Hello

[Guest guest]

Joyce,

I just got the rose garden email and I LOVED it!!!!!!!!!!!!!!!!!!!!!

I have never been sent so many roses at one time. Thanks.

in SC

Wanting to start a new life

with the help of MGBsurgery by Dr. R

If you see someone without a smile,

Give them one of yours.

If you and I should meet and

you forget me, you have lost nothing.

If you meet JESUS and you forget him,

you will have lost everything.

[Guest guest]

Joyce,

I just got the rose garden email and I LOVED it!!!!!!!!!!!!!!!!!!!!!

I have never been sent so many roses at one time. Thanks.

in SC

Wanting to start a new life

with the help of MGBsurgery by Dr. R

If you see someone without a smile,

Give them one of yours.

If you and I should meet and

you forget me, you have lost nothing.

If you meet JESUS and you forget him,

you will have lost everything.

[Guest guest]

Joyce,

I just got the rose garden email and I LOVED it!!!!!!!!!!!!!!!!!!!!!

I have never been sent so many roses at one time. Thanks.

in SC

Wanting to start a new life

with the help of MGBsurgery by Dr. R

If you see someone without a smile,

Give them one of yours.

If you and I should meet and

you forget me, you have lost nothing.

If you meet JESUS and you forget him,

you will have lost everything.

[Guest guest]

--- Well Hello! My experience with men in general is if they don't

know an answer for something, they keep their mouths shut ( this is

good ) or they expound about how you need to get yourself together

while they hide the fact that they don't KNOW (this is bad). So, if

he is quiet about it, I'd say that that is basically good because

he's not lecturing you.

There is a marvelous book by Devon Starlinyl (sp) a doc who HAS fibro

and a ...she's a therapist or something who has CFS or fibro. Men

like to be able to read or watch about things so maybe a book with

some concrete info would be good.

Hang on to him; he's sounds like he has potential!

PS explain costochrondritis for me. (:0

Terri

In @y..., " paulafayem " wrote:

> Well, I was first diagnosed with plurasy, then costochondritis, and

> Friday came my diagnosis with Fibro. I have been in constant pain

> since May 22, 2002 at 5:15 p.m., Yea, to the time. I thought I was

> having a heart attack.

> Friday, I started taking Elavil and Ultracet with some comfort and

2

> nights sleep, but last night I awoke 3 times hurting. Has anyone

> taken these medications and had good luck???????

>

> Nice to be here and see what you all are trying, maybe we can all

> help each other.

> I Read the message about the fruit juices and fresh fruit for three

> days. Might have to try that one, shoot, if it works in three days,

> I'll tell ya'll about it. Hope so!!!!!

>

> Well, I am a mother of three, work full time for now, I have been

> missing work and leaving early lately since the pain has been

> unbearable at times. But today is a good day besides my lower hips

> and butt are soooooo sore, so I've been trying to walk around alot,

> slowly of course. Just started walking per doctor's orders. Hope

> this works as well.

>

> Any suggestions???? My husband is so distant when it comes to

> talking about me getting fibro, he says he understands, but doesn't

> want to talk it over very much, of course, I have to live with the

> pain so it's constantly on my mind. Any suggestions here also???

>

> Hope everyone is doing well,

>

> a Faye

[Guest guest]

--- Well Hello! My experience with men in general is if they don't

know an answer for something, they keep their mouths shut ( this is

good ) or they expound about how you need to get yourself together

while they hide the fact that they don't KNOW (this is bad). So, if

he is quiet about it, I'd say that that is basically good because

he's not lecturing you.

There is a marvelous book by Devon Starlinyl (sp) a doc who HAS fibro

and a ...she's a therapist or something who has CFS or fibro. Men

like to be able to read or watch about things so maybe a book with

some concrete info would be good.

Hang on to him; he's sounds like he has potential!

PS explain costochrondritis for me. (:0

Terri

In @y..., " paulafayem " wrote:

> Well, I was first diagnosed with plurasy, then costochondritis, and

> Friday came my diagnosis with Fibro. I have been in constant pain

> since May 22, 2002 at 5:15 p.m., Yea, to the time. I thought I was

> having a heart attack.

> Friday, I started taking Elavil and Ultracet with some comfort and

2

> nights sleep, but last night I awoke 3 times hurting. Has anyone

> taken these medications and had good luck???????

>

> Nice to be here and see what you all are trying, maybe we can all

> help each other.

> I Read the message about the fruit juices and fresh fruit for three

> days. Might have to try that one, shoot, if it works in three days,

> I'll tell ya'll about it. Hope so!!!!!

>

> Well, I am a mother of three, work full time for now, I have been

> missing work and leaving early lately since the pain has been

> unbearable at times. But today is a good day besides my lower hips

> and butt are soooooo sore, so I've been trying to walk around alot,

> slowly of course. Just started walking per doctor's orders. Hope

> this works as well.

>

> Any suggestions???? My husband is so distant when it comes to

> talking about me getting fibro, he says he understands, but doesn't

> want to talk it over very much, of course, I have to live with the

> pain so it's constantly on my mind. Any suggestions here also???

>

> Hope everyone is doing well,

>

> a Faye

[Guest guest]

--- Well Hello! My experience with men in general is if they don't

know an answer for something, they keep their mouths shut ( this is

good ) or they expound about how you need to get yourself together

while they hide the fact that they don't KNOW (this is bad). So, if

he is quiet about it, I'd say that that is basically good because

he's not lecturing you.

There is a marvelous book by Devon Starlinyl (sp) a doc who HAS fibro

and a ...she's a therapist or something who has CFS or fibro. Men

like to be able to read or watch about things so maybe a book with

some concrete info would be good.

Hang on to him; he's sounds like he has potential!

PS explain costochrondritis for me. (:0

Terri

In @y..., " paulafayem " wrote:

> Well, I was first diagnosed with plurasy, then costochondritis, and

> Friday came my diagnosis with Fibro. I have been in constant pain

> since May 22, 2002 at 5:15 p.m., Yea, to the time. I thought I was

> having a heart attack.

> Friday, I started taking Elavil and Ultracet with some comfort and

2

> nights sleep, but last night I awoke 3 times hurting. Has anyone

> taken these medications and had good luck???????

>

> Nice to be here and see what you all are trying, maybe we can all

> help each other.

> I Read the message about the fruit juices and fresh fruit for three

> days. Might have to try that one, shoot, if it works in three days,

> I'll tell ya'll about it. Hope so!!!!!

>

> Well, I am a mother of three, work full time for now, I have been

> missing work and leaving early lately since the pain has been

> unbearable at times. But today is a good day besides my lower hips

> and butt are soooooo sore, so I've been trying to walk around alot,

> slowly of course. Just started walking per doctor's orders. Hope

> this works as well.

>

> Any suggestions???? My husband is so distant when it comes to

> talking about me getting fibro, he says he understands, but doesn't

> want to talk it over very much, of course, I have to live with the

> pain so it's constantly on my mind. Any suggestions here also???

>

> Hope everyone is doing well,

>

> a Faye

[Guest guest]

--I think our environment is killing us. We have low levels of

pesticides in water on our food and it can even be found in breast

milk. Annies message made me think of this with her diagnosis of SLE,

FMS, and MS. These are all auto immune disorders. This is where our

own immune system is attacking our bodies. I believe all the crap

that gets in our bodies makes our bodies fight itself. I have

endometriosis and fibromyalgia. As I believe dont they think fibro is

auto immune.If it has not been proven yet, I think we could assume it

is. My endo book said people with endo are more likely to get MS and

lupus and other auto immune disorders. I have no idea what to do

about this, but it is pretty scary to me.

- In @y..., Luvmikitties@a... wrote:

> Hi ,

> Welcome to the group. Yes I have both fatigue and depression and

you're

> absolutely right. It is very hard to tell the difference!

> How long have you been diagnosed? What are your symptoms?

> I have SLE, FMS, MS and a Seizure Disorder from the Lupus.

> I would be happy to chat anytime. Email me whenever you want.

> Soft hugs,

> Annie C.

> from Mass.

>

>

>

[Guest guest]

>>>>--I think our environment is killing us. We have low levels of

pesticides in water on our food and it can even be found in breast

milk. Annies message made me think of this with her diagnosis of SLE,

FMS, and MS. These are all auto immune disorders. This is where our

own immune system is attacking our bodies. <<<<<

I believe this as well. I've done a lot of research and recently converted

my home to non-toxic products and superior health supplements and I am feeling

better since the switch........no longer rolling around in sheets full of

formaldehyde, or breathing toxic fumes when I run the dishwasher or clean the

floors.

[Guest guest]

>>>>--I think our environment is killing us. We have low levels of

pesticides in water on our food and it can even be found in breast

milk. Annies message made me think of this with her diagnosis of SLE,

FMS, and MS. These are all auto immune disorders. This is where our

own immune system is attacking our bodies. <<<<<

I believe this as well. I've done a lot of research and recently converted

my home to non-toxic products and superior health supplements and I am feeling

better since the switch........no longer rolling around in sheets full of

formaldehyde, or breathing toxic fumes when I run the dishwasher or clean the

floors.

[Guest guest]

Hi Keba, sorry that you have had the problems that brought you to this board,

but thanks for checking in.

I hope you have had a good day and that your night goes well

best wishes, Poncho - GA

[Guest guest]

Hi Keba, sorry that you have had the problems that brought you to this board,

but thanks for checking in.

I hope you have had a good day and that your night goes well

best wishes, Poncho - GA

[Guest guest]

Keba,

I just wanted to welcome you to the group. So sorry this is

so late, but I've been out of town since early Thursday

morning and didn't get a chance to check my messages before

I left, so I'm way behind. I hope you are having a pain free

day.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest and California Representative

Pancreatitis Association, International

[Guest guest]

Keba,

I just wanted to welcome you to the group. So sorry this is

so late, but I've been out of town since early Thursday

morning and didn't get a chance to check my messages before

I left, so I'm way behind. I hope you are having a pain free

day.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest and California Representative

Pancreatitis Association, International

[Guest guest]

Keba,

I just wanted to welcome you to the group. So sorry this is

so late, but I've been out of town since early Thursday

morning and didn't get a chance to check my messages before

I left, so I'm way behind. I hope you are having a pain free

day.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Southwest and California Representative

Pancreatitis Association, International

[Guest guest]

Hi Shanna,

that's sad news about Triana. But it's not the end of the world and I

think you'll find a lot of support and encouragement here. Usually it

will take up to a year to adjust to the situation, so be prepared for

a roller coaster ride.

If you look out for information I recommend to visit the list's

website at www.cfparents.org and go on from there.

Another tip, if you participate here via the web. Yahoo will randomly

ask you to renew your password and " eat " messages when doing that. So

make sure you copy your message before you hit send.

Good Luck for you and Triana and feel free to ask as much as you like.

Peace

Torsten, dad of Fiona 5wcf

> arrrrrrgggg...my computer ate my first message because I hadn't

typed

> my password in, in the last 15 minutes.

>

> Anyway, my daughter, Triana, age 2, was diagnosed today with CF.

We

> go back for the required second sweat test tomorrow to confirm, but

> with a 97.1 on her chloride level, they're pretty certain.

>

> Anyone have any tips for a new CF family?

>

> Rev. Shanna M. Francis

> mother of Triana M. Francis

[Guest guest]

Hi Shanna,

that's sad news about Triana. But it's not the end of the world and I

think you'll find a lot of support and encouragement here. Usually it

will take up to a year to adjust to the situation, so be prepared for

a roller coaster ride.

If you look out for information I recommend to visit the list's

website at www.cfparents.org and go on from there.

Another tip, if you participate here via the web. Yahoo will randomly

ask you to renew your password and " eat " messages when doing that. So

make sure you copy your message before you hit send.

Good Luck for you and Triana and feel free to ask as much as you like.

Peace

Torsten, dad of Fiona 5wcf

> arrrrrrgggg...my computer ate my first message because I hadn't

typed

> my password in, in the last 15 minutes.

>

> Anyway, my daughter, Triana, age 2, was diagnosed today with CF.

We

> go back for the required second sweat test tomorrow to confirm, but

> with a 97.1 on her chloride level, they're pretty certain.

>

> Anyone have any tips for a new CF family?

>

> Rev. Shanna M. Francis

> mother of Triana M. Francis

[Guest guest]

Hi Shanna,

that's sad news about Triana. But it's not the end of the world and I

think you'll find a lot of support and encouragement here. Usually it

will take up to a year to adjust to the situation, so be prepared for

a roller coaster ride.

If you look out for information I recommend to visit the list's

website at www.cfparents.org and go on from there.

Another tip, if you participate here via the web. Yahoo will randomly

ask you to renew your password and " eat " messages when doing that. So

make sure you copy your message before you hit send.

Good Luck for you and Triana and feel free to ask as much as you like.

Peace

Torsten, dad of Fiona 5wcf

> arrrrrrgggg...my computer ate my first message because I hadn't

typed

> my password in, in the last 15 minutes.

>

> Anyway, my daughter, Triana, age 2, was diagnosed today with CF.

We

> go back for the required second sweat test tomorrow to confirm, but

> with a 97.1 on her chloride level, they're pretty certain.

>

> Anyone have any tips for a new CF family?

>

> Rev. Shanna M. Francis

> mother of Triana M. Francis

[Guest guest]

Personally, I don't pay attention to the " life expectancy ages " and

those sort of sad details. I only focus on keeping Wyatt as healthy

as I possibly can while keeping and treating him as " normal " as

possible. My friend gives me grief all of the time because I make him

carry his own backpack to and from school and things like that. My

view is.. he has CF, he's not cripled. He does what all 7 year old

boys do it's just he takes meds and treatments too. I focus on that

cure!! We're gonna see it happen I firmly believe it! To me, that's

all I need to know.

Christy mom of Wyatt 7wcf and Hunter 2wocf

> arrrrrrgggg...my computer ate my first message because I hadn't

typed

> my password in, in the last 15 minutes.

>

> Anyway, my daughter, Triana, age 2, was diagnosed today with CF.

We

> go back for the required second sweat test tomorrow to confirm, but

> with a 97.1 on her chloride level, they're pretty certain.

>

> Anyone have any tips for a new CF family?

>

> Rev. Shanna M. Francis

> mother of Triana M. Francis

[Guest guest]

I am sorry to hear that your daughter has cf. What prompted your

doctor to test for it?

If you haven't already been given a number of medications, you soon

will be. The treatments, meds and feedings are very important. Just

keep asking questions as they come to you.

Take care,

Gale

> arrrrrrgggg...my computer ate my first message because I hadn't

typed

> my password in, in the last 15 minutes.

>

> Anyway, my daughter, Triana, age 2, was diagnosed today with CF.

We

> go back for the required second sweat test tomorrow to confirm, but

> with a 97.1 on her chloride level, they're pretty certain.

>

> Anyone have any tips for a new CF family?

>

> Rev. Shanna M. Francis

> mother of Triana M. Francis

[Guest guest]

I am sorry to hear that your daughter has cf. What prompted your

doctor to test for it?

If you haven't already been given a number of medications, you soon

will be. The treatments, meds and feedings are very important. Just

keep asking questions as they come to you.

Take care,

Gale

> arrrrrrgggg...my computer ate my first message because I hadn't

typed

> my password in, in the last 15 minutes.

>

> Anyway, my daughter, Triana, age 2, was diagnosed today with CF.

We

> go back for the required second sweat test tomorrow to confirm, but

> with a 97.1 on her chloride level, they're pretty certain.

>

> Anyone have any tips for a new CF family?

>

> Rev. Shanna M. Francis

> mother of Triana M. Francis

[Guest guest]

Good for you!!!

Gale

> > arrrrrrgggg...my computer ate my first message because I hadn't

> typed

> > my password in, in the last 15 minutes.

> >

> > Anyway, my daughter, Triana, age 2, was diagnosed today with CF.

> We

> > go back for the required second sweat test tomorrow to confirm,

but

> > with a 97.1 on her chloride level, they're pretty certain.

> >

> > Anyone have any tips for a new CF family?

> >

> > Rev. Shanna M. Francis

> > mother of Triana M. Francis

[Guest guest]

Good for you!!!

Gale

> > arrrrrrgggg...my computer ate my first message because I hadn't

> typed

> > my password in, in the last 15 minutes.

> >

> > Anyway, my daughter, Triana, age 2, was diagnosed today with CF.

> We

> > go back for the required second sweat test tomorrow to confirm,

but

> > with a 97.1 on her chloride level, they're pretty certain.

> >

> > Anyone have any tips for a new CF family?

> >

> > Rev. Shanna M. Francis

> > mother of Triana M. Francis

[Guest guest]

Hang in there. It won't be easy, but it gets better with time. The rewards

outweigh the rest. My daughter Traci was diagnosed at birth. It was rough.

She is now almost eight and is a real joy. She has a love for life and for

everyone around her.

Lynette

Mom to Traci 7w/cf and 11w/ocf

[Guest guest]

Hang in there. It won't be easy, but it gets better with time. The rewards

outweigh the rest. My daughter Traci was diagnosed at birth. It was rough.

She is now almost eight and is a real joy. She has a love for life and for

everyone around her.

Lynette

Mom to Traci 7w/cf and 11w/ocf

[Guest guest]

Hang in there. It won't be easy, but it gets better with time. The rewards

outweigh the rest. My daughter Traci was diagnosed at birth. It was rough.

She is now almost eight and is a real joy. She has a love for life and for

everyone around her.

Lynette

Mom to Traci 7w/cf and 11w/ocf