Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 I don't have any " worse case " stories to tell you, but I can tell you that I had both hips resurfaced last August 25th and have experienced such a complete recovery that I feel like I never even had arthritis much less major surgery 10 months ago. I have felt this level of recovery since I started walking " normally " at about 4 1/2 months post op. I had about 10 wks of physical therapy to strengthen my muscles so I no longer walked like a penguin, and have been increasing my flexibility ever since. I too am a RN and was in excellent physical condition prior to the surgery. I continued working out in spite of the pain and went into the surgery strong. I can tell you that I have had absolutely NO HIP PAIN since I climbed onto to the stretcher to go into surgery. A little muscle pain and incisional pain after the surgery, yes, but no hip pain. I guess this is a " best case " story, but it is possible....and I'm a little older than you. I was 51 when I had my surgery and it is such a blessing and miracle! Diane > >Reply-To: surfacehippy >To: surfacehippy >Subject: Has anyone had any bad experiences with >resurfacing? >Date: Sun, 27 Jun 2004 03:44:33 -0000 > >Hi, I'm getting resurfaced by Dr s (Baltimore) in August. I love >reading through many of the old messages and keeping track of all the >new messages on this board. It has been extremely helpful, supportive >and informative. > >Now that I'm " facing the inevitable " so soon, I feel like I need >people to " give it to me straight " and tell me some worst case >stories. I'm not trying to talk myself out of it (-this wouldn't be >an option anyway, since I'm quickly becoming debilitated by AVN). I >just want to be realistic about what this experience will be like. I >work in the health care system (I'm a nurse-midwife), so very little >anyone says would really scare me. > >Has anyone's new MOM hip " failed " ? What exactly does this mean? Have >any of you needed a revision to THR yet? > >I'm 46, in very good health, although no longer in any kind of good >physical condition due to the hip problem for over a year. I have a >wonderful support system (husband, 2 teenagers, and lots of friends >and some extended family). I know everyone comes through at their own >pace, but I think if anyone is a good surgical candidate, it would be >me (other than the fact that I'm a big chicken and have never been a >patient before!) > >I hope no one minds my asking these hard questions. I don't want to >be shocked or surprised by something I didn't know could happen. > >Marie > _________________________________________________________________ FREE pop-up blocking with the new MSN Toolbar – get it now! http://toolbar.msn.click-url.com/go/onm00200415ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 My scheduled resurfacing (c+,LH,Dr.Crofford) is on July 12th @12:00pm. I may be a little fesitious but through my research 2 years ago I feel very at ease with the procedure now. There always are some negatives due to it being a relatively new procedure but through my due diligence I feel the benefits far outweigh any risks. I would suggest to get as many patient referrals as possible. Ask about any complications incurred and why they chose the OS. My OS (and nurse) went out of their way to make me feel more at ease. I even watched the video of the proceedure though very graphic for some. > Hi Marie, Sunita, Jan/Wannie, > > As many of you who have been with this group for awhile will know, I > have been having difficulties for some time. I was operated on at the > end of Nov/03 in the UK. Immediately post-op, I had a very very swollen > leg and knee and quite rotated knee-although this has now straightened > out. I have had pain on and off continually since my op, although my > hip and muscles continue to get stronger and I can, when not tired, walk > without a limp or sticks for a mile or so. I am particularly having a > lot of night pain in my groin area that at worst, wakes me up 4 or 5 > times a night, and do get pain referred down the leg at other times. My > OS thinks I may have a low level infection. My bloods do not show > infection, but my blood inflammation levels are high. This morning I > had an aspiration arthrogram-where they took fluid from the hip > cavity-to check this. They also injected a slow release local > anaesthetic into the joint to give me some pain relief. > > Although I was dreading the arthrogram, it was not too bad at all- only a > dull ache during the procedure and quickly over. It will take about a > week to get the results, and I will let people know the outcome. > Eleanor > > RE: Has anyone had any bad experiences with > resurfacing? > > Marie, > > Unlike others, I am very glad that you are asking these questions. > Searching > for the negatives...............absolutely. Resurf is not a 100% > positive > thing. I am one of the " old members " having my first resurf in October > of 02 > who had a failed resurf. I have since had a THR and have to tell you > that I am > very happy with my new device. I am one of the unfortunates that > developed > AVN as a result of the resurf. My bones were strong, but apparently > small. I > had the cormet 2000. After my failing, I contacted Dr. DeSmet by email > to ask > his opinion about my prediciment and if I should opt for a resurf or a > THR on > my other hip. I contacted DeSmet not becasue I had no faith in my Doc, > which I > did, but I wanted a second opinion from the best. He told me that if I > had > received the BHR from him that I may have not developed AVN becasue this > device > is bit smaller and they would have had to drill less bone. He suggested > that > I receive a THR and not to chance what I went through the first time. > Fortunatley, Corin has complementary parts and I did not need to have > the cup replaced > during my revision. My second surgery was absolutely wonderful compared > to > the first. My doc told me that this device should last as long as the > resurf > and that the only negative is that if a revision should be needed I > would be on > my second. He believes that the devise I have now will last me a > lifetime. I > am 50. Becasue of the success of this second surgery, I am planning on > a THR > with the same device. I am now one inch taller with my new him and my > doc > promises that I will be that tall once my other is done. I now have to > wear a > lift, however I have been going without most of the time and relying on > the > best chiro I know to fix the problems that are caused by a one inch > differnce > in leg length. (this chiro also wants to be present during my next THR) > Also I > have developed something called " bucket handle " with my knee (same side > as the > new hip) and this has prevented me from becoming more active and relying > on > it for support. My knee is finally getting better and I am so happy > with what > my new hip can do even without the PT. If I didn't mention it before I > had a > revision in December of 03. I also wonder if this " bucket handle knee " > had a > purpose and stopped me from doing things that I shouldn't have done. I > am now > a firm believer in taking it easy....very easy. Another poster who may > or may > not have posted lately (I only check in once and awhile) went through > the > identical thing that I did. He had his revision surgery three weeks > before me and > was being sooooooooooo careful. He was on crutches and cane way past > when I > was cuz he was so worried. My doc told me to take a shower if I wanted > the > first day after surgery, which I did. The nurses were frantic but I > told them > that I was walking around on a hip that had AVN and even this first day > was > less painful. I knew how to operate on one good leg. They let me > shower alone > the second day when they saw how well I did the first day. This was > more > lenient that the first time and I have to tell you that I recouped > faster on the > incision this time. He even said I didn't need a bandage, but I had to > put one > on for a few days after I got home cuz it was kinda gross. > > Well, this other poster just emailed me and he is having problems again. > He > has severe pain and wants his original hip back (he had a revision and a > THR) > His doc is Goldberg from Ohio. My doc, who I would recommend highly is > Dr. > Stachniw from Galesburg, Illinois. Stachniw is compationate and precise > and > will even say he doesn't know something if he doesn't instead of making > up so > stupid answer to make you believe that he is all knowing. Anyway, this > other > poster will be seeing his doc again and he said that this doc has an > attitude > and has already got things in place so that he cannot be blamed. I am > so > worried for him. I don't know if he has posted lately, but I am sure > that the > veterans on this list will remember. > > So, asking questions about negatives is a wise thing to do. There have > been > failures but most don't post after a certain amount of time. I do and > will > tell you that I am happy with my new hip, my doc, and will go forward > with a THR > on my other hip. I also have to tell you that if I knew then what I know > now > I would have maybe opted for Belgium, but I am so happy with my THR (of > > course large ball MOM) that I may have opted for it becasue my doc is > close to me > and I trust him. He honestly told me that he really believes that my THR > will > last as long as a resurf and it will probably be my lifetime. Others > will > remember him also as the doc who received a bilat from Dr. Gross in 02. > He is > doing well but has a lot of stiffness with one of them when he first > gets > up....the other hip is like he never knew he had surgery. > > Jan aka/Wannie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 My scheduled resurfacing (c+,LH,Dr.Crofford) is on July 12th @12:00pm. I may be a little fesitious but through my research 2 years ago I feel very at ease with the procedure now. There always are some negatives due to it being a relatively new procedure but through my due diligence I feel the benefits far outweigh any risks. I would suggest to get as many patient referrals as possible. Ask about any complications incurred and why they chose the OS. My OS (and nurse) went out of their way to make me feel more at ease. I even watched the video of the proceedure though very graphic for some. > Hi Marie, Sunita, Jan/Wannie, > > As many of you who have been with this group for awhile will know, I > have been having difficulties for some time. I was operated on at the > end of Nov/03 in the UK. Immediately post-op, I had a very very swollen > leg and knee and quite rotated knee-although this has now straightened > out. I have had pain on and off continually since my op, although my > hip and muscles continue to get stronger and I can, when not tired, walk > without a limp or sticks for a mile or so. I am particularly having a > lot of night pain in my groin area that at worst, wakes me up 4 or 5 > times a night, and do get pain referred down the leg at other times. My > OS thinks I may have a low level infection. My bloods do not show > infection, but my blood inflammation levels are high. This morning I > had an aspiration arthrogram-where they took fluid from the hip > cavity-to check this. They also injected a slow release local > anaesthetic into the joint to give me some pain relief. > > Although I was dreading the arthrogram, it was not too bad at all- only a > dull ache during the procedure and quickly over. It will take about a > week to get the results, and I will let people know the outcome. > Eleanor > > RE: Has anyone had any bad experiences with > resurfacing? > > Marie, > > Unlike others, I am very glad that you are asking these questions. > Searching > for the negatives...............absolutely. Resurf is not a 100% > positive > thing. I am one of the " old members " having my first resurf in October > of 02 > who had a failed resurf. I have since had a THR and have to tell you > that I am > very happy with my new device. I am one of the unfortunates that > developed > AVN as a result of the resurf. My bones were strong, but apparently > small. I > had the cormet 2000. After my failing, I contacted Dr. DeSmet by email > to ask > his opinion about my prediciment and if I should opt for a resurf or a > THR on > my other hip. I contacted DeSmet not becasue I had no faith in my Doc, > which I > did, but I wanted a second opinion from the best. He told me that if I > had > received the BHR from him that I may have not developed AVN becasue this > device > is bit smaller and they would have had to drill less bone. He suggested > that > I receive a THR and not to chance what I went through the first time. > Fortunatley, Corin has complementary parts and I did not need to have > the cup replaced > during my revision. My second surgery was absolutely wonderful compared > to > the first. My doc told me that this device should last as long as the > resurf > and that the only negative is that if a revision should be needed I > would be on > my second. He believes that the devise I have now will last me a > lifetime. I > am 50. Becasue of the success of this second surgery, I am planning on > a THR > with the same device. I am now one inch taller with my new him and my > doc > promises that I will be that tall once my other is done. I now have to > wear a > lift, however I have been going without most of the time and relying on > the > best chiro I know to fix the problems that are caused by a one inch > differnce > in leg length. (this chiro also wants to be present during my next THR) > Also I > have developed something called " bucket handle " with my knee (same side > as the > new hip) and this has prevented me from becoming more active and relying > on > it for support. My knee is finally getting better and I am so happy > with what > my new hip can do even without the PT. If I didn't mention it before I > had a > revision in December of 03. I also wonder if this " bucket handle knee " > had a > purpose and stopped me from doing things that I shouldn't have done. I > am now > a firm believer in taking it easy....very easy. Another poster who may > or may > not have posted lately (I only check in once and awhile) went through > the > identical thing that I did. He had his revision surgery three weeks > before me and > was being sooooooooooo careful. He was on crutches and cane way past > when I > was cuz he was so worried. My doc told me to take a shower if I wanted > the > first day after surgery, which I did. The nurses were frantic but I > told them > that I was walking around on a hip that had AVN and even this first day > was > less painful. I knew how to operate on one good leg. They let me > shower alone > the second day when they saw how well I did the first day. This was > more > lenient that the first time and I have to tell you that I recouped > faster on the > incision this time. He even said I didn't need a bandage, but I had to > put one > on for a few days after I got home cuz it was kinda gross. > > Well, this other poster just emailed me and he is having problems again. > He > has severe pain and wants his original hip back (he had a revision and a > THR) > His doc is Goldberg from Ohio. My doc, who I would recommend highly is > Dr. > Stachniw from Galesburg, Illinois. Stachniw is compationate and precise > and > will even say he doesn't know something if he doesn't instead of making > up so > stupid answer to make you believe that he is all knowing. Anyway, this > other > poster will be seeing his doc again and he said that this doc has an > attitude > and has already got things in place so that he cannot be blamed. I am > so > worried for him. I don't know if he has posted lately, but I am sure > that the > veterans on this list will remember. > > So, asking questions about negatives is a wise thing to do. There have > been > failures but most don't post after a certain amount of time. I do and > will > tell you that I am happy with my new hip, my doc, and will go forward > with a THR > on my other hip. I also have to tell you that if I knew then what I know > now > I would have maybe opted for Belgium, but I am so happy with my THR (of > > course large ball MOM) that I may have opted for it becasue my doc is > close to me > and I trust him. He honestly told me that he really believes that my THR > will > last as long as a resurf and it will probably be my lifetime. Others > will > remember him also as the doc who received a bilat from Dr. Gross in 02. > He is > doing well but has a lot of stiffness with one of them when he first > gets > up....the other hip is like he never knew he had surgery. > > Jan aka/Wannie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 There is a site called Bananna Republican, which has a long a detailed story of one person's experience, which resulted in a revision to a THR. I am 4 months post op and " knock on wood " I am doing great and have been able to work out again. > Hi, I'm getting resurfaced by Dr s (Baltimore) in August. I love > reading through many of the old messages and keeping track of all the > new messages on this board. It has been extremely helpful, supportive > and informative. > > Now that I'm " facing the inevitable " so soon, I feel like I need > people to " give it to me straight " and tell me some worst case > stories. I'm not trying to talk myself out of it (-this wouldn't be > an option anyway, since I'm quickly becoming debilitated by AVN). I > just want to be realistic about what this experience will be like. I > work in the health care system (I'm a nurse-midwife), so very little > anyone says would really scare me. > > Has anyone's new MOM hip " failed " ? What exactly does this mean? Have > any of you needed a revision to THR yet? > > I'm 46, in very good health, although no longer in any kind of good > physical condition due to the hip problem for over a year. I have a > wonderful support system (husband, 2 teenagers, and lots of friends > and some extended family). I know everyone comes through at their own > pace, but I think if anyone is a good surgical candidate, it would be > me (other than the fact that I'm a big chicken and have never been a > patient before!) > > I hope no one minds my asking these hard questions. I don't want to > be shocked or surprised by something I didn't know could happen. > > Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 Dear Sunita, Good to hear from you. I'll be interested to hear what they do when you have a bone scan. And, of course, the results, the most important bit of all. Do hope all goes all right. The only other thing I meant to say when I answered the original e-mail, is that I don't regret having the operation. I do think that these things just happen sometimes, and it is unfortunate that we are the ones to whom they are happening. In a funny way, it is reassuring to me that it is happening to you, Sunita, who had de Smet. Even with one of the very best surgeons, these things do happen. It stops me from wondering if perhaps I had a different surgeon things might have been different. Take care, Eleanor Re: RE: Has anyone had any bad experiences with resurfacing? thanks Eleanor for giving us some news about you; I had been wondering and I am glad your experience with the aspiration arthrogram was not that bad! I have been worried about infection eventhough my blood tests are OK. not knowing and worring is the worst part of all! Tomorrow is the bone scan. I look forward to hear from you with your results and I will let you know my bone scan results too (probably take a week as well to get the results). take care sunita RE: Has anyone had any bad experiences with resurfacing? Marie, Unlike others, I am very glad that you are asking these questions. Searching for the negatives...............absolutely. Resurf is not a 100% positive thing. I am one of the " old members " having my first resurf in October of 02 who had a failed resurf. I have since had a THR and have to tell you that I am very happy with my new device. I am one of the unfortunates that developed AVN as a result of the resurf. My bones were strong, but apparently small. I had the cormet 2000. After my failing, I contacted Dr. DeSmet by email to ask his opinion about my prediciment and if I should opt for a resurf or a THR on my other hip. I contacted DeSmet not becasue I had no faith in my Doc, which I did, but I wanted a second opinion from the best. He told me that if I had received the BHR from him that I may have not developed AVN becasue this device is bit smaller and they would have had to drill less bone. He suggested that I receive a THR and not to chance what I went through the first time. Fortunatley, Corin has complementary parts and I did not need to have the cup replaced during my revision. My second surgery was absolutely wonderful compared to the first. My doc told me that this device should last as long as the resurf and that the only negative is that if a revision should be needed I would be on my second. He believes that the devise I have now will last me a lifetime. I am 50. Becasue of the success of this second surgery, I am planning on a THR with the same device. I am now one inch taller with my new him and my doc promises that I will be that tall once my other is done. I now have to wear a lift, however I have been going without most of the time and relying on the best chiro I know to fix the problems that are caused by a one inch differnce in leg length. (this chiro also wants to be present during my next THR) Also I have developed something called " bucket handle " with my knee (same side as the new hip) and this has prevented me from becoming more active and relying on it for support. My knee is finally getting better and I am so happy with what my new hip can do even without the PT. If I didn't mention it before I had a revision in December of 03. I also wonder if this " bucket handle knee " had a purpose and stopped me from doing things that I shouldn't have done. I am now a firm believer in taking it easy....very easy. Another poster who may or may not have posted lately (I only check in once and awhile) went through the identical thing that I did. He had his revision surgery three weeks before me and was being sooooooooooo careful. He was on crutches and cane way past when I was cuz he was so worried. My doc told me to take a shower if I wanted the first day after surgery, which I did. The nurses were frantic but I told them that I was walking around on a hip that had AVN and even this first day was less painful. I knew how to operate on one good leg. They let me shower alone the second day when they saw how well I did the first day. This was more lenient that the first time and I have to tell you that I recouped faster on the incision this time. He even said I didn't need a bandage, but I had to put one on for a few days after I got home cuz it was kinda gross. Well, this other poster just emailed me and he is having problems again. He has severe pain and wants his original hip back (he had a revision and a THR) His doc is Goldberg from Ohio. My doc, who I would recommend highly is Dr. Stachniw from Galesburg, Illinois. Stachniw is compationate and precise and will even say he doesn't know something if he doesn't instead of making up so stupid answer to make you believe that he is all knowing. Anyway, this other poster will be seeing his doc again and he said that this doc has an attitude and has already got things in place so that he cannot be blamed. I am so worried for him. I don't know if he has posted lately, but I am sure that the veterans on this list will remember. So, asking questions about negatives is a wise thing to do. There have been failures but most don't post after a certain amount of time. I do and will tell you that I am happy with my new hip, my doc, and will go forward with a THR on my other hip. I also have to tell you that if I knew then what I know now I would have maybe opted for Belgium, but I am so happy with my THR (of course large ball MOM) that I may have opted for it becasue my doc is close to me and I trust him. He honestly told me that he really believes that my THR will last as long as a resurf and it will probably be my lifetime. Others will remember him also as the doc who received a bilat from Dr. Gross in 02. He is doing well but has a lot of stiffness with one of them when he first gets up....the other hip is like he never knew he had surgery. Jan aka/Wannie Quote Link to comment Share on other sites More sharing options...
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