Guest guest Posted August 22, 2004 Report Share Posted August 22, 2004 OMG! Debbi, I have everyone of the symptoms you mentioned but absolutely never connected them. I have the geographic tongue that seems to swell and to be too big for no reason, chronic fleeting dizziness (that I thought was due to imbalance in the crystals in the ear) the problem with face getting red (which I was told was rosacea)nightsweats in weird parts of the body, Raynauds syndrome, runny nose or red face when I eat certain foods not to mention RSDS and fibromyalgia and IBS. Are all these lumped together as dysautonomia? I rarely have POTS but I do have very variable BP. When I was getting the series of shots in the sympathetic nerves for RSDS, my BP would drop as low as 50/30 and stay like that for hours. Just when the nurse would start to panic, it would just go back to a low normal reading in a matter of seconds. It freaked them out each time. Do you think that having dysautonomia made you more vulnerable to RSDS? or is it possible that RSDS is a more severe symptom of the overall syndrome? That might explain why it goes into remission at times and then returns, often in a different limb. Thanks for those examples. I will start to do some more investigation. Judy/Atlanta The Ehlers Danlos National Foundation http://www.ednf.org'>www.ednf.org Quote Link to comment Share on other sites More sharing options...
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