POTS and children - Advice??

[Guest guest]

Anyone have advice on how to go about dx an 8yo (and 12, 10 and 7yo)

for POTS? What I can look for? I know there are symptoms among

them, esp the 8yo, who almost fainted twice during choir rehearsal

(standing up and still for long periods) There are also many

symptoms in the general family history.

When does POTS become very serious? What do I have to watch for?

I've worked on my own symptoms with diet, salt, water and exercise.

I've started to work on the girls regarding lifestyle modifications,

but I want to explore all options.

I would like to avoid annoying and expensive tests and medications

and procedures is at all possible. (I'm a huge believer in nature as

a healer whenever possible).

Thanks in advance for help and info.

[Guest guest]

Hi ,

I am sending you some articles offline, in Adobe (PDF files) regarding

Dysautonomias and Children and Dysautonomia. Where do you live? Dr. Blair

Grubb is the leading authority regarding POTS and POTS in children. He's in

Toledo, OH. If you want, I can give you his information, but he is an

extremely busy man and not easy to get a hold of. I hope you can open the

files. If you can't, you can download a free Adobe Reader from the

internet. Hope they help.

Love Lana

Love Lana 0 :-)

POTS and children - Advice??

Anyone have advice on how to go about dx an 8yo (and 12, 10 and 7yo)

for POTS? What I can look for? I know there are symptoms among

them, esp the 8yo, who almost fainted twice during choir rehearsal

(standing up and still for long periods) There are also many

symptoms in the general family history.

When does POTS become very serious? What do I have to watch for?

I've worked on my own symptoms with diet, salt, water and exercise.

I've started to work on the girls regarding lifestyle modifications,

but I want to explore all options.

I would like to avoid annoying and expensive tests and medications

and procedures is at all possible. (I'm a huge believer in nature as

a healer whenever possible).

Thanks in advance for help and info.

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

_____

[Guest guest]

Lana - thanks - I got the articles.

If you have the chance I would appreciate the info on Dr Grubb - just

to have for future reference - in case I need to have the doctors

here contact him for further info. (We live in Huntsville, AL) I

spoke with my doc yesterday and although they can do an echo on my

daughter there isn't anyone around to really read it for children.

There is a ped cardio in town, but my doc didn't seem real

impressed. I'm not making any decisions until I speak with her ped

at the begining of June.

Actually I'm hoping that now that I've figured out what is wrong I

can manage it with lifestyle changes. I've started a daily journal

on her and intend to keep track of water, salt, etc,. Need to do

that on me, too. I'm not very good at this so it will be a definite

challenge.

> Hi ,

>

>

>

> I am sending you some articles offline, in Adobe (PDF files)

regarding

> Dysautonomias and Children and Dysautonomia. Where do you live?

Dr. Blair

> Grubb is the leading authority regarding POTS and POTS in

children. He's in

> Toledo, OH. If you want, I can give you his information, but he is

an

> extremely busy man and not easy to get a hold of. I hope you can

open the

> files. If you can't, you can download a free Adobe Reader from the

> internet. Hope they help.

>

>

>

> Love Lana

>

>

>

> Love Lana 0 :-)

>

>

>

> POTS and children - Advice??

>

>

>

> Anyone have advice on how to go about dx an 8yo (and 12, 10 and

7yo)

> for POTS? What I can look for? I know there are symptoms among

> them, esp the 8yo, who almost fainted twice during choir rehearsal

> (standing up and still for long periods) There are also many

> symptoms in the general family history.

>

> When does POTS become very serious? What do I have to watch for?

> I've worked on my own symptoms with diet, salt, water and

exercise.

> I've started to work on the girls regarding lifestyle

modifications,

> but I want to explore all options.

>

> I would like to avoid annoying and expensive tests and medications

> and procedures is at all possible. (I'm a huge believer in nature

as

> a healer whenever possible).

>

> Thanks in advance for help and info.

>

>

>

>

>

>

> To learn more about EDS, visit our website:

http://www.ehlersdanlos.ca

>

>

>

>

> _____

>

>

[Guest guest]

> If you have the chance I would appreciate the info on Dr Grubb -

I just sent it ! Please let me know if you don't receive it.

Please let me know what happens with it all, OK?

Love Lana