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Re: Ignored by this group so far, what's up?

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Hi Reggie...

That is so not true!!! I replyed to your first email myself!

You are welcome to jump in and post at any time in any conversation. Believe

me, the guys around here could use another man around when the conversation

turns to PMS...LOL

Missy

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Hi Reggie...

That is so not true!!! I replyed to your first email myself!

You are welcome to jump in and post at any time in any conversation. Believe

me, the guys around here could use another man around when the conversation

turns to PMS...LOL

Missy

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I will be glad to say hi and hope that you will like our group. A lot of us

have been suffering quite a lot and not doing a lot of email. I am one of

them. I have the Mother of all flares.

So, no one is ignoring you. It is the way things happen around here. This

is a very good list. It is supportive, caring and loving. Ask any questions

that you want to and someone will have an answer. If you want to vent, vent

away. We have all vented on this list.

I would guess that would be glad to find another guy on this list as I

think there aren't very many.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman

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I will be glad to say hi and hope that you will like our group. A lot of us

have been suffering quite a lot and not doing a lot of email. I am one of

them. I have the Mother of all flares.

So, no one is ignoring you. It is the way things happen around here. This

is a very good list. It is supportive, caring and loving. Ask any questions

that you want to and someone will have an answer. If you want to vent, vent

away. We have all vented on this list.

I would guess that would be glad to find another guy on this list as I

think there aren't very many.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman

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I will be glad to say hi and hope that you will like our group. A lot of us

have been suffering quite a lot and not doing a lot of email. I am one of

them. I have the Mother of all flares.

So, no one is ignoring you. It is the way things happen around here. This

is a very good list. It is supportive, caring and loving. Ask any questions

that you want to and someone will have an answer. If you want to vent, vent

away. We have all vented on this list.

I would guess that would be glad to find another guy on this list as I

think there aren't very many.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman

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Reggie,

i receintly joined this group myself and also feel that my posts have been

ignored. it is tuff when you join a group - looking for help and answers and

get nothing in reply. I was planning on giving it another day or so and would

then leave. Hope things improve and that you get the support you seek and

certainly need.

jennifer

From: hansmprnc

To:

Sent: Thursday, August 22, 2002 11:57 AM

Subject: Ignored by this group so far, what's up?

Hi,

I recently joinded this group to form a support network of people who

deal with the same affliction I have dealt with since 1986. So far no

one has said hello or acknowledged any of my posted messages and I'm

not sure why.

I've been through hell and back with this stuff and have gathered

tons of information that might help someone. Also it's just good to

have friends who can relate and you don't feel embarrased to tell

about how you feel. As a man, and a black man at that ... it has not

been an easy ride becuase in society generally men are not supposed

to admit these feelings, tired ? so what ...

Anyway, maybe someone will say hi?...

Reggie

SEND POST TO: fibromyalgia-cfs

HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html

LIST OWNER: " Missy " Parrot004@...>

UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe

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Reggie,

i receintly joined this group myself and also feel that my posts have been

ignored. it is tuff when you join a group - looking for help and answers and

get nothing in reply. I was planning on giving it another day or so and would

then leave. Hope things improve and that you get the support you seek and

certainly need.

jennifer

From: hansmprnc

To:

Sent: Thursday, August 22, 2002 11:57 AM

Subject: Ignored by this group so far, what's up?

Hi,

I recently joinded this group to form a support network of people who

deal with the same affliction I have dealt with since 1986. So far no

one has said hello or acknowledged any of my posted messages and I'm

not sure why.

I've been through hell and back with this stuff and have gathered

tons of information that might help someone. Also it's just good to

have friends who can relate and you don't feel embarrased to tell

about how you feel. As a man, and a black man at that ... it has not

been an easy ride becuase in society generally men are not supposed

to admit these feelings, tired ? so what ...

Anyway, maybe someone will say hi?...

Reggie

SEND POST TO: fibromyalgia-cfs

HOME PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-cfs.html

LIST OWNER: " Missy " Parrot004@...>

UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe

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--If I dont reply to certain messages it is because the questions or

situations may be different than mine and I dont know a real answer.

I read all the post though and we all understand even if symptoms are

different we are all here out of frustration and pain. I am in other

groups and this one is very active and it is hard to keep up with

everyone. Also alot of us are not able to get online everday due to

pain etc. Also this is a group of painful people and at times we may

be a little grumpy and can only reply a few at a time. Dont leave,

just holler once in a while if you dont get feedback or post please

some feedback or any answers needed.

- In @y..., Eisenbeis wrote:

> Reggie,

> i receintly joined this group myself and also feel that my posts

have been ignored. it is tuff when you join a group - looking for

help and answers and get nothing in reply. I was planning on giving

it another day or so and would then leave. Hope things improve and

that you get the support you seek and certainly need.

>

> jennifer

> From: hansmprnc

> To: @y...

> Sent: Thursday, August 22, 2002 11:57 AM

> Subject: Ignored by this group so far, what's

up?

>

>

> Hi,

>

> I recently joinded this group to form a support network of people

who

> deal with the same affliction I have dealt with since 1986. So

far no

> one has said hello or acknowledged any of my posted messages and

I'm

> not sure why.

>

> I've been through hell and back with this stuff and have gathered

> tons of information that might help someone. Also it's just good

to

> have friends who can relate and you don't feel embarrased to tell

> about how you feel. As a man, and a black man at that ... it has

not

> been an easy ride becuase in society generally men are not

supposed

> to admit these feelings, tired ? so what ...

>

> Anyway, maybe someone will say hi?...

>

> Reggie

>

>

>

> SEND POST TO: fibromyalgia-cfs@y...

>

> HOME

PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-

cfs.html

> LIST OWNER: " Missy "

> UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe@y...

>

>

>

>

>

>

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--If I dont reply to certain messages it is because the questions or

situations may be different than mine and I dont know a real answer.

I read all the post though and we all understand even if symptoms are

different we are all here out of frustration and pain. I am in other

groups and this one is very active and it is hard to keep up with

everyone. Also alot of us are not able to get online everday due to

pain etc. Also this is a group of painful people and at times we may

be a little grumpy and can only reply a few at a time. Dont leave,

just holler once in a while if you dont get feedback or post please

some feedback or any answers needed.

- In @y..., Eisenbeis wrote:

> Reggie,

> i receintly joined this group myself and also feel that my posts

have been ignored. it is tuff when you join a group - looking for

help and answers and get nothing in reply. I was planning on giving

it another day or so and would then leave. Hope things improve and

that you get the support you seek and certainly need.

>

> jennifer

> From: hansmprnc

> To: @y...

> Sent: Thursday, August 22, 2002 11:57 AM

> Subject: Ignored by this group so far, what's

up?

>

>

> Hi,

>

> I recently joinded this group to form a support network of people

who

> deal with the same affliction I have dealt with since 1986. So

far no

> one has said hello or acknowledged any of my posted messages and

I'm

> not sure why.

>

> I've been through hell and back with this stuff and have gathered

> tons of information that might help someone. Also it's just good

to

> have friends who can relate and you don't feel embarrased to tell

> about how you feel. As a man, and a black man at that ... it has

not

> been an easy ride becuase in society generally men are not

supposed

> to admit these feelings, tired ? so what ...

>

> Anyway, maybe someone will say hi?...

>

> Reggie

>

>

>

> SEND POST TO: fibromyalgia-cfs@y...

>

> HOME

PAGE:http://www.geocities.com/Heartland/Oaks/7127/fibromyalgia-

cfs.html

> LIST OWNER: " Missy "

> UNSUBSCRIBE:fibromyalgia-cfs-unsubscribe@y...

>

>

>

>

>

>

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Reggie,

NO one is ignoring you...I " m sure as you know this..that there are

days that you feel like talking and others that you don't even feel like

saying anything....as in the past two days with me...I haven't really posted

much and usually I put something funny to make someone laugh, but I've been

busy..and haven't felt too bad the last couple of days. So I've been busy

trying to do what needs done around the house...that I haven't been able to

do due to the HUGE flare I've been in FOREVER!!!

Although I have a slight bit of a headache...I don't feel bad though.

I will take a slight bit of a headache everyday if it meant I wasn't so dang

sick that I couldn't get out of bed or out of the house.

I guarantee that know one is ignoring you ..infact I think I commented

on your introduction, can't remember (foggy) but try not to take it

personally. I do agree though.....I bet it is very hard on you..being a man

and like you said being black probably makes it hard on you within itself. I

have a friend I might put you in touch with....she has fibro and cfs. She

sure is a sweetie.

I hope you are doing well. Keep your chin up.

Allicia

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Reggie,

NO one is ignoring you...I " m sure as you know this..that there are

days that you feel like talking and others that you don't even feel like

saying anything....as in the past two days with me...I haven't really posted

much and usually I put something funny to make someone laugh, but I've been

busy..and haven't felt too bad the last couple of days. So I've been busy

trying to do what needs done around the house...that I haven't been able to

do due to the HUGE flare I've been in FOREVER!!!

Although I have a slight bit of a headache...I don't feel bad though.

I will take a slight bit of a headache everyday if it meant I wasn't so dang

sick that I couldn't get out of bed or out of the house.

I guarantee that know one is ignoring you ..infact I think I commented

on your introduction, can't remember (foggy) but try not to take it

personally. I do agree though.....I bet it is very hard on you..being a man

and like you said being black probably makes it hard on you within itself. I

have a friend I might put you in touch with....she has fibro and cfs. She

sure is a sweetie.

I hope you are doing well. Keep your chin up.

Allicia

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Reggie,

NO one is ignoring you...I " m sure as you know this..that there are

days that you feel like talking and others that you don't even feel like

saying anything....as in the past two days with me...I haven't really posted

much and usually I put something funny to make someone laugh, but I've been

busy..and haven't felt too bad the last couple of days. So I've been busy

trying to do what needs done around the house...that I haven't been able to

do due to the HUGE flare I've been in FOREVER!!!

Although I have a slight bit of a headache...I don't feel bad though.

I will take a slight bit of a headache everyday if it meant I wasn't so dang

sick that I couldn't get out of bed or out of the house.

I guarantee that know one is ignoring you ..infact I think I commented

on your introduction, can't remember (foggy) but try not to take it

personally. I do agree though.....I bet it is very hard on you..being a man

and like you said being black probably makes it hard on you within itself. I

have a friend I might put you in touch with....she has fibro and cfs. She

sure is a sweetie.

I hope you are doing well. Keep your chin up.

Allicia

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hansmprnc wrote:

> I recently joinded this group to form a support network of people who

> deal with the same affliction I have dealt with since 1986. So far no

> one has said hello or acknowledged any of my posted messages and I'm

> not sure why.

I know that it feels frustrating when this happens, however, please

remember we are sick too. I wish I had the energy to respond to each

new person, formally welcome them, and reply to every post I see, but

that just isn't going to happen. I suffer from severe fatigue, and I

answer posts when I can. Others do the same. Sometimes people think

someone else will answer a post or they don't know the answer, so rather

than respond with a " sorry, I don't know " , they say nothing. Sometimes,

it's best just to send another post reasking your question. And I

suspect the number of posters has dropped off because this is August,

people are using their time and energy to get their kids or themselves

back to school, last minute vacations and the huge number of other tasks

that seem necessary to do this time of the year. So please stick around,

people respond to you when they can. I had a number of posts I wanted

to comment on, yours being one of them, but I know I'm just not going to

be able to make it, I'm just too tired. The lack of posts has more to

do with how we feel than anything about you.

Darcy

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hansmprnc wrote:

> I recently joinded this group to form a support network of people who

> deal with the same affliction I have dealt with since 1986. So far no

> one has said hello or acknowledged any of my posted messages and I'm

> not sure why.

I know that it feels frustrating when this happens, however, please

remember we are sick too. I wish I had the energy to respond to each

new person, formally welcome them, and reply to every post I see, but

that just isn't going to happen. I suffer from severe fatigue, and I

answer posts when I can. Others do the same. Sometimes people think

someone else will answer a post or they don't know the answer, so rather

than respond with a " sorry, I don't know " , they say nothing. Sometimes,

it's best just to send another post reasking your question. And I

suspect the number of posters has dropped off because this is August,

people are using their time and energy to get their kids or themselves

back to school, last minute vacations and the huge number of other tasks

that seem necessary to do this time of the year. So please stick around,

people respond to you when they can. I had a number of posts I wanted

to comment on, yours being one of them, but I know I'm just not going to

be able to make it, I'm just too tired. The lack of posts has more to

do with how we feel than anything about you.

Darcy

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I recently joined this group myself and also feel that my posts have been

ignored. It is tuff when you join a group -- looking for help and answers

and get nothing in reply. I was planning on giving it another day or so and

would then leave. Hope things improve and that you get the support you seek

and certainly need.

Every post that comes through this list is for everyone. If one post has a

person's name on it, that could still be there from days ago as the subject

line very seldom gets changed until the topic runs out.

No one is ignoring your posts. If they haven't got an answer, they will read

it and usually someone else will be interested and answer.

This group is for everyone. Not just certain individuals. You can't expect

personal replies everytime you post. If you read the postings, you will get

plenty of help. Every email that goes through here has something that can

help you if you want help and you read them. You ask a question and you will

get a reply.

I hope that both you and Reggie stay and get the help that you both need.

All of us need help or we would not be here. I can think of better things to

do then to worry why someone has not answered an email that I posted

Take care,

Irene

Books may well be the only true magic

Alice Hoffman

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I recently joined this group myself and also feel that my posts have been

ignored. It is tuff when you join a group -- looking for help and answers

and get nothing in reply. I was planning on giving it another day or so and

would then leave. Hope things improve and that you get the support you seek

and certainly need.

Every post that comes through this list is for everyone. If one post has a

person's name on it, that could still be there from days ago as the subject

line very seldom gets changed until the topic runs out.

No one is ignoring your posts. If they haven't got an answer, they will read

it and usually someone else will be interested and answer.

This group is for everyone. Not just certain individuals. You can't expect

personal replies everytime you post. If you read the postings, you will get

plenty of help. Every email that goes through here has something that can

help you if you want help and you read them. You ask a question and you will

get a reply.

I hope that both you and Reggie stay and get the help that you both need.

All of us need help or we would not be here. I can think of better things to

do then to worry why someone has not answered an email that I posted

Take care,

Irene

Books may well be the only true magic

Alice Hoffman

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Guest guest

I recently joined this group myself and also feel that my posts have been

ignored. It is tuff when you join a group -- looking for help and answers

and get nothing in reply. I was planning on giving it another day or so and

would then leave. Hope things improve and that you get the support you seek

and certainly need.

Every post that comes through this list is for everyone. If one post has a

person's name on it, that could still be there from days ago as the subject

line very seldom gets changed until the topic runs out.

No one is ignoring your posts. If they haven't got an answer, they will read

it and usually someone else will be interested and answer.

This group is for everyone. Not just certain individuals. You can't expect

personal replies everytime you post. If you read the postings, you will get

plenty of help. Every email that goes through here has something that can

help you if you want help and you read them. You ask a question and you will

get a reply.

I hope that both you and Reggie stay and get the help that you both need.

All of us need help or we would not be here. I can think of better things to

do then to worry why someone has not answered an email that I posted

Take care,

Irene

Books may well be the only true magic

Alice Hoffman

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Ahhh...the reinforcements....LOL

> Reggie,

> NO one is ignoring you...I " m sure as you know this..that there are

> days that you feel like talking and others that you don't even feel like

> saying anything....as in the past two days with me...I haven't really

> posted

> much and usually I put something funny to make someone laugh, but I've been

> busy..and haven't felt too bad the last couple of days. So I've been busy

> trying to do what needs done around the house...that I haven't been able to

> do due to the HUGE flare I've been in FOREVER!!!

> Although I have a slight bit of a headache...I don't feel bad

> though.

> I will take a slight bit of a headache everyday if it meant I wasn't so

> dang

> sick that I couldn't get out of bed or out of the house.

> I guarantee that know one is ignoring you ..infact I think I

> commented

> on your introduction, can't remember (foggy) but try not to take it

> personally. I do agree though.....I bet it is very hard on you..being a man

> and like you said being black probably makes it hard on you within itself.

> I

> have a friend I might put you in touch with....she has fibro and cfs. She

> sure is a sweetie.

> I hope you are doing well. Keep your chin up.

>

> Allicia

>

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Ahhh...the reinforcements....LOL

> Reggie,

> NO one is ignoring you...I " m sure as you know this..that there are

> days that you feel like talking and others that you don't even feel like

> saying anything....as in the past two days with me...I haven't really

> posted

> much and usually I put something funny to make someone laugh, but I've been

> busy..and haven't felt too bad the last couple of days. So I've been busy

> trying to do what needs done around the house...that I haven't been able to

> do due to the HUGE flare I've been in FOREVER!!!

> Although I have a slight bit of a headache...I don't feel bad

> though.

> I will take a slight bit of a headache everyday if it meant I wasn't so

> dang

> sick that I couldn't get out of bed or out of the house.

> I guarantee that know one is ignoring you ..infact I think I

> commented

> on your introduction, can't remember (foggy) but try not to take it

> personally. I do agree though.....I bet it is very hard on you..being a man

> and like you said being black probably makes it hard on you within itself.

> I

> have a friend I might put you in touch with....she has fibro and cfs. She

> sure is a sweetie.

> I hope you are doing well. Keep your chin up.

>

> Allicia

>

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Ahhh...the reinforcements....LOL

> Reggie,

> NO one is ignoring you...I " m sure as you know this..that there are

> days that you feel like talking and others that you don't even feel like

> saying anything....as in the past two days with me...I haven't really

> posted

> much and usually I put something funny to make someone laugh, but I've been

> busy..and haven't felt too bad the last couple of days. So I've been busy

> trying to do what needs done around the house...that I haven't been able to

> do due to the HUGE flare I've been in FOREVER!!!

> Although I have a slight bit of a headache...I don't feel bad

> though.

> I will take a slight bit of a headache everyday if it meant I wasn't so

> dang

> sick that I couldn't get out of bed or out of the house.

> I guarantee that know one is ignoring you ..infact I think I

> commented

> on your introduction, can't remember (foggy) but try not to take it

> personally. I do agree though.....I bet it is very hard on you..being a man

> and like you said being black probably makes it hard on you within itself.

> I

> have a friend I might put you in touch with....she has fibro and cfs. She

> sure is a sweetie.

> I hope you are doing well. Keep your chin up.

>

> Allicia

>

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Hi Reggie, so sorry that you feel that way, but this is a very nice

group, I don't post that much but I do read the messages. Just be

patient you'll receive responses to your messages.

Peace and Blessings

Vonn

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