To - 6 Days on/1 Day off GH

[Guest guest]

Jennier,

We just started GH and are also on a 6 days on, one day off

schedule. I had wondered about it, especially since we just

started. Our daughter, Abby, has been doing great with the shots and

I was afraid the one day off might throw her back some, but it didn't

seem to. After the first week when we took one day off, she asked if

we were all done now and we had to tell her no. It seems almost more

stressful to me to have to pick which day we're not going to give the

shot and then see how she takes it when we start again. Since she

seemed to handle it okay I guess it's not a big deal, but I wondered

what the rationale was behind it and didn't really get any

explanation from our doctor.

Sherri

Mom to 6 yr old twins - Abby (RSS) and Sam (nonRSS)

[Guest guest]

- Hi this is s mom, I know you wrote this to

, but We have started G H 3 days ago and we are doing the

same as you 6 times a week and one day off, I am picking Saturdays

for the day off, you said Abby is doing good, is she used to doctors

and being poked alot? is going hysterical on me when giving

the shot, I feel so bad for him, I think he thought he was going to

only get the shot at the doctors that day and now he realizes that we

are doing it at home, he is totally freaking out on me, I think the

reason is because he has been through so much, 2 surgeries on his

penis for hypospadias, he has had to be put to sleep to many times

for an endoscope and colonoscopy..tubes in ears and well there is

more it seems like when he gets sick we are back to the hospital and

all he knows is getting poked or at just a sick appointment he ends

up having to get poked for blood.He is not at all happy about this

and now I feel like he is tramatized!!! I have talked with him about

it and try to get him to help do the alcohol swab ...but when he

knows it is fixing to happen he goes nuts and starts crying before I

even get the shot ready!! He knows that we are going to either do it

before bath then he doesn't want to take a bath or if he knows that

we are going to do it after bath then he screams and doesn't want to

get out! The look in his little eyes hurts me so bad and I am really

getting sad for him but I know I have to be strong, do you have any

advice, I know I can do it but I am so depressed right now for fear

he is going to hate me!! He yells at me and calls me meanie and it

hurts to see him like this?? Well sorry this is so long but just in

need of help, he also has to go to the doctor and get his shots for

kindergarten and the are going to have to give him 3 what if I have

already used his arms? I am going to try to rotate it so I hope he

will be able to do another site, he sreamed and jerked out of my arms

last night with his sissy trying to hold him and I don't think I got

to pinch up his skin enough and there was a big bruise on his leg,

now he is really scared!! Any advice would help!! Thanks and sorry

so long 26pounds 35 inches 12 to 18 month

clothes....P.S. he is on 4 units for two weeks then moves up to 8

then in 2 weeks goes to 12 what are you on? Hugs to

you

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Support , " sherrid2003 " wrote:

> Jennier,

>

> We just started GH and are also on a 6 days on, one day off

> schedule. I had wondered about it, especially since we just

> started. Our daughter, Abby, has been doing great with the shots

and

> I was afraid the one day off might throw her back some, but it

didn't

> seem to. After the first week when we took one day off, she asked

if

> we were all done now and we had to tell her no. It seems almost

more

> stressful to me to have to pick which day we're not going to give

the

> shot and then see how she takes it when we start again. Since she

> seemed to handle it okay I guess it's not a big deal, but I

wondered

> what the rationale was behind it and didn't really get any

> explanation from our doctor.

>

> Sherri

> Mom to 6 yr old twins - Abby (RSS) and Sam (nonRSS)

[Guest guest]

,

I'm really sorry to hear you're having such a hard time. We were

really worried about that with Abby because she has had a bad time

with shots. Mostly when she was so young in the NICU I would be

surprised if she remembered it, but since then a couple of times at

her regular doctors office when it was just horrible. She hasn't had

any other medical problems, it's her twin brother, Sam, who has had

to have his eye lanced and gone through hernia surgery.

I don't remember how old your son is, but Abby is 6. We've found

that letting her participate as much as possible has made her feel

more in control. We were going to rotate the shots, but she only

wants them in her thighs so thighs is what we are doing. She picks

out which stuffed animal she's going to hold, then dials in her

doseage, swabs the spot with alcohol. She dries the spot by waving

her hand over it and then counts with us while the shot is in. She

puts her bandaid on the spot afterwards (she's always loved bandaids

so this is great for her). Then she goes to her calendar and puts on

her sticker that shows where she got her shot.

Also, we tried having both of us there while we do the shots and also

only having one of us. She seems much less nervous if it's just one

of us so that's what we do. Both of us hovering over her really

seemed to make her nervous. I'm not exactly happy about doing it by

myself, but if she's more comfortable that's what we will do. I

would really prefer my husband do all the shots, but then I would be

terrified if I ever had to do them so we take turns - he does four

and I do two.

About the " pinching " , the pharmacy company sent us needles that are

small and the box says on the side " mini needle, no pinch-up

required " . It's a 3/16 inch (5mm) length needle, 31 gauge. We asked

the nurse about it when we went in for the first shot because she was

using a different needle for the training and showing us how to do

the pinch up. She said that yes, we really didn't need to do the

pinch up with that size needle, but she still felt it might lessen

the pain so continued to show it. She said we really didn't have to

do it if we didn't want to. It just seemed to add more stress to

trying to do the shot to us - pinch up, push in, release, count,

etc. We don't do the pinch up and it seems to go easier and still

doesn't seem to really cause Abby any pain. Also, the nurse told us

with that size needle that you needed to be very careful to make sure

and hold it in completely the full amount of time to make sure she

gets all the medicine. So far that hasn't seemed to be a problem.

I think with Abby it's a control issue. If you can find things that

are important to that let him feel more in control then maybe

he will be more accepting of it. I'm sure those are different for

every child.

I know many people say they give the shots at night, but for us we

have chosen to do it first thing in the morning and are lucky enough

to have the option of doing that. It's over with first thing in the

morning, she doesn't have all day to think about it, and it's not

associated with something else she enjoys like her bath.

I'm not sure what you mean by units. Abby is on 0.50 mg 6 days a

week. She is 23 pounds and 38 3/8 " .

Sherri

Mom to 6 yr old twins - Abby (RSS) and Sam (nonRSS)