Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Grace, Here is what I found on subluxing: ...............Subluxing occurs when your kneecap slips out of the groove slightly, causing pain but not limited motion. When either of these scenarios occur, parts of the kneecap can fracture. The fragments of cartilage and bone can become loose and create mechanical problems in the joint. Signs and Symptoms: If your dislocation is complete, you won't be able to straighten out your knee without experiencing some pain. If it's subluxing, you'll feel pain when you climb stairs, and when you arise from a seated position or squat. You'll also have the anxious feeling that your kneecap is going to shift out of place................. Of course subluxing can occur with MANY of our joints. As for pain, I take Tramadol (Ultram) and have found it to be effective for ME. I know several others take Tylenol with codine. I'm sure you'll get a lot of other replies giving you ideas on different pain medications. Good luck to you. Love Lana > I know we all take meds for pain. I think I asked this before but I > need to ask again so I can print it out this time....lol What meds > do you all take for pain? My doc had to finally put me on Morphine. > It's working pretty good so far for most of the pain but I HATE the > way it makes me feel. Not to mantion it's Morphine! > > My other question is: What is Subluxing? I think that's the word I > see often on posts. > > Thanks all! Have a wonderful day. Or at least try too. If there > are any people here that live in Florida or have friends and family > there, please know my prayers are with you and them. > > HUGGLES Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Grace, Here is what I found on subluxing: ...............Subluxing occurs when your kneecap slips out of the groove slightly, causing pain but not limited motion. When either of these scenarios occur, parts of the kneecap can fracture. The fragments of cartilage and bone can become loose and create mechanical problems in the joint. Signs and Symptoms: If your dislocation is complete, you won't be able to straighten out your knee without experiencing some pain. If it's subluxing, you'll feel pain when you climb stairs, and when you arise from a seated position or squat. You'll also have the anxious feeling that your kneecap is going to shift out of place................. Of course subluxing can occur with MANY of our joints. As for pain, I take Tramadol (Ultram) and have found it to be effective for ME. I know several others take Tylenol with codine. I'm sure you'll get a lot of other replies giving you ideas on different pain medications. Good luck to you. Love Lana > I know we all take meds for pain. I think I asked this before but I > need to ask again so I can print it out this time....lol What meds > do you all take for pain? My doc had to finally put me on Morphine. > It's working pretty good so far for most of the pain but I HATE the > way it makes me feel. Not to mantion it's Morphine! > > My other question is: What is Subluxing? I think that's the word I > see often on posts. > > Thanks all! Have a wonderful day. Or at least try too. If there > are any people here that live in Florida or have friends and family > there, please know my prayers are with you and them. > > HUGGLES Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Hi all...new member here! Alas, my daughter & I have had allergic reactions to all but an occasional ibuprofen, so we have to fight pain with stuff like rubs, oils, heat and figured out ways to prevent pain in the first place. However, I am going to be undergoing hip replacement early next year and am scared silly they won't find anything I can use for THAT kind of pain. My Mom had hip done a few years back and found she had no allergic problem with the morphine...however she says it was completely ineffective & she suffered in silence. Doctor is a bit concerned about the allergies, but says I've got the highest tolerance for pain he's seen, considering how awful the hip looks (latest xrays show the remainder of the leg bone is trying to fuse itself into the pelvis about 2 " deep). Anyone else have med allergies that has had anything work for surgery?? Also, have never had any form of antibiotics & am probably allergic to some of those....any less likely to cause problems? Liza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Hi all...new member here! Alas, my daughter & I have had allergic reactions to all but an occasional ibuprofen, so we have to fight pain with stuff like rubs, oils, heat and figured out ways to prevent pain in the first place. However, I am going to be undergoing hip replacement early next year and am scared silly they won't find anything I can use for THAT kind of pain. My Mom had hip done a few years back and found she had no allergic problem with the morphine...however she says it was completely ineffective & she suffered in silence. Doctor is a bit concerned about the allergies, but says I've got the highest tolerance for pain he's seen, considering how awful the hip looks (latest xrays show the remainder of the leg bone is trying to fuse itself into the pelvis about 2 " deep). Anyone else have med allergies that has had anything work for surgery?? Also, have never had any form of antibiotics & am probably allergic to some of those....any less likely to cause problems? Liza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Hi I see Lana answered your question about subluxing so I will skip that part and just go on to the question about medications. I am currently on 3 medications daily: Celexa - antidepressant for depression - 30mg once a day MS Contin - slow release morphine for chronic pain - 30mg twice a day Amitriptyline - antidepressant for sleep help - 25 mg once a day Plus I take Vitamine C twice a day for upcoming surgery for wisdom tooth extraction (and will probably stay on it as surgery again in november). As for breakthrough pain relief I use anything from ibprufin to asprin w/ codiene to percodan. I am slightly allergic to tylenol so can't take it. Me and my doctor have found that I become tolerant of medications very very easily. I generally have to have the dosages of everything changed every few months. And pills that completely knock out my cousin (he is a big guy) do nothing to me. He could take half a percodan and be instantly knocked out for a few hours where as I take 2 percodan and still feel the pain, it is only diminished slightly. Hope this helps you Oh and by the way I am 22 so Ill probably end up being on everything and anything out there at some point! Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Hi I see Lana answered your question about subluxing so I will skip that part and just go on to the question about medications. I am currently on 3 medications daily: Celexa - antidepressant for depression - 30mg once a day MS Contin - slow release morphine for chronic pain - 30mg twice a day Amitriptyline - antidepressant for sleep help - 25 mg once a day Plus I take Vitamine C twice a day for upcoming surgery for wisdom tooth extraction (and will probably stay on it as surgery again in november). As for breakthrough pain relief I use anything from ibprufin to asprin w/ codiene to percodan. I am slightly allergic to tylenol so can't take it. Me and my doctor have found that I become tolerant of medications very very easily. I generally have to have the dosages of everything changed every few months. And pills that completely knock out my cousin (he is a big guy) do nothing to me. He could take half a percodan and be instantly knocked out for a few hours where as I take 2 percodan and still feel the pain, it is only diminished slightly. Hope this helps you Oh and by the way I am 22 so Ill probably end up being on everything and anything out there at some point! Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2004 Report Share Posted August 13, 2004 Hi Liza~ Glad to have you and your daughter here with our CEDAfamily! Not a lot of time for me to answer your post but will a bit later. I am sure you will find this a terrific place to get support and answers. Later, Debbi Re: A few questions... Hi all...new member here! Alas, my daughter & I have had allergic reactions to all but an occasional ibuprofen, so we have to fight pain with stuff like rubs, oils, heat and figured out ways to prevent pain in the first place. However, I am going to be undergoing hip replacement early next year and am scared silly they won't find anything I can use for THAT kind of pain. My Mom had hip done a few years back and found she had no allergic problem with the morphine...however she says it was completely ineffective & she suffered in silence. Doctor is a bit concerned about the allergies, but says I've got the highest tolerance for pain he's seen, considering how awful the hip looks (latest xrays show the remainder of the leg bone is trying to fuse itself into the pelvis about 2 " deep). Anyone else have med allergies that has had anything work for surgery?? Also, have never had any form of antibiotics & am probably allergic to some of those....any less likely to cause problems? Liza To learn more about EDS, visit our website: http://www.ehlersdanlos.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Stacey~ Now that I know what kind of pain subluxing is, that describes my knees and hips every day pain for sure. All night I have to sleep on my sides because the back hurts more from the L4-5 disc herniation causing unbelievable pain if I wake up on my back. The sides are coming in a close second and I am trying some diffferent things with pillows. As far as pain meds, I tried several over the counter, but chronic pain in the 6-10+ levels call for some strong ones. I can't tolorate Ultram, Vicoden, Codiene, and IV Morphine. OxyIR is what I take for breakthrough pain with a much stronger Duragesic patch. The patch is a strong narcotic that I have been at the same dosage for a couple of years and don't plan on going to a higher dose. I'm now having problems with the patch not sticking well because of illness from chronic sinus infection. It's getting the best of me presently. Hopefully this is going to be licked soon. It's causing cold clamminess on my skin, alternating with feverish and hot temps. That changes the absorption from the patch, and the side effects are keeping me down from what I have to do. I'm supposed to be moving in 17 days. There's one pain med I wish I could take more often~ but it's an IV med, Toradol, which is like Ibuprophen in IV form, it doesn't cause the same problems with stomach irritation, and it works wonderfully for me after surgery with joint pain, especially. ~Duv () Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Stacey~ Now that I know what kind of pain subluxing is, that describes my knees and hips every day pain for sure. All night I have to sleep on my sides because the back hurts more from the L4-5 disc herniation causing unbelievable pain if I wake up on my back. The sides are coming in a close second and I am trying some diffferent things with pillows. As far as pain meds, I tried several over the counter, but chronic pain in the 6-10+ levels call for some strong ones. I can't tolorate Ultram, Vicoden, Codiene, and IV Morphine. OxyIR is what I take for breakthrough pain with a much stronger Duragesic patch. The patch is a strong narcotic that I have been at the same dosage for a couple of years and don't plan on going to a higher dose. I'm now having problems with the patch not sticking well because of illness from chronic sinus infection. It's getting the best of me presently. Hopefully this is going to be licked soon. It's causing cold clamminess on my skin, alternating with feverish and hot temps. That changes the absorption from the patch, and the side effects are keeping me down from what I have to do. I'm supposed to be moving in 17 days. There's one pain med I wish I could take more often~ but it's an IV med, Toradol, which is like Ibuprophen in IV form, it doesn't cause the same problems with stomach irritation, and it works wonderfully for me after surgery with joint pain, especially. ~Duv () Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Stacey~ Now that I know what kind of pain subluxing is, that describes my knees and hips every day pain for sure. All night I have to sleep on my sides because the back hurts more from the L4-5 disc herniation causing unbelievable pain if I wake up on my back. The sides are coming in a close second and I am trying some diffferent things with pillows. As far as pain meds, I tried several over the counter, but chronic pain in the 6-10+ levels call for some strong ones. I can't tolorate Ultram, Vicoden, Codiene, and IV Morphine. OxyIR is what I take for breakthrough pain with a much stronger Duragesic patch. The patch is a strong narcotic that I have been at the same dosage for a couple of years and don't plan on going to a higher dose. I'm now having problems with the patch not sticking well because of illness from chronic sinus infection. It's getting the best of me presently. Hopefully this is going to be licked soon. It's causing cold clamminess on my skin, alternating with feverish and hot temps. That changes the absorption from the patch, and the side effects are keeping me down from what I have to do. I'm supposed to be moving in 17 days. There's one pain med I wish I could take more often~ but it's an IV med, Toradol, which is like Ibuprophen in IV form, it doesn't cause the same problems with stomach irritation, and it works wonderfully for me after surgery with joint pain, especially. ~Duv () Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 Liza Can you find someone to do acupuncture? I know it's a far off hope. However, the first real info we in the west had about acupuncture was when Nixon went to China and one of his aids needed emergency surgery (removal of appendix I think) anyway - they used acupuncture for the pain relief during the surgery rather than knocking the guy out. That's the story I read anyway. BYW - I know you from the EDNF board and I wouldn't recommend you try antibiotic unless absolutely necessary. If you do get an infection and need them, make the doctors grow a culture, determine exactly what bacteria is causing the infection and use an antibiotic targeted to that bacteria. Penicillian and erythymiacine (absolutely spelled incorrectly) are two of the least harmful according to my sources. You want to avoid broad spectrum antibiotics as much as possible, like tetracycline (and tons of newer ones I'm totally clueless about) Also, if you do require antibiotics make sure to take lots of probiotics and probably an antifungal - either natural like caprilic acid, garlic, wild oregano, or citrus seed extract, or something like nystatin (Rx) > Hi all...new member here! Alas, my daughter & I have had allergic > reactions to all but an occasional ibuprofen, so we have to fight > pain with stuff like rubs, oils, heat and figured out ways to prevent > pain in the first place. However, I am going to be undergoing hip > replacement early next year and am scared silly they won't find > anything I can use for THAT kind of pain. My Mom had hip done a few > years back and found she had no allergic problem with the > morphine...however she says it was completely ineffective & she > suffered in silence. Doctor is a bit concerned about the allergies, > but says I've got the highest tolerance for pain he's seen, > considering how awful the hip looks (latest xrays show the remainder > of the leg bone is trying to fuse itself into the pelvis about 2 " > deep). > Anyone else have med allergies that has had anything work for > surgery?? Also, have never had any form of antibiotics & am probably > allergic to some of those....any less likely to cause problems? > Liza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 Yeah, I've considered accupuncture also, but not finding anyone that will work in conjunction with the hospital or surgery itself. Accupuncture in the past didn't do much for me (then again, it may be they thought they were curing asthma when it turned out to be heart related), seem to get better results with accupressure for some reason. I'll keep looking, still have till at least January, and will also keep working on my overall fitness and health. Not being a regular user of antibiotics, I'm less likely to develop anything drug-resistant (I hope!) This doc encourages patients to be pro-active, get on their feet ASAP and will allow me to use some of my own herbs, etc post-surgery. He's also rooting for my last-ditch efforts to save the joint & rebuild the bone & if the final xrays show any actual regrowth, he would be the first to recommend giving it more time. Have been noticing some increase in balance & function since the Tachyon healer worked on me, so I'll keep hoping for a miracle cure! Liza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 Yeah, I've considered accupuncture also, but not finding anyone that will work in conjunction with the hospital or surgery itself. Accupuncture in the past didn't do much for me (then again, it may be they thought they were curing asthma when it turned out to be heart related), seem to get better results with accupressure for some reason. I'll keep looking, still have till at least January, and will also keep working on my overall fitness and health. Not being a regular user of antibiotics, I'm less likely to develop anything drug-resistant (I hope!) This doc encourages patients to be pro-active, get on their feet ASAP and will allow me to use some of my own herbs, etc post-surgery. He's also rooting for my last-ditch efforts to save the joint & rebuild the bone & if the final xrays show any actual regrowth, he would be the first to recommend giving it more time. Have been noticing some increase in balance & function since the Tachyon healer worked on me, so I'll keep hoping for a miracle cure! Liza Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.