RE: Return from conference

[Guest guest]

Dawn,

Sorry the sessions were a disappointment, but I appreciate you sharing.

I really wondered after reading the list of sessions in the brochure if

it would be worth the drive and the expense for us, and we ultimately

decided not to go.

Did they have a date set yet for the conference next year? We're much

closer to St. Louis.

-- Mom to:

Emilie (18), mito--complex IV, cp, ld

Kaitlin (18), cp, asthma, a few autonomic symptoms

Ian (22) migraines

....and wife to Tim, who has a heart of gold

[Guest guest]

The conference in St. Louis next year sounds like a great place. Of course that might be because it will be within driving distance to us. How soon will they announce the dates for the conference?

Kathy, grandma to Audrey, nearly 3

[Guest guest]

June 15 - 19

Sue Ann Bube

President, UMDF Indiana

Re: Return from conference

Dawn,

Sorry the sessions were a disappointment, but I appreciate you sharing.

I really wondered after reading the list of sessions in the brochure if

it would be worth the drive and the expense for us, and we ultimately

decided not to go.

Did they have a date set yet for the conference next year? We're much

closer to St. Louis.

-- Mom to:

Emilie (18), mito--complex IV, cp, ld

Kaitlin (18), cp, asthma, a few autonomic symptoms

Ian (22) migraines

....and wife to Tim, who has a heart of gold

Please contact mito-owner with any problems or

questions.

[Guest guest]

I just got back from the conference. I really learned a lot. I did not go to

the

family sessions but went to the clinical sessions on Saturday. The nutrition

info, GI info, pain info, etc was all wonderful. Because of info learned at

the

conference I suspect that my son has Complex I and IV defects. We now have

some ideas about what to do about pain control. I am going to try to get in to

a

palliative program instead of the pain program that we are currenly in. I also

was able to talk to Dr. Whiteman and was impressed with his kindness. He

said that the symptoms I described certainly do sound like mito and

suggested what I have thought for a long time---we need a fresh muscle

biopsy.