Re: Re: I'm new and could really use some help.

[Guest guest]

Thank you for the information. Not sure what this Dexa Scan is. Can you let me

know? They are wanting to do a few tests, but have to see if the one will kill

me or not. I am allergic to iodine and that is what the test

entitles.....UGH....lol One of the others is a nerve test. Because I am having

less response with my right leg then my left. I have a question for anyone. Does

anyone get the, " Creepy Crawlers " going up their back??? It feels like

something is crawling up my back under the skin. It doesn't hurt, it's just very

annoying. It happens when I sit or stand for more then 10 minutes. Thanks again

Lana for the info.

HUGGLES,

Grace

Re: I'm new and could really use some help.

Hi Grace!

Welcome to the family! It's nice to meet you, but I wish it were

under better circumstances - I'm so sorry for the losses you've

endured as well as for your own pain.

I don't really have any answers for you, but regarding the hole in

your spine, I wondered if you had had a dexa scan that measures bone

density? Many of us have early osteopenia/osteoporosis so it may be

a good idea to get one done. Osteoarthritis is also an earlier onset

for EDSers.

I hope you receive the answers to the questions you posed and I wish

you and your family good wishes.

Love Lana