To my fellow friends

February 5, 2006

Hi, I look forward everyday to reading my e-mails from the group. I

learn things and feel the joy when you feel it and share it, and the

pain and sorrow also. As for you Kathleen, I recently have been

diagnosed and I too can't quite seem to adjust, and I am also trying

to keep up the stiff upper lip for the family. I also don't want any

pity from them either. I didn't feel any emotion until the day after

seeing my doc and being told. I have been on an emotional roller

coaster. I don't want to die a horrible death either. Now I also

would like to say, I have read about people with

pacemakers,hypothyroidsm,having MRI done and MDA Docs. MY doc is a

neurologist. Does not specialize in Mito. he has been there for me

many times. I have a close bond with him. But do any of you go to a

neurologist and not a mito specialist or MDA? If so has you doc

helped you? I am currently not on any cocktail, as you all say, I am

not on any supplements either at this point. He is still working on

more answers on this biopsy he had me go and do. He feels I have

Melas. I have numerous health problems, don't know if they were all

related to mito either. Been battling these symptoms for years. I do

have a defibrillator not a pace maker. So I can't go for MRI when I

have these stroke like seizures. Cat scan/s don't show much of

nothing. I have hypthyroidism, on meds for years. I have severe

anemia and always having to take alot of iron. I have graves disease,

sleep apnea, low blood count, occasional blood transfusions.

Constantly fatigued. I could go on and on, but if anyone can tell me

if they have a defibrillator and can't have MRI's, etc. Let me know.

I also wanted to know if you feel it necessary for aperson with miro

to see only MDA specialist or will a reg. neuro be ok? At this point

my doc told me to do nothing, just rest, rest, rest, cause of the

pain and the fatigue etc. Only now my eyes are starting to bother me.

Also my neck has been giving me a run for my money. Any info would

help.

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