An update frrom Katy (where the heck has she been?)

[Guest guest]

Hi All,

A special hello to the families here who have newly joined MAGIC, recently

joined the list-serve or maybe have even sent me an email in the last few

months. Where the heck has Katy been? And why hasn't she written to us?

I have missed all of you terribly. I want to just update you on what's been

going on, and why RSS was put in the " back burner " recently in our family.

Perhaps some of you have spoken or emailed , so you may already know the

story.

In late October, just before my 42nd birthday, I was diagnosed with breast

cancer. Had a mastectomy on 12/2. The post-op pathology shows that there may

be some spread to the lymph nodes so it's back to surgery on 1/6, followed by a

chemotherapy regimen. Am very lucky to be at Sloan Kettering, right across the

street from Dr. Harbison, in fact! I remain optimistic that all will turn out

fine.

I feel horrible that in these last crazy 6 weeks I have neglected families that

may have written asking about RSS and MAGIC. I know that dear ,

and Jodi have probably been doing their usual wonderful " magic " by writing to

all of you privately or on the listserve. Now that I am in " wait " mode, I'm

going to catch up on the listserve postings, see what I've missed. And slowly

get back to helping the MAGIC Foundation again...

I also learned that while on chemo I'll be on some sort of appetite stimulant,

so i'll be curious to see if is one that is good for our kids!!!

My spirits are good...humor intact...wondering if I'll look more like Telly

Savalas or Sinead O'Conner if my hair should fall out...

We are overdue for our 3-month check up for with Dr. H., so we'll hopefully

be in there in the next 2 weeks if she can squeeze us in.

I hope you are all well, that your children are getting the care they need and

that the holidays are filled with peace, love and health for your families!!!!

love,

katy (rss2katy@... or katyudine@...)

Katy Badt Frissora

co Consultant, Silver Syndrome Division

MAGIC Foundation, www.magicfoundation.org

126 Lexington Avenue

Fair Haven, NJ 07704

[Guest guest]

Dear Katy,

I know I speak for many here when I tell you that you will be in our

thoughts and prayers. I hope that your treatments goes smoothly and

that a few years from now, this will all be a distant memory. Bless

you for all you do for the rest of us RSS families muddling along

together and therefore stronger and wiser than we would be alone.

Thank you.

Conny, 's great aunt

> Hi All,

>

> A special hello to the families here who have newly joined MAGIC,

recently joined the list-serve or maybe have even sent me an email in

the last few months. Where the heck has Katy been? And why hasn't

she written to us?

>

> I have missed all of you terribly. I want to just update you on

what's been going on, and why RSS was put in the " back burner "

recently in our family. Perhaps some of you have spoken or emailed

, so you may already know the story.

>

> In late October, just before my 42nd birthday, I was diagnosed with

breast cancer. Had a mastectomy on 12/2. The post-op pathology

shows that there may be some spread to the lymph nodes so it's back

to surgery on 1/6, followed by a chemotherapy regimen. Am very lucky

to be at Sloan Kettering, right across the street from Dr. Harbison,

in fact! I remain optimistic that all will turn out fine.

>

> I feel horrible that in these last crazy 6 weeks I have neglected

families that may have written asking about RSS and MAGIC. I know

that dear , and Jodi have probably been doing their

usual wonderful " magic " by writing to all of you privately or on the

listserve. Now that I am in " wait " mode, I'm going to catch up on

the listserve postings, see what I've missed. And slowly get back

to helping the MAGIC Foundation again...

>

> I also learned that while on chemo I'll be on some sort of appetite

stimulant, so i'll be curious to see if is one that is good for our

kids!!!

>

> My spirits are good...humor intact...wondering if I'll look more

like Telly Savalas or Sinead O'Conner if my hair should fall out...

>

> We are overdue for our 3-month check up for with Dr. H., so

we'll hopefully be in there in the next 2 weeks if she can squeeze us

in.

>

> I hope you are all well, that your children are getting the care

they need and that the holidays are filled with peace, love and

health for your families!!!!

>

> love,

> katy (rss2katy@h... or katyudine@y...)

>

> Katy Badt Frissora

> co Consultant, Silver Syndrome Division

> MAGIC Foundation, www.magicfoundation.org

>

> 126 Lexington Avenue

> Fair Haven, NJ 07704

>

>

[Guest guest]

-Oh my goodness Katy, I am deeply praying for you for I had no Idea I

met you at the convention and you touched and my lives!! I

have sent out a prayer chain in your name so GOD is on your side!!!

You take a breakand get better and the team will handle things for

you like they have been!! Peace be with you!! (HUGS) mom

to s (The wild one) in the reastraunt!! HA

HA

-- In RSS-

Support , " Katy Badt-Frissora " wrote:

> Hi All,

>

> A special hello to the families here who have newly joined MAGIC,

recently joined the list-serve or maybe have even sent me an email in

the last few months. Where the heck has Katy been? And why hasn't

she written to us?

>

> I have missed all of you terribly. I want to just update you on

what's been going on, and why RSS was put in the " back burner "

recently in our family. Perhaps some of you have spoken or emailed

, so you may already know the story.

>

> In late October, just before my 42nd birthday, I was diagnosed with

breast cancer. Had a mastectomy on 12/2. The post-op pathology

shows that there may be some spread to the lymph nodes so it's back

to surgery on 1/6, followed by a chemotherapy regimen. Am very lucky

to be at Sloan Kettering, right across the street from Dr. Harbison,

in fact! I remain optimistic that all will turn out fine.

>

> I feel horrible that in these last crazy 6 weeks I have neglected

families that may have written asking about RSS and MAGIC. I know

that dear , and Jodi have probably been doing their

usual wonderful " magic " by writing to all of you privately or on the

listserve. Now that I am in " wait " mode, I'm going to catch up on

the listserve postings, see what I've missed. And slowly get back

to helping the MAGIC Foundation again...

>

> I also learned that while on chemo I'll be on some sort of appetite

stimulant, so i'll be curious to see if is one that is good for our

kids!!!

>

> My spirits are good...humor intact...wondering if I'll look more

like Telly Savalas or Sinead O'Conner if my hair should fall out...

>

> We are overdue for our 3-month check up for with Dr. H., so

we'll hopefully be in there in the next 2 weeks if she can squeeze us

in.

>

> I hope you are all well, that your children are getting the care

they need and that the holidays are filled with peace, love and

health for your families!!!!

>

> love,

> katy (rss2katy@h... or katyudine@y...)

>

> Katy Badt Frissora

> co Consultant, Silver Syndrome Division

> MAGIC Foundation, www.magicfoundation.org

>

> 126 Lexington Avenue

> Fair Haven, NJ 07704

>

>

[Guest guest]

Sorry to hear about your diagnoses,

I will keep you and your family in my prayers for a speedy

recovery. As I remember your family the most from our first

convention .....Thank-You!!! and your husband for being so kind.

I haven't posted much since I went into " mourning " of not getting a

RSS diagnoses for (the little red-head). Since comming home

we have discovered that has obstructive sleep apnea and that

could be attributing to his lack of growth, something so simple and

no one thought of it first. So, fast forward... was

hospitalized with a severe sinus infection in Nov and we pushed for

him to have surgery, ASAP. After a month on antibiotics we went in

for sinuscopy and larengeoscope on Dec 11th and the surgeon removed

his tonsils and partial adnoids. We are still in hospital as

collapsed part of his right lung and has pnumonia in left lung. We

are however on to the road to recovery. It will be nice to see if

starts growing. Also, thanks for reminding me how important

it is to look after our health as I too have to go for a momogram and

u/s for something suspicious in my breast. I guess I better get going.

Good Luck and take care,

Barb and Garrett

Calgary, Canada

[Guest guest]

Hi Katy,

I was wondering about you. In fact I was getting a little concerned.

I guess I* was right.

I am sorry to hear about your illness. I sincerely hope that your

treatment is painless, and that all of your cancer is eliminated.

My wife's sister in law is going through the same thing this very

moment, so we know what you are up against.

I wish you a complete cure. Please keep us informed.

Ken M

> Hi All,

>

> A special hello to the families here who have newly joined MAGIC,

recently joined the list-serve or maybe have even sent me an email in

the last few months. Where the heck has Katy been? And why hasn't

she written to us?

>

> I have missed all of you terribly. I want to just update you on

what's been going on, and why RSS was put in the " back burner "

recently in our family. Perhaps some of you have spoken or emailed

, so you may already know the story.

>

> In late October, just before my 42nd birthday, I was diagnosed with

breast cancer. Had a mastectomy on 12/2. The post-op pathology

shows that there may be some spread to the lymph nodes so it's back

to surgery on 1/6, followed by a chemotherapy regimen. Am very lucky

to be at Sloan Kettering, right across the street from Dr. Harbison,

in fact! I remain optimistic that all will turn out fine.

>

> I feel horrible that in these last crazy 6 weeks I have neglected

families that may have written asking about RSS and MAGIC. I know

that dear , and Jodi have probably been doing their

usual wonderful " magic " by writing to all of you privately or on the

listserve. Now that I am in " wait " mode, I'm going to catch up on

the listserve postings, see what I've missed. And slowly get back

to helping the MAGIC Foundation again...

>

> I also learned that while on chemo I'll be on some sort of appetite

stimulant, so i'll be curious to see if is one that is good for our

kids!!!

>

> My spirits are good...humor intact...wondering if I'll look more

like Telly Savalas or Sinead O'Conner if my hair should fall out...

>

> We are overdue for our 3-month check up for with Dr. H., so

we'll hopefully be in there in the next 2 weeks if she can squeeze us

in.

>

> I hope you are all well, that your children are getting the care

they need and that the holidays are filled with peace, love and

health for your families!!!!

>

> love,

> katy (rss2katy@h... or katyudine@y...)

>

> Katy Badt Frissora

> co Consultant, Silver Syndrome Division

> MAGIC Foundation, www.magicfoundation.org

>

> 126 Lexington Avenue

> Fair Haven, NJ 07704

>

>

[Guest guest]

hi katy

i hope all goes well for you. you have a great attitude. very funny.

hold oh to that tight,i't will help you get thought all of this. we

will pray for you.

by the way Sinead o'conner looks great without hair. so hold your

head high. its not the hair on your head that makes a great person.

its whats under the hair. keep your smile and you'll be beautiful.

amy pasz averys momma

>

Hi All,

>

> A special hello to the families here who have newly joined MAGIC,

recently joined the list-serve or maybe have even sent me an email in

the last few months. Where the heck has Katy been? And why hasn't

she written to us?

>

> I have missed all of you terribly. I want to just update you on

what's been going on, and why RSS was put in the " back burner "

recently in our family. Perhaps some of you have spoken or emailed

, so you may already know the story.

>

> In late October, just before my 42nd birthday, I was diagnosed with

breast cancer. Had a mastectomy on 12/2. The post-op pathology

shows that there may be some spread to the lymph nodes so it's back

to surgery on 1/6, followed by a chemotherapy regimen. Am very lucky

to be at Sloan Kettering, right across the street from Dr. Harbison,

in fact! I remain optimistic that all will turn out fine.

>

> I feel horrible that in these last crazy 6 weeks I have neglected

families that may have written asking about RSS and MAGIC. I know

that dear , and Jodi have probably been doing their

usual wonderful " magic " by writing to all of you privately or on the

listserve. Now that I am in " wait " mode, I'm going to catch up on

the listserve postings, see what I've missed. And slowly get back

to helping the MAGIC Foundation again...

>

> I also learned that while on chemo I'll be on some sort of appetite

stimulant, so i'll be curious to see if is one that is good for our

kids!!!

>

> My spirits are good...humor intact...wondering if I'll look more

like Telly Savalas or Sinead O'Conner if my hair should fall out...

>

> We are overdue for our 3-month check up for with Dr. H., so

we'll hopefully be in there in the next 2 weeks if she can squeeze us

in.

>

> I hope you are all well, that your children are getting the care

they need and that the holidays are filled with peace, love and

health for your families!!!!

>

> love,

> katy (rss2katy@h... or katyudine@y...)

>

> Katy Badt Frissora

> co Consultant, Silver Syndrome Division

> MAGIC Foundation, www.magicfoundation.org

>

> 126 Lexington Avenue

> Fair Haven, NJ 07704

>

>

[Guest guest]

Katy,

Our thoughts and prayers are with you. May the Lord bless and keep you safe.

The work you (and and Jodi and. . . . the list goes on) do for MAGIC is

such a blessing to all of us.

Dayna and Alyssa