question

[Guest guest]

> Thanks Janie. Quite interestingly, it is relatively normal today

for the first time in about two weeks. Could it be that I just

found out my 87 year-old mother is going into a retirement home on

Tuesday:>) She has been quite a strain on me for over a year.

I'm betting this had a LOT to do with it. Stress is evil.

>

> Going to the health club I am sure will be of benefit.

>

> I just needed to ask as it is a bit scary upping your thyroid

hormone when the physician refuses. I appreciate the support on

this list.

>

> Kallie

> Re: question

>

>

>

> Hi Kallie. In a few cases, there are a few folks whose blood

pressure

> went up when they tried Armour, but it's because " something

else " is

> wrong, and the T3 in Armour may be aggravating it. But...as you

> hinted, it may be the situation you are in, and the walking may

help.

>

> Janie

>

>

>

>

[Guest guest]

> Thanks Janie. Quite interestingly, it is relatively normal today

for the first time in about two weeks. Could it be that I just

found out my 87 year-old mother is going into a retirement home on

Tuesday:>) She has been quite a strain on me for over a year.

I'm betting this had a LOT to do with it. Stress is evil.

>

> Going to the health club I am sure will be of benefit.

>

> I just needed to ask as it is a bit scary upping your thyroid

hormone when the physician refuses. I appreciate the support on

this list.

>

> Kallie

> Re: question

>

>

>

> Hi Kallie. In a few cases, there are a few folks whose blood

pressure

> went up when they tried Armour, but it's because " something

else " is

> wrong, and the T3 in Armour may be aggravating it. But...as you

> hinted, it may be the situation you are in, and the walking may

help.

>

> Janie

>

>

>

>

[Guest guest]

FDA Approves First Oral Treatment for Relapsing Forms of MS Gilenya I have been a care taker for a Patient since 1997 he has tried all the above and same thing is happening to him We are suppose to be starting this medication soon AS SOON AS HE CAN STAY OUT OF THE HOSPITALS he was admitted on Sept 1 and then released on Sept 21 and now again on Oct 3 and got released on Oct 8 and then re-admiited again on Oct 9 He has gotten worse since June my best friends have seen his mobility has gotten severely worse If you ever need a friend just to vent to I am here 

GOD BLESS YOU AND YOUR FAMILY Michele & Ronnie I WILL CONTINUE TO KEEP YOU IN MY PRAYERS  

 

I was dx 2 years ago. At dx I had many lesions in my brain and neck and had flair after flair. Many of the symptoms I now understand to be MS I have had on and off for years. I started on Rebif and due to side-effects and continuing flairs I had to stop it, next was copaxone and again bad side effects and flairs so onto Tysabri. In the beginning my arm was numb and I had problems with walking which is what my definition of mS was-lack of mobility. I am wondering about the other symptoms like I have POTS, and swallowing issues, and that pseudobulb...thingy that makes me act emotionally nuts. The fatigue is absolutely overwhelming. For awhile-today will be Tysabri infusion 11, the flairs had stopped and I was doing pretty well and now they have suddenly started again. Had solumedrol a month ago-should have it now, in wait and see mode. Anyway am having infections from Tysabri, also weird liver tests. Found out at last Dr visit that am JCV positive and can only be on Tysabri " less than 2 years " since then with the flairs and the infections etc... wondering what is the point of continuing on it. Also wondering how many others MS is different than what they knew it to be-more internal disorders than obvious physical disability? Seems like all these medicines hit my liver hard even Tysabri-wondering what good it does to protect my brain and fry my liver. Also how many take no medicine? The next drug for me is Nova.... some type of Chemo that can only be taken for a specific amount of time. If I cannot take the others and they do not want me in a study because afraid I will get placebo-where do I go from here? Would love to talk to others who are in the same boat and maybe been at this longer than me. TY

Sherri

[Guest guest]

Hi SherriI have heard some good things about Novantrone. Did I spell that correctly? lol There is a guy who does a blog for the NMSS (I think) who has used that drug. I'll try to remember how to find his info/name/blog and I'll let you know.big hugs to you! SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. QuestionI was dx 2 years ago. At dx I had many lesions in my brain and neck and had flair after flair. Many of the symptoms I now understand to be MS I have had on and off for years. I started on Rebif and due to side-effects and continuing flairs I had to stop it, next was copaxone and again bad side effects and flairs so onto Tysabri. In the beginning my arm was numb and I had problems with walking which is what my definition of mS was-lack of

mobility. I am wondering about the other symptoms like I have POTS, and swallowing issues, and that pseudobulb...thingy that makes me act emotionally nuts. The fatigue is absolutely overwhelming. For awhile-today will be Tysabri infusion 11, the flairs had stopped and I was doing pretty well and now they have suddenly started again. Had solumedrol a month ago-should have it now, in wait and see mode. Anyway am having infections from Tysabri, also weird liver tests. Found out at last Dr visit that am JCV positive and can only be on Tysabri "less than 2 years" since then with the flairs and the infections etc... wondering what is the point of continuing on it. Also wondering how many others MS is different than what they knew it to be-more internal disorders than obvious physical disability? Seems like all these medicines hit my liver hard even Tysabri-wondering what good it does to protect my brain and fry my liver. Also how many take no medicine? The

next drug for me is Nova.... some type of Chemo that can only be taken for a specific amount of time. If I cannot take the others and they do not want me in a study because afraid I will get placebo-where do I go from here? Would love to talk to others who are in the same boat and maybe been at this longer than me. TYSherri------------------------------------

[Guest guest]

Sherri I am so sorry to hear this. My husbands journey with MS started only a

few years ago so can't answer your questions but will keep you in my prayers.

Hugs

nne

To the world you might be one person, but to one person you just might be the

world "

" May the Lord Bless you and keep you,

May the Lord Make his face shine upon you, and give you Peace...Forever "

Breast Cancer Patients Soul Mates for Life

http://breastcancerpatientssoulmatesforlife.bravehost.com/

Anxiety Depression and Breast Cancer

http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer

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www.angelfeatherloomer.blogspot.com

The Cancer Club

www.cancerclub.com

> Question

>

> I was dx 2 years ago. At dx I had many lesions in my brain and neck and

> had flair after flair. Many of the symptoms I now understand to be MS I

> have had on and off for years. I started on Rebif and due to side-effects

> and continuing flairs I had to stop it, next was copaxone and again bad

> side effects and flairs so onto Tysabri. In the beginning my arm was numb

> and I had problems with walking which is what my definition of mS

> was-lack of mobility. I am wondering about the other symptoms like I have

> POTS, and swallowing issues, and that pseudobulb...thingy that makes me

> act emotionally nuts. The fatigue is absolutely overwhelming. For

> awhile-today will be Tysabri infusion 11, the flairs had stopped and I

> was doing pretty well and now they have suddenly started again. Had

> solumedrol a month ago-should have it now, in wait and see mode. Anyway

> am having infections from Tysabri, also weird liver tests. Found out at

> last Dr visit that am JCV positive and can only be on Tysabri " less than

> 2 years " since then with the flairs and the infections etc... wondering

> what is the point of continuing on it. Also wondering how many others MS

> is different than what they knew it to be-more internal disorders than

> obvious physical disability? Seems like all these medicines hit my liver

> hard even Tysabri-wondering what good it does to protect my brain and fry

> my liver. Also how many take no medicine? The next drug for me is

> Nova.... some type of Chemo that can only be taken for a specific amount

> of time. If I cannot take the others and they do not want me in a study

> because afraid I will get placebo-where do I go from here? Would love to

> talk to others who are in the same boat and maybe been at this longer

> than me. TY

> Sherri

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[Guest guest]

Good morning, I would like know if it would be better to start a licensed first

responder organization under a current volunteer fire department or separately?

inbox me separately. All help will greatly be appreciated. Thinking about also

grant possibilities which would be better? Mr. R Ruiz, MPH