Re: Digest Number 2309 Stiffness And MS

September 17, 2006

I believe the stiffness we all feel is a common aspect of MS--spasticity. Stretching does help the spasticity for me and so does avoiding very cold weather or humidity. Being constipated is a real trigger for spasticity and we should all be aware that our stiff limbs could be caused by that, and so can be easily addressed if that is the cause.

I have also determined that 3.0 is the only level of LDN that my body is comfortable with. At 4.5, and later at 3.5, I experienced extensive numbness in my feet and legs up to my knees, and also increased spasticity, so anyone having that trouble might want to go back to 3.0. I have yet to see any proof anywhere that it is better to be at a higher level.

And as I have said here before, the avicel made my stomach very very sick. Switching to lactose filler eliminated that problem.

Last week I saw my neuro after 4 months and he said my legs seemed to be stronger. He told me to continue on the LDN and he did not discuss any other drugs. I am walking with a walker and using a travel scooter when I want to traverse long distances but the MS has remained largely a major issue in my right leg so I am thankful for that.

Joyce

September 18, 2006

I'll tell you what else makes my legs and ankles stiff. When I get excited or nervous about something. Really wierd, does anyone else experience this?

Re: [low dose naltrexone] Digest Number 2309 Stiffness And MS

I believe the stiffness we all feel is a common aspect of MS--spasticity. Stretching does help the spasticity for me and so does avoiding very cold weather or humidity. Being constipated is a real trigger for spasticity and we should all be aware that our stiff limbs could be caused by that, and so can be easily addressed if that is the cause.

I have also determined that 3.0 is the only level of LDN that my body is comfortable with. At 4.5, and later at 3.5, I experienced extensive numbness in my feet and legs up to my knees, and also increased spasticity, so anyone having that trouble might want to go back to 3.0. I have yet to see any proof anywhere that it is better to be at a higher level.

And as I have said here before, the avicel made my stomach very very sick. Switching to lactose filler eliminated that problem.

Last week I saw my neuro after 4 months and he said my legs seemed to be stronger. He told me to continue on the LDN and he did not discuss any other drugs. I am walking with a walker and using a travel scooter when I want to traverse long distances but the MS has remained largely a major issue in my right leg so I am thankful for that.

Joyce

September 18, 2006

Dave I have pls and many of us suffer more stiffness when under stress

Jerry

Re: [low dose naltrexone] Digest Number 2309 Stiffness And MS

I believe the stiffness we all feel is a common aspect of MS--spasticity. Stretching does help the spasticity for me and so does avoiding very cold weather or humidity. Being constipated is a real trigger for spasticity and we should all be aware that our stiff limbs could be caused by that, and so can be easily addressed if that is the cause.

I have also determined that 3.0 is the only level of LDN that my body is comfortable with. At 4.5, and later at 3.5, I experienced extensive numbness in my feet and legs up to my knees, and also increased spasticity, so anyone having that trouble might want to go back to 3.0. I have yet to see any proof anywhere that it is better to be at a higher level.

And as I have said here before, the avicel made my stomach very very sick. Switching to lactose filler eliminated that problem.

Last week I saw my neuro after 4 months and he said my legs seemed to be stronger. He told me to continue on the LDN and he did not discuss any other drugs. I am walking with a walker and using a travel scooter when I want to traverse long distances but the MS has remained largely a major issue in my right leg so I am thankful for that.

Joyce

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.12.4/449 - Release Date: 9/15/2006

September 18, 2006

Well, yea, stress is not good, but I'm talking about simple things like getting excited about going somewhere or doing something.

Re: [low dose naltrexone] Digest Number 2309 Stiffness And MS

I believe the stiffness we all feel is a common aspect of MS--spasticity. Stretching does help the spasticity for me and so does avoiding very cold weather or humidity. Being constipated is a real trigger for spasticity and we should all be aware that our stiff limbs could be caused by that, and so can be easily addressed if that is the cause.

I have also determined that 3.0 is the only level of LDN that my body is comfortable with. At 4.5, and later at 3.5, I experienced extensive numbness in my feet and legs up to my knees, and also increased spasticity, so anyone having that trouble might want to go back to 3.0. I have yet to see any proof anywhere that it is better to be at a higher level.

And as I have said here before, the avicel made my stomach very very sick. Switching to lactose filler eliminated that problem.

Last week I saw my neuro after 4 months and he said my legs seemed to be stronger. He told me to continue on the LDN and he did not discuss any other drugs. I am walking with a walker and using a travel scooter when I want to traverse long distances but the MS has remained largely a major issue in my right leg so I am thankful for that.

Joyce

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.12.4/449 - Release Date: 9/15/2006

September 18, 2006

i dont have have the highs and lows of getting excited maybe its age maybe its pls

Re: [low dose naltrexone] Digest Number 2309 Stiffness And MS

I believe the stiffness we all feel is a common aspect of MS--spasticity. Stretching does help the spasticity for me and so does avoiding very cold weather or humidity. Being constipated is a real trigger for spasticity and we should all be aware that our stiff limbs could be caused by that, and so can be easily addressed if that is the cause.

I have also determined that 3.0 is the only level of LDN that my body is comfortable with. At 4.5, and later at 3.5, I experienced extensive numbness in my feet and legs up to my knees, and also increased spasticity, so anyone having that trouble might want to go back to 3.0. I have yet to see any proof anywhere that it is better to be at a higher level.

And as I have said here before, the avicel made my stomach very very sick. Switching to lactose filler eliminated that problem.

Last week I saw my neuro after 4 months and he said my legs seemed to be stronger. He told me to continue on the LDN and he did not discuss any other drugs. I am walking with a walker and using a travel scooter when I want to traverse long distances but the MS has remained largely a major issue in my right leg so I am thankful for that.

Joyce

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.12.4/449 - Release Date: 9/15/2006

September 18, 2006

Yep, happens to me with PLS. If I am walking (with my walking frame)

and someone comes up behind me and I feel I am holding them up it makes

me nervous which makes me stiffen and go even slower which makes me more

nervous which.................... - vicious circle. I have to stop and

let them go past, then my legs slowly free up and I can resume my normal

slow walk. Almost all PLSers find that happens in that type of

situation and many others. When I watch an exciting football match etc

it takes me ages to get my legs working again as they go very stiff.

Maybe you've really got PLS??? :-)

Dave Carlin wrote:

> I'll tell you what else makes my legs and ankles stiff. When I get

> excited or nervous about something. Really wierd, does anyone else

> experience this?

September 18, 2006

Now here is something really bizarre. Laughing can literally make me fall down. Laughing can weaken my legs.

Re: [low dose naltrexone] Digest Number 2309 Stiffness And MS

Yep, happens to me with PLS. If I am walking (with my walking frame) and someone comes up behind me and I feel I am holding them up it makes me nervous which makes me stiffen and go even slower which makes me more nervous which.................... - vicious circle. I have to stop and let them go past, then my legs slowly free up and I can resume my normal slow walk. Almost all PLSers find that happens in that type of situation and many others. When I watch an exciting football match etc it takes me ages to get my legs working again as they go very stiff. Maybe you've really got PLS??? :-)Dave Carlin wrote:> I'll tell you what else makes my legs and ankles stiff. When I get > excited or nervous about something. Really wierd, does anyone else > experience this?

September 18, 2006

Dave,

This is one of my worst symtoms for MS, when I get excited and stressed. I

coach youth sports almost year round, and when I get done with a game, I

can barely walk, and my back kills me. Or watching a favorite team on the

television, speaking in front of people. I retreat into a shell more and

more knowing that I will have this type of reaction, increased

Spasticity??

What is PLS?

Wayne

Re: [low dose naltrexone] Digest Number 2309

> Stiffness And MS

>

> I believe the stiffness we all feel is a common aspect of MS-

> -spasticity. Stretching does help the spasticity for me and so

> does avoiding very cold weather or humidity. Being constipated is

> a real trigger for spasticity and we should all be aware that our

> stiff limbs could be caused by that, and so can be easily

> addressed if that is the cause.

>

> I have also determined that 3.0 is the only level of LDN

> that my body is comfortable with. At 4.5, and later at 3.5, I

> experienced extensive numbness in my feet and legs up to my knees,

> and also increased spasticity, so anyone having that trouble might

> want to go back to 3.0. I have yet to see any proof anywhere that

> it is better to be at a higher level.

>

> And as I have said here before, the avicel made my stomach

> very very sick. Switching to lactose filler eliminated that problem.

>

> Last week I saw my neuro after 4 months and he said my legs

> seemed to be stronger. He told me to continue on the LDN and he

> did not discuss any other drugs. I am walking with a walker and

> using a travel scooter when I want to traverse long distances but

> the MS has remained largely a major issue in my right leg so I am

> thankful for that.

> Joyce

>

> -------------------------------------------------------------------

> ---------

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.1.405 / Virus Database: 268.12.4/449 - Release

> Date: 9/15/2006

>

September 18, 2006

I hear you. For me it can be something as simple as getting excited about a job that I'm working on nearing completion, or getting excited about going out to a restaurant, anything that can cause happiness or excitement, it's really wierd!!!

Re: [low dose naltrexone] Digest Number 2309 > Stiffness And MS> > > > I believe the stiffness we all feel is a common aspect of MS-> -spasticity. Stretching does help the spasticity for me and so > does avoiding very cold weather or humidity. Being constipated is > a real trigger for spasticity and we should all be aware that our > stiff limbs could be caused by that, and so can be easily > addressed if that is the cause.> > I have also determined that 3.0 is the only level of LDN > that my body is comfortable with. At 4.5, and later at 3.5, I > experienced extensive numbness in my feet and legs up to my knees, > and also increased spasticity, so anyone having that trouble might > want to go back to 3.0. I have yet to see any proof anywhere that > it is better to be at a higher level.> > And as I have said here before, the avicel made my stomach > very very sick. Switching to lactose filler eliminated that problem.> > Last week I saw my neuro after 4 months and he said my legs > seemed to be stronger. He told me to continue on the LDN and he > did not discuss any other drugs. I am walking with a walker and > using a travel scooter when I want to traverse long distances but > the MS has remained largely a major issue in my right leg so I am > thankful for that. > Joyce > > > > > > > > > > > ----------------------------------------------------------> ---------> > > No virus found in this incoming message.> Checked by AVG Free Edition.> Version: 7.1.405 / Virus Database: 268.12.4/449 - Release > Date: 9/15/2006> > >

September 18, 2006

So, what are you doing for coping strategies?

September 18, 2006

Come to think of it, it doesn't really take much to suffer the effects of the

Adrenaline pick up.

Re: [low dose naltrexone] Digest Number 2309

> > Stiffness And MS

> >

> > I believe the stiffness we all feel is a common aspect of MS-

> > -spasticity. Stretching does help the spasticity for me and so

> > does avoiding very cold weather or humidity. Being constipated

> is

> > a real trigger for spasticity and we should all be aware that

> our

> > stiff limbs could be caused by that, and so can be easily

> > addressed if that is the cause.

> >

> > I have also determined that 3.0 is the only level of LDN

> > that my body is comfortable with. At 4.5, and later at 3.5, I

> > experienced extensive numbness in my feet and legs up to my

> knees,

> > and also increased spasticity, so anyone having that trouble

> might

> > want to go back to 3.0. I have yet to see any proof anywhere

> that

> > it is better to be at a higher level.

> >

> > And as I have said here before, the avicel made my stomach

> > very very sick. Switching to lactose filler eliminated that

> problem. >

> > Last week I saw my neuro after 4 months and he said my legs

> > seemed to be stronger. He told me to continue on the LDN and

> he

> > did not discuss any other drugs. I am walking with a walker

> and

> > using a travel scooter when I want to traverse long distances

> but

> > the MS has remained largely a major issue in my right leg so I

> am

> > thankful for that.

> > Joyce

> >

> > ----------------------------------------------------------

> > ---------

> >

> > No virus found in this incoming message.

> > Checked by AVG Free Edition.

> > Version: 7.1.405 / Virus Database: 268.12.4/449 - Release

> > Date: 9/15/2006

> >

>

September 18, 2006

Thats a good point. Adrenaline causing stiffness. hmmmmmmmmm....

>

> Come to think of it, it doesn't really take much to suffer the

effects of the Adrenaline pick up.

>

> Re: [low dose naltrexone] Digest Number 2309 Stiffness And

September 18, 2006

Yep, me too! :-)

Dave Carlin wrote:

> Now here is something really bizarre. Laughing can literally make me

> fall down. Laughing can weaken my legs.

>

> * Re: [low dose naltrexone] Digest Number 2309 Stiffness And MS

>

> Yep, happens to me with PLS. If I am walking (with my walking frame)

> and someone comes up behind me and I feel I am holding them up it

> makes

> me nervous which makes me stiffen and go even slower which makes

> me more

> nervous which.................... - vicious circle. I have to stop

> and

> let them go past, then my legs slowly free up and I can resume my

> normal

> slow walk. Almost all PLSers find that happens in that type of

> situation and many others. When I watch an exciting football match

> etc

> it takes me ages to get my legs working again as they go very stiff.

> Maybe you've really got PLS??? :-)

>

> Dave Carlin wrote:

>

> > I'll tell you what else makes my legs and ankles stiff. When I get

> > excited or nervous about something. Really wierd, does anyone else

> > experience this?

>

September 18, 2006

Dave I am exactly that way too. Unfortunately I am easily amused so I have to keep telling my family members to stop making me laugh ,if I am standing up.And all my 3 kids are hilarious.......it's awful.

Nola

Re: [low dose naltrexone] Digest Number 2309 Stiffness And MS

Yep, happens to me with PLS. If I am walking (with my walking frame) and someone comes up behind me and I feel I am holding them up it makes me nervous which makes me stiffen and go even slower which makes me more nervous which.................... - vicious circle. I have to stop and let them go past, then my legs slowly free up and I can resume my normal slow walk. Almost all PLSers find that happens in that type of situation and many others. When I watch an exciting football match etc it takes me ages to get my legs working again as they go very stiff. Maybe you've really got PLS??? :-)Dave Carlin wrote:> I'll tell you what else makes my legs and ankles stiff. When I get > excited or nervous about something. Really wierd, does anyone else > experience this?

September 18, 2006

>

> > I'll tell you what else makes my legs and ankles stiff. When

I get

> > excited or nervous about something. Really wierd, does anyone

else

> > experience this?

>

HI! DAVE,

THIS HAPPENS TO ME ALOT, TOO. IT MAKES ME VERY UNCOMFORTABLE TO GO

ANYWHERE. SO, INSTEAD OF USING MY CANE, I RESORT TO USING MY

WALKER.

I AM MORE STEADY THAT WAY. ESPECIALLY SINCE I HAVE LOST THE USE OF MY

RIGHT HAND & ARM. IT'S LIKE CARRYING AROUND DEAD WEIGHT, AND IT

MAKES ME VERY UNSTEADY. SO USING MY WALKER HELPS TO STEADY ME. I

FEEL MORE SECURE GOING PLACES NOW.

I'M ALWAYS TAGGING ALONG. THAT I HATE! BUT I'M USE TO IT.

HUGS TO EVERYONE. ANITA

September 19, 2006

I guess since adrenalin is a neurotransmitter, forcing it across broken or bad lines causes problems.> >> > Come to think of it, it doesn't really take much to suffer the > effects of the Adrenaline pick up. > > > > Re: [low dose naltrexone] Digest Number 2309 Stiffness And>

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