just wanted to make sure you didn't wait too long to get some> treatment...>> Let us know what you find out...AND,,, you never answered my> question.......DO you have a medic alert bracelet.?????? Nag Nag!!!! (You> said I could) LOL>> hugs> >>> DISCLAIMER!!> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT ISRECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTORBEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOURPHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT ANDTREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU>>

[Guest guest]

Ann,

Hope everything goes well. Just know that you are being prayed for in Cincinnati. Cathy

Re: Hello Everyone> In a message dated 9/9/01 11:12:08 PM Pacific Daylight Time,mokie@...> writes:>> << laudia, My Rheumy knows about my throat. He has ordered a cat scan forit> and my chest, sinus and anything else he can think of. I've had> electocardiogram,echocardiogram,pulmonary test, and blood work done inthe> last couple of weeks. He's trying to find out what all is wrong with meso> he can start treating me for it. He made an appointment with a ENT. forme.> He wants me to go to the Drs. He tells me to go to because he wants tomake> sure they are knowledgeable about RP. T >>>> Ann, sounds like you have one wonderful dr...and he really cares to sendyou> to the best... As you will find out, I"M one of the worriers of the bunch.> LOL just wanted to make sure you didn't wait too long to get some> treatment...>> Let us know what you find out...AND,,, you never answered my> question.......DO you have a medic alert bracelet.?????? Nag Nag!!!! (You> said I could) LOL>> hugs> >>> DISCLAIMER!!> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT ISRECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTORBEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOURPHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT ANDTREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU>>

[Guest guest]

My Rheumy knows about my throat. He has ordered a cat scan for it

and my chest, sinus and anything else he can think of. I've had

electocardiogram,echocardiogram,pulmonary test, and blood work done in the

last couple of weeks. He's trying to find out what all is wrong with me so

he can start treating me for it. He made an appointment with a ENT. for me.

He wants me to go to the Drs. He tells me to go to because he wants to make

sure they are knowledgeable about RP. T >>

Ann, who is your doctor? He sounds great! We need to make a list of good doctors for those who are looking for doctors.

Lu

[Guest guest]

My Rheumy knows about my throat. He has ordered a cat scan for it

and my chest, sinus and anything else he can think of. I've had

electocardiogram,echocardiogram,pulmonary test, and blood work done in the

last couple of weeks. He's trying to find out what all is wrong with me so

he can start treating me for it. He made an appointment with a ENT. for me.

He wants me to go to the Drs. He tells me to go to because he wants to make

sure they are knowledgeable about RP. T >>

Ann, who is your doctor? He sounds great! We need to make a list of good doctors for those who are looking for doctors.

Lu

[Guest guest]

,

hey!!! I am so glad things are looking good your way. Your post made me so upset, I hope that someone didn't say something wrong. I think you are such a sweet & strong woman, and who cares if you don't post!!!! Heck, my Mom is so weak she can't go to the restroom alone. She is still on 1000 mg of predisone. So she never posts, and some days or good then others. Well I am so glad to see you back, I am thinking of you everyday. There are so many nice people on this board and I pray everyday for all of you. I can't stand to see this diease eating my mother away. She is no longer the same, and I guess she won't be. I just cry and pray for a miracle. I forgot my id and code, so I need a new one. Well I will start writing back after my surgery the 20th. I'll tell you later about that. Well I need to go and get some stuff for Mom. I now take care of her everyday, and went to a eye doctor yesterday. I am so tired after doing things don't seem to have time for this computer. But I know in my heart things will soon get back to normal......Well it has to or I will be typing from a mental ward LOL love always,

Kim

Kathie,

Thanks so much for checking on my Mom. You are so sweet and cried when I saw your posting. I thought man they still remember me...... Mom has switched doctors, Dr. Trentham emailed me a new doctor in Houston. His name is Dr. Joe Spindler Mom just loves him, and now we are hoping for some results. They are worried about the aortica valve, and throat are running test. She is super weak, with all the medicine, and some days she has flares in different parts. She is on alot of medicine can't seem to know them except do know 1000 mg predosone. I'll type them later. I am running crazy....taking care of Mom, Christmas shopping, I am having surgery the 20th, my poor husband has learned to eat fast food regular LOL. I am praying for a miracle and we need one soon before I am in a mental ward . I know I sound crazy, but starting to become it. Will try to keep you updated if you don't hear from me, I will be in Houston for my surgery, and will type back when I get back. Do know I pray for all of you everyday.

PS Glenda you always make me laugh you are too funny

Love all of ya,

Kim

Also wanted to send that guy who was in the hospital a card, forgot his name, how do I get the address. I was praying for him.