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Project for all

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1. I can't perform -- for acting, my body isn't reliable enough and I'm a

danger to other actors; for music, I simply can't manage the dexterity or

strength needed (sometimes I can't even hear clearly enough -- ARG)

2. I can't " play " -- even using the laser pointer to play with my cats can be

too much.

3. I can't travel -- staying in one position for longer than 15 minutes is

impossible anymore.

1. Therapy -- I would probably have never dealt with myself, much less

managed my anxiety issues...

2. I've become incredibly thankful for what I DO have -- , the cats,

my very few friends, and my mind (what's left of it)...

3. I'm much more aware -- of myself, of others -- and of how powerful one

person can be.

Thanks, Jill. I needed reminding of the good...

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Re: Project for all

Hi all,

Name three things you can't do because of EDS

1. I can't walk much

2. I can't be physically active in general

3. I have had to quit many interests/activities including being

active in the Red Cross

Name three things that have positively changed your life because of EDS

1. I have got some wonderful friends I would never be without and

have seen places I would

probably have never seen without the EDS!!!

2. I have learned many things, including respect for other people,

perspective and that seeing the

positive in different situations and focusing on what you can do

instead of what you can't,

really can change your life for the better!

3. I had to quit my old job, but went to college, and got a new one

which is more interesting,

challenging and rewarding.

Aase Marit :)

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Re: Project for all

Hi all,

Name three things you can't do because of EDS

1. I can't walk much

2. I can't be physically active in general

3. I have had to quit many interests/activities including being

active in the Red Cross

Name three things that have positively changed your life because of EDS

1. I have got some wonderful friends I would never be without and

have seen places I would

probably have never seen without the EDS!!!

2. I have learned many things, including respect for other people,

perspective and that seeing the

positive in different situations and focusing on what you can do

instead of what you can't,

really can change your life for the better!

3. I had to quit my old job, but went to college, and got a new one

which is more interesting,

challenging and rewarding.

Aase Marit :)

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> Name three things you can't do because of EDS

1. Share my life with my dad or grandmother- both deceased at a

young age.

2. I can't have more children - tubes tied in early 20s

3. Water ski or kneeboard

Name three things that have positively changed your life because of

EDS

1. I am more involved in my own and my families health care.

2. I live life today and do what I want now.

3. Have group of friends online that I can talk to.

kim

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  • 2 weeks later...
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> Name three things you can't do because of EDS

>

> 1. I can't use regular tooth floss

> 2. I can't dance as much or as well

> 3. I can't take my health for granted or rely on a doctor to know what to

do

>

> Name three things that have positively changed your life because of EDS

>

> 1. I met my wonderful husband

> 2. I learned self-confidence

> 3. I learned how to help others

-Barb

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