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surgery for granulation tissue

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Caeden is going in for surgery on Friday the 30th. His granultion

tissue keeps getting worse and frequently bleeds. Has anyone had this

surgery and does it work? We are also having new tubes put in ears

his old ones fell out before a year and he is still getting

infections. They said because of the mito the muscles collapse and

can't hold them in. He said he would use tubes like he uses on cleft

palate kids. So hopefully he will do well. Thanks for any advice.

mom to caeden mito myop, CP, FTT, PVL etc etc etc

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When we had Wyatt's tube switched to the Mic-Key we had them

surgically remove the granulation. So far it has worked for us,

however it has only been a week. The site really looks good though.

Geri-Anne and Wyatt, Complex I-

-- In Mito , " jjfrost4 " wrote:

> Caeden is going in for surgery on Friday the 30th. His granultion

> tissue keeps getting worse and frequently bleeds. Has anyone had

this

> surgery and does it work? We are also having new tubes put in ears

> his old ones fell out before a year and he is still getting

> infections. They said because of the mito the muscles collapse and

> can't hold them in. He said he would use tubes like he uses on

cleft

> palate kids. So hopefully he will do well. Thanks for any advice.

>

>

> mom to caeden mito myop, CP, FTT, PVL etc etc etc

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I'm confused where is the granulation tissue? Tarok had a lot of

irritated granulation tissue around his G-Tube, and it went away on

its own when we switched from BARD to KANGAROO G-Tubes. They both

claim to be latex free so I'm not sure what caused the irritation,

but it has not come back. Hope this helps!

> Caeden is going in for surgery on Friday the 30th. His granultion

> tissue keeps getting worse and frequently bleeds. Has anyone had

this

> surgery and does it work? We are also having new tubes put in ears

> his old ones fell out before a year and he is still getting

> infections. They said because of the mito the muscles collapse and

> can't hold them in. He said he would use tubes like he uses on

cleft

> palate kids. So hopefully he will do well. Thanks for any advice.

>

>

> mom to caeden mito myop, CP, FTT, PVL etc etc etc

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