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Night sweats????

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I was wondering something...Joey and his ten year old brother has

always had the night sweats. They would be soaked from head to toe

the instant they would fall asleep. To wear we have to wash sheets

and pillow case EVERYNIGHT. What could this be caused from? My ten

year old has not yet been dx. but we are very suspecous. Does any of

your Mito babies do this. Someone told me it could be there sugar

levels yet we have checked that and it seems to be fine. Any ideas

would be GREEEEEAT!!!!

Thanks again!!!!

Tamara(Mommy of Joey age 5, unspecific Mito)Heart Arrythmia, GI

issues, Lordisis, Laryngiamalacia, Asthma, 28 months in speech, OT

and 34 months behind in P.T, Heat issue, sensery issues and autistic

tendancies.

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Gracie has night sweats due to her low blood sugar. I see you have had there BS checked, but was it fasting, or during the night? Grace has always been low, but it used to only be a problem at night when she was not eating. She would commonly wake up soaking wet and very crabby and shaky. Within a half an hour of her eating she would be fine again. I would definatly ask your pediatrician for a fasting BS. This can progress into a more chronic condition later on, as it has with Grace. There are alot of easy things you can do to help them with this if it is low blood sugar. If your pediatrician is against testing them again, try giving them a bedtime snack high in complex carbs (Dr.Cohen suggests any type of nut, or chunky peanut butter). The complex carbs take a long time to metabolize, so they help sustain the BS through the night. If the problem goes away that night, you may know what you need to do every night. Best wishes.

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Tamara,

I know that has night sweats and I can only assume it is

the dysautonomia. I too have them periodically. I will wake up

completely soaked. I thought at one time it was my thyorid (I was

hyperthyroid d/t a tumor). I had the tumor removed and still had

them. Then I assumed it was hormones. Well, I had a hysterectomy and

my ovaries are gone too, and I still have them. I think it is my

body trying to shut down after going all day. I notice it more with

if she is really exhausted! If their sugars seem to be okay

then I wouldn't worry too much. Is it a couple of hours after

eating? My endo told me that when the food leaves the stomach that

some people get low blood pressure and sweats. Feels like

hypoglycemia but isn't. Might be this? Have you checked their BP at

night? My BP gets so low at night it won't even register on my

automatic BP cuff. Hope this helps. Maybe others will have some

other suggestions!

Dawn

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We have always dealt with this to varying degrees, and it is somewhat

autonomic, for Will at least, but we were told it probably relates to

the breathing problems he has too. Night sweating I have been told can

be a sign of sleep apnea. We are seeing a big flair in this on Will

right now but I think it is because of everything else going on too.

Will get so bad at times you can wring his pillow out, it's pretty

gross. Not sure what to tell you that might help, we sure haven't

found anything yet.

In Colorado

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