Re: gluten/casine free diet-anyone doing this?

June 16, 2007

Hi.

Some of you may recall last post regarding my 32mth old who in the last two

months has lost a lot of play, social and language skills. We are in the

process of waiting for evaluations from a neurologist, GI, Allergist, Autism

Center, and an Audiologist. We just got approved for 10 hrs a week of ABA in

addition to the speech and OT we are already receiving. We have also decided to

make some changes in her diet.

My daughters eating habits have always been horrible..... she lives on shakes

(consisting of yogurt, banana and milk), cheese and breads. Occasionally she

will eat other things for us too, it's usually hit or miss though. About 2 wks

ago we switched to soy silk milk and soy yogurt. The labels on the soy products

say casine free & gluten free. My husband and I do think she is more alert

since we made the switch, but now I am hearing that Soy isn't the best to switch

to? We made the swithc because we were running out of ideas as to help our

daughter, and as an infant she had a lot of problems digesting breast milk and

formula. Thought it was worth a try.

Since we have been seeing some progress with the soy, we decided (two days

ago) to try a casine free/gluten free diet. Today, day two of her new diet, she

has been chatter..... we are pleased. However, this morning she woke up with a

rash on her face. Could she be allergic to the soy and would the rash only show

up now, two weeks after making the switch? Or could the rash be the toxins

escaping from her body? The rash is on both sides of her checks, the size of a

quarter and bright red and very dry.

We have an appointment with the allergist this Monday... Are there any

tests/questions I should definitely be asking? Thank you for all of you input.

Also anyone else on a gluten free casine free diet? What are you kids eating?

Are there any products of foods that you like better than others?

---------------------------------

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June 17, 2007

Switch to Rice milk and don't use the soy. It's almost as bad as the casien.

In addition, soy is loaded with estrogen. The diet is almost being renamed

GFCFSF because everyone seems to have trouble with the soy. You should join the

group GFCFKids to get some good recipe ideas. Your daughter

sounds like a 'yeast-feeder' which is pretty common for our kids. You may

experience dye-off in the coming weeks. This will make her cranky, irritable

and 'yearn' to feed the yeast.

In addition, I hear that Vitamin A is good for eczema; get a good Cod Liver Oil

supplement which has plenty of vitamin A. You may even find that the rashes go

away with the soy... She is reacting to something; her system is telling you

this.

Janice

[sPAM] [ ] re: gluten/casine free diet-anyone doing

this?

Hi.

Some of you may recall last post regarding my 32mth old who in the last two

months has lost a lot of play, social and language skills. We are in the process

of waiting for evaluations from a neurologist, GI, Allergist, Autism Center, and

an Audiologist. We just got approved for 10 hrs a week of ABA in addition to the

speech and OT we are already receiving. We have also decided to make some

changes in her diet.

My daughters eating habits have always been horrible..... she lives on shakes

(consisting of yogurt, banana and milk), cheese and breads. Occasionally she

will eat other things for us too, it's usually hit or miss though. About 2 wks

ago we switched to soy silk milk and soy yogurt. The labels on the soy products

say casine free & gluten free. My husband and I do think she is more alert since

we made the switch, but now I am hearing that Soy isn't the best to switch to?

We made the swithc because we were running out of ideas as to help our daughter,

and as an infant she had a lot of problems digesting breast milk and formula.

Thought it was worth a try.

Since we have been seeing some progress with the soy, we decided (two days

ago) to try a casine free/gluten free diet. Today, day two of her new diet, she

has been chatter..... we are pleased. However, this morning she woke up with a

rash on her face. Could she be allergic to the soy and would the rash only show

up now, two weeks after making the switch? Or could the rash be the toxins

escaping from her body? The rash is on both sides of her checks, the size of a

quarter and bright red and very dry.

We have an appointment with the allergist this Monday... Are there any

tests/questions I should definitely be asking? Thank you for all of you input.

Also anyone else on a gluten free casine free diet? What are you kids eating?

Are there any products of foods that you like better than others?

---------------------------------

Take the Internet to Go: Go puts the Internet in your pocket: mail,

news, photos & more.

June 17, 2007

It came to mind today that we have discussed the GFCF diet a lot on this

discussion group lately, as we expand all discussions again to more

biomedical treatment options to help with our kids' neurological issues.

Forgive me if it was already stated and I've just forgotten (there have

been so many messages who wrote what & where sometimes escapes me

lately) BUT if you do want to try the GFCF diet..._*don't go cold

turkey*_ - that is, don't suddenly take away everything in one day. The

casein and gluten effects are like a opiod drug to the body/brain and if

you take it all away all at once you can trigger some pretty major

" withdrawal " effects...that will definitely manifest themselves in pain

and behavioral issues. Imagine that you are a diet Coke or tea addict

and suddenly you had no more soda or tea available with no notice for

even just a few days in a row ... caffeine withdrawal big-time! OUCH!

There are some good websites out there to help give tips on how to make

the TRANSITION to a casein/gluten-free lifestyle while minimizing the

negative effects on the person who has to do it. Most advice is to

first remove the casein and then slowly reduce until eliminated the

gluten products, possibly substituting with similar foods made without

gluten...this diet is extra tricky when you have very selective

eaters. And remember, the special diet is not adapted for everyone.

www.gfutah.org/gfcfrecipes/

Some people are able to use digestive enzymes to lessen the effects of

the offending food groups but not completely (my son), others are

successful at using them instead of doing the diet (like in NJ) --

whether that is a viable option or not depends on the individual's

condition though (my son takes enzymes but they do not make him 100%

tolerant of the casein-gluten...he really needs to go 100% casein-gluten

free but we're also dealing with hyperselective eating and mineral

imbalances that interfere with our doing that...but I'm setting up to

try again in July)

www.enzymestuff.com

www.houstonni.com

Your child may have other intolerance issues that may not be addressed

with casein-gluten removal, or just casein-gluten removal. There are

several other diets out there (do a Google search to easily find more

info and/or search within for support groups) - some names

include BED, SCD, Feingold, Low-Oxalate, No-phenol. Many of these

diets are probably listed as having to do with " autism " but they are

really for use by anyone who presents symptoms which may be helped by them.

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June 17, 2007

Milk affects my son so profoundly that I'm afraid for him if he ever has any

again. That being said... he is 12, a little old to be controlled so I pray

that we will be able to use the enzyme for parties, travelling and gluten

slip-ups. He really doesn't want milk any more but he believes that he can

tolerate cheese. (yikes) If I can just engrain in him that he MUST take

enzymes if he is going to stray..... then that will be wonderful. At home it

will be GFCF all the way. We are starting so late and have so much to make up

for.

Janice

[sPAM] Re: [ ] re: gluten/casine free diet-anyone

doing this?

It came to mind today that we have discussed the GFCF diet a lot on this

discussion group lately, as we expand all discussions again to more

biomedical treatment options to help with our kids' neurological issues.

Forgive me if it was already stated and I've just forgotten (there have

been so many messages who wrote what & where sometimes escapes me

lately) BUT if you do want to try the GFCF diet..._*don't go cold

turkey*_

June 18, 2007

My niece is GFCFSF plus egg free and low sugar. When she first

started the diet, it was rough. She was almost a little depressed

and she lost a few pounds. Now that she has adjusted, she eats the

most beautiful diet of any child I have ever met. She craves

zucchini!

I think what people usually end up doing is: in the beginning find

substitutes for favorites (e.g. pizza crust made from rice), and then

introduce new foods to change the diet. With so many restrictions,

it can be VERY unpleasant until she accepts the new way. You are

going to need to try to get her to eat more fruits and vegetables,

more meat, and more beans. This can be a challenge, but she will be

motivated by hunger. And you will need something to substitute for

treats at school and parties.

There is a site called " Foods You Can Eat " where you can input your

restrictions and come up with some new recipes. I found a corn

muffin recipe there (it's called Corn Bread). When my niece comes

for a party at my house, I sprinkle confectioner's sugar on top of

them and call them cupcakes. They are a little gummier/less crumbly

than normal corn muffins, but we all like them a lot. Hummus and

rice crackers is great snack, or even lunch. (I put a lot of

roasted red peppers in mine.) The Bob's Red Mill site has a lot of

gluten-free recipes, and you can subsitute a GFCF rice, soy, or nut

milk for any dairy. FYI, one of the rice milks is not GFSF, but I

can't remember which brand. Read labels carefully.

There are a lot of sites out there to help you if this is a long-term

thing. Most of the kids on the diet were self-limiting and/or very

picky, and they have adjusted. It just takes a few weeks and a lot

of careful shopping and making foods from scratch (you will find

gluten in everything).

Gotta run! 's last day of school.

in NJ

>

> Hi.

>

> Some of you may recall last post regarding my 32mth old who in

the last two months has lost a lot of play, social and language

skills. We are in the process of waiting for evaluations from a

neurologist, GI, Allergist, Autism Center, and an Audiologist. We

just got approved for 10 hrs a week of ABA in addition to the speech

and OT we are already receiving. We have also decided to make some

changes in her diet.

>

> My daughters eating habits have always been horrible..... she

lives on shakes (consisting of yogurt, banana and milk), cheese and

breads. Occasionally she will eat other things for us too, it's

usually hit or miss though. About 2 wks ago we switched to soy silk

milk and soy yogurt. The labels on the soy products say casine free

& gluten free. My husband and I do think she is more alert since we

made the switch, but now I am hearing that Soy isn't the best to

switch to? We made the swithc because we were running out of ideas

as to help our daughter, and as an infant she had a lot of problems

digesting breast milk and formula. Thought it was worth a try.

>

> Since we have been seeing some progress with the soy, we decided

(two days ago) to try a casine free/gluten free diet. Today, day two

of her new diet, she has been chatter..... we are pleased. However,

this morning she woke up with a rash on her face. Could she be

allergic to the soy and would the rash only show up now, two weeks

after making the switch? Or could the rash be the toxins escaping

from her body? The rash is on both sides of her checks, the size of

a quarter and bright red and very dry.

>

> We have an appointment with the allergist this Monday... Are

there any tests/questions I should definitely be asking? Thank you

for all of you input.

>

> Also anyone else on a gluten free casine free diet? What are you

kids eating? Are there any products of foods that you like better

than others?

>

> ---------------------------------

> Take the Internet to Go: Go puts the Internet in your pocket:

mail, news, photos & more.

>

June 18, 2007

Our GFCF saga goes like this. After I realized celiac was a real concern

we did go cold turkey and noticed improvement in all members of the

family immediately. Those three family members were mostly having

forbidden stuff so it made sense. I cheated once per day on certain days

to test it. I was immediately sick dependent on whatever it was. Wheat

gave bad heaches, back aches, UTI back pain and constipation. Milk gave

diarrhea. For the kids cheating on milk gave diarrhea and cheese and

wheat gave constipation and irritability. While the irritability

decreased tremendously with GFCF for daughter she is more insistent

about her position on things. More than before. I am now wondering if it

is a detox effect. We'll see over time as I can't cheat with her. She is

in agony belly-wise. Son may require a different diet. His cheating

seems to have made him more aware. Not sure if he needs another diet so

we need to explore. Genetic and metal testing should tell us if this is

nature, nurture, or both.

Janice wrote:

>Milk affects my son so profoundly that I'm afraid for him if he ever has any

again. That being said... he is 12, a little old to be controlled so I pray

that we will be able to use the enzyme for parties, travelling and gluten

slip-ups. He really doesn't want milk any more but he believes that he can

tolerate cheese. (yikes) If I can just engrain in him that he MUST take

enzymes if he is going to stray..... then that will be wonderful. At home it

will be GFCF all the way. We are starting so late and have so much to make up

for.

>

>Janice

>

> [sPAM] Re: [ ] re: gluten/casine free diet-anyone

doing this?

>

> It came to mind today that we have discussed the GFCF diet a lot on this

> discussion group lately, as we expand all discussions again to more

> biomedical treatment options to help with our kids' neurological issues.

>

> Forgive me if it was already stated and I've just forgotten (there have

> been so many messages who wrote what & where sometimes escapes me

> lately) BUT if you do want to try the GFCF diet..._*don't go cold

> turkey*_

>

June 18, 2007

My little on is having a hard time with this diet......her diet is so limited

(cheese, bread, crackers, chicken nuggets, pizza) can anyone recommend recipes

or store bought food that is tasty? My daughter refuses fruits, veggies and

chicken/beef/fish, so I'm in a real bind!

She likes tuna fish....... is there a good mayo you can recommend I buy? Any

good bread recipes out there or any good brand of bread? We purchased one it

tasted like cardboard !

June 18, 2007

Thanks for the site...I'll check it out!

bigcheech91 <bigcheech91@...> wrote: My niece is GFCFSF plus egg

free and low sugar. When she first