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Re: seeing the vascular dr

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Hi Betty,

I'm so glad you had such a positive experience with the vascular

surgeon! I'm not sure it has to do with " being a specialst " as much

as the person 'inside the title'. Do you know what I mean? Being

open enough to consider every possibility, etc. Anyway, I'm sure

glad he's taking everything seriously and giving ideas that will

hopefully prevent some issues.

Also, I'm so glad you had a moving experience with the medium! I'm

so very glad! I would love to hear more about it - would you write

me at EDSLana@... and let me know some particulars? If you

remember, I'm the one who had a reading with . I'm happy

you got some confirmation! Thanks for sharing it. For me, I don't

expect anyone to accept all of it blindly - that would be ignorant

and leave yourself open to vulnerability - BUT, as you said, just to

have an open mind, and accept the POSSIBILITY that this can happen.

Take care of you and yours!

Love Lana

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Hi

The drug is doxycycline (part of the tetracycline family). I started taking

it a couple of days ago. I haven't had any side effects so far. I haven't

taken the Udos oil yet, I am not quite sure about that. We'll see how that

goes.

Thanks

Betty

seeing the vascular dr

>

>

> > Hi all,

> > I just saw the vascular surgeon today for a consultation. I have nothing

> wrong, but I am trying to proactive in my own health care and I took

> everyones suggestion and got myself an appointment. He is a very nice guy,

> he also happens to be the director of the vascular department. He knew

> something about VEDS, but not nearly enough. I handed him the Emergency

room

> CD for VEDS and he was very appreciative of that. We talked about what

tests

> to have routinely and now that I think of what he said ...he was bang on.

I

> have an abdominal CT booked for next week which he is changing to a full

> aortic as if it was just the ab CT he would only see a percentage of the

> aorta. Makes sense to me. I guess that is the difference between a

> specialist and the GP. It still blows me away that even he (the

specialist)

> says you don't look like an ED patient re: lack of stretchy skin etc.

> URGHHHHHHHH! Neither my late son or I really showed any outside physical

> characteristics of EDS. Nonetheless we still tested positive for VEDS. We

> have not heard about our other son yet.

> >

> > On another subject .....I have talked to a few of you about myself going

> to see a medium. (Skeptics and I know there are some of you out there,

keep

> an open mind). It was an extremely positive experience for my husband & I

> and we really felt connected to our son. I have to admit that both my

> husband & I still have some doubts, but some of the things she told

> us...Whew!!! How could she know???? For instance 2 days before we went

there

> I recieved a phone call from a teacher of my late sons saying he was

> thinking about us (on the 1st anniversary of Danny's death) and he wanted

> to tell us what he thought of Danny, how much he missed him etc. Well the

> medium said just that... you recieved aphone call from a male teacher of

> your sons. There is no way she could have known that. First of all I only

> told my son, husband & sister that lives 2000 miles away about the phone

> call and the medium doesn't even have our last name or home number, just

my

> cell phone number. She also described a few things the night of Danny's

> death etc. Anywway just wanted to share a few of those things.

> > Oh yeah .....one more thing about the vascular doc...he said I should

take

> Udos oil (I think that is how you spell it.), and he also wants to put me

on

> an antibiotic for all the time, I think it is something like a

tetracycline

> but it begins with D. It is supposed to help strengthen the aortic walls.

> Has anybody heard of either of these two things (the oil is supposed to be

> really good for the vascular system

> > Thanks as always for listening.

> > Betty

> >

> >

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Guest guest

Hi

The drug is doxycycline (part of the tetracycline family). I started taking

it a couple of days ago. I haven't had any side effects so far. I haven't

taken the Udos oil yet, I am not quite sure about that. We'll see how that

goes.

Thanks

Betty

seeing the vascular dr

>

>

> > Hi all,

> > I just saw the vascular surgeon today for a consultation. I have nothing

> wrong, but I am trying to proactive in my own health care and I took

> everyones suggestion and got myself an appointment. He is a very nice guy,

> he also happens to be the director of the vascular department. He knew

> something about VEDS, but not nearly enough. I handed him the Emergency

room

> CD for VEDS and he was very appreciative of that. We talked about what

tests

> to have routinely and now that I think of what he said ...he was bang on.

I

> have an abdominal CT booked for next week which he is changing to a full

> aortic as if it was just the ab CT he would only see a percentage of the

> aorta. Makes sense to me. I guess that is the difference between a

> specialist and the GP. It still blows me away that even he (the

specialist)

> says you don't look like an ED patient re: lack of stretchy skin etc.

> URGHHHHHHHH! Neither my late son or I really showed any outside physical

> characteristics of EDS. Nonetheless we still tested positive for VEDS. We

> have not heard about our other son yet.

> >

> > On another subject .....I have talked to a few of you about myself going

> to see a medium. (Skeptics and I know there are some of you out there,

keep

> an open mind). It was an extremely positive experience for my husband & I

> and we really felt connected to our son. I have to admit that both my

> husband & I still have some doubts, but some of the things she told

> us...Whew!!! How could she know???? For instance 2 days before we went

there

> I recieved a phone call from a teacher of my late sons saying he was

> thinking about us (on the 1st anniversary of Danny's death) and he wanted

> to tell us what he thought of Danny, how much he missed him etc. Well the

> medium said just that... you recieved aphone call from a male teacher of

> your sons. There is no way she could have known that. First of all I only

> told my son, husband & sister that lives 2000 miles away about the phone

> call and the medium doesn't even have our last name or home number, just

my

> cell phone number. She also described a few things the night of Danny's

> death etc. Anywway just wanted to share a few of those things.

> > Oh yeah .....one more thing about the vascular doc...he said I should

take

> Udos oil (I think that is how you spell it.), and he also wants to put me

on

> an antibiotic for all the time, I think it is something like a

tetracycline

> but it begins with D. It is supposed to help strengthen the aortic walls.

> Has anybody heard of either of these two things (the oil is supposed to be

> really good for the vascular system

> > Thanks as always for listening.

> > Betty

> >

> >

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