Re: 2 more appointments down---back is healed!

[Guest guest]

I am glad that things are on track for you Rhea, hang in there!!! I am

pleased for you.

Jill

[Guest guest]

I am glad that things are on track for you Rhea, hang in there!!! I am

pleased for you.

Jill

[Guest guest]

Hey Rhea, I am so thrilled to hear that things are starting to

progress fo ryou and that your cardiologist is being so thorough! I

know you're not looking ofrward to the tests, but as you said at

least this way they will find out what is happening and be able to

make more moves into helping you feel better. If it's any

consolation I have to have the full tilt table test done too

(supposed to be Sept 6th but will have to cancel as I'm in hosp that

week) so we can get nervous together hee-hee!!

I'm so thrilled ot hear that your back fracture is healed up!!

Yippee - virtual party time! You must be so releived to get out of

that darned brace, but I'm guessing you are also a little

apprehensive about being without it too. Please take care and enjoy

building up your stamina again. Did the surgeon have anything to say

on your pain and spasms by the way? Hope he was able to help you and

give some reassurances that things will improve.

Thanks for sharing yoru news Darl, you have cheered my day

immensely! Thinking of you and I'll email properly tomorrow.

Love and hugs....Jo

xx

[Guest guest]

Hey Rhea, I am so thrilled to hear that things are starting to

progress fo ryou and that your cardiologist is being so thorough! I

know you're not looking ofrward to the tests, but as you said at

least this way they will find out what is happening and be able to

make more moves into helping you feel better. If it's any

consolation I have to have the full tilt table test done too

(supposed to be Sept 6th but will have to cancel as I'm in hosp that

week) so we can get nervous together hee-hee!!

I'm so thrilled ot hear that your back fracture is healed up!!

Yippee - virtual party time! You must be so releived to get out of

that darned brace, but I'm guessing you are also a little

apprehensive about being without it too. Please take care and enjoy

building up your stamina again. Did the surgeon have anything to say

on your pain and spasms by the way? Hope he was able to help you and

give some reassurances that things will improve.

Thanks for sharing yoru news Darl, you have cheered my day

immensely! Thinking of you and I'll email properly tomorrow.

Love and hugs....Jo

xx

[Guest guest]

Hey Rhea, I am so thrilled to hear that things are starting to

progress fo ryou and that your cardiologist is being so thorough! I

know you're not looking ofrward to the tests, but as you said at

least this way they will find out what is happening and be able to

make more moves into helping you feel better. If it's any

consolation I have to have the full tilt table test done too

(supposed to be Sept 6th but will have to cancel as I'm in hosp that

week) so we can get nervous together hee-hee!!

I'm so thrilled ot hear that your back fracture is healed up!!

Yippee - virtual party time! You must be so releived to get out of

that darned brace, but I'm guessing you are also a little

apprehensive about being without it too. Please take care and enjoy

building up your stamina again. Did the surgeon have anything to say

on your pain and spasms by the way? Hope he was able to help you and

give some reassurances that things will improve.

Thanks for sharing yoru news Darl, you have cheered my day

immensely! Thinking of you and I'll email properly tomorrow.

Love and hugs....Jo

xx

[Guest guest]

YAY! Rhea,

You must be SO HAPPY to finally be able to start getting out of

your " turtle shell " ,he he he. it must be so awfully uncomfortable in

your summer to wear it (not so bad here as it is Winter). Take it

easy on the weaning process and don't overdo it (with your

osteoporosis) you don't want any kind of relapse or anything.

Look after yourself and stay well and happy.

Also so nice to hear they are going to such length about the tachy at

least this way you should get real answers SOON after the appointment

and hopefully be put on the correct drugs and get rid of the other

awful symptoms you have been suffering with.

Cyber Sis

Sharon xx

> Phew! We've had a wild week. On Weds we had to leave at 5am,

drive

> almost 7 hours straight to get to Hamilton where I saw the

> cardiologist for my appt. RE my constant tachycardia. He and his

> resident were both really good. I was happy with both of them.

They

> checked my blood pressure laying down and then sitting and it

dropped

> so I'm schduled for a really in depth tilt table study that will

take

> half a day to complete. I'm not much looking forward to being

> strapped to a tilt table hooked up to blood pressure and heart rate

> monitors, an EKG and an IV for 3 hours getting blood regularly

drawn

> and if I don't faint on my own in their time box they'll make me

> faint with IV meds as one of the tests is to see how my body

responds

> to a faint. But I am happy just the same that the test will be so

> thorough as I know they're doing a good job at getting to the

bottom

> of things. Basically they're trying to determine whether my tachy

is

> sinus tachycardia or postural orthostatic tachycardia, or a

> combonation of both. Once we know which then we'll dabble in more

> drugs (I'm still on my 2X daily metoprolol beta blocker). One good

> thing is that they are pretty darn sure my intense nausea and even

> vomiting and other unpleasant issues I've been putting up with are

> directly related to my tachy. It sure is nice to know WHY I feel

> like that, and even with the beta blocker I " ve had more days iwth

an

> appetite and even..gasp..hunger! :-D Because I require such a big

> time slot for my tilt table my date will probably be for Oct or

Nov.

> I'm suppose to see them again a few weeks after the test to talk

> results, but I'm looking into a telehealth conference or something

so

> I don't have to go through such an awful drive too many more times.

>

> My other news is that I saw my back surgeon today. Today's 12 week

x-

> rays showed that my fracture has healed! Yayyyyyyyy! Whoo

hoo!! :-

> D :-D :-D I'm allowed to start the process of ditching my brace :-

D

> I don't have to wear it at all in the house, eventually I can go

for

> a little safe venture outside without it, but if I go into crowds I

> still have to wear it to protect things a little while longer. He

> thinks after my next (and hopefully final) visit with him in 6

weeks

> time I won't have to wear it at all! :-D Yayyyyy! I am just

> thrilled :-) I went 3.5 hours without it before my back started

> hurting enough to put it back on again. Sure is a relief to loose

> the brace in this terribly hot, muggy, weather!

>

> So that's my news! Happy day, for sure ;-)

>

> -Rhea

[Guest guest]

YAY! Rhea,

You must be SO HAPPY to finally be able to start getting out of

your " turtle shell " ,he he he. it must be so awfully uncomfortable in

your summer to wear it (not so bad here as it is Winter). Take it

easy on the weaning process and don't overdo it (with your

osteoporosis) you don't want any kind of relapse or anything.

Look after yourself and stay well and happy.

Also so nice to hear they are going to such length about the tachy at

least this way you should get real answers SOON after the appointment

and hopefully be put on the correct drugs and get rid of the other

awful symptoms you have been suffering with.

Cyber Sis

Sharon xx

> Phew! We've had a wild week. On Weds we had to leave at 5am,

drive

> almost 7 hours straight to get to Hamilton where I saw the

> cardiologist for my appt. RE my constant tachycardia. He and his

> resident were both really good. I was happy with both of them.

They

> checked my blood pressure laying down and then sitting and it

dropped

> so I'm schduled for a really in depth tilt table study that will

take

> half a day to complete. I'm not much looking forward to being

> strapped to a tilt table hooked up to blood pressure and heart rate

> monitors, an EKG and an IV for 3 hours getting blood regularly

drawn

> and if I don't faint on my own in their time box they'll make me

> faint with IV meds as one of the tests is to see how my body

responds

> to a faint. But I am happy just the same that the test will be so

> thorough as I know they're doing a good job at getting to the

bottom

> of things. Basically they're trying to determine whether my tachy

is

> sinus tachycardia or postural orthostatic tachycardia, or a

> combonation of both. Once we know which then we'll dabble in more

> drugs (I'm still on my 2X daily metoprolol beta blocker). One good

> thing is that they are pretty darn sure my intense nausea and even

> vomiting and other unpleasant issues I've been putting up with are

> directly related to my tachy. It sure is nice to know WHY I feel

> like that, and even with the beta blocker I " ve had more days iwth

an

> appetite and even..gasp..hunger! :-D Because I require such a big

> time slot for my tilt table my date will probably be for Oct or

Nov.

> I'm suppose to see them again a few weeks after the test to talk

> results, but I'm looking into a telehealth conference or something

so

> I don't have to go through such an awful drive too many more times.

>

> My other news is that I saw my back surgeon today. Today's 12 week

x-

> rays showed that my fracture has healed! Yayyyyyyyy! Whoo

hoo!! :-

> D :-D :-D I'm allowed to start the process of ditching my brace :-

D

> I don't have to wear it at all in the house, eventually I can go

for

> a little safe venture outside without it, but if I go into crowds I

> still have to wear it to protect things a little while longer. He

> thinks after my next (and hopefully final) visit with him in 6

weeks

> time I won't have to wear it at all! :-D Yayyyyy! I am just

> thrilled :-) I went 3.5 hours without it before my back started

> hurting enough to put it back on again. Sure is a relief to loose

> the brace in this terribly hot, muggy, weather!

>

> So that's my news! Happy day, for sure ;-)

>

> -Rhea

[Guest guest]

OH my Rhea, the good news and the bad! Tilt table? Uck. sorry, but the results

can sure give allot of answers. So glad to hear about your brace! that has to be

a relief!. & hours to the Cardiologist???? Wow! That is a long way. Can you sit

in a car that long?

I'm so glad you fracture has healed.That is wonderful news! You've been through

allot. How's the fur kid? Is his leg better?

Cindylouwho

2 more appointments down---back is healed!

Phew! We've had a wild week. On Weds we had to leave at 5am, drive

almost 7 hours straight to get to Hamilton where I saw the

cardiologist for my appt. RE my constant tachycardia. He and his

resident were both really good. I was happy with both of them. They

checked my blood pressure laying down and then sitting and it dropped

so I'm schduled for a really in depth tilt table study that will take

half a day to complete. I'm not much looking forward to being

strapped to a tilt table hooked up to blood pressure and heart rate

monitors, an EKG and an IV for 3 hours getting blood regularly drawn

and if I don't faint on my own in their time box they'll make me

faint with IV meds as one of the tests is to see how my body responds

to a faint. But I am happy just the same that the test will be so

thorough as I know they're doing a good job at getting to the bottom

of things. Basically they're trying to determine whether my tachy is

sinus tachycardia or postural orthostatic tachycardia, or a

combonation of both. Once we know which then we'll dabble in more

drugs (I'm still on my 2X daily metoprolol beta blocker). One good

thing is that they are pretty darn sure my intense nausea and even

vomiting and other unpleasant issues I've been putting up with are

directly related to my tachy. It sure is nice to know WHY I feel

like that, and even with the beta blocker I " ve had more days iwth an

appetite and even..gasp..hunger! :-D Because I require such a big

time slot for my tilt table my date will probably be for Oct or Nov.

I'm suppose to see them again a few weeks after the test to talk

results, but I'm looking into a telehealth conference or something so

I don't have to go through such an awful drive too many more times.

My other news is that I saw my back surgeon today. Today's 12 week x-

rays showed that my fracture has healed! Yayyyyyyyy! Whoo hoo!! :-

D :-D :-D I'm allowed to start the process of ditching my brace :-D

I don't have to wear it at all in the house, eventually I can go for

a little safe venture outside without it, but if I go into crowds I

still have to wear it to protect things a little while longer. He

thinks after my next (and hopefully final) visit with him in 6 weeks

time I won't have to wear it at all! :-D Yayyyyy! I am just

thrilled :-) I went 3.5 hours without it before my back started

hurting enough to put it back on again. Sure is a relief to loose

the brace in this terribly hot, muggy, weather!

So that's my news! Happy day, for sure ;-)

-Rhea

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

[Guest guest]

OH my Rhea, the good news and the bad! Tilt table? Uck. sorry, but the results

can sure give allot of answers. So glad to hear about your brace! that has to be

a relief!. & hours to the Cardiologist???? Wow! That is a long way. Can you sit

in a car that long?

I'm so glad you fracture has healed.That is wonderful news! You've been through

allot. How's the fur kid? Is his leg better?

Cindylouwho

2 more appointments down---back is healed!

Phew! We've had a wild week. On Weds we had to leave at 5am, drive

almost 7 hours straight to get to Hamilton where I saw the

cardiologist for my appt. RE my constant tachycardia. He and his

resident were both really good. I was happy with both of them. They

checked my blood pressure laying down and then sitting and it dropped

so I'm schduled for a really in depth tilt table study that will take

half a day to complete. I'm not much looking forward to being

strapped to a tilt table hooked up to blood pressure and heart rate

monitors, an EKG and an IV for 3 hours getting blood regularly drawn

and if I don't faint on my own in their time box they'll make me

faint with IV meds as one of the tests is to see how my body responds

to a faint. But I am happy just the same that the test will be so

thorough as I know they're doing a good job at getting to the bottom

of things. Basically they're trying to determine whether my tachy is

sinus tachycardia or postural orthostatic tachycardia, or a

combonation of both. Once we know which then we'll dabble in more

drugs (I'm still on my 2X daily metoprolol beta blocker). One good

thing is that they are pretty darn sure my intense nausea and even

vomiting and other unpleasant issues I've been putting up with are

directly related to my tachy. It sure is nice to know WHY I feel

like that, and even with the beta blocker I " ve had more days iwth an

appetite and even..gasp..hunger! :-D Because I require such a big

time slot for my tilt table my date will probably be for Oct or Nov.

I'm suppose to see them again a few weeks after the test to talk

results, but I'm looking into a telehealth conference or something so

I don't have to go through such an awful drive too many more times.

My other news is that I saw my back surgeon today. Today's 12 week x-

rays showed that my fracture has healed! Yayyyyyyyy! Whoo hoo!! :-

D :-D :-D I'm allowed to start the process of ditching my brace :-D

I don't have to wear it at all in the house, eventually I can go for

a little safe venture outside without it, but if I go into crowds I

still have to wear it to protect things a little while longer. He

thinks after my next (and hopefully final) visit with him in 6 weeks

time I won't have to wear it at all! :-D Yayyyyy! I am just

thrilled :-) I went 3.5 hours without it before my back started

hurting enough to put it back on again. Sure is a relief to loose

the brace in this terribly hot, muggy, weather!

So that's my news! Happy day, for sure ;-)

-Rhea

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

[Guest guest]

OH my Rhea, the good news and the bad! Tilt table? Uck. sorry, but the results

can sure give allot of answers. So glad to hear about your brace! that has to be

a relief!. & hours to the Cardiologist???? Wow! That is a long way. Can you sit

in a car that long?

I'm so glad you fracture has healed.That is wonderful news! You've been through

allot. How's the fur kid? Is his leg better?

Cindylouwho

2 more appointments down---back is healed!

Phew! We've had a wild week. On Weds we had to leave at 5am, drive

almost 7 hours straight to get to Hamilton where I saw the

cardiologist for my appt. RE my constant tachycardia. He and his

resident were both really good. I was happy with both of them. They

checked my blood pressure laying down and then sitting and it dropped

so I'm schduled for a really in depth tilt table study that will take

half a day to complete. I'm not much looking forward to being

strapped to a tilt table hooked up to blood pressure and heart rate

monitors, an EKG and an IV for 3 hours getting blood regularly drawn

and if I don't faint on my own in their time box they'll make me

faint with IV meds as one of the tests is to see how my body responds

to a faint. But I am happy just the same that the test will be so

thorough as I know they're doing a good job at getting to the bottom

of things. Basically they're trying to determine whether my tachy is

sinus tachycardia or postural orthostatic tachycardia, or a

combonation of both. Once we know which then we'll dabble in more

drugs (I'm still on my 2X daily metoprolol beta blocker). One good

thing is that they are pretty darn sure my intense nausea and even

vomiting and other unpleasant issues I've been putting up with are

directly related to my tachy. It sure is nice to know WHY I feel

like that, and even with the beta blocker I " ve had more days iwth an

appetite and even..gasp..hunger! :-D Because I require such a big

time slot for my tilt table my date will probably be for Oct or Nov.

I'm suppose to see them again a few weeks after the test to talk

results, but I'm looking into a telehealth conference or something so

I don't have to go through such an awful drive too many more times.

My other news is that I saw my back surgeon today. Today's 12 week x-

rays showed that my fracture has healed! Yayyyyyyyy! Whoo hoo!! :-

D :-D :-D I'm allowed to start the process of ditching my brace :-D

I don't have to wear it at all in the house, eventually I can go for

a little safe venture outside without it, but if I go into crowds I

still have to wear it to protect things a little while longer. He

thinks after my next (and hopefully final) visit with him in 6 weeks

time I won't have to wear it at all! :-D Yayyyyy! I am just

thrilled :-) I went 3.5 hours without it before my back started

hurting enough to put it back on again. Sure is a relief to loose

the brace in this terribly hot, muggy, weather!

So that's my news! Happy day, for sure ;-)

-Rhea

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

[Guest guest]

Thanks gals! Yes, I am very pleased :-D

As for the pain and spasms, he thinks its just my body adjusting to

time out of the brace and starting to have to get strong again. Gosh

is my trunk ever weak!!! And a weak trunk is also making my

shoulders more prone to microtraumas. I've strained the

muscles/ligaments on the inside part of m y shoulder blade for the

THIRD TIME in 2 weeks. Here's hoping PT is more successful this time

round'.

Jo---ohhh no, not you too! Let me know how it all goes... it

certainly doesn't sound like a barrel of laughs huh. I'm

particularily dreading the IV as they have such a rough time getting

one in.

Sharon--Thanks hun. I hope you've been feeling better! How is your

shoulder and knee now?

Cindy--Thanks! Raffi is actually doing really well now!!! It looked

iffy for a week or two when his skin breakage was so bad they had to

take the splint off 4 weeks early! Thankfully, his skin has healed

really well except for one bad sore (hopefully just needs more time)

and he's using his leg a whole lot! It's such a beautiful site to

see after months of splints for him.

Jill--Thank you! I hope things turn around for you very soon. How

are you feeling today?

[Guest guest]

Rhea, I'm so very happy for you! Enjoy, but be careful, won't you?

Love Lana

I'm allowed to start the process of ditching my brace :-D

> I don't have to wear it at all in the house, eventually I can go

for

> a little safe venture outside without it, but if I go into crowds

I

> still have to wear it to protect things a little while longer. He

> thinks after my next (and hopefully final) visit with him in 6

weeks

> time I won't have to wear it at all! :-D Yayyyyy! I am just

> thrilled :-) I went 3.5 hours without it before my back started

> hurting enough to put it back on again. Sure is a relief to loose

> the brace in this terribly hot, muggy, weather!

>

> So that's my news! Happy day, for sure ;-)

>

> -Rhea

[Guest guest]

Thank you so much Lana! And yes, I will definitely be careful! As

we say in dog training, slow is fast.

Take care Lana!

((HUGS)))

-Rhea