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welcome denise, comparatively, i hear way more good about pregnancy after WLS

then bad. i got pregnant 2 months after WLS (had WLS 6 months ago and am 4

months pregnant) and it's not bad, jsut a lot of morning sickness, which i had

with my first son as well. i'm starting to get low on my labs, but that's from

morning sickness. good luck with conceiving nad welcome to the group.

aka mom2ben99 (jennilee75@...)

Kay Independent Beauty Consultant

http://www.marykay.com/koopmans

I have all your summer care needs...tanning lotion, sunblock, even sunblock for

your lips, get yours today!

Introduction

Hi Everyone~

My name is . I am married to and we have 3 daughters. Ages

17.5, 12, and 10. I'm 41 and live in Minnesota. I had WLS on 2.13.04 and I

just went off the pill. I had my tubes tied in 1994 and reversed in 2000.

We've conceived 3 times since my reversal but have miscarried. We would like

to

have another baby as soon as possible. I NEED to hear success stories. Seems

all I ever hear about WLS and pregnancy is negative.

Looking forward to getting to know you all.

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welcome denise, comparatively, i hear way more good about pregnancy after WLS

then bad. i got pregnant 2 months after WLS (had WLS 6 months ago and am 4

months pregnant) and it's not bad, jsut a lot of morning sickness, which i had

with my first son as well. i'm starting to get low on my labs, but that's from

morning sickness. good luck with conceiving nad welcome to the group.

aka mom2ben99 (jennilee75@...)

Kay Independent Beauty Consultant

http://www.marykay.com/koopmans

I have all your summer care needs...tanning lotion, sunblock, even sunblock for

your lips, get yours today!

Introduction

Hi Everyone~

My name is . I am married to and we have 3 daughters. Ages

17.5, 12, and 10. I'm 41 and live in Minnesota. I had WLS on 2.13.04 and I

just went off the pill. I had my tubes tied in 1994 and reversed in 2000.

We've conceived 3 times since my reversal but have miscarried. We would like

to

have another baby as soon as possible. I NEED to hear success stories. Seems

all I ever hear about WLS and pregnancy is negative.

Looking forward to getting to know you all.

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welcome peter, I have the same issues as you. depending on how bad the

midline is off will determine if it can be manipulated. it's good you

caught it early as the bones haven't healed yet. my midline was off by

3mm at first but was due partly from the maxilla not being level. I

also mentioned it at my first post-op and the doc downplayed it. he

changed me to only banding on one side for a week but that did no good

so he put a band like yours at 45 degrees. after one week it has

tipped my maxilla so that the midline is now about 1mm off. the good

news is if it can heal in this position i'll at least be able to chew

somewhat normally. the bad news is i'll have to be banded for 8 weeks

total to ensure the bones have healed and then wait another week to

see if it stays. this was his second attempt at getting the maxilla

right so if this doesn't work needless to say i'll be searching for

another OS. the good news for you is if your maxilla needs to be

redone the recovery is much easier than both upper and lower. while

the midline is only aesthetic small corrections can be done with

orthodontia. did you say if you had braces? have you talked to your

orthodontist about this? good luck/eric

>

> Hello,

>

> I thought I'd introduce myself to the group before posting anything

> else.

>

> I'm a male in my early thirties who underwent a bimaxilliary

> osteotomy including bone harvesting (for the maxillar) from my hip.

> I am approximately two-weeks post-op.

>

> I experienced most of the unpleasant symptoms in the first post-op

> week, i.e. drooling, pain from the naso-gastric tube, weird dreams

> and constipation from the analgesics, complete nasal congestion,

> anxiety etc.

>

> I am now -- only two weeks post-op -- much better. My current

> symptoms are slight swelling and minor facial and hip discomfort.

>

> I have had a discouraging set-back today. It appears that my

maxilla

> is slightly rotated to the left such that my two incissors (big

front

> teeth) do not meet precisely at the mid-line of my face. The

surgeon

> is not sure whether this happened post-op or after the plates were

> applied. I noticed this three-days post-op but I thought it was

just

> an illusion from the swelling of my lips so I said nothing of it.

My

> mistake, but then again the surgeon didn't notice it either so it

> wouldn't be fair to castigate myself.

>

> I now have four bands that run at 45-degree angles from

top-to-bottom

> jaws to try and rotate the maxillar (in addition to the vertical

> bands). The surgeon says this should

> correct the problem within two-weeks. I am informed that there is a

> small chance that I may have to re-opened to correct the problem (if

> the band don't fix it). This is a blow to me since I have been

> making such good progress. Hopefully there will be now need for

> further surgery. Has anyone had a similar experience?

>

> Also, I'd like to add that I have not lost any weight. It is

> possible. I'm a very inventive blender cook and I make extensive

use

> of nutritional supplements. If anyone wants the details please let

> me know.

>

> Best regards

>

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welcome peter, I have the same issues as you. depending on how bad the

midline is off will determine if it can be manipulated. it's good you

caught it early as the bones haven't healed yet. my midline was off by

3mm at first but was due partly from the maxilla not being level. I

also mentioned it at my first post-op and the doc downplayed it. he

changed me to only banding on one side for a week but that did no good

so he put a band like yours at 45 degrees. after one week it has

tipped my maxilla so that the midline is now about 1mm off. the good

news is if it can heal in this position i'll at least be able to chew

somewhat normally. the bad news is i'll have to be banded for 8 weeks

total to ensure the bones have healed and then wait another week to

see if it stays. this was his second attempt at getting the maxilla

right so if this doesn't work needless to say i'll be searching for

another OS. the good news for you is if your maxilla needs to be

redone the recovery is much easier than both upper and lower. while

the midline is only aesthetic small corrections can be done with

orthodontia. did you say if you had braces? have you talked to your

orthodontist about this? good luck/eric

>

> Hello,

>

> I thought I'd introduce myself to the group before posting anything

> else.

>

> I'm a male in my early thirties who underwent a bimaxilliary

> osteotomy including bone harvesting (for the maxillar) from my hip.

> I am approximately two-weeks post-op.

>

> I experienced most of the unpleasant symptoms in the first post-op

> week, i.e. drooling, pain from the naso-gastric tube, weird dreams

> and constipation from the analgesics, complete nasal congestion,

> anxiety etc.

>

> I am now -- only two weeks post-op -- much better. My current

> symptoms are slight swelling and minor facial and hip discomfort.

>

> I have had a discouraging set-back today. It appears that my

maxilla

> is slightly rotated to the left such that my two incissors (big

front

> teeth) do not meet precisely at the mid-line of my face. The

surgeon

> is not sure whether this happened post-op or after the plates were

> applied. I noticed this three-days post-op but I thought it was

just

> an illusion from the swelling of my lips so I said nothing of it.

My

> mistake, but then again the surgeon didn't notice it either so it

> wouldn't be fair to castigate myself.

>

> I now have four bands that run at 45-degree angles from

top-to-bottom

> jaws to try and rotate the maxillar (in addition to the vertical

> bands). The surgeon says this should

> correct the problem within two-weeks. I am informed that there is a

> small chance that I may have to re-opened to correct the problem (if

> the band don't fix it). This is a blow to me since I have been

> making such good progress. Hopefully there will be now need for

> further surgery. Has anyone had a similar experience?

>

> Also, I'd like to add that I have not lost any weight. It is

> possible. I'm a very inventive blender cook and I make extensive

use

> of nutritional supplements. If anyone wants the details please let

> me know.

>

> Best regards

>

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I do know that some folks have had mismatched midlines -- me

included, but my docs say mine is because I have different size

teeth, upper and lower, and because I have lost different numbers of

teeth on the left and on the right, and just not to worry about it.

There have been others with this trouble whose orthos indeed were

able to work wonders, bringing the midlines together. Still others

have had to have a second surgery, which is generally conceded to be

easier than the first -- perhaps because one knows what to expect.

I do not remember anyone having specifically mentioned maxillary

rotation in this context, but I could be mistaken about that.

Good wishes to you. It must indeed be frustrating, and I hope that

the elastics do their thing for you!

Cammie

>

> Hello,

>

> I thought I'd introduce myself to the group before posting anything

> else.

>

> I'm a male in my early thirties who underwent a bimaxilliary

> osteotomy including bone harvesting (for the maxillar) from my hip.

> I am approximately two-weeks post-op.

>

> I experienced most of the unpleasant symptoms in the first post-op

> week, i.e. drooling, pain from the naso-gastric tube, weird dreams

> and constipation from the analgesics, complete nasal congestion,

> anxiety etc.

>

> I am now -- only two weeks post-op -- much better. My current

> symptoms are slight swelling and minor facial and hip discomfort.

>

> I have had a discouraging set-back today. It appears that my

maxilla

> is slightly rotated to the left such that my two incissors (big

front

> teeth) do not meet precisely at the mid-line of my face. The

surgeon

> is not sure whether this happened post-op or after the plates were

> applied. I noticed this three-days post-op but I thought it was

just

> an illusion from the swelling of my lips so I said nothing of it.

My

> mistake, but then again the surgeon didn't notice it either so it

> wouldn't be fair to castigate myself.

>

> I now have four bands that run at 45-degree angles from top-to-

bottom

> jaws to try and rotate the maxillar (in addition to the vertical

> bands). The surgeon says this should

> correct the problem within two-weeks. I am informed that there is

a

> small chance that I may have to re-opened to correct the problem

(if

> the band don't fix it). This is a blow to me since I have been

> making such good progress. Hopefully there will be now need for

> further surgery. Has anyone had a similar experience?

>

> Also, I'd like to add that I have not lost any weight. It is

> possible. I'm a very inventive blender cook and I make extensive

use

> of nutritional supplements. If anyone wants the details please let

> me know.

>

> Best regards

>

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Guest guest

I do know that some folks have had mismatched midlines -- me

included, but my docs say mine is because I have different size

teeth, upper and lower, and because I have lost different numbers of

teeth on the left and on the right, and just not to worry about it.

There have been others with this trouble whose orthos indeed were

able to work wonders, bringing the midlines together. Still others

have had to have a second surgery, which is generally conceded to be

easier than the first -- perhaps because one knows what to expect.

I do not remember anyone having specifically mentioned maxillary

rotation in this context, but I could be mistaken about that.

Good wishes to you. It must indeed be frustrating, and I hope that

the elastics do their thing for you!

Cammie

>

> Hello,

>

> I thought I'd introduce myself to the group before posting anything

> else.

>

> I'm a male in my early thirties who underwent a bimaxilliary

> osteotomy including bone harvesting (for the maxillar) from my hip.

> I am approximately two-weeks post-op.

>

> I experienced most of the unpleasant symptoms in the first post-op

> week, i.e. drooling, pain from the naso-gastric tube, weird dreams

> and constipation from the analgesics, complete nasal congestion,

> anxiety etc.

>

> I am now -- only two weeks post-op -- much better. My current

> symptoms are slight swelling and minor facial and hip discomfort.

>

> I have had a discouraging set-back today. It appears that my

maxilla

> is slightly rotated to the left such that my two incissors (big

front

> teeth) do not meet precisely at the mid-line of my face. The

surgeon

> is not sure whether this happened post-op or after the plates were

> applied. I noticed this three-days post-op but I thought it was

just

> an illusion from the swelling of my lips so I said nothing of it.

My

> mistake, but then again the surgeon didn't notice it either so it

> wouldn't be fair to castigate myself.

>

> I now have four bands that run at 45-degree angles from top-to-

bottom

> jaws to try and rotate the maxillar (in addition to the vertical

> bands). The surgeon says this should

> correct the problem within two-weeks. I am informed that there is

a

> small chance that I may have to re-opened to correct the problem

(if

> the band don't fix it). This is a blow to me since I have been

> making such good progress. Hopefully there will be now need for

> further surgery. Has anyone had a similar experience?

>

> Also, I'd like to add that I have not lost any weight. It is

> possible. I'm a very inventive blender cook and I make extensive

use

> of nutritional supplements. If anyone wants the details please let

> me know.

>

> Best regards

>

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> Good wishes to you. It must indeed be frustrating, and I hope that

> the elastics do their thing for you!

Success! It's been only nine days (the first five quite painful) but

the midline of my teeth now matches the midline of my lip!

If there is a lesson in this its to take an interest in your mouth

and examine your teeth (without causing pain to yourself) and report

any anomalies to your orthodontist and surgeon.

-

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> Good wishes to you. It must indeed be frustrating, and I hope that

> the elastics do their thing for you!

Success! It's been only nine days (the first five quite painful) but

the midline of my teeth now matches the midline of my lip!

If there is a lesson in this its to take an interest in your mouth

and examine your teeth (without causing pain to yourself) and report

any anomalies to your orthodontist and surgeon.

-

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Welcome . My name is Sue Ann and I have a 3 1/2 year old boy. Who

until 2 weeks ago was scooting around the house (and even has a bald

spot to prove it), but to our pleasant surprise he took his first steps

and now loves to practice walking with his walker. My son is also g-tube

fed and uses a bi-pap to breath at night. It's hard to say what his

cognitive level is -- is deaf and we use sign with him but he

doesn't have the hand/arm control necessary to sign back to us. However,

I know he is a smart boy. He has special switches in his bedroom that

allows him to turn on his bedroom light and some of his toys. He knows

what each switch does and can activate them on command.

Well -- I wish you the best -- this is a great group with many different

experiences.

Sue Ann Bube

President, UMDF Indiana

Introduction

Hi,My name is . I'm mom to 3 kids which includes my 5 yos who

we believe has a mitochondrial disorder. I had a typical pregnancy

with except the morning sickness was worse with him out of my 3

pregnancies. He delivered normally and he had no issues other than

mild jaundice(all 3 of my kids were mildly jaundiced the first week

because they were breastfed)

I " think " hit his first milestones from 0-4 months. I " think "

he maintained eye contact, and gave us a social smile and picked up

his head. Its difficult to trust my memory in those first months but

I don't recall being concerned. started rolling around 4

months so when had trouble sitting up or others issues I just thought

it was because he wanted to roll. I started having trouble nursing

him after 4 months. But I was pregnant and didn't know it so of

course he wouldn't get enough food from me anyway. knew I was

pregnant before I did:)

I took for his 6 month check-up and my world was blown apart.

I mentioned my mild concerns and the doc measured Chris's head. It

hadn't grown since the 4 mo check-up. He wasn't sitting up at the

time but he was STILL rolling. I incorrectly thought he wasn't

sitting up because he didn't want to. I thought he just wanted to

move around. He had an MRI which showed the frontal lobe of his

brain had atrophied and had decreased mylenation(?SP).

I'll skip ahead to today or I'll write forever. is an

extremely happy 5 yo boy. He's globally delayed at the dev age of 6

months. He has low muscle tone throughout his body including his

internal muscles(GI tract etc). can't walk or speak. He's

been Gtube fed for 2 1/2 years and has had seizures for 3 years. He

has visual cortical impairment, cerebral palsy & poor regulation of

his body temperature. And his primary means of getting around when

not in equipment is still rolling:)

has been tested for soooo many things. Lots of bloodwork and

urine tests,MRIs & other numerous scans,lumbar punctures,muscle &

skin biopsies & probably more than I can't recall. Every test come

back essentially normal. Occasionally a test may be slightly off but

they aren't sure it means anything or if it's his diet.

His genetics doctor & neurologist both think it's a

metabolic/mitochondrial disorder. The latest tests are still pending.

With all Chris's medical issues he's still the happiest of my 3

kids. He has a 7 yob and almost 4 yos who both are in excellent

health. My 7 yo is defintely ADHD and has some behavior issues but

his health is fine. My daughter is fine but she's also a hyper kid.

Three high energy kids equals one tired mom-LOL

I'd better go now. My 7 yo's bus will be here soon and I promised to

read my daughter a story before he gets here. She's pouting:(

I just thought I should introduce myself since I joined over a month

ago.

Blessings,

Please contact mito-owner with any problems or

questions.

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Welcome . My name is Sue Ann and I have a 3 1/2 year old boy. Who

until 2 weeks ago was scooting around the house (and even has a bald

spot to prove it), but to our pleasant surprise he took his first steps

and now loves to practice walking with his walker. My son is also g-tube

fed and uses a bi-pap to breath at night. It's hard to say what his

cognitive level is -- is deaf and we use sign with him but he

doesn't have the hand/arm control necessary to sign back to us. However,

I know he is a smart boy. He has special switches in his bedroom that

allows him to turn on his bedroom light and some of his toys. He knows

what each switch does and can activate them on command.

Well -- I wish you the best -- this is a great group with many different

experiences.

Sue Ann Bube

President, UMDF Indiana

Introduction

Hi,My name is . I'm mom to 3 kids which includes my 5 yos who

we believe has a mitochondrial disorder. I had a typical pregnancy

with except the morning sickness was worse with him out of my 3

pregnancies. He delivered normally and he had no issues other than

mild jaundice(all 3 of my kids were mildly jaundiced the first week

because they were breastfed)

I " think " hit his first milestones from 0-4 months. I " think "

he maintained eye contact, and gave us a social smile and picked up

his head. Its difficult to trust my memory in those first months but

I don't recall being concerned. started rolling around 4

months so when had trouble sitting up or others issues I just thought

it was because he wanted to roll. I started having trouble nursing

him after 4 months. But I was pregnant and didn't know it so of

course he wouldn't get enough food from me anyway. knew I was

pregnant before I did:)

I took for his 6 month check-up and my world was blown apart.

I mentioned my mild concerns and the doc measured Chris's head. It

hadn't grown since the 4 mo check-up. He wasn't sitting up at the

time but he was STILL rolling. I incorrectly thought he wasn't

sitting up because he didn't want to. I thought he just wanted to

move around. He had an MRI which showed the frontal lobe of his

brain had atrophied and had decreased mylenation(?SP).

I'll skip ahead to today or I'll write forever. is an

extremely happy 5 yo boy. He's globally delayed at the dev age of 6

months. He has low muscle tone throughout his body including his

internal muscles(GI tract etc). can't walk or speak. He's

been Gtube fed for 2 1/2 years and has had seizures for 3 years. He

has visual cortical impairment, cerebral palsy & poor regulation of

his body temperature. And his primary means of getting around when

not in equipment is still rolling:)

has been tested for soooo many things. Lots of bloodwork and

urine tests,MRIs & other numerous scans,lumbar punctures,muscle &

skin biopsies & probably more than I can't recall. Every test come

back essentially normal. Occasionally a test may be slightly off but

they aren't sure it means anything or if it's his diet.

His genetics doctor & neurologist both think it's a

metabolic/mitochondrial disorder. The latest tests are still pending.

With all Chris's medical issues he's still the happiest of my 3

kids. He has a 7 yob and almost 4 yos who both are in excellent

health. My 7 yo is defintely ADHD and has some behavior issues but

his health is fine. My daughter is fine but she's also a hyper kid.

Three high energy kids equals one tired mom-LOL

I'd better go now. My 7 yo's bus will be here soon and I promised to

read my daughter a story before he gets here. She's pouting:(

I just thought I should introduce myself since I joined over a month

ago.

Blessings,

Please contact mito-owner with any problems or

questions.

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,

Welcome aboard!!! Glad you are here, but sorry you need to be. I

laugh when you said that with his medical problems he is still your

happiest child... that is my daughter. She has so many things wrong

with her (bone marrow failure, autism, and on and on,) but she just

is really so very happy. She really never complains even when you

know she is really very sick.

Well, anyways, welcome again, Dawn

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,

Welcome aboard!!! Glad you are here, but sorry you need to be. I

laugh when you said that with his medical problems he is still your

happiest child... that is my daughter. She has so many things wrong

with her (bone marrow failure, autism, and on and on,) but she just

is really so very happy. She really never complains even when you

know she is really very sick.

Well, anyways, welcome again, Dawn

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Welcome to the group. I am glad you introduced yourself and told us

about your child. Feel free to ask any questions as the women on this group

have a wealth of info as you probably already know.

My youngest daughter, Zipporrah, also started having major nursing

difficulty at 4 months and the docs told me it was because that is

approximately the age where the infant's sucking reflex leaves. By this

point baby's usually understand sucking gets them the food they desire, but

to those who find it too tiring or hard, it is just too much work for the

benefit. They suck shortly or improperly and then give up. Our daughter

ended up needing the NG-tube by 4 1/2 months and the G-tube by the time she

was 6 months.

I am sorry it has been a hard struggle for the past several years. It

seems like it takes forever for the docs to figure out what is wrong with

out kids sometimes. Hope your answers will come quick. :)

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Introduction

>

>

>

> Hi,My name is . I'm mom to 3 kids which includes my 5 yos who

> we believe has a mitochondrial disorder. I had a typical pregnancy

> with except the morning sickness was worse with him out of my 3

> pregnancies. He delivered normally and he had no issues other than

> mild jaundice(all 3 of my kids were mildly jaundiced the first week

> because they were breastfed)

> I " think " hit his first milestones from 0-4 months. I " think "

> he maintained eye contact, and gave us a social smile and picked up

> his head. Its difficult to trust my memory in those first months but

> I don't recall being concerned. started rolling around 4

> months so when had trouble sitting up or others issues I just thought

> it was because he wanted to roll. I started having trouble nursing

> him after 4 months. But I was pregnant and didn't know it so of

> course he wouldn't get enough food from me anyway. knew I was

> pregnant before I did:)

> I took for his 6 month check-up and my world was blown apart.

> I mentioned my mild concerns and the doc measured Chris's head. It

> hadn't grown since the 4 mo check-up. He wasn't sitting up at the

> time but he was STILL rolling. I incorrectly thought he wasn't

> sitting up because he didn't want to. I thought he just wanted to

> move around. He had an MRI which showed the frontal lobe of his

> brain had atrophied and had decreased mylenation(?SP).

> I'll skip ahead to today or I'll write forever. is an

> extremely happy 5 yo boy. He's globally delayed at the dev age of 6

> months. He has low muscle tone throughout his body including his

> internal muscles(GI tract etc). can't walk or speak. He's

> been Gtube fed for 2 1/2 years and has had seizures for 3 years. He

> has visual cortical impairment, cerebral palsy & poor regulation of

> his body temperature. And his primary means of getting around when

> not in equipment is still rolling:)

> has been tested for soooo many things. Lots of bloodwork and

> urine tests,MRIs & other numerous scans,lumbar punctures,muscle &

> skin biopsies & probably more than I can't recall. Every test come

> back essentially normal. Occasionally a test may be slightly off but

> they aren't sure it means anything or if it's his diet.

> His genetics doctor & neurologist both think it's a

> metabolic/mitochondrial disorder. The latest tests are still pending.

> With all Chris's medical issues he's still the happiest of my 3

> kids. He has a 7 yob and almost 4 yos who both are in excellent

> health. My 7 yo is defintely ADHD and has some behavior issues but

> his health is fine. My daughter is fine but she's also a hyper kid.

> Three high energy kids equals one tired mom-LOL

> I'd better go now. My 7 yo's bus will be here soon and I promised to

> read my daughter a story before he gets here. She's pouting:(

> I just thought I should introduce myself since I joined over a month

> ago.

> Blessings,

>

>

>

>

>

>

>

>

>

>

>

>

> Please contact mito-owner with any problems or questions.

>

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,

sounds alot like my son Lucas. Lucas is 8.5 yrs old. He has a cognitive level of 6 months, severe GI issues(J-tube fed since 4 yrs of age), cortical visual impairment, learned to walk when 4 yrs old, does not talk, has delayed myelination per MRI, abnormal EEG (on seizure meds but no clinical seizures), abnormal nonspecific muscle biopsy suggestive of mito.. My pregnancy with him included morning sickness whereas my prior pregnancy with my twins was without. Fortunately the geneticist may have discovered a piece of the puzzle as he just recently uncovered a mild defect in long chain fatty acid oxidation. He still thinks it is a mito disorder, too. Lucas' older brothers who are 12 yrs old (twins) both have ADHD. One has been on meds since 1st grade (now 7th grade) and he has not had very good success with finding medication that works. Hang in there I'm sure we are not alone with 3 time consuming children a

piece. Loriannnu12002 wrote:

Hi,My name is . I'm mom to 3 kids which includes my 5 yos whowe believe has a mitochondrial disorder. I had a typical pregnancywith except the morning sickness was worse with him out of my 3pregnancies. He delivered normally and he had no issues other thanmild jaundice(all 3 of my kids were mildly jaundiced the first weekbecause they were breastfed)I "think" hit his first milestones from 0-4 months. I "think"he maintained eye contact, and gave us a social smile and picked uphis head. Its difficult to trust my memory in those first months butI don't recall being concerned. started rolling around 4months so when had trouble sitting up or others issues I just thoughtit was because he wanted to roll. I started having trouble nursinghim after 4 months. But I was pregnant and didn't know it so ofcourse he

wouldn't get enough food from me anyway. knew I waspregnant before I did:)I took for his 6 month check-up and my world was blown apart.I mentioned my mild concerns and the doc measured Chris's head. Ithadn't grown since the 4 mo check-up. He wasn't sitting up at thetime but he was STILL rolling. I incorrectly thought he wasn'tsitting up because he didn't want to. I thought he just wanted tomove around. He had an MRI which showed the frontal lobe of hisbrain had atrophied and had decreased mylenation(?SP).I'll skip ahead to today or I'll write forever. is anextremely happy 5 yo boy. He's globally delayed at the dev age of 6months. He has low muscle tone throughout his body including hisinternal muscles(GI tract etc). can't walk or speak. He'sbeen Gtube fed for 2 1/2 years and has had seizures for 3 years. Hehas visual cortical impairment, cerebral palsy & poor regulation ofhis body

temperature. And his primary means of getting around whennot in equipment is still rolling:)has been tested for soooo many things. Lots of bloodwork andurine tests,MRIs & other numerous scans,lumbar punctures,muscle & skin biopsies & probably more than I can't recall. Every test comeback essentially normal. Occasionally a test may be slightly off butthey aren't sure it means anything or if it's his diet.His genetics doctor & neurologist both think it's ametabolic/mitochondrial disorder. The latest tests are still pending.With all Chris's medical issues he's still the happiest of my 3kids. He has a 7 yob and almost 4 yos who both are in excellenthealth. My 7 yo is defintely ADHD and has some behavior issues buthis health is fine. My daughter is fine but she's also a hyper kid.Three high energy kids equals one tired mom-LOLI'd better go now. My 7 yo's bus will be here soon and I promised toread my

daughter a story before he gets here. She's pouting:(I just thought I should introduce myself since I joined over a monthago.Blessings,

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Hi Marie, Welcome to our group. I have heard too that high lactate is a

hallmark ofo mito. My son doesn't have this so I can't shed light on that

issue. But, regarding the regression, has only regressed twice

during acute illnesses. Both times he was under 1 1/2 years. He has been

surprisingly healthy since then--no hospital admissions, no pneumonias, etc.

He makes painfully slow developmental progress like your son. He is 5 1/2

and is bearing some weight and taking a few steps with assistance. He just

learned his first sign (more). He is now much more socially responsive

(lights up when I am around----I couldn't wait for that!). I asked two

different mito specialists about life span given my son's constellation of

symptoms (hypotonia, mental retardation, GERD, some visual issues). Neither

would give us details as they simply don't know. When I really pressed the

issue with Bruce Barshop in San Diego, he said he felt that he would start

to have " crises " during the second decade of life. :I guess the way I

understand it is lifespan is " compromised " ---he will not lead as long a life

as he would without mito. On the other hand, they do not feel death is

imminent--typically if the child is very ill, he/she will continue to be

very ill or worse. If the child is fairly healthy, he/she will continue to

be fairly healthy. I hope this helps! There are many on the list with more

expertise than I have. But, I understand the need to know and understand.

Lori and (5 1/2, complex I and IV)

Introduction

>

>

>

> I am the mom to a 4 1/2 years old boy. My son was born prematurely

> (33 weeks) and pretty sick (pneumonia, sepsis, etc.). He spend 53

> days in NICU and was re-hospitalized at 4 months with RSV in PICU for

> another 54 days. He was discharged on oxigen for 3 months. Given

> his birth story and complications during his first months of life,

> his pediatrician as well as his neurologist think that his

> developmental delays and hearing loss are the result of this. He has

> been diagnosed with extrapiramidal Cerebral Palsy since he does not

> show the commonly CP symptoms of spasticity and seizure. Instead he

> is hypotonic and has some choreoathetoid movements. This diagnosis

> is not definite since his developmental pediatrician and geneticist

> think that a metabolic disease might be involved.

>

> Of all the metabolic and genetic tests done to my son the only one

> that has come back with abnormal results has been the lactate blood

> test and pyruvate blood test, therefore, his P/L ratio is way out of

> range. This tests has been done three times and the results of the

> three tests has not been normal although they have not been

> consistent either. The first test results were High lactate, normal

> pyruvate. The second one results were normal lactate, low pyruvate.

> And the third test results done recently were high lactate, low

> pyruvate. I have read a lot about this tests and how difficult it

> is to have an true results given the fact that not all laboratories

> personnel take the sample and manage it appropriately. The three

> tests done to my son were on the same laboratory.

>

> On our last appointment with the geneticist he order to repeat the

> pyruvate and lactate tests (the third ones) and said that if the

> results were not normal he would start my son in a diet and

> supplements. Our next appoinment to bring in the results is in a

> couple of weeks.

>

> I have searched the net looking for information on these results but

> so far there is not so much information regarding them

> specifically. One thing I read was that high lactate leves is

> a " hallmark " of mitochondrial disease. Hence I joined this group to

> try and learn the most I can regarding mito disease and the possible

> diagnosis of my son. I would greatly appreciate if anyone can shred

> some light on the lactate/pyruvate levels and its relationship with

> mito disease. Also would like to know if all mito diseases are

> deadly sooner or later, I have read so many sad stories that right

> now I am extremely worry about my son's future. Some of

> the " symptoms " that my son shows that might fit a mito diagnosis

> are his developmental delays, hypotonia, choreathetoid movements,

> profound hearing loss, lung problems (chronic asthma), gerd. However

> all those symptoms could also be related to his prematurity and

> neonatal complications. He has always fed well and has not have

> problems gaining weight ever. He has been improving over the years

> with a lot of physical, occupational and speech therapy although his

> progress has been painfully slow. He has never experienced a

> regression on the skills acquired with therapy.

>

> Regards,

>

> Marie

>

>

>

>

>

>

>

>

>

>

>

>

> Please contact mito-owner with any problems or questions.

>

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Welcome to the group Marie. I don't know much about the bloodwork, sorry. I just wanted to say hi. Also I noticed you mentioned reading alot of info about mito. I was warned about this rather early. There are many places to find info on the web, but many are not giving correct info about mito. Gracies mito doc reccomended only reading what is on the UMDF's website, but not too deeply. Yes, you need to understand your childs condition but remember the docs know very little about the disease themselves. If a doctor tells you a prediction on your childs health in detail, odds are they are not credible. Yes, many forms of mito are fatal, some very early on in life but there are many kids in this group who have beaten so many odds. We did not think our little girl would make it very long when she was first diagnosed. Now she is a very active 2 1/2 year old. Of course she has issues, but the person walking down the road would never be able to tell that she is sick. Mito is a very nasty disease, no doubt, but it is not always a death sentence.

Best wishes

With MSN Hotmail's Photo Upload Tool preview and edit pictures before you email them!

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I don't think I can actually be of much help to you but I just

wanted to say Hi and welcome to the group. My son (3 1/2) has also had

high lactates a couple of times and was diagnosed with mito by muscle

biopsy. He also has developmental delays, hypotonia, gerd, and no

speech. He does have regressions with illnesses.

I am the mom to a 4 1/2 years old

boy. My son was born prematurely

(33 weeks) and pretty sick (pneumonia, sepsis, etc.). He spend

53

days in NICU and was re-hospitalized at 4 months with RSV in PICU

for

another 54 days. He was discharged on oxigen for 3 months.

Given

his birth story and complications during his first months of

life,

his pediatrician as well as his neurologist think that his

developmental delays and hearing loss are the result of this. He

has

been diagnosed with extrapiramidal Cerebral Palsy since he does

not

show the commonly CP symptoms of spasticity and seizure.

Instead he

is hypotonic and has some choreoathetoid movements. This

diagnosis

is not definite since his developmental pediatrician and

geneticist

think that a metabolic disease might be involved.

Of all the metabolic and genetic tests done to my son the only one

that has come back with abnormal results has been the lactate

blood

test and pyruvate blood test, therefore, his P/L ratio is way out

of

range. This tests has been done three times and the results of

the

three tests has not been normal although they have not been

consistent either. The first test results were High lactate,

normal

pyruvate. The second one results were normal lactate, low

pyruvate.

And the third test results done recently were high lactate, low

pyruvate. I have read a lot about this tests and how

difficult it

is to have an true results given the fact that not all

laboratories

personnel take the sample and manage it appropriately.

The three

tests done to my son were on the same laboratory.

On our last appointment with the geneticist he order to repeat the

pyruvate and lactate tests (the third ones) and said that if the

results were not normal he would start my son in a diet and

supplements. Our next appoinment to bring in the results is in

a

couple of weeks.

I have searched the net looking for information on these results

but

so far there is not so much information regarding them

specifically. One thing I read was that high lactate leves

is

a " hallmark " of mitochondrial disease. Hence I joined

this group to

try and learn the most I can regarding mito disease and the

possible

diagnosis of my son. I would greatly appreciate if anyone can

shred

some light on the lactate/pyruvate levels and its relationship

with

mito disease. Also would like to know if all mito diseases

are

deadly sooner or later, I have read so many sad stories that

right

now I am extremely worry about my son's future. Some of

the " symptoms " that my son shows that might fit a mito

diagnosis

are his developmental delays, hypotonia, choreathetoid

movements,

profound hearing loss, lung problems (chronic asthma), gerd.

However

all those symptoms could also be related to his prematurity and

neonatal complications. He has always fed well and

has not have

problems gaining weight ever. He has been improving over the

years

with a lot of physical, occupational and speech therapy although

his

progress has been painfully slow. He has never experienced a

regression on the skills acquired with therapy.

Regards,

Marie

Please contact mito-owner with any problems or

questions.

Yahoo!

Groups Sponsor

ADVERTISEMENT

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Dear Marie: Welcome to the group. My 13 year old boy and 8 year old

boy both have mito. They haven't had any high results for Lactate or

Pyruvate, but the mito was found in muscle biopsy. (It's odd that

these types of things aren't really definitive for mito. But, I

think raised results at least are a flag for further checking mito)

Hopefully someone can address those issues for you. Welcome and good

luck in your search for diagnosis and with your little boy.

Cindy Cruz

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Hi Marie,

My son Joe was also born premature (26 weeks) and we spent plenty of

time

in the NICU and shortly thereafter some anemia caused a trip back to

PICU,

transfusion reaction (misdiagnosed as CHF), over medicated on diuretics

and he

coded on us at home. As a result he dose have a CP diagnosis (damage

deep in the

white matter of the brain) that was diagnosed when he was almost 1yr

old.

At 2 yrs. old he was diagnosed with tethered chord syndrome (w/o spina

bifida) and

after the release surgery was doing great until - the regression.

After 6+ months and many

specialists later (most tried to convince me it was just his CP and

just deal with it) we

finally started the testing for mito. The labs were the red flag for

the neuro who finally saw

us and helped us get the biopsy. Joe's lactate and pyruvate ratio's

were really out there too,

and they would vary considerably at times. Although his pyruvate seem

to come back pretty

consistently "none detected", his lactate levels would be all over. I

too went to all the web sites

and was gripped with fear. Joe is doing well now, he is learning fine

(no signs of MR), very

creative and extremely "happy go lucky" . His main issues are his

motor functions, low tone in

trunk, spastic in legs (with weakness also). I learned within the last

year that I also have mito,

so I believe that many of our children can and will make it to

adulthood and have active and

productive lives as many of us adults with mito have done. There are

many "worst case scenarios"

out there on the web and not many of our stories of hope!!! In this

group I have found many answers

and so much hope!!!! I am glad that you found this group and hope that

you can find answers for

your son. The "not knowing" was harder than the actual diagnosis.

Hope I didn't ramble on too long.

Praying for all of us,

AnnMarie L. - Complex IV (pre-diabetic, hypothyroid, adrenal/endocrine

issues)

Married to my best friend Rick,

Very Busy Mom to (15), (12), Cassandra (6) and

Joe (5) - complex IV, lactic acidosis, CP, tethered chord syndrome,

dysautonomia, and

a smile that never quits :-)

gina.m.fernandez@... wrote:

I am the mom to a 4 1/2 years old boy. My son was born prematurely

(33 weeks) and pretty sick (pneumonia, sepsis, etc.). He spend 53

days in NICU and was re-hospitalized at 4 months with RSV in PICU for

another 54 days. He was discharged on oxigen for 3 months. Given

his birth story and complications during his first months of life,

his pediatrician as well as his neurologist think that his

developmental delays and hearing loss are the result of this. He has

been diagnosed with extrapiramidal Cerebral Palsy since he does not

show the commonly CP symptoms of spasticity and seizure. Instead he

is hypotonic and has some choreoathetoid movements. This diagnosis

is not definite since his developmental pediatrician and geneticist

think that a metabolic disease might be involved.

Of all the metabolic and genetic tests done to my son the only one

that has come back with abnormal results has been the lactate blood

test and pyruvate blood test, therefore, his P/L ratio is way out of

range. This tests has been done three times and the results of the

three tests has not been normal although they have not been

consistent either. The first test results were High lactate, normal

pyruvate. The second one results were normal lactate, low pyruvate.

And the third test results done recently were high lactate, low

pyruvate. I have read a lot about this tests and how difficult it

is to have an true results given the fact that not all laboratories

personnel take the sample and manage it appropriately. The three

tests done to my son were on the same laboratory.

On our last appointment with the geneticist he order to repeat the

pyruvate and lactate tests (the third ones) and said that if the

results were not normal he would start my son in a diet and

supplements. Our next appoinment to bring in the results is in a

couple of weeks.

I have searched the net looking for information on these results but

so far there is not so much information regarding them

specifically. One thing I read was that high lactate leves is

a "hallmark" of mitochondrial disease. Hence I joined this group to

try and learn the most I can regarding mito disease and the possible

diagnosis of my son. I would greatly appreciate if anyone can shred

some light on the lactate/pyruvate levels and its relationship with

mito disease. Also would like to know if all mito diseases are

deadly sooner or later, I have read so many sad stories that right

now I am extremely worry about my son's future. Some of

the "symptoms" that my son shows that might fit a mito diagnosis

are his developmental delays, hypotonia, choreathetoid movements,

profound hearing loss, lung problems (chronic asthma), gerd. However

all those symptoms could also be related to his prematurity and

neonatal complications. He has always fed well and has not have

problems gaining weight ever. He has been improving over the years

with a lot of physical, occupational and speech therapy although his

progress has been painfully slow. He has never experienced a

regression on the skills acquired with therapy.

Regards,

Marie

Please contact mito-owner with any problems or

questions.

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Hi Marie,

My son Joe was also born premature (26 weeks) and we spent plenty of

time

in the NICU and shortly thereafter some anemia caused a trip back to

PICU,

transfusion reaction (misdiagnosed as CHF), over medicated on diuretics

and he

coded on us at home. As a result he dose have a CP diagnosis (damage

deep in the

white matter of the brain) that was diagnosed when he was almost 1yr

old.

At 2 yrs. old he was diagnosed with tethered chord syndrome (w/o spina

bifida) and

after the release surgery was doing great until - the regression.

After 6+ months and many

specialists later (most tried to convince me it was just his CP and

just deal with it) we

finally started the testing for mito. The labs were the red flag for

the neuro who finally saw

us and helped us get the biopsy. Joe's lactate and pyruvate ratio's

were really out there too,

and they would vary considerably at times. Although his pyruvate seem

to come back pretty

consistently "none detected", his lactate levels would be all over. I

too went to all the web sites

and was gripped with fear. Joe is doing well now, he is learning fine

(no signs of MR), very

creative and extremely "happy go lucky" . His main issues are his

motor functions, low tone in

trunk, spastic in legs (with weakness also). I learned within the last

year that I also have mito,

so I believe that many of our children can and will make it to

adulthood and have active and

productive lives as many of us adults with mito have done. There are

many "worst case scenarios"

out there on the web and not many of our stories of hope!!! In this

group I have found many answers

and so much hope!!!! I am glad that you found this group and hope that

you can find answers for

your son. The "not knowing" was harder than the actual diagnosis.

Hope I didn't ramble on too long.

Praying for all of us,

AnnMarie L. - Complex IV (pre-diabetic, hypothyroid, adrenal/endocrine

issues)

Married to my best friend Rick,

Very Busy Mom to (15), (12), Cassandra (6) and

Joe (5) - complex IV, lactic acidosis, CP, tethered chord syndrome,

dysautonomia, and

a smile that never quits :-)

gina.m.fernandez@... wrote:

I am the mom to a 4 1/2 years old boy. My son was born prematurely

(33 weeks) and pretty sick (pneumonia, sepsis, etc.). He spend 53

days in NICU and was re-hospitalized at 4 months with RSV in PICU for

another 54 days. He was discharged on oxigen for 3 months. Given

his birth story and complications during his first months of life,

his pediatrician as well as his neurologist think that his

developmental delays and hearing loss are the result of this. He has

been diagnosed with extrapiramidal Cerebral Palsy since he does not

show the commonly CP symptoms of spasticity and seizure. Instead he

is hypotonic and has some choreoathetoid movements. This diagnosis

is not definite since his developmental pediatrician and geneticist

think that a metabolic disease might be involved.

Of all the metabolic and genetic tests done to my son the only one

that has come back with abnormal results has been the lactate blood

test and pyruvate blood test, therefore, his P/L ratio is way out of

range. This tests has been done three times and the results of the

three tests has not been normal although they have not been

consistent either. The first test results were High lactate, normal

pyruvate. The second one results were normal lactate, low pyruvate.

And the third test results done recently were high lactate, low

pyruvate. I have read a lot about this tests and how difficult it

is to have an true results given the fact that not all laboratories

personnel take the sample and manage it appropriately. The three

tests done to my son were on the same laboratory.

On our last appointment with the geneticist he order to repeat the

pyruvate and lactate tests (the third ones) and said that if the

results were not normal he would start my son in a diet and

supplements. Our next appoinment to bring in the results is in a

couple of weeks.

I have searched the net looking for information on these results but

so far there is not so much information regarding them

specifically. One thing I read was that high lactate leves is

a "hallmark" of mitochondrial disease. Hence I joined this group to

try and learn the most I can regarding mito disease and the possible

diagnosis of my son. I would greatly appreciate if anyone can shred

some light on the lactate/pyruvate levels and its relationship with

mito disease. Also would like to know if all mito diseases are

deadly sooner or later, I have read so many sad stories that right

now I am extremely worry about my son's future. Some of

the "symptoms" that my son shows that might fit a mito diagnosis

are his developmental delays, hypotonia, choreathetoid movements,

profound hearing loss, lung problems (chronic asthma), gerd. However

all those symptoms could also be related to his prematurity and

neonatal complications. He has always fed well and has not have

problems gaining weight ever. He has been improving over the years

with a lot of physical, occupational and speech therapy although his

progress has been painfully slow. He has never experienced a

regression on the skills acquired with therapy.

Regards,

Marie

Please contact mito-owner with any problems or

questions.

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Guest guest

Nice to mean you a...and welcome. We all love Ron here and Im

sure we will love you too!!

>

> Hi Group. My name is a, Ron's sister. I'm glad to join. I

will probably lurk mostly and chine in occassionally. I am a

weekend computer.

>

> I was reading some posts and made some notes. Here are my stats:

> I first requested being referred in February of last year; and the

following week the girls at work started a " Weight Watchers at Work "

group and invited me along. I hadn't gone to orientation or

anyting, did I want to start losing weight already? I figured I

would start the group but just not try too hard until it was time

for me to really start. That time came soon enough and I had

already lost 14 lbs.! (My starting weight was 301; I'm 5' 3 " ; build

like a bartlet) By the time I went to orientation I was 287. My

goal weight was 257 and I reached that goal with the help of WW July

13th. I weighed in to get my surgery date at 250; I was promptly

given August 31, 2005. My surgery took place in Richmond, CA;

performed by Dr. Fisher laparoscopically. He said " your surgery

went like train tracks " and the smile on his face told me that train

tracks are good. I had very little pain, was only in the hospital

until the following day after lunch, but stayed home from work until

the end of the six weeks. I thought I was ready to return at 3

wks., but the action of starting my solid food, my esophagus (which

had a lg. hernia fixed during my surgery) contracted so badly when I

ate that I had to lay down for 30 to 45 minutes after. It was

nearly better by the time I went back to work. It's all better

now. I am weighing about 155ish now and my goal is to be 145 to

150. I have looked at a couple of charts and for my height and age

(45) I should be around 141. I am a happy camper.

>

> So before I shut up...Robynn, thank you for asking about me. I

feel WONDERFUL! I am struggling with my " self image size " I have

not got a grasp yet that I don't even need to buy XL blouses (only a

M), I'm moving quickly into a size 12 pant. People that haven't

seen me for some time are shocked. That's kinda fun now, but I used

to think " I couldn't look that different! " But I DO!

>

> , Keep Sipping! You need all the water you can get in so

you too don't get the dredded constipation.

>

> Sassy, congrats on your 13 lbs. keep up the good work.

>

> , put your big girl panties on. You're in for the ride of

your life. Best wishes to you.

>

> Ro " bert " a

>

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Guest guest

Welcome to the group. Glad you could join us. It sounds like you

have done wonderfully!

PEGGY

>

> Hi Group. My name is a, Ron's sister. I'm glad to join. I

will probably lurk mostly and chine in occassionally. I am a

weekend computer.

>

> I was reading some posts and made some notes. Here are my stats:

> I first requested being referred in February of last year; and the

following week the girls at work started a " Weight Watchers at Work "

group and invited me along. I hadn't gone to orientation or

anyting, did I want to start losing weight already? I figured I

would start the group but just not try too hard until it was time

for me to really start. That time came soon enough and I had

already lost 14 lbs.! (My starting weight was 301; I'm 5' 3 " ; build

like a bartlet) By the time I went to orientation I was 287. My

goal weight was 257 and I reached that goal with the help of WW July

13th. I weighed in to get my surgery date at 250; I was promptly

given August 31, 2005. My surgery took place in Richmond, CA;

performed by Dr. Fisher laparoscopically. He said " your surgery

went like train tracks " and the smile on his face told me that train

tracks are good. I had very little pain, was only in the hospital

until the following day after lunch, but stayed home from work until

the end of the six weeks. I thought I was ready to return at 3

wks., but the action of starting my solid food, my esophagus (which

had a lg. hernia fixed during my surgery) contracted so badly when I

ate that I had to lay down for 30 to 45 minutes after. It was

nearly better by the time I went back to work. It's all better

now. I am weighing about 155ish now and my goal is to be 145 to

150. I have looked at a couple of charts and for my height and age

(45) I should be around 141. I am a happy camper.

>

> So before I shut up...Robynn, thank you for asking about me. I

feel WONDERFUL! I am struggling with my " self image size " I have

not got a grasp yet that I don't even need to buy XL blouses (only a

M), I'm moving quickly into a size 12 pant. People that haven't

seen me for some time are shocked. That's kinda fun now, but I used

to think " I couldn't look that different! " But I DO!

>

> , Keep Sipping! You need all the water you can get in so

you too don't get the dredded constipation.

>

> Sassy, congrats on your 13 lbs. keep up the good work.

>

> , put your big girl panties on. You're in for the ride of

your life. Best wishes to you.

>

> Ro " bert " a

>

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Welcome to the list a. We hope you love it here

and stay for a long time!

Laurie

__________________________________________________

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a, Big girl panties are precisely one of the many problems I'm trying to rectify!!LOLI just about wet them laughing. Cute. Sounds like you are having a great time. I'm so looking forward to that goal too. It is very hard at this point to even see myself there. It's been too many looong years. I have to say I haven't been this jazzed about anything in a very long time. Can't wait! Congrats on your success.pegmo1212 wrote: Welcome to the group. Glad you could join us. It sounds like you have done wonderfully! PEGGY>> Hi Group. My name is

a, Ron's sister. I'm glad to join. I will probably lurk mostly and chine in occassionally. I am a weekend computer.> > I was reading some posts and made some notes. Here are my stats:> I first requested being referred in February of last year; and the following week the girls at work started a "Weight Watchers at Work" group and invited me along. I hadn't gone to orientation or anyting, did I want to start losing weight already? I figured I would start the group but just not try too hard until it was time for me to really start. That time came soon enough and I had already lost 14 lbs.! (My starting weight was 301; I'm 5' 3"; build like a bartlet) By the time I went to orientation I was 287. My goal weight was 257 and I reached that goal with the help of WW July 13th. I weighed in to get my surgery date at 250; I was promptly given

August 31, 2005. My surgery took place in Richmond, CA; performed by Dr. Fisher laparoscopically. He said "your surgery went like train tracks" and the smile on his face told me that train tracks are good. I had very little pain, was only in the hospital until the following day after lunch, but stayed home from work until the end of the six weeks. I thought I was ready to return at 3 wks., but the action of starting my solid food, my esophagus (which had a lg. hernia fixed during my surgery) contracted so badly when I ate that I had to lay down for 30 to 45 minutes after. It was nearly better by the time I went back to work. It's all better now. I am weighing about 155ish now and my goal is to be 145 to 150. I have looked at a couple of charts and for my height and age (45) I should be around 141. I am a happy camper.> > So before I shut up...Robynn, thank

you for asking about me. I feel WONDERFUL! I am struggling with my "self image size" I have not got a grasp yet that I don't even need to buy XL blouses (only a M), I'm moving quickly into a size 12 pant. People that haven't seen me for some time are shocked. That's kinda fun now, but I used to think "I couldn't look that different!" But I DO!> > , Keep Sipping! You need all the water you can get in so you too don't get the dredded constipation.> > Sassy, congrats on your 13 lbs. keep up the good work.> > , put your big girl panties on. You're in for the ride of your life. Best wishes to you.> > Ro"bert"a>

Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low rates.

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Hello,

I am the mother of a 7.5 year old son who has " issuse " . We do not have

an official dx but depending on the day, he shows signs of: ADD,

anxiety, Bipolar, ODD, and very high level autism. His behaviors have

gotten to the point where I have been considering medication. But

before I go to that extreme, I decided that trying this Pecan bread

diet might be worth a try. The more I read the more I can see how he

fits the profile. Reflux as an infant, chronic allergies (to

everything), gas and constipation, chronic ear and sinus infections and

antibiotics. I am going out to buy the book today. Just thought I would

stop by and say " hi " .

Thanks,

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