Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 the nausea and vomiting has been going on for well over a month now, I've lost track. Before it was just when the headache was really bad. Now they have me on diamox and i haven't worked up to my full dose yet, but with what I'm on it helps for 2-3 hours but it doesn't help with the nausea or vomiting. They've had me on Zofran which helped at first but that doesn't do any good either, neither does phenergan. That's why I'm so concerned it could be brain stem compression, but i know it could be due to high icp also. I feel like I'm ona roller coaster that missed my stop and i can't get off. Re: odd temperatures > , > > (((HUGS))) I'm so sorry you're going through heck right now! That > just sounds awful. Are you still experiencing all the nausea and > vomiting? :-( > > I'm afraid I can't offer a whole lot of help ... I really hope > things turn around. Perhaps you could ask for something for the > nausea. That's just awful. > > Take care, OK? Hoping you feel much better soon > > -Rhea > > > > > To learn more about EDS, visit our website: http://www.ehlersdanlos.ca > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 it's been checked for. At my last LP my pressure was at 200 which is fairly high. The time before that it was 120. I had spinal leaks both times resulting in high pressure headaches and had to return for blood patches. These headaches are different than the low pressure headaches in that with a low pressure headache when you lay flat it will usually go away. Nausea and vomiting is also a sign of high pressure headaches, but it's also one of the red flag signs of brainstem compression. It's hard when it's a symptom of so many different things and you're so screwed up you don't know which thing it is with you. Re: odd temperatures > > > > > > > , > > > > > > (((HUGS))) I'm so sorry you're going through heck right now! > That > > > just sounds awful. Are you still experiencing all the nausea and > > > vomiting? :-( > > > > > > I'm afraid I can't offer a whole lot of help ... I really hope > > > things turn around. Perhaps you could ask for something for the > > > nausea. That's just awful. > > > > > > Take care, OK? Hoping you feel much better soon > > > > > > -Rhea > > > > > > > > > > > > > > > To learn more about EDS, visit our website: > http://www.ehlersdanlos.ca > > > Quote Link to comment Share on other sites More sharing options...
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