I'm having a denial moment

[Guest guest]

How do we know we have EDS?????? My youngest son's Genetics Doc

said he has EDS but she wont put it in his records. Thus making it

VERY difficult having docs believe me. So why should I believe he

has it and then my oldest and myslef???? FOr those of you who have

been tested and the test not show they types that can be tested, How

do you KNOW you have it???? So my dad, grandmom and two uncles died

from anurisms. SO what???? Isn't there many things that can cause

anurisms????? I can't think I have this if no-one is willing to

believe me and test me. And then the test will be normal anyways.

Sorry but there has to be something else causeing all the things

going on with me and my two boys. Right????

Grace

[Guest guest]

I'm sorry for posting this. Is there a way to delete it?

Grace

> How do we know we have EDS?????? My youngest son's Genetics Doc

> said he has EDS but she wont put it in his records. Thus making it

> VERY difficult having docs believe me. So why should I believe he

> has it and then my oldest and myslef???? FOr those of you who

have

> been tested and the test not show they types that can be tested,

How

> do you KNOW you have it???? So my dad, grandmom and two uncles

died

> from anurisms. SO what???? Isn't there many things that can cause

> anurisms????? I can't think I have this if no-one is willing to

> believe me and test me. And then the test will be normal anyways.

>

> Sorry but there has to be something else causeing all the things

> going on with me and my two boys. Right????

>

> Grace

[Guest guest]

> I'm sorry for posting this. Is there a way to delete it?

Grace, the post can be deleted if you want. However, don't feel badly for

posting this. We have ALL experienced our days, weeks, months, or even

years of denial. The struggle for acceptance is a journey and no one faults

you for having these feelings.

-Barb