Re: new and introductions [lilghostie!]

[Guest guest]

lilghostie!

Hi! How are you?! I remember you from a few boards I used to read

and post on before I got wrapped up with this one! I enjoyed your

posts and your perspective on things.

I am so happy to hear of your daughter's progress. Just the fact

that she is eating so much more is wonderful.

I would keep a close eye on the rash, my son had a very light rash on

his cheeks for a few months after starting enzymes and it eventually

went away. Occasionally, I will see it reappear, but it has not been

a problem. Since what you describe sounds a little different, I

would watch for any other symptoms that would indicate she cannot

tolerate the enzymes. Hopefully, though, the rash will go away with

time.

As for putting the enzymes in foods, if you put them in pudding to

pack in a school lunch, the pudding will be yukky after a few

minutes, both in texture and in taste (it will be more liquid from

being broken down). I will send you the mixing file for many options

on giving the enzymes. If you mix them with jam, keep in mind that

jam can cause some kids problems because it can be highly phenolic.

Your daughter may not have a problem with this, but many of our kids

here do. If you just use a little jam, she might do just fine.

My son does not swallow pills, either, which is a pain in the rear,

but we just mix up the enzymes in a little Kool-Aid type clear drink

(Wyler's). I don't know if Wyler's is gluten-free, if you are

concerned about that. Again, the mixing files will give you some

help in this area and some guidelines on teaching kids to learn to

swallow capsules.

If you can stick it out three weeks, you should see a decrease in the

bothersome behaviors you describe. It is not uncommon for parents to

see an increase in hyperactivity and other " problem " behaviors as the

child goes through an initial withdrawal effect from the enzymes

breaking down the opiate peptides. You can decrease the dose to help

weather this, then gradually build back up.

I hope you keep us posted with the details, good and not-so-good.

> hi,

> just arrived here.

> mine friend dana had a link on her website and found you all.

> infact it is dana who helped our family get enzymes.

> we are doing our first 'trial run' with them, started two weeks ago

> almost now.

>

> first, this is us:

> am a 35 yr old woman, with Aspergers, with son (age 11 1/2), and

> daughter (9 next month) both with AS as well.

> we have not been very knowledgeable about AS, or enzymes or

> chelation, or GFCF diets, or ANYTHING much prior to about a year

ago.

> it was then that started to find info, and read, and read, and read

> some more.

>

> this fall, started to try to implement the GFCF diet, and continue

> reading about mercury (which am SURE was exposed to as a child,

> infact, mine twin brother and me used to try to catch the 'quick

> silver' from thermometres we broke as kids, and if we did cathc it,

> we would eat it!!!! ), and this all led to enzymes.

>

> son,he is functioning apparently at a grade 2 level in spelling, a

> grade 3 level in reading *he is in grade 6*, but he has

a 'listening

> comprehension' of grade 12.8 level. he struggles with sensory

> issues, a quite severe learning disability with the 'written

> expression', has difficulties with social situations, has much

> anxiety, and is very very active in stimming, specifically

constatly

> doing headstands (learnt to do head stands at age 20 months, along

> with riding a two wheeler then). He is very outgoing, and is a

> chatter box when it comes to talking.

>

> daughter, she has not had academic testing formally, but apparently

> she ahs difficulty with spelling as well, although she learnt to

read

> at age 3 and still reads very much like an adult, able to read

> anything she comes across. she has extreme difficulty socially, and

> is very anxious, and has many OCD traits, along with being

extremely

> pcky eater. she has " failure to thrive " and is hovering between 45-

> 47 lbs. She stopped growing (bone age xray also shows her bone age

at

> age 5) in weight around age 3. soon after he 'late' 18 month

vaccines.

> Infact she was quite 'social' until age 20-24 months, and developed

> well physically too. then she developed chronic and severe

> constipation. no doctor has been able to figure out what was

causing

> it.she is very very shy, and introverted. and stims quite alot as

> well. Also, not only is she a picky eater, but the quantity of her

> food intake is so minimal, *would eat a quarter of a pita, and then

> leave a 1/3 of that behind, saying she was full now!!*

>

> what am hoping from the enzymes:

> 1) son to settle down, better attention and focus.

> 2) daughter to have less severe constipation

> 3) daughter to start to eat more quantity, and hopefully more

variety.

> 4) son to stop having stomach aches, and terrible gas problems.

> 5) son to find less stimming activities, and able to handle

emotions

> better, especially being told no.

> 6) daughter to have help with stimming and withdrawing as well.

>

> perhaps it is large wishful wish list, perhasp it can happen.

>

> willing to try.

>

> this is first report on what have seen so far.

> daughter started enzyme (from houston, both types, sorry forgot

> theexact names) two weeks ago.

> 1) she developed little white-head-like pimple-typoe eruptions on

her

> face. they seem to come and go.

> 2) she herself noted that her 'poops are like doggies and not like

> rabbits' now, lol... her words for 'more normal' and not the little

> dry rabbit pellets they used to be.

> 3) she eats !!!!!!!! and eats!!!!!!! she actually ate two!!! (did

you

> read that 2!!!!!) chicken sandwhiches!!!!!! she has never done that

> in her whole life (this is the kid who would have 4 chicken mc

> nuggets in a kids meal, and eat one sometimes two and say she was

> full, leaving the fries and drink behind)

> 4) she is HYPER...... dont understnd that, but perhaps will read

> about it in archives, dana said it was something that somepeople

had

> experieneced, and that would go awy soon perhaps.

> 5) she is also verballizing, non-sense words, did that the first

day

> on enzymes, but now, only does itsometimes.

>

> questions:

> 1) is it ok to put enzymes in like lets say pudding (found a ok

> tasting soya based pudding) for school lunch?

> 2) how does one teach daughter to swallow pills? she is so afraid

to

> even try, and finally go brave, tried, adn just could not.

> 3) she does not like the taste of them in juice, but is willing to

> have them in a spoon of jam, dont knowif thatis good,

> 4) is the pimples and hyperness and excessive nonsense talking

going

> to stop soon? did anyone experience this?

>

> we are all goong to start the enzymes soon, son is next. wanted to

> stagger out starting them so that am able to monitor better what

> changes, effects is happening.

>

> any commets is welcome either via email or here.

> thank you.

>

> lilghostie aka freewymon, aka minna (in 3D world)