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Re: Some people get the wrong idea about LDN

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Posted

I am really curious as to why you post with a 22 character line width. It can make your longer posts difficult to read.

mjhBrend"The Basil Book"http://foxhillfarm.us/FireBasil/

week course of Diflucan 2 days ago. I do not get the flu shot as they contain mercury and thalidomide, I stay away, if at all possible from any doctor who does not believe in alternative medicine.

Posted

Good post .

We have a long way to go, thats for sure!

[low dose naltrexone] Some people get the wrong idea about LDN

Some think LDN is supposed to get rid of all their symptoms, make balance better, walk better, stand them up out of a wheelchair....not true. LDN is meant to slow down and hopefully halt disease progression and if one does happen to get symptom improvement on LDN then you got lucky. If you were lucky and got symptom improvement be aware that those symptoms can erupt at any time and there are many factors that can trigger these eruptions.I just went thrugh 3 days of my hamstrings of both legs drawing and cramping, my MS is extremely weather sensitive and ys, it was the crazy weather pattern here that was triggering this, did I panic and fear my LDN had stopped working?...NO. Yesterday the sun came out and the muscles in my legs improved and all's well today.Stress is one of the worst triggers to cause negative symptoms to erupt and as long as you are under stress your symptoms are going to be bad.There are other factors that can cause LDN to suddenly stop working in someone who has had success with LDN let's say 2, 3, 4 or more years. First make sure you are not under stress, have an infection, make sure your pharmacy hasn't made any changes to how your LDN is being prepared, have you taken antibiotics or anything else that might be an immune suppressant, have you recently had surgery, a colonoscopy or any amalgam dental fillings put in, mold exposure, then look at the possibility of candida yeast overgrowth, candida can live in the gut but it can also live in the bloodstream...getting it out of the bloodsteam is difficult and may take a 2 to 3 week or more course of prescription Diflucan(Nystatin cannot reach the bloodstream). Amalgam/mercury dental fillings keep the candida fueled. Dr. McCandless said it is cruel for a dentist to put amalgam dental fillings in an autistic child's mouth so mom's of autistic kids beware. Does your diet consist of junk food and do you sit on your duff all day getting zero exercise?...your muscles will waste away if you do not exercise them.For those who start out on LDN but continue to progress with new symptoms. Remember, not everyone will succeed with LDN but I do believe the majority will(approx 75% to 80% will succeed in my opinion which is not a professional one). First make sure your LDN is being compounded correctly, NO CALCIUM CARBONATE is to be used as a filler in the LDN capsules. Have you ruled out Lyme disease via a Western Blot test by IGeneX Labs, Lyme is the great imitator of Multiple Sclerosis. Could you have candida yeast overgrowth(causes are many), you may be eating a food that acts in your system as an exogenous opioid narcotic drug and LDN can block that and cause you negative symptoms(usually these foods are sugar, dairy, gluten, soy and possibly corn). These are just some things you may look at.I am always searching for ways to improve my LDN experience. I've improved my diet...I eat 100% all organic foods and I use some supplements, get massage therapy, get exercise, I do have a positive spiritual belief, I have great family and friends who add positive emotions to my life, I generally get adequate sleep, I have a wonderful doctor who is encouraging me every step of the way, and since my fungal/yeast history from the past was so bad and I could possibly have candida still in the blood stream, for my own peace of mind I started a 3 week course of Diflucan 2 days ago. I do not get the flu shot as they contain mercury and thalidomide, I stay away, if at all possible from any doctor who does not believe in alternative medicine.

Posted

>

>

>

> Some think LDN is

> supposed to get rid of

> all their symptoms, make

> balance better, walk

> better, stand them up

> out of a

> wheelchair....not true.

> LDN is meant to slow

> down and hopefully halt

> disease progression and

> if one does happen to

> get symptom improvement

> on LDN then you got

> lucky. If you were

> lucky and got symptom

> improvement be aware

> that those symptoms can

> erupt at any time and

> there are many factors

> that can trigger these

> eruptions.

>

> I just went thrugh 3

> days of my hamstrings of

> both legs drawing and

> cramping, my MS is

> extremely weather

> sensitive and ys, it was

> the crazy weather

> pattern here that was

> triggering this, did I

> panic and fear my LDN

> had stopped

> working?...NO.

> Yesterday the sun came

> out and the muscles in

> my legs improved and

> all's well today.

>

> Stress is one of the

> worst triggers to cause

> negative symptoms to

> erupt and as long as you

> are under stress your

> symptoms are going to be

> bad.

>

> There are other factors

> that can cause LDN to

> suddenly stop working in

> someone who has had

> success with LDN let's

> say 2, 3, 4 or more

> years. First make sure

> you are not under

> stress, have an

> infection, make sure

> your pharmacy hasn't

> made any changes to how

> your LDN is being

> prepared, have you taken

> antibiotics or anything

> else that might be an

> immune suppressant, have

> you recently had

> surgery, a colonoscopy

> or any amalgam dental

> fillings put in, mold

> exposure, then look at

> the possibility of

> candida yeast

> overgrowth, candida can

> live in the gut but it

> can also live in the

> bloodstream...getting it

> out of the bloodsteam is

> difficult and may take a

> 2 to 3 week or more

> course of prescription

> Diflucan(Nystatin cannot

> reach the bloodstream).

> Amalgam/mercury dental

> fillings keep the

> candida fueled. Dr.

> McCandless said it is

> cruel for a dentist to

> put amalgam dental

> fillings in an autistic

> child's mouth so mom's

> of autistic kids

> beware. Does your diet

> consist of junk food and

> do you sit on your duff

> all day getting zero

> exercise?...your muscles

> will waste away if you

> do not exercise them.

>

> For those who start out

> on LDN but continue to

> progress with new

> symptoms. Remember, not

> everyone will succeed

> with LDN but I do

> believe the majority will

> (approx 75% to 80% will

> succeed in my opinion

> which is not a

> professional one). First

> make sure your LDN is

> being compounded

> correctly, NO CALCIUM

> CARBONATE is to be used

> as a filler in the LDN

> capsules. Have you

> ruled out Lyme disease

> via a Western Blot test

> by IGeneX Labs, Lyme is

> the great imitator of

> Multiple Sclerosis.

> Could you have candida

> yeast overgrowth(causes

> are many), you may be

> eating a food that acts

> in your system as an

> exogenous opioid

> narcotic drug and LDN

> can block that and cause

> you negative symptoms

> (usually these foods are

> sugar, dairy, gluten,

> soy and possibly corn).

>

> These are just some

> things you may look at.

>

> I am always searching

> for ways to improve my

> LDN experience. I've

> improved my diet...I eat

> 100% all organic foods

> and I use some

> supplements, get massage

> therapy, get exercise, I

> do have a positive

> spiritual belief, I have

> great family and friends

> who add positive

> emotions to my life, I

> generally get adequate

> sleep, I have a

> wonderful doctor who is

> encouraging me every

> step of the way, and

> since my fungal/yeast

> history from the past

> was so bad and I could

> possibly have candida

> still in the blood

> stream, for my own peace

> of mind I started a 3

> week course of Diflucan

> 2 days ago. I do not

> get the flu shot as they

> contain mercury and

> thalidomide, I stay

> away, if at all possible

> from any doctor who does

> not believe in

> alternative medicine.

>

>

>

>

Excellent post, .

Effort and sacrifice has got to become part of our overall therapy

and not just expect LDN to do it all. I wonder, for example, how many

here still smoke cigarettes and think it doesn't effect their health?

I quit June 1993 after being up to three packs a day. I was

overdosing on nicotine. Also, the garbage masquerading as meals in

the fast food joints (Mcs, Baskin Robins, Dunkin Donuts) should

not be part of the diet of those who are chronically ill such as us.

It may be tasty, but it is not good for our health. I avoid this

stuff like the tax collector.

Artie

Posted

Some things we do that are

good for our health still

may not help us walk

better or feel better, etc

but you'll never know

unless you try. I did

have to be realistic with

myself though. I know no

matter how hard I exercise

that the areas of my body

that had bad paralysis is

not going to get a whole

lot better but the muscles

around those damaged areas

can be kept in good shape

by exercise, proper diet,

etc. Artie brought up

something I hadn't thought

about because I've never

smoked, but quitting

smoking would be a plus in

your overall health and

the health of those around

you. I do not allow

anyone to smoke anywhere

near me.

LDN can slow or halt

progression and sometimes

help symptoms, you must do

the rest to maintain what

LDN gives you.

Probably next year I will

start having these amalgam

fillings removed and

replaced with composites

and then once all have

been replaced I will do

oral chelation. May not

make one bit of difference

but it will give me peace

of mind.

=========

>

>

> >

> >

> >

> > Some think LDN is

> > supposed to get rid of

> > all their symptoms,

make

> > balance better, walk

> > better, stand them up

> > out of a

> > wheelchair....not

true.

> > LDN is meant to slow

> > down and hopefully

halt

> > disease progression

and

> > if one does happen to

> > get symptom

improvement

> > on LDN then you got

> > lucky. If you were

> > lucky and got symptom

> > improvement be aware

> > that those symptoms

can

> > erupt at any time and

> > there are many factors

> > that can trigger these

> > eruptions.

> >

> > I just went thrugh 3

> > days of my hamstrings

of

> > both legs drawing and

> > cramping, my MS is

> > extremely weather

> > sensitive and ys, it

was

> > the crazy weather

> > pattern here that was

> > triggering this, did I

> > panic and fear my LDN

> > had stopped

> > working?...NO.

> > Yesterday the sun came

> > out and the muscles in

> > my legs improved and

> > all's well today.

> >

> > Stress is one of the

> > worst triggers to

cause

> > negative symptoms to

> > erupt and as long as

you

> > are under stress your

> > symptoms are going to

be

> > bad.

> >

> > There are other

factors

> > that can cause LDN to

> > suddenly stop working

in

> > someone who has had

> > success with LDN let's

> > say 2, 3, 4 or more

> > years. First make

sure

> > you are not under

> > stress, have an

> > infection, make sure

> > your pharmacy hasn't

> > made any changes to

how

> > your LDN is being

> > prepared, have you

taken

> > antibiotics or

anything

> > else that might be an

> > immune suppressant,

have

> > you recently had

> > surgery, a colonoscopy

> > or any amalgam dental

> > fillings put in, mold

> > exposure, then look at

> > the possibility of

> > candida yeast

> > overgrowth, candida

can

> > live in the gut but it

> > can also live in the

> > bloodstream...getting

it

> > out of the bloodsteam

is

> > difficult and may take

a

> > 2 to 3 week or more

> > course of prescription

> > Diflucan(Nystatin

cannot

> > reach the

bloodstream).

> > Amalgam/mercury dental

> > fillings keep the

> > candida fueled. Dr.

> > McCandless said it is

> > cruel for a dentist to

> > put amalgam dental

> > fillings in an

autistic

> > child's mouth so mom's

> > of autistic kids

> > beware. Does your

diet

> > consist of junk food

and

> > do you sit on your

duff

> > all day getting zero

> > exercise?...your

muscles

> > will waste away if you

> > do not exercise them.

> >

> > For those who start

out

> > on LDN but continue to

> > progress with new

> > symptoms. Remember,

not

> > everyone will succeed

> > with LDN but I do

> > believe the majority

will

> > (approx 75% to 80%

will

> > succeed in my opinion

> > which is not a

> > professional one).

First

> > make sure your LDN is

> > being compounded

> > correctly, NO CALCIUM

> > CARBONATE is to be

used

> > as a filler in the LDN

> > capsules. Have you

> > ruled out Lyme disease

> > via a Western Blot

test

> > by IGeneX Labs, Lyme

is

> > the great imitator of

> > Multiple Sclerosis.

> > Could you have candida

> > yeast overgrowth

(causes

> > are many), you may be

> > eating a food that

acts

> > in your system as an

> > exogenous opioid

> > narcotic drug and LDN

> > can block that and

cause

> > you negative symptoms

> > (usually these foods

are

> > sugar, dairy, gluten,

> > soy and possibly

corn).

> >

> > These are just some

> > things you may look at.

> >

> > I am always searching

> > for ways to improve my

> > LDN experience. I've

> > improved my diet...I

eat

> > 100% all organic foods

> > and I use some

> > supplements, get

massage

> > therapy, get exercise,

I

> > do have a positive

> > spiritual belief, I

have

> > great family and

friends

> > who add positive

> > emotions to my life, I

> > generally get adequate

> > sleep, I have a

> > wonderful doctor who

is

> > encouraging me every

> > step of the way, and

> > since my fungal/yeast

> > history from the past

> > was so bad and I could

> > possibly have candida

> > still in the blood

> > stream, for my own

peace

> > of mind I started a 3

> > week course of

Diflucan

> > 2 days ago. I do not

> > get the flu shot as

they

> > contain mercury and

> > thalidomide, I stay

> > away, if at all

possible

> > from any doctor who

does

> > not believe in

> > alternative medicine.

> >

> >

> >

> >

Posted

>

>

>

> I am really curious as

to why you post with a 22

character line width. It

> can make your longer

posts difficult to read.

>

=======

I can't control that.

It's built into MSN TV

that way. I generally

post from MSN TV and not

the computer. I cannot

sit at a computer for long

due to past paralysis of

my entire torso years back.

Posted

Hi,

I just joined this list. Has anyone used LDN for a child with autism? If

so, I'd appreciate hearing results. Thanks,

Cate

Portland, OR

Posted

Hi Cate,

I will send you some earlier posts from this group that I saved regarding

Autism. Welcome to the group.

Aletha

Re: [low dose naltrexone] Re: Some people get the wrong idea about

LDN

> Hi,

> I just joined this list. Has anyone used LDN for a child with autism? If

> so, I'd appreciate hearing results. Thanks,

> Cate

> Portland, OR

>

>

>

>

Posted

>

> Hi,

> I just joined this list. Has anyone used LDN for a child with

autism? If

> so, I'd appreciate hearing results. Thanks,

> Cate

> Portland, OR

>

Cate,

You should consider joining this group:

Autism_LDN/

This is a group for discussing and reporting treatment results with

LDN (low dose naltrexone) in autism spectrum disorder. This is a new

treatment and the goal is to get as much information as possible to

help parents decide if this is an appropriate and safe treatment for

their autistic child.

Posted

Thank you, Aletha. :) Cate

Aletha Wittmann wrote:

> Hi Cate,

>

> I will send you some earlier posts from this group that I saved regarding

> Autism. Welcome to the group.

>

> Aletha

> Re: [low dose naltrexone] Re: Some people get the wrong idea about

> LDN

>

>

>

>> Hi,

>> I just joined this list. Has anyone used LDN for a child with autism? If

>> so, I'd appreciate hearing results. Thanks,

>> Cate

>> Portland, OR

>>

>>

>>

>>

Posted

Thank you. I'll do that, and should probably get off this list, then. I

see some interesting postings from adults with autoimmune issues here. I

have rosacea, so maybe I should try LDN too :-). And eat coconut oil.

Thanks,

Cate

Art Hansen wrote:

>

>

>> Hi,

>> I just joined this list. Has anyone used LDN for a child with

>>

> autism? If

>

>> so, I'd appreciate hearing results. Thanks,

>> Cate

>> Portland, OR

>>

>>

>

> Cate,

>

> You should consider joining this group:

>

> Autism_LDN/

>

> This is a group for discussing and reporting treatment results with

> LDN (low dose naltrexone) in autism spectrum disorder. This is a new

> treatment and the goal is to get as much information as possible to

> help parents decide if this is an appropriate and safe treatment for

> their autistic child.

>

>

>

>

>

>

Posted

Hi Aletha,

I also just joined and am giving my 5 year

old ASD child LDN. Can you forward those links to me as well please?

Thanks so much!

e in San Diego

kpcstearns@...

From:

low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Aletha Wittmann

Sent: Sunday, October 29, 2006

5:11 PM

To:

low dose naltrexone

Subject: Re: [low dose naltrexone]

Re: Some people get the wrong idea about LDN

Hi Cate,

I will send you some earlier posts from this group that I saved regarding

Autism. Welcome to the group.

Aletha

Re: [low dose naltrexone] Re: Some people get the wrong idea about

LDN

> Hi,

> I just joined this list. Has anyone used LDN for a child with autism? If

> so, I'd appreciate hearing results. Thanks,

> Cate

> Portland, OR

>

>

>

>

Posted

Yeah, I agree. Even though 's posts are usually very informative

and helpful I skip most of them now as it is a pain for me to have to

scroll and scroll and scroll to read them all........ :-(

foxhillers@... wrote:

>

>

> I am really curious as to why you post with a 22 character line

> width. It can make your longer posts difficult to read.

>

> mjhBrend

> " The Basil Book "

> http://foxhillfarm.us/FireBasil/

>

> week course of Diflucan

> 2 days ago. I do not

> get the flu shot as they

> contain mercury and

> thalidomide, I stay

> away, if at all possible

> from any doctor who does

> not believe in

> alternative medicine.

>

>

Posted

C

I know people using webtv that make a change somehow to have a wider line legth, easier to read email option.

mjh"The Basil Book"http://foxhillfarm.us/FireBasil/

Posted by: " C" covo@... covoyg

Mon Oct 30, 2006 12:02 am (PST)

Yeah, I agree. Even though 's posts are usually very informative and helpful I skip most of them now as it is a pain for me to have to scroll and scroll and scroll to read them all........ :-(foxhillersaol wrote:> > > I am really curious as to why you post with a 22 character line > width. It can make your longer posts difficult to read.>

Posted

>

> C

>

> I know people using webtv that make a change somehow to have a wider

line

> legth, easier to read email option.

>

> mjh

==========

Did this help the width? I hit resize page to see if that will make

any diffrence. Webtv and MSN TV do not work the same, lots of

features with the old webtv were left out of MSN TV, I hate this

thing...they do not make webtv any longer. I hope to get my old webtv

refurbished in the near future.

Posted

> >

> > C

> >

> > I know people using webtv that make a change somehow to have a

wider

> line

> > legth, easier to read email option.

> >

> > mjh

> ==========

>

> Did this help the width? I hit resize page to see if that will

make

> any diffrence. Webtv and MSN TV do not work the same, lots of

> features with the old webtv were left out of MSN TV, I hate this

> thing...they do not make webtv any longer. I hope to get my old

webtv

> refurbished in the near future.

>

>

>

Yes. Looks normal now.

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