Re: Trip Itinerary Update

[Guest guest]

In a message dated 8/1/04 6:21:15 AM Eastern Daylight Time, mike@...

writes:

> Current thinking is to take 2-3 " personal days "

> and drive into upper New England just to see it (Vermont/New

> Hampshire/Maine).

>

Vermont welcomes You 2....Come on home...Plenty of place to rest and I would

like to introduce you to a couple of great massage therapists I found here in

Burlington. Travel safe Mike and Dar... and Doug

[Guest guest]

In a message dated 8/1/04 6:21:15 AM Eastern Daylight Time, mike@...

writes:

> Current thinking is to take 2-3 " personal days "

> and drive into upper New England just to see it (Vermont/New

> Hampshire/Maine).

>

Vermont welcomes You 2....Come on home...Plenty of place to rest and I would

like to introduce you to a couple of great massage therapists I found here in

Burlington. Travel safe Mike and Dar... and Doug

[Guest guest]

Mike,

Thanks! I'll be looking forward to seeing you. Just give me a ring when you

get close bye. Just go straight through Springfield on 95 North, lots of

construction there! Just keep going straight, don't get on 495, beltway.

Stay straight on 95 and it will turn into 395. My exit will be the second

Glebe Rd. exit on the right, a couple of miles before Washington, DC. Call

and I'll give you directions from that point on. I'm about a mile and a half

from the Glebe Rd exit. Basically come up Glebe Rd. A few stoplight up from

there you will come to an intersection, Columbia Pike and Glebe Rd, just

keep going straight for 2-3 blocks. Turn left on 8th St. S, big church on

the corner, I live 3 1/2 blocks down, 3834 8 the St. S. on the left. It's a

white old Cape Cod style. Small lighthouse flag hanging from the porch,

turquoise Blazer in the driveway, a beat up old OLDS in the front of the

house, very UGLY! See you all soon!!!

Love, S.

cell#

Trip Itinerary Update

> It is 6:00 AM and we are about to leave a KOA about 100 miles north

> of the Florida/Georgia border enroute to the Fort Lauderdale area.

> We have an appointment at an RV repair place for first thing

> tomorrow morning and have already been told that the ordered parts

> have arrived. We are alloting two full days for the repairs and

> plan on picking the rv up on the morning of the 4th to head north.

>

> We expect to get some place in South Carolina on Wednesday and then

> drive to northern Virginia on Thursday. I will send separate off-

> list email confirmations to those on the list, but plans are to see

> S. on Friday and B. on Saturday.

>

> Specific itinerary details are still a bit fuzzy for the August 8-23

> period, other than names and general areas. I have three people to

> see in Pennsylvania - Heim if I can set it up with him,

> Deborah of AOBTA, and my wife's nephew. For the Toronto area,

> I want to see Jill, Stacey, Meagan and a massage therapist who Jill

> put in contact with me. If possible while passing through, I also

> would like to drop back into the Buffalo area to see Sue Ginley and

> Bob and Judy King. That covers the 8th-17th. The following week

> before needing to be in Baltimore includes Mel Menezes in Boston and

> Parsons in Connecticutt. I don't have specific dates figured

> out yet for either of them. Part of that depends on what route we

> take getting there. Current thinking is to take 2-3 " personal days "

> and drive into upper New England just to see it (Vermont/New

> Hampshire/Maine).

>

> I then have four days blocked for the Baltimore area: 24th-27th,

> including the meetings on the 26th-27th. We would leave there on

> Saturday the 28th and drive to the Cleveland Ohio area for a support

> group meeting on Sunday being orchestrated by Pam Moffat.

>

> TJ doesn't know this yet, but if she and her mom are going to be

> around, I plan on swinging back up north from Ohio to pay her

> another visit (maybe she will be a tad less skittish this time). We

> would then go from there to Minnesota to see P. and across

> North Dakota to see Onale on the way home. Best guess is to be

> back home late the 7th of September or sometime on the 8th.

>

> Again, I will send out separate off-list emails to the folks on the

> stop-by list with more precise information after we have the

> repaired rv back in our possession, hopefully on the morning of the

> 4th.

>

>

>

>

> To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

>

[Guest guest]

> Mike,

>

> I'm new to the group and I was wondering what it is you do while

> visiting all these areas?

>

> Ann

--------------

First, not only do I have EDS, so do my daughter (Barb Uggen-)

and her husband Kerr. Second, I went back to night school in

February 2001 for a year long program to become a Licensed Massage

Practitioner in the state of Washington. My reason was to learn

what I could for pain management for my family. After graduating

and getting my license, I went on an intensive, extensive crash

program of continuing education courses. Among other things (to

name just a few of the courses), I took Lymphatic Drainage Therapy,

Cranialsacral Therapy, Myofascial Release, Polarity Therapy, Zen

Shiatsu, Jin Shin Do Acupressure, and Visceral Manipulation. Like I

said, that is not an all inclusive list.

During all of this, I started developing some theories about the

application of some of the " energy based " Eastern modalities for

symptomatic management of pain and other problems associated with

EDS without having to constantly resort to surgery and drugs. I

finally reached a point a year and a half ago where I no longer

wanted to keep working in the business world because it was

interfering with what I was doing with my " other thing. " So I

retired. And got VERY heavily involved with the CEDA list in a

capacity of informal advisor on alternative and complimentary

therapies.

Last October, we bought a used RV. We took off mid-May on the first

of three long trips this year around the United States to give me a

chance to actually test some of my theories. I can't test them if I

am unable to work on people with the actual conditions.

So, in answer to your question, we are currently on day 50 of what

will be about an 80 day trip to do just that. I put out a post that

basically said " Have Table, Will Travel ... Who Wants Me to Stop

By? " We have been bouncing from hither to thither and yon since the

21st of June. To date, I have put in close to 150 hours of hands-on

work on over 70 people. In doing so, we have clocked in excess of

10,500 miles (and expect to hit 16,000 by the time we get home), and

been through 33 states so far. By the time we finish the third trip

in November, we will have been into all 48 of the lower 48 and put

on probably 25,000 miles on the RV.

Do I have any answers? In some cases, absolutely. In other cases,

I think I just ended up with even more questions. Take a look at

post 53516 to get a clue as to what I mean by that. I have,

however, also gotten the attention of at least one key figure at the

National Institue of Health and have been asked to attend two days

of meetings at the end of August at Hopkins and Kennedy Krieger

in Baltimore on the subject of " energy medicine. "

So - that's what I have been doing while visiting all these areas.

If your curiosity is now really tweaked, go back through the posts

from the time of the EDNF conference in Buffalo. Start with

my " Conference Post " and then follow up with some of the posts from

folks I have seen along the way. Keep an open mind when you do

because some of it is a bit difficult to accept if you don't. All I

can tell you is that every bit of it is real.