Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 Darla, > >The little girl next door has been taking robinul for several years >without problems. Emilie has taken Robinul for years, too, and has never had a problem with it. It has helped tremendously to reduce saliva. -- Mom to: Emilie (17), mito--complex IV, cp, ld Kaitlin (17), cp, asthma, a few autonomic symptoms Ian (22) migraines ....and wife to Tim, who has a heart of gold Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 Dr. (ENT) at Mayo wants Zipporrah to begin using Glcopyrrolate for excessive secretions but first wants me to be aware of some major complications/side effects first. This makes me uneasy about it but know we need to limit the secretions as well. Has anyone used this or know about the side effects?Darla: mommy to: Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, g-tube, disautonomia issues, hypotonia, heat/exercise intolerance, oxygen use, asthma, catheterization began today Zipporrah (7 mon.) Mito, SLE's, sensory issues, G-tube, asthma, mild tracheomalacia, tracheal ring, disautonomiamajor swallow issues... Luke, Leah, Rachael, Isaac, Tirzah, Marquis, and Kezia (some with Mito symptoms)Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2004 Report Share Posted May 28, 2004 Darla, The little girl next door has been taking robinul for several years without problems. Her mom has her take prune juice to avoid constipation. It helped with her secretions enough that she only has to be treated with asthma drugs when she is sick with a cold or a virus. She is developmentally delayed, has CP, and cortical visual impairment, and it is very likely that she has a mitochondrial disorder. Given the lack of mito specialists in Dallas, she may never be diagnosed. Quote Link to comment Share on other sites More sharing options...
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