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NiH Study questions

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Hi, after learning that the NiH study was open for worldwide

participants I had a few questions.

1) I am totally geographically illeterate (can't spell it either

lol) where is the study being done? Where is this close to? (How

far from southern ontario basically, or if easier for american's,

port huron is the same)

2) How long does the study last? Is it a standard stay or does

your visit depend on the findings?

3) Do they provide accomidations for parents as well as the

participant? I mean I know participant would be in the hospital,

but is there a place for someone else to stay as well?

4) What all tests do they do? Is it the same for all the

participants or do the tests depend on the participants condition?

5) Are they looking for all severities and all types?

I think thats it. Looking forward to the answers :)

Stacey

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Hi ,

1.The study is in Harbor Hospital, Baltimore land. Pull that up on your

search and you'll find it. land is on the east coast of the US. A little

tiny state.

2. You'll stay two days for each study. They would like to see you 3 times in 6

years. But you can attend just one, two or all three studies. The don't treat,

your finding will be given to you and your Dr if you want your Dr to know.

3. Yes, the parent will stay with the child in the same hospital room. Free room

and board.

4. The tests are the same for everyone.

5. Yes, all types, all severities. They are hoping to find a test to show all

types. Even though they are in the early stages, they think they may have found

the test. You don't have to have a DX.

NiH Study questions

Hi, after learning that the NiH study was open for worldwide

participants I had a few questions.

1) I am totally geographically illeterate (can't spell it either

lol) where is the study being done? Where is this close to? (How

far from southern ontario basically, or if easier for american's,

port huron is the same)

2) How long does the study last? Is it a standard stay or does

your visit depend on the findings?

3) Do they provide accomidations for parents as well as the

participant? I mean I know participant would be in the hospital,

but is there a place for someone else to stay as well?

4) What all tests do they do? Is it the same for all the

participants or do the tests depend on the participants condition?

5) Are they looking for all severities and all types?

I think thats it. Looking forward to the answers :)

Stacey

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

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