Question

July 15, 2000

Hi Alice,

No need to worry! You will never see or feel that tube. It goes in

when you are asleep and comes out before you are fully awake. I

think most of us will tell you pretty much the same thing... you go

to the OR and remember getting on the table (barely) and the next

thing you know you are waking up in your room! Honest. Don't fret

over it, just concentrate on the new you!

Karin Eby MGB 9/20/99 -86 lbs

July 15, 2000

Alice,

Being put to sleep (not being in control) was a big concern for me also.

That was a factor in choosing this surgery. My surgery on 6-2 was 32 min.

Even though I didn't like it I figured I could do it. You get an

opportunity to speak to the anesthesiologist before surgery (while in the

holding room). Tell them your concern and I am certain they can make sure

they can help you with it. Best of luck.

Darlene

TCBACE@... wrote:

> Hi everyone,

> To those who have had the surgery...My biggest concern is being put

> to

> sleep. Do any of your remember having the breathing tube still in

> when you woke up? Or was it already out when you came around?

> Thanks,

> Alice

>

> ------------------------------------------------------------------------

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> http://click.egroups.com/1/6994/3/_/453517/_/963676336/

> ------------------------------------------------------------------------

>

> This message is from the Mini-Gastric Bypass Mailing List at Onelist.com

> Please visit our web site at http://clos.net

> Get the Patient Manual at http://clos.net/get_patient_manual.htm

July 16, 2000

In a message dated 07/15/2000 10:53:13 AM Central Daylight Time,

TCBACE@... writes:

<< Do any of your remember having the breathing tube still in

when you woke up? Or was it already out when you came around? >>

I had the same fear. I have no recollection of the tube being put in out

being taken out.

le

seven weeks post op

July 16, 2000

Alice,

When I woke up I did not have any breathing tubes. They do check you about

3-4 x's a day to see if you are breathing successful.

Hope this helps.

in Durham moving to Chapel Hill soon

July 16, 2000

I think if you go to egroups and click on my groups it will take you to what

groupls you are subscribed to and you can click on them and change your

preferences. If that doesn't work you could unsubscribe and then resubscribe

giving you the options again of you want to get email or just read the posts

from the website. Hope this helps!

Holly

July 16, 2000

In a message dated 7/16/2000 2:45:26 PM Eastern Daylight Time,

TCBACE@... writes:

<< Does anyone know how I can continue to read/send posts on the egroups

website but stop receiving the e-mails to my regular e-mail? >>

go to www.egroups.com click on mini gastric bypass on the left hand side of

page, when page opens in the right hand corner you will see where it says

modify, click on that, when page comes up on the right just click on the line

where it says web only and that will stop it from being in your email, you

will just need to go to the egroups mini gastric bypass site to read and

reply to posts. Hope this helps.

Cathy in Lenoir, NC

Pre-op

BMI 42

A journey of a thousand miles begins with a single step

July 16, 2000

Alice Eubanks wrote:

>

> Does anyone know how I can continue to read/send posts on the egroups

> website but stop receiving the e-mails to my regular e-mail?

> Computer Class 101 here...

> Thanks,

> Alice

Go to http://www.egroups.com

Sign in, using your email address and password.

On the top of the next page you see, there should be some blue tabs that

say " Home, " " My Groups, " and " Help. "

Click on " My groups. "

That will take you to a page lising the groups you are signed up for.

Look for the line that says POST then MiniGastricBypass.

Over to the right, you will see a click on box. Click that box and pick

from " Individual emails, " " Daily Digest, " " No mail/web only " or

" Unsubscribe. "

Then click on the box slightly above or the one below that says " Save

changes. "

That's it.

July 17, 2000

> Does anyone know how I can continue to read/send posts on the

egroups.....

>

Alice,

-On the left-hand side of the message page, click " Main Page, "

-On the right-hand side of the Main Page, click " Membership, "

-Then click " Modify "

-Then select " Don't send me email, I'll.... "

-Then click " save changes "

You should be done!

Have a great day!

Dawn

June 15, 2001

hi all:

i am trying to sum up some things regarding the ds vs rny.... the neg of the ds are stinky bathroom visits, need good nutrition follow up, and slower weight lose. is this correct.

positives: no ulcers, better functioning stomach, bigger pouch, no or little dumping, able to eat more foods, and longer window to loose weight.

please tell me if i am right...

cheryl;

June 15, 2001

At 8:07 AM -0400 6/15/01, star00066@... wrote:

hi all:

i am trying to sum up some things regarding the ds vs rny.... the neg

of the

ds are stinky bathroom visits, need good nutrition follow up, and

slower

weight lose. is this correct.

The stink varies from person to person and is not always the same

for every person. While generally onerous, it is not always as

bad as some fear it to be.

I believe that all WLS that involves intestinal bypass requires

nutritional follow up.

I believe that the rate of weight loss, at least for the first 6

months, is about the same.

positives:

no ulcers, better functioning stomach, bigger pouch, no or little

dumping, able to eat more foods, and longer window to loose

weight.

Not sure if the window is longer.

--Steve

please

tell me if i am right...

cheryl;

----------------------------------------------------------------------

July 9, 2001

A co DSer is going to most likely have a revision.... she is continuing to lose

weight at a very quick rate and Dr. Rabkin believes it is time to do this... the

question is?????? have any of you had revisions becasue you were losing too

rapidly and how was the revision and how was the process of " gaining " ? or

stabilizing? Any information any of you have whether you are a Rabkin patient

or not, would be greatly appreciated!

Thanks,

Vicki in Sac .... I am not the one who needs the Revision

80lbs to go....

July 9, 2001

Vicki,

I am pre-op, so I can only tell you that the literature suggests very

high success rates for revisional surgery to SLOW DOWN or stop excess

weight loss. In most cases they will lengthen the common limb where

bile and food are mixed. This will increase absorption of fats,

which generally does the trick. It will also lessen some of the

nasty side effects.

If there is protien malnutrition involved then they will need to

lengthen the alimentary (food absorbing) limb at the expense of the

pancreatic limb (which carries bile). Dr. Rabkin starts with a 40%

alimentary, 60% pancreatic limb (soo does Dr. Hess). Dr. Anthone and

some others start with a 50%/50% split between the two limbs so that

the risk of protien defficiency and excess weight loss is minimized

(and the expense of some risk of not enough weight loss).

In extreme cases they bowel continuity is restored (effectively

eliminating the malabsorption part of the surgery) but 75% of the

stomach was permantly removed, so the restrictive part of the sugery

cannot be reversed.

The upshot is that there is a very good prognosis (absent any really

serious malnutrition problems - and even then the outlook is good).

Hope that helps.

Hull

pre-op : waiting for consultation with Dr. Anthone

> A co DSer is going to most likely have a revision.... she is

continuing to lose weight at a very quick rate and Dr. Rabkin

believes it is time to do this... the question is?????? have any of

you had revisions becasue you were losing too rapidly and how was the

revision and how was the process of " gaining " ? or stabilizing? Any

information any of you have whether you are a Rabkin patient or not,

would be greatly appreciated!

>

> Thanks,

>

> Vicki in Sac .... I am not the one who needs the Revision

>

> 80lbs to go....

July 10, 2001

Our list owner had a revision (lengthening of the common

tract), and her weight went up a little bit and has stabilized. I also

know one other Rabkin patient who had her common tract lengthened, and

it worked well too. She put back on about 20 pounds or so and is feeling

great. Both and this other lady ultimately landed at final

weights that are close to ideal. If I recall correctly, they both said

that the revision was a piece of cake compared to the original surgery.

In Hess' first 440 DS patients, 8 of them underwent a lengthening of the

common channel due to low protein and excess weight loss. In his

published report (found on the DS website), Hess states that,

" Lengthening the bowel works quite well and stops the excessive weight

loss and low protein. "

M.

---

in Valrico, FL, age 38

Starting weight 299, now 156

Starting BMI 49.7, now 26.0

Lap DGB/DS by Dr. Rabkin 10-19-99

http://www.duodenalswitch.com

Direct replies: mailto:melanie@...

> Re: QUESTION

>

> A co DSer is going to most likely have a revision.... she is

> continuing to lose weight at a very quick rate and Dr. Rabkin

> believes it is time to do this... the question is?????? have

> any of you had revisions becasue you were losing too rapidly

> and how was the revision and how was the process of

> " gaining " ? or stabilizing? Any information any of you have

> whether you are a Rabkin patient or not, would be greatly

> appreciated!

>

> Thanks,

>

> Vicki in Sac .... I am not the one who needs the Revision

>

> 80lbs to go....

>

> ----------------------------------------------------------------------

>

November 12, 2001

Hi Susiecue,

Lucy here, I have ulcers in my mouth right now. I am not on Prednisone but

I do have RP. I have been plagued with them most of my life. I can't

really say that RP causes them, but I do think it plays a big part in the

occurrence of the outbreaks. Some bouts come with a " sour stomach " and

others when I am unusually bothered by something going on in my life. You

know, " STRESS " .

Just in case you have not heard about Rembrandt toothpaste, (made especially

for the prevention of ulcers, or canker sores), it really has helped me a

lot.

Hope this has helped some. Love and Prayers, Lucy

Question

> Has anyone had problems with sores in their mouth? They rheumy asked me

> about this on Thurs. when I was there, of course I had none then but I did

> have a couple over the weekend. They are at the back of the roof of my

> mouth & last a couple of days. Sort of like a little pimple. Is this

from

> the pred or the RP?

>

> Also are there any numbers out there as to how many of us there are.

> Someone had told me 210 in the world. I ran this by the rheumy & she said

a

> lot more because she has treated 10-15. Just curious.

>

> Hope you are all feeling better. I firmly believe in the resting because

> since I have settled down a little I am feeling pretty good. Went down to

> 40 of the pred yesterday so I am keeping my fingers crossed.

>

> Love,

>

> Susiecue

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

November 12, 2001

Hi Susiecue,

Lucy here, I have ulcers in my mouth right now. I am not on Prednisone but

I do have RP. I have been plagued with them most of my life. I can't

really say that RP causes them, but I do think it plays a big part in the

occurrence of the outbreaks. Some bouts come with a " sour stomach " and

others when I am unusually bothered by something going on in my life. You

know, " STRESS " .

Just in case you have not heard about Rembrandt toothpaste, (made especially

for the prevention of ulcers, or canker sores), it really has helped me a

lot.

Hope this has helped some. Love and Prayers, Lucy

Question

> Has anyone had problems with sores in their mouth? They rheumy asked me

> about this on Thurs. when I was there, of course I had none then but I did

> have a couple over the weekend. They are at the back of the roof of my

> mouth & last a couple of days. Sort of like a little pimple. Is this

from

> the pred or the RP?

>

> Also are there any numbers out there as to how many of us there are.

> Someone had told me 210 in the world. I ran this by the rheumy & she said

a

> lot more because she has treated 10-15. Just curious.

>

> Hope you are all feeling better. I firmly believe in the resting because

> since I have settled down a little I am feeling pretty good. Went down to

> 40 of the pred yesterday so I am keeping my fingers crossed.

>

> Love,

>

> Susiecue

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

November 12, 2001

Susiecue,

I also get sores in my mouth but they are usually on the inside of my lip or

way down the back of my throat. Mine are not from the Prednisone because I

had them long before I started taking that. Sometimes I get them in

conjunction with a flare!! Have a Great Day!

Kathi

>

>Reply-To: Rpolychondritis

>To: <Rpolychondritis >

>Subject: Question

>Date: Mon, 12 Nov 2001 11:10:17 -0800

>

>Has anyone had problems with sores in their mouth? They rheumy asked me

>about this on Thurs. when I was there, of course I had none then but I did

>have a couple over the weekend. They are at the back of the roof of my

>mouth & last a couple of days. Sort of like a little pimple. Is this from

>the pred or the RP?

>

>Also are there any numbers out there as to how many of us there are.

>Someone had told me 210 in the world. I ran this by the rheumy & she said

>a

>lot more because she has treated 10-15. Just curious.

>

>Hope you are all feeling better. I firmly believe in the resting because

>since I have settled down a little I am feeling pretty good. Went down to

>40 of the pred yesterday so I am keeping my fingers crossed.

>

>Love,

>

>Susiecue

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

November 12, 2001

Susiecue,

I also get sores in my mouth but they are usually on the inside of my lip or

way down the back of my throat. Mine are not from the Prednisone because I

had them long before I started taking that. Sometimes I get them in

conjunction with a flare!! Have a Great Day!

Kathi

>

>Reply-To: Rpolychondritis

>To: <Rpolychondritis >

>Subject: Question

>Date: Mon, 12 Nov 2001 11:10:17 -0800

>

>Has anyone had problems with sores in their mouth? They rheumy asked me

>about this on Thurs. when I was there, of course I had none then but I did

>have a couple over the weekend. They are at the back of the roof of my

>mouth & last a couple of days. Sort of like a little pimple. Is this from

>the pred or the RP?

>

>Also are there any numbers out there as to how many of us there are.

>Someone had told me 210 in the world. I ran this by the rheumy & she said

>a

>lot more because she has treated 10-15. Just curious.

>

>Hope you are all feeling better. I firmly believe in the resting because

>since I have settled down a little I am feeling pretty good. Went down to

>40 of the pred yesterday so I am keeping my fingers crossed.

>

>Love,

>

>Susiecue

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

November 12, 2001

coralie have sores in her mouth; even when she'is without pred.

November 12, 2001

coralie have sores in her mouth; even when she'is without pred.

November 17, 2001

Susiecue,

I have a medic alert bracelet that I wear all the time now. Yes it is important to have one especially if you have a surpressed immune system.

The back of mine says Relapsing Polychondritis Immunosuppressed takes medication. Also has a 1-800 number to call and my identification number.

I feel much more secure knowing I have this bracelet. I went to the emergency room one time and I couldn't remember what I took for meds. I was having a migraine that was like a stroke. Pretty scary. I have taken Imuran for years and couldn't remember it. Now I don't have to remember anything. It is on the bracelet and card. If you get a bracelet you can update the meds as they change just give them a call or go to the wed site.

Lots of Love

Glenda

Is it wise to get a medic alert bracelet? If so what do you put on it? Someone had suggested it.

It will be a week tomorrow that I am down to 40 of pred. I am feeling pretty good. No flares yet. I am also not pushing & doing well. I am tired but I have only been sleeping around 5-6 hours a night, I think the pred is causing that.

Take care & have a pain free weekend.

Love,

Susiecue

November 17, 2001

Susiecue,

I have a medic alert bracelet that I wear all the time now. Yes it is important to have one especially if you have a surpressed immune system.

The back of mine says Relapsing Polychondritis Immunosuppressed takes medication. Also has a 1-800 number to call and my identification number.

I feel much more secure knowing I have this bracelet. I went to the emergency room one time and I couldn't remember what I took for meds. I was having a migraine that was like a stroke. Pretty scary. I have taken Imuran for years and couldn't remember it. Now I don't have to remember anything. It is on the bracelet and card. If you get a bracelet you can update the meds as they change just give them a call or go to the wed site.

Lots of Love

Glenda

Is it wise to get a medic alert bracelet? If so what do you put on it? Someone had suggested it.

It will be a week tomorrow that I am down to 40 of pred. I am feeling pretty good. No flares yet. I am also not pushing & doing well. I am tired but I have only been sleeping around 5-6 hours a night, I think the pred is causing that.

Take care & have a pain free weekend.

Love,

Susiecue

November 18, 2001

In a message dated 11/17/01 10:24:05 AM Pacific Standard Time,

Linetech@... writes:

<< Is it wise to get a medic alert bracelet? If so what do you put on it?

Someone had suggested it.

>>

Susiecue.....Boy you asked the wrong person. LOL Now I will have to start

nagging you til you get one... YES....We ALL need a medic alert bracelet!!!!!

If you don't have one, then now is the perfect time....Ask for one for

Christmas. LOL I have a number of things wrong so I called them... They are

so helpful, the will ask for all your illnesses, meds, allergies, etc and

then decide what needs to be put on the bracelet..If you have a very simple

case, you can do it yourself on the computer. But Please get one... It is

important that all medical professionals know that we have an autoimmune

disease and what meds we are taking... If we cant tell them, it is important

that someone can...and Medic alert will get it right. (my husband wont).!!

The lady there also told me that she would tell them about the problem with

intubating us if the need arises...

Please get on soon... They make pretty ones now too. LOL I'll be checking on

you Susiecue...Just ask Judy, Glenda and the rest.

Here is the info in case you don't have it:

Call 1-

or

www.medicalert.org

They have some good specials for Christmas and it's it's worh it to save

your life.

hugs

November 18, 2001