Guest guest Posted June 3, 2004 Report Share Posted June 3, 2004 Yes on Monday afternoon I got a letter from my Workers Compensation Insurer who have for the last (nearly) 9 years been responsible for my shoulder injury (instability and RSD) and have covered my medical and like expenses as well as paying me a weekly wage. They do NOT know I have EDS as I have not ever received a true diagnosis (they did say at one stage that I didn't have a genetic problem). Well they decidedto cut off my weekly pay as of 3rd July due to the last docotr they sent me to to have a medical review said I was fine to go back to work doing office/clerical work (even though I can't sit for more than about 15 min's at a time) and can barely use my right arm. This came about becasue the FIRST thing this doctor said to me was that RSD doesn't exist so we don't need to worry about that, he did say that I was still not stable and that my last 2 surgery's were failures and that I have major muscle and cuff problems but hey obviously this wont effect me, apart fromt he fact that my shoulder started dislocating again about 3 weeks after this interview (and I told W/C this) and have a RSD flare up (not bad considering RSD doesn't exist ). So now I have about 30 days to organise an internal review and to track down and supply all medical information relating to my shoulder as well as getting new updates. then if that doesn't work to organise for concilliation and then go to court if I haven't ha any luck. I was SO upset when I go this, especially as I dislocated my shoulder on Saturday twisting in my chair and talked myself out of going to the ER (Jo, I wish now after our online talk that I have ha gone ) and then on Tuesday in the shower out it comes again, and this time it was again nasty so I got dressed (I was NOT going to the ER in a towel (now that would have been scary and NOT just for me )) and called an ambulance and off I went (the ambo confirmed an anterior dislocation but by the time they got me to X- ray (and that is a WHOLE nother story) about 1 1/2 hr's later it had relocated itself so they just sent me home even thought I told them it was NOT right or feel enlocated correctly they said X-rays shows it is fine and that is that, I asked for the CT scan that my OS wanted and they agreed to do it the next morning (this was at about 12:30am)at 9 am (so about 81/2 hr later) but when I got there they decided that a CT wouldn't show anythign and again sent me home (with a letter for my GP to have a MRI and/or CT air arthrogram done (both of which they coldn't do at the hospital). So now I have to ring and run around and write letters and pay out all of this money to proved that my shoulder is STILL stuffed and to prove that RSD does exist and is a recognised medical condition and a debilitating one at that. I am also thinking about applying for disability pension in the mean time in case they do deny me (I can't see how they could but just in case) so that I have all of my bases loaded. Any help or oideas of information I can include would be greatly appreciated I am going to print out some online medical articles about RSD and basically plan on drowning them in papers in reports and results and articles and all of my paperwork from the last 9 yrs on my shoulder. So if I am not around much in the next month then this is why. Sharon Quote Link to comment Share on other sites More sharing options...
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