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An Important post by Dr. Mcandless, please read

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Posted

A meal will call for milk and bread when someone else writes the menu without your best interests in mind.

Caseine is found in dairy products, so no milk, cheese, yoghurt, ice cream or Elmer's glue.

Water and fresh veggie juices are a good substitute for milk, fruit ices can substitute for ice cream. Fresh sauerkraut juice can substitute for fully cultured yoghurt. There is no substitute for cheese.

Gluten is found in wheat, oats, barley and rye.

Believe it or not, there is life without bread, but if you must, there are gluten free breads in the freezer section of most supermarkets. Just check the label for milk/caseine byproducts.

Brown rice and millet and quinoa are tasty grain substitutes for gluten grains and they are also extremely nutritious.

mjh"The Basil Book"http://foxhillfarm.us/FireBasil/

,What do people on these casein/gluten restrictive diets use in place of milk and bread when the meal usually calls for these? Are there substitutes such as what stevia is for sugar?Artie

Posted

Even though this pertains mainly to Autistic kids, it may pertain to us with

autoimmune diseases.

Please read it in it's entirety as it contains important information throughout.

IMPORTANT SUMMARY: Naltrexone is an opioid antagonist, and 10-12 years ago

researchers Reichelt in Norway and Shattock in the UK and others were realizing

that the large peptides in wheat and milk (and also soy) were creating

opioid-like substances in the brains of autistics. Many studies were done

around that time with naltrexone in hopes that this drug would offset the opioid

effect of wheat and milk and children would not have to go on the restrictive

diets, but it showed varied and mostly disappointing results. Naltrexone was

and is still only made in 50mg tablets unless compounded otherwise; the only

kids that seemed to be helped at this dose were the SIBs (self-inflicting

behavior) kids, and not all of them. At that time, nothing was known about the

immune effects of naltrexone. When I first started practicing in 1996, I tried

naltrexone on quite a few kids at the 50mg dosing, but either got negative or no

perceptible responses, and gave it up, as many other

autism doctors did. NO ONE suffered any negative effects once the drug was

withdrawn; naltrexone is a non-toxic medication BUT can create a withdrawal

reaction if the person has opioids in their systems. The benefits of a tiny dose

of naltrexone for mood modulation and help to the immune system was not actually

made prior to my work at the beginning of 2005 except for a few isolated studies

in Italy and England that were not followed up. One reason was the terrible

taste of naltrexone and the non-compliance of children unable to swallow tablets

to be given this medication, as well as the lack of understanding that has

accrued in the last decade on the vital importance of endorphins to the immune

functioning. Another was that the cyclicity of endorphin release was not

understood then so the children were not given the med at bedtime so as to take

advantage of the outrush of endorphins between 2-4 in the morning which was a

stimulus to the immune system - this does not

occur in large doses. This is why I am adamant about parents not raising the

dose over 4.5mg, even if an uninformed doctor tells them to (except perhaps for

SIB).

The PRIMARY REASON (and I have stated this many, many times if one would

bother to read the archives of this list) children (and probably adults too)

have negative reactions to LDN is that they are experiencing an opioid blockage

with the gluten, casein, and soy (and possibly in some kids, corn too) in their

systems. Many parents who profess to be on the restrictive diets and experience

their kids having a bad reaction to LDN upon examination discover the source of

these large peptides in their children's food intake. Not reading food labels

carefully, not knowing the names in which food companies hide casein and gluten,

friends giving them food from their lunches at school, loving relatives who

refuse to believe " a little bit of ice cream (or cookies, or cake, etc etc won't

hurt " , or just plain old being careless with the diet and allowing infractions

are some of the things parents have discovered when I tell them this. AND, many

parents are just not willing to go the

mile for the dietary restriction that most helps these kids on the path to

recovery. In this case, I would highly suspect that the grandmother caring for

the children who got glutathione at 1/2ml twice a day mixed up with LDN at .1mg

nightly could easily have gotten some food items mixed up too, IF the child was

even on a dietary restriction in the first place, which I am inclined to doubt

from her reaction to LDN. AGAIN, I must repeat that if your child has a bad

reaction to LDN more than some hyperactivity or insomnia for just a couple of

days, it is very important to assume that this is a child who is extremely

sensitive to casein and gluten and to try to get it out of their diet if you

really want your child to start recovering maximally from autism. Parents need

to realize also that until gut healing occurs (in which case there will be no

negative reaction to naltrexone), the large peptides are keeping their

children's guts in an inflamed state making proper food

absorption impossible and encouraging the invasion of gut bacteria, viruses,

and fungi. I am starting to use the negative reaction to LDN as an important

tip-off to the presence of this gut inflammation and the need to address all

aspects of it.

Dr. JM

Posted by

Posted

Coincidentally, I was just reading that on her site. My question on it though was how it's possible that the LDN could be having a negative effect at night and at such a low dose, but if you read the post she was replying to, you would find out that the poster she was taking about had given her child naltrexone by accident during the day instead of what she was supposed to be giving her. Interesting info though!

[low dose naltrexone] An Important post by Dr. Mcandless, please read

Even though this pertains mainly to Autistic kids, it may pertain to us with autoimmune diseases.Please read it in it's entirety as it contains important information throughout.IMPORTANT SUMMARY: Naltrexone is an opioid antagonist, and 10-12 years ago researchers Reichelt in Norway and Shattock in the UK and others were realizing that the large peptides in wheat and milk (and also soy) were creating opioid-like substances in the brains of autistics. Many studies were done around that time with naltrexone in hopes that this drug would offset the opioid effect of wheat and milk and children would not have to go on the restrictive diets, but it showed varied and mostly disappointing results. Naltrexone was and is still only made in 50mg tablets unless compounded otherwise; the only kids that seemed to be helped at this dose were the SIBs (self-inflicting behavior) kids, and not all of them. At that time, nothing was known about the immune effects of naltrexone. When I first started practicing in 1996, I tried naltrexone on quite a few kids at the 50mg dosing, but either got negative or no perceptible responses, and gave it up, as many otherautism doctors did. NO ONE suffered any negative effects once the drug was withdrawn; naltrexone is a non-toxic medication BUT can create a withdrawal reaction if the person has opioids in their systems. The benefits of a tiny dose of naltrexone for mood modulation and help to the immune system was not actually made prior to my work at the beginning of 2005 except for a few isolated studies in Italy and England that were not followed up. One reason was the terrible taste of naltrexone and the non-compliance of children unable to swallow tablets to be given this medication, as well as the lack of understanding that has accrued in the last decade on the vital importance of endorphins to the immune functioning. Another was that the cyclicity of endorphin release was not understood then so the children were not given the med at bedtime so as to take advantage of the outrush of endorphins between 2-4 in the morning which was a stimulus to the immune system - this does notoccur in large doses. This is why I am adamant about parents not raising the dose over 4.5mg, even if an uninformed doctor tells them to (except perhaps for SIB).The PRIMARY REASON (and I have stated this many, many times if one would bother to read the archives of this list) children (and probably adults too) have negative reactions to LDN is that they are experiencing an opioid blockage with the gluten, casein, and soy (and possibly in some kids, corn too) in their systems. Many parents who profess to be on the restrictive diets and experience their kids having a bad reaction to LDN upon examination discover the source of these large peptides in their children's food intake. Not reading food labels carefully, not knowing the names in which food companies hide casein and gluten, friends giving them food from their lunches at school, loving relatives who refuse to believe "a little bit of ice cream (or cookies, or cake, etc etc won't hurt", or just plain old being careless with the diet and allowing infractions are some of the things parents have discovered when I tell them this. AND, many parents are just not willing to go themile for the dietary restriction that most helps these kids on the path to recovery. In this case, I would highly suspect that the grandmother caring for the children who got glutathione at 1/2ml twice a day mixed up with LDN at .1mg nightly could easily have gotten some food items mixed up too, IF the child was even on a dietary restriction in the first place, which I am inclined to doubt from her reaction to LDN. AGAIN, I must repeat that if your child has a bad reaction to LDN more than some hyperactivity or insomnia for just a couple of days, it is very important to assume that this is a child who is extremely sensitive to casein and gluten and to try to get it out of their diet if you really want your child to start recovering maximally from autism. Parents need to realize also that until gut healing occurs (in which case there will be no negative reaction to naltrexone), the large peptides are keeping their children's guts in an inflamed state making proper foodabsorption impossible and encouraging the invasion of gut bacteria, viruses, and fungi. I am starting to use the negative reaction to LDN as an important tip-off to the presence of this gut inflammation and the need to address all aspects of it. Dr. JMPosted by

Posted

>

> IMPORTANT SUMMARY: Naltrexone is an opioid antagonist, and 10-12

years ago researchers Reichelt in Norway and Shattock in the UK and

others were realizing that the large peptides in wheat and milk (and

also soy) were creating opioid-like substances in the brains of

autistics.

<snip>

--

,

What do people on these casein/gluten restrictive diets use in place

of milk and bread when the meal usually calls for these? Are there

substitutes such as what stevia is for sugar?

Artie

Posted

I think you're right , that post pretty much pertains to

autistic kids. Great info on methylcobalamin:

Sorry, my last post was directed to a parent giving a child the

liquid LDN.

Most adults with MS do not have the gluten and casein sensitivities

leading to

the gut dysfunction that our ASD kids have, so the time of night and

the

absorption issue or even the bitterness issue may not apply to

Davizona -

although I have heard adults say the liquid form did not seem to

hold its

potency throughout the time of its use and contamination needs to be

avoided

which might affect potency - if you have found that it works then by

all means

proceed - it may cost a lot less if it is in fact as effective.

As to your question about methylation, I think the majority of older

people,

people on poor diets, and those with any immune dysregulation

probably suffer

methylation defects, and if I had MS patients I would put them all

on injectable

methylcobalamin (or if not possible, nasal spray methylcobalamin)

and oral

folinic acid, as methylcobalamin is absolutely essential for proper

myelination

to take place. It is also a great boost to the immune system. Dr. JM

Posted

I've been wondering about raw goat's milk. I hear that it is much better for humans than cow's milk. Anyone out there tried it? Ezekial (sp?) bread is a very dense bread that is considered a protein. It's not bad, but I heard a doctor talk about the mold effect due to the sprouts that the bread is made from. This would contribute to candida. Marcie foxhillers@... wrote: A meal will call for milk and bread when someone else writes the menu without your best interests in mind. Caseine is found in dairy products, so no milk, cheese, yoghurt, ice cream or Elmer's glue. Water and fresh veggie juices are a good substitute for milk, fruit ices can substitute for ice cream. Fresh sauerkraut juice can substitute for fully cultured yoghurt. There is no substitute for cheese. Gluten is found in wheat, oats, barley and rye. Believe it or not, there is life without bread, but if you must, there are gluten free breads in the freezer section of most supermarkets. Just check the label for milk/caseine byproducts. Brown rice and millet and quinoa are tasty

grain substitutes for gluten grains and they are also extremely nutritious. mjh"The Basil Book"http://foxhillfarm.us/FireBasil/ ,What do people on these casein/gluten restrictive diets use in place of milk and bread when the meal usually calls for these? Are there substitutes such as what stevia is for sugar?Artie

Posted

>

Davizona,

> As to your question about methylation, I think the majority of older

> people,

> people on poor diets, and those with any immune dysregulation

> probably suffer

> methylation defects, and if I had MS patients I would put them all

> on injectable

> methylcobalamin (or if not possible, nasal spray methylcobalamin)

> and oral

> folinic acid, as methylcobalamin is absolutely essential for proper

> myelination

> to take place. It is also a great boost to the immune system. Dr. JM

=======

Dave,

I'm going to study up on the methylation thing and possibly try that. I've been

reading lots about Dr. JM using this.

Going to have my homocystein(sp?) level checked also.

I'm one who is gluten intolerant so I must avoid.

A new Alcat test is being done to check for food allergies.

http://www.alcat.com

Posted

>

Davizona,

> As to your question about methylation, I think the majority of older

> people,

> people on poor diets, and those with any immune dysregulation

> probably suffer

> methylation defects, and if I had MS patients I would put them all

> on injectable

> methylcobalamin (or if not possible, nasal spray methylcobalamin)

> and oral

> folinic acid, as methylcobalamin is absolutely essential for proper

> myelination

> to take place. It is also a great boost to the immune system. Dr. JM

=======

Dave,

I'm going to study up on the methylation thing and possibly try that. I've been

reading lots about Dr. JM using this.

Going to have my homocystein(sp?) level checked also.

I'm one who is gluten intolerant so I must avoid.

A new Alcat test is being done to check for food allergies.

http://www.alcat.com

Posted

> A meal will call for milk and bread when someone else writes the

menu without your best interests in mind.

>

> Caseine is found in dairy products, so no milk, cheese, yoghurt, ice cream

or Elmer's glue.

>

> Water and fresh veggie juices are a good substitute for milk, fruit ices can

substitute for ice cream. Fresh sauerkraut juice can substitute for fully

cultured yoghurt. There is no substitute for cheese.

>

> Gluten is found in wheat, oats, barley and rye.

>

> Believe it or not, there is life without bread, but if you must, there are

gluten free breads in the freezer section of most supermarkets. Just check the

label for milk/caseine byproducts.

>

> Brown rice and millet and quinoa are tasty grain substitutes for gluten

grains and they are also extremely nutritious.

>

> mjh

>

=======

Not sure what almond milk contains but I see it in my organic food store.

Posted

interesting test, I'm going to look into it.

[low dose naltrexone] Re: An Important post by Dr. Mcandless, please read

>Davizona, > As to your question about methylation, I think the majority of older > people,> people on poor diets, and those with any immune dysregulation > probably suffer> methylation defects, and if I had MS patients I would put them all > on injectable> methylcobalamin (or if not possible, nasal spray methylcobalamin) > and oral> folinic acid, as methylcobalamin is absolutely essential for proper > myelination> to take place. It is also a great boost to the immune system. Dr. JM=======Dave,I'm going to study up on the methylation thing and possibly try that. I've been reading lots about Dr. JM using this.Going to have my homocystein(sp?) level checked also.I'm one who is gluten intolerant so I must avoid.A new Alcat test is being done to check for food allergies.http://www.alcat.com

Posted

yea, I tried a test for celiac but it came back negative. I think theres a huge difference between a food allergy and an adverse reaction to food, a food allergy involves the immune system, something I have always been interested in determining.

[low dose naltrexone] Re: An Important post by Dr. Mcandless, please read

>> interesting test, I'm going to look into it.======Dave, you talking about the ALCAT test?ALCAT test for food allergies. http://www.alcat.com

Posted

,What do people on these casein/gluten restrictive diets use in placeof milk and bread when the meal usually calls for these? Are there

substitutes such as what stevia is for sugar? Artie

Substitutes for bread is a glutenfree bread (or just rice), and for milk

rice milk, or coconutmilk, (or water).

look at www.gfcfdiet.com

Geir Flatabø

Posted

ALso study up on homocysteine. There are a couple of good books and sites on these two critical issues.

And, there is another first class allergy test called L.E.A.P. get some info via www.carbonbased.com and read the story of Mark's daugher.

mjh"The Basil Book"http://foxhillfarm.us/FireBasil/

Dave,I'm going to study up on the methylation thing and possibly try that. I've been reading lots about Dr. JM using this.Going to have my homocystein(sp?) level checked also.I'm one who is gluten intolerant so I must avoid.A new Alcat test is being done to check for food allergies.http://www.alcat.com

Posted

>

>

>

> ALso study up on homocysteine. There are a couple of good books and sites

> on these two critical issues.

>

> And, there is another first class allergy test called L.E.A.P. get some

> info via _www.carbonbased.com_ (http://www.carbonbased.com) and read the

story

> of Mark's daugher.

>

> mjh

=======

Have read lots on homocysteine and will have it checked very soon. My doctor is

writing the order.

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