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Re: Recurring Infections

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Posted

I should have mentioned (although long term members know this) that I

was diagnosed in Dec. 1996 and the massive infection occurred in April

1997. For about two years I was hospitalized frequently -- going a

month or two without being in club med. was unusual. It has been

years since I've had a real problem and my blood work is so " normal "

that my new GI actually asked if I was sure of my diagnosis. My MRCPs

showed some improvement for years, but the most recent one shows one

small change that neither the GI or my primary consider a problem

...... YET.

We aren't sure why my liver is doing so well. It could be that I

wouldn't have had a problem and that the ERCP caused the domino effect

or it could be because of the SAM-e and my reluctance to do invasive

testing unless absolutely necessary.

I think it's safe to say that the course of the disease is unique to

each of us and there are many variables.

Penny

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