Re: SHOULDER FUSION?............. HELP...............ANYONE DIANA, ETC.

[Guest guest]

In a message dated 8/18/2004 1:51:28 AM Eastern Daylight Time,

Mdmssmile@... writes:

Hi ,

I have had three shoulder surgeries and know that even the " tiny " ones are

not fun... but then again neither is being unable to use your arm and having a

lot of pain.

I hope that you find someone that can help you. What about sports med docs

who are used to working of messed up shoulders? IF they know about EDS that is!

Take care,

Thanks for your note. And YES! Shoulder stuff is the worst! Having had @ 50

operations, mostly on both shoulders, both knees (including bilateral knee

replacements), my hand, ankle, etc., there's no question that I'd rather have 3

TKR's, then one smaller shoulder operation!

BUT that's exactly why I want to put an end to all of it & am hoping a fusion

will do that or whatever else I come up with. And, unfortunately, or

fortunately, depending on how you look at it, I already see the " best of the

best " or

so to speak, in New York City, that care for the NY sports teams, the

professional theater, etc., etc., & even they are leery.

BUT I know I've met people that have had it done & have never been happier

then a clam. So that's why I'm thinking @ it. The guy that I recently switched

to, is off in Greece at the Olympics (life is tough, isn't it)! for a month.

I saw his partner yesterday who told me it wouldn't work & basically I was

nuts. It took everything I had, not to let him have it! I know I've met lots

of people with it, that have EDS & told him, so he backed off. He's just a

jerk, but I had to see someone now.

So I just want to get some good info before my other guy gets back & then go

from there. I really don't know what to do.

Take care, be well. Thanks again,

[Guest guest]

Hi ,

I can certainly understand what you mean about wanting to be done with all

the pain in your shoulder. The shoulder that I had fixed and tightened not even

two years ago is really bothering me already, restricting motion, hurting

alot, and feeling like it is also ripping again or about to.I just had an

injection in it last week as the nurse gently pulled on it to sepatrate it while

the

doc. injected it. It didn't do anything

The only fusion I have had was in my neck and I can only say good , even

great, things about that.... after the healing that is!! Last xray it wasn't

totally fused so I need another MRI.

If that is any indication though, fusion sounds great to me too!

That doctor sounds ignorant and uncaring. Do you have a backup plan if you

doctor agrees with him or have you talked to him about it already befroe he

left? I really hope he can help. If not, Consider going somewhere they will.

Heck,

I live in Richmond and had my neck fusion in Chicago. One of our doctors

here has gone to several Olympics..

Is it another week before he returns?

Please let us know what you find out. Shoulder pain and shoulder surgery is

the worst!!

In a message dated 8/19/2004 2:34:00 AM Eastern Daylight Time,

Boop4@... writes:

In a message dated 8/18/2004 1:51:28 AM Eastern Daylight Time,

Mdmssmile@... writes:

Hi ,

I have had three shoulder surgeries and know that even the " tiny " ones are

not fun... but then again neither is being unable to use your arm and having

a

lot of pain.

I hope that you find someone that can help you. What about sports med docs

who are used to working of messed up shoulders? IF they know about EDS that

is!

Take care,

Thanks for your note. And YES! Shoulder stuff is the worst! Having had @ 50

operations, mostly on both shoulders, both knees (including bilateral knee

replacements), my hand, ankle, etc., there's no question that I'd rather have

3

TKR's, then one smaller shoulder operation!

BUT that's exactly why I want to put an end to all of it & am hoping a fusion

will do that or whatever else I come up with. And, unfortunately, or

fortunately, depending on how you look at it, I already see the " best of the

best " or

so to speak, in New York City, that care for the NY sports teams, the

professional theater, etc., etc., & even they are leery.

BUT I know I've met people that have had it done & have never been happier

then a clam. So that's why I'm thinking @ it. The guy that I recently

switched

to, is off in Greece at the Olympics (life is tough, isn't it)! for a month.

I saw his partner yesterday who told me it wouldn't work & basically I was

nuts. It took everything I had, not to let him have it! I know I've met

lots

of people with it, that have EDS & told him, so he backed off. He's just a

jerk, but I had to see someone now.

So I just want to get some good info before my other guy gets back & then go

from there. I really don't know what to do.

Take care, be well. Thanks again,