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Re: Digest Number 93

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On 2 Aug 2002 at 15:37, MsBYGthoughts@... wrote:

> Same here, me not having a bf gets me down alot. Hopefully after my surgery

> life will be better.

Sorry to hear you're down s. Having a boyfriend isn't all a

bed of roses either :)

TuftySue

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oh wow this is getting spooky now ive been in a pissy mood all week and cried

this morning while watching the Rugrats of all things!!! maybe we all need a

holiday where brilliant attentive PA's are provided and everything is

accessible and a massage is included with the breakfast..;-)

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  • 1 year later...

Hi, I find this so interesting. I had a fusion done on L5-S1 in June. I

have the cage, rods and screws. I don't have the same back pain that I had

prior to the surgery. My biggest problem is with the tightening of my back

muscles, which has limited my movements. I was under the impression that

fusions with the rods/screws lasted longer. My surgeon handles mostly cases

from other doctors that need to be redone. I was talking with a man in the

waiting area that had two prior fusions without the rod/screws and he had to

have them redone adding the rods and screws. This is so confusing!! How do

you ever know if you made the right decision?

Regarding your disability -- you should have short-term disability which

lasts for the first six months. Then, your employer should have long-term

disability insurance. It is usually with a different carrier. You can also

file for disability benefits with Social Security. Off the top of my head,

I believe it's up to one year. I never knew Social Security offered that

benefit. I assumed it was only for those who were disabled for the

remainder of their life.

Tish

This was a big deal because I

> wanted to have a fusion without a cage or pins and rods because of

> all the horror stories I Have read and people I have talked to. I'm

> only just turned 25 and I didn't want a life of back surgeries.

> Since the second disc was ok I could have a " natural " fusion, like

> what the drs used to do before pins and rods. Basically, they put in

> calcium deposits all around my back which makes your bones grow.

> Most people have this stuff put in when they have a cage put in or

> pins and rods. The metal objects just help to keep the bones in

> place but the deposits promote the growth, causing the fusion. Since

> I don't have a metal materials I have nothing holding everything in

> place to help the fusion. People that do have the metal framework

> are able to move a lot sooner. It's almost like comparing it to a

> cast. If you broke your arm but you had a cast on you could do

> normal activities without damaging your arm because it's protected.

> Well, in my situation, my body is the cast, I have nothing else

> protecting my fusion. So I have to be bedridden for 6 months and

> then for another 6 months the dr says I have to " take it easy " ,

> whatever that means. You know he tells me I can't travel, go to the

> gym and workout, yet he hasn't said anything about going back to work

> and how I see it if I can't get help myself physically at the gym I

> definitely can't work 40 hours a week. I get tired from taking a

> shower and the point of going to the gym is to get my stamina built

> back to a somewhat normal level. My disability is supposed to be

> ending in 2 weeks and it's so frustrating. If he tells me I can't do

> much of anything but expects me to work, that's ridiculous-I should

> still be getting disability. When i worked before the surgery I went

> to the gym 5 days a week and not just for my mental stability but

> because if I didn't my back would completely go out. It hurt to work

> out but in the end it was my own physical therapy that I made for

> myself that helped me do everyday activities. Working is not simple

> no matter how unphysical the job may be. I worked as a veterinary

> assistant and then worked as an accountant at a dental office and let

> me tell you, even though the vet job was more physically demanding

> the stress involved with the accounting job was harder on my back.

> No job is easy when you have a back problem. You have to make things

> work for you. I want to go back to work so bad and I'm willing to

> put myself through pain I had did before the surgery. I'm not afraid

> fo the pain I just want to make sure I'm not doing anything to cause

> my fusion not to heal. See now my surgeon says that it takes 6

> months to a year for a fusion to be completely fused and that is why

> I have to limit myself for another 6 months. It's just so

> interesting when I was looking into all the surgery stuff and my

> surgeon was telling me how concerened he was about me having this

> type of surgery because I'm so young. The last person he did it on

> was 24 and after 3 months she went back to work. going against the

> dr's orders, and ended up having to have surgery again with pins and

> rods. So he kept telling me I have to commit for 6 months, and I

> did, and now it's another 6 months. This is so frustrating.

> I have to stop writing now or I will go insane.

> Thank you everybody for all of your support.

> Talk to you later.

>

>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

>

>

> ------------------------------------------------------------------------

>

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  • 8 months later...

Wow, this scares me. I would not think of exposing my child to this

kind of interview and indoctrination. Jan is a pretty well functioning

adult with DS, but she has been very confused and duped by life skills

counsellors who got her into email spam from on-line spirit mediums.

Like many people she didn't understand the boiler plate emails she was

getting and the basic plan to get money from her.

My daughter has a wonderful, but simple view of how life works. She

doesn't need an answer as to why she has down syndrome or had leukemia.

She knows why she had the t-cell transplant. That was simply to save

her life.

She has had the strength to get through these problems and attempts to

provide deep answers, if they exist beyond simple faith, would be very

disturbing to her.

My recommendation to other parents is to proceed very carefully if you

choose to go down this path.

Rick .. dad to 31 year old Jan, now 15 months post transplant and healthy

> From: " courageoussouls " <courageoussouls@...>

>Subject: Author seeks people to interview for book

>

>

>I am an author writing a book in the spirituality genre that explores the

deeper meaning behind life challenges.

>

>In conducting research for this book, I am working with several

>psychic mediums who have the ability to speak directly with Spirit. These

gifted individuals are able to uncover the " why's " behind the challenges of

life. By telling the stories of people who face certain difficulties, and by

offering spiritual insight into why these things happen, the book will help

people find greater purpose in life challenges.

>

>I am looking for someone who has a handicapped child (Down's or

>another disability) and who would like to explore the deeper

>spiritual meaning to work with me and one of the mediums. You will have a

one-hour session at no charge with the medium and myself by telephone. I will

then conduct a one-on-one telephone interview with you at another time.

>

>This is an opportunity to 1) acquire new wisdom and insight into a difficult

life challenge and 2) share that wisdom with readers who face the same

challenge.

>

>It is my intention to conduct this research with the utmost honor and

integrity. Discretion and confidentiality are very important to me. Please

note that I do not need to use real names in the book. You may remain

completely anonymous if you like.

>

>If you would like to participate, or for more information, PLEASE CONTACT ME

DIRECTLY at courageoussouls@...

>

>In your reply, please tell me about yourself and your child, why you want to

participate, and any spiritual or metaphysical experiences you have had.

>

>Thank you.

>

>

>

>

>

>

>

>________________________________________________________________________

>________________________________________________________________________

>

>

>

>------------------------------------------------------------------------

>

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  • 5 months later...
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Re: Metranidazole

Message: 25

Date: Tue, 03 May 2005 17:13:58 -0000

From: " Hodologica " <usenethod@...>

Subject: Re: Metranidazole

, thanks for your warm welcome!

- your comments made for what is either a

brilliant flash, or a brain-fart, depending.... Your

underlining of what the reference said, that

metronidazole has to be reduced by enzymes within the

cell before it is in active form, made me wonder

whether the " metro wall " comes about when we have used

up all the enzymes available and now the unreduced

form (which could be more toxic) is building up. Since

I don't know the whole pathway and what enzymes are

used within the cell, and whether the liver handles

the reduced form of metro differently than the

unreduced, it's hard to know.

Any thoughts out there about this? Those who tolerate

metro for longer courses may just have more of that

enzyme or it's constituents available, or be able to

produce it better in their own cells.

One difference in how I read Wheldon: he isn't saying

that " doxy and azithromycin cause Cpn to become

metro-sensitive or more metro-sensitive, " he (and

Stratton) are saying that these abx inhibit and kill

it in the replicating phase of the organism and some

of it adapts by shifting into the cryptic,

nonreplicating phase where it is still metabolizing

energy from body cells, but not replicating-- so it is

safe from abx but not safe from an intracellular agent

like metro.

Also- your first link didn't work, do you have another

source for it?

Thanks,

Jim

Metronidazole in itself is inactive... it becomes

active when reduced

by certain enzymes, as Jims ref says. This is almost

certainly what is

meant by the statement that a bacterium needs to

express certain

gene(s) - genes encoding such enzyme(s) - in order to

be sensitive to

metronidazole.

I wouldnt know whether any bacterium can be

unequivocally stated to

lack any genes suitable for reducing metronidazole at

an appreciable

rate. I was under the very vague impression that all

bacterial taxa

had many genes whose products and functions are yet

unknown, but that

could be totally wrong - and perhaps there is a way to

prove, without

knowing its function positiviely, that a certain gene

does not code a

reducing enzyme. I wouldnt know.

This paper, posted by Matt when he discussed metro,

suggests that

under some circumstances multiple classes of enzymes

may be able to

contribute to reduction of metro, at least in a some

amount

(Discussion, paragraph 2). One would have to do some

quantitative

reckoning to decide whether these phenomena might be

theraputically

relevant.

http://jb.asm.org/cgi/content/full/182/18/50

Finally, I think to decide whether Bb can be sensitive

to metro one

really needs to examine the Brorsons empirical work on

the subject,

and herxoid experiences described by patients.

SOmething also of interest in this question would be

Wheldons

assertion (I think) that doxy and azithromycin cause

Cpn to become

metro-sensitive or more metro-sensitive.

Also, another factor re metro in general is that the

presence of much

oxygen may reconvert the reduced, active metro back

into inactive

from, spontaneously, without enzymatic action - I cant

remember where

I read that, or if I totally made it up - anyway heres

the other paper

Matt posted, which addresses some of this chemistry:

http://www.ub.rug.nl/eldoc/dis/medicine/e.j.van.der.wouden/c8.pdf

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