Guest guest Posted February 20, 2003 Report Share Posted February 20, 2003 I had a small lump (about the size of a large pea) in the same spot (just below the hairline but on the left side), around the same time I was sick with a sinus infection. It lasted about 4 or 5 weeks and then went away. M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2004 Report Share Posted June 15, 2004 It just went interstitial Betty, and it will settle down. No big issues for anyone, even with VEDS - just annoying. The warmth is normal as well, that's the contrast. Hang in there. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2004 Report Share Posted June 15, 2004 It just went interstitial Betty, and it will settle down. No big issues for anyone, even with VEDS - just annoying. The warmth is normal as well, that's the contrast. Hang in there. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2004 Report Share Posted June 19, 2004 Dear Betty, It sounds like the IV contrast infiltrated into your arm. Warm moist compress's help the most. The warmth you felt was the contrast going through your body before the needle came out of the vein. Very normal to feel the body warmth, but seems most of the contrast went into your skin than the blood stream. I don't know if the quality of the pictures will be accurate since not all the contrast got into your bloodstream where it's supposed to be. The study may need to be repeated. So sorry about your arm! Sincerely, S. questions > Hi all > I just had my aortic CT done today and for all you nurses out there ---- a couple of questions First they put the IV in and I really don't think she did a great job even though I told her it would be difficult due to the size (smallness of my veins). Also I did tell them about my VEDS which of course they didn't know anything about, then when they put the contrast in I started to get the warm all over feeling but then my arm started to hurt where the IV was and I turned to look at it and it started to puff out ...of course I yelled to them and then they did more turn in the CT and then came over to take the IV out. It started to leak inside and I guess my question is How dangerous if at all is that? also is there any concern re VEDS? They told me to put warm compresses on it today and that it would absorb into my body and it would probably take half a day to get bakc to normal. I know that my arm will be black & blue soon. It is still swollen & hard right now but it has only been a couple of hours. Any advice, suggestions would be welcome. > Thanks as always > Betty > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 In a message dated 8/26/2004 7:39:09 PM Pacific Standard Time, unicorn_girl@... writes: according to the papers that came along with the meds it said fever was a serious side effect, and possibly seizures, however the dr.'s have sworn up and down that there is no way that it could have caused this. However within 4 or 5 hrs after this happened and he slept for most of this time he was perfectly healthy again. I have not given him more after that one dose. ..Singulair indeed lists that as a side effect. I was on Singulair for awhile and noticed my average body temp was also higher than usual during that period, tho I didn't have severe reactions. However, I dropped it since it also seemed to do no good for my asthma. Instead, I started following the supplementation recommended in a book called REVERSING ASTHMA and have been off all but one emergency inhaler (smoke & perfume can still set me off) since May. For kids, the meds can be especially harsh, as many of them interfere also with calcium absorption. The doctor who wrote the book lists many of the meds used, the side effects and which classes of drugs do what and which are safer to choose. Liza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 In a message dated 8/27/2004 5:38:53 AM Pacific Standard Time, russjjj@... writes: As for Singulair, I no longer take it because it caused chest infections in me - but only after a few weeks, it seems unlikely this would happen after one dose. Chest infections are a known side effect. As for oppositional disorder, it's easy for EDS children to be overstressed physically, of course, and hard to say no as a child. Every EDS child has to learn to say no to adults in one way or another a whole lot more than other kids. My way to say no was withdrawal and passivity, but Oppositional defiance disorder would be another way. You know, I was always fighting infections and pneumonia when I was taking the dratted drugs.....since changing our family diets and adding the supplements and getting off the meds, I've actually sailed thru an entire spring pollen season without getting bronchitis! Reading those inserts amazes me...it always says the side effects are some of the things you're supposedly taking the meds for. What is involved in oppositional defiance? What are her symptoms/behaviors? The reason I ask is we had a young lady in our scout troops for years that whose behavior was a nightmare with parents, teachers, other kids, etc. Would fight/argue over every little detail, was never happy, always negative & grumpy. I saw her & her Mom last week at high school orientation and she was a completely changed child...bright, happy, bubbly...apologetic for the hassles she caused in scouts even. Her Mom had taken her to my chiropractor and then our same nutritionist, who had determined her diet was to blame, plus she had a chronic mineral/lysine/L-carnitine shortage. She took her off simple carbs, added complex, whole grain stuff, added several supplements and the same protein pills she gave my daughter for her migraines. Within a month she was lots better. My son was also treated with mineral complexes for his ADHD/Tourette's and got off his Adderall within a month at age 12 (we also removed several aluminum caps & silver fillings from his teeth too, which also helped). We'd also tried to follow the Feingold Diet years before for ADHD with some good results....so I wonder how many of our kids' emotional & behavioral issues could indeed be related to their food choices??!! Liza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 In a message dated 8/27/2004 5:38:53 AM Pacific Standard Time, russjjj@... writes: As for Singulair, I no longer take it because it caused chest infections in me - but only after a few weeks, it seems unlikely this would happen after one dose. Chest infections are a known side effect. As for oppositional disorder, it's easy for EDS children to be overstressed physically, of course, and hard to say no as a child. Every EDS child has to learn to say no to adults in one way or another a whole lot more than other kids. My way to say no was withdrawal and passivity, but Oppositional defiance disorder would be another way. You know, I was always fighting infections and pneumonia when I was taking the dratted drugs.....since changing our family diets and adding the supplements and getting off the meds, I've actually sailed thru an entire spring pollen season without getting bronchitis! Reading those inserts amazes me...it always says the side effects are some of the things you're supposedly taking the meds for. What is involved in oppositional defiance? What are her symptoms/behaviors? The reason I ask is we had a young lady in our scout troops for years that whose behavior was a nightmare with parents, teachers, other kids, etc. Would fight/argue over every little detail, was never happy, always negative & grumpy. I saw her & her Mom last week at high school orientation and she was a completely changed child...bright, happy, bubbly...apologetic for the hassles she caused in scouts even. Her Mom had taken her to my chiropractor and then our same nutritionist, who had determined her diet was to blame, plus she had a chronic mineral/lysine/L-carnitine shortage. She took her off simple carbs, added complex, whole grain stuff, added several supplements and the same protein pills she gave my daughter for her migraines. Within a month she was lots better. My son was also treated with mineral complexes for his ADHD/Tourette's and got off his Adderall within a month at age 12 (we also removed several aluminum caps & silver fillings from his teeth too, which also helped). We'd also tried to follow the Feingold Diet years before for ADHD with some good results....so I wonder how many of our kids' emotional & behavioral issues could indeed be related to their food choices??!! Liza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 I certainly have temp regulation problems - but they rank far down the list of bothersome symptoms for me. As for Singulair, I no longer take it because it caused chest infections in me - but only after a few weeks, it seems unlikely this would happen after one dose. Chest infections are a known side effect. As for oppositional disorder, it's easy for EDS children to be overstressed physically, of course, and hard to say no as a child. Every EDS child has to learn to say no to adults in one way or another a whole lot more than other kids. My way to say no was withdrawal and passivity, but Oppositional defiance disorder would be another way. Particularly if there was a time when the child's parents' simply didn't know the child had, or might have EDS, the child is going to learn some unusually strong way of saying no to adults, to avoid too much pain. It's important to know that this doesn't necessarily mean you've done anything really wrong or intended to push your child too much - the child won't necessarily be in a position to say no in a rational or careful way, or know why; it may be more of a fairly crude unconcious mechanism to reduce exercise that's gotten out of hand. After all, saying flat out " no " s to adults a lot isn't something children are designed to do well, just something EDS kids have to get across somehow, a lot. Perhaps - just perhaps - adding non-exertion tasks that the child isn't allowed to say no to, and conversly allowing them to say no more often to even mildly exerting tasks, will allow the child to see that what they really want isn't to say no to everything, but to regulate how much they have to move more closely, (since every move has consequences in subsequent pain.) That might be at least a step forward. Pretty speculative, but I offer the suggestion anyway. > Hi all, I have a few questions. > > My daughter Kaitlyn, was dx Oppositional defiance disorder in june. Does > anyone know if this could have anything to do w EDS? Also does anyone else > have temperature regulation problems? When we get a fever it skyrockets and > can easily produce febrile seizures. My son Lodin was given singulair > granules to begin treatring his athsma. He is 15 months. We gave him 1 dose > and he got hotter and hotter, and went from being healthy to seizing from a > 105-106 temp. he was seizing for almost 2 minutes and was rushed to the > hospital in an ambulance. according to the papers that came along with the > meds it said fever was a serious side effect, and possibly seizures, however > the dr.'s have sworn up and down that there is no way that it could have > caused this. However within 4 or 5 hrs after this happened and he slept for > most of this time he was perfectly healthy again. I have not given him more > after that one dose. > > > > Any ideas? I applied for my hubby and both kids when I sent my info to nih. > > > > Thanks in advance, > > Autumn > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 I certainly have temp regulation problems - but they rank far down the list of bothersome symptoms for me. As for Singulair, I no longer take it because it caused chest infections in me - but only after a few weeks, it seems unlikely this would happen after one dose. Chest infections are a known side effect. As for oppositional disorder, it's easy for EDS children to be overstressed physically, of course, and hard to say no as a child. Every EDS child has to learn to say no to adults in one way or another a whole lot more than other kids. My way to say no was withdrawal and passivity, but Oppositional defiance disorder would be another way. Particularly if there was a time when the child's parents' simply didn't know the child had, or might have EDS, the child is going to learn some unusually strong way of saying no to adults, to avoid too much pain. It's important to know that this doesn't necessarily mean you've done anything really wrong or intended to push your child too much - the child won't necessarily be in a position to say no in a rational or careful way, or know why; it may be more of a fairly crude unconcious mechanism to reduce exercise that's gotten out of hand. After all, saying flat out " no " s to adults a lot isn't something children are designed to do well, just something EDS kids have to get across somehow, a lot. Perhaps - just perhaps - adding non-exertion tasks that the child isn't allowed to say no to, and conversly allowing them to say no more often to even mildly exerting tasks, will allow the child to see that what they really want isn't to say no to everything, but to regulate how much they have to move more closely, (since every move has consequences in subsequent pain.) That might be at least a step forward. Pretty speculative, but I offer the suggestion anyway. > Hi all, I have a few questions. > > My daughter Kaitlyn, was dx Oppositional defiance disorder in june. Does > anyone know if this could have anything to do w EDS? Also does anyone else > have temperature regulation problems? When we get a fever it skyrockets and > can easily produce febrile seizures. My son Lodin was given singulair > granules to begin treatring his athsma. He is 15 months. We gave him 1 dose > and he got hotter and hotter, and went from being healthy to seizing from a > 105-106 temp. he was seizing for almost 2 minutes and was rushed to the > hospital in an ambulance. according to the papers that came along with the > meds it said fever was a serious side effect, and possibly seizures, however > the dr.'s have sworn up and down that there is no way that it could have > caused this. However within 4 or 5 hrs after this happened and he slept for > most of this time he was perfectly healthy again. I have not given him more > after that one dose. > > > > Any ideas? I applied for my hubby and both kids when I sent my info to nih. > > > > Thanks in advance, > > Autumn > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 >>>I wonder how many of our kids' emotional & behavioral issues could indeed be related to their food choices??!! <<<< I wonder how many of US ADULTS too???? Debbi AKA: jetskideb SoCal EDS'er Re: Re: questions In a message dated 8/27/2004 5:38:53 AM Pacific Standard Time, russjjj@... writes: As for Singulair, I no longer take it because it caused chest infections in me - but only after a few weeks, it seems unlikely this would happen after one dose. Chest infections are a known side effect. As for oppositional disorder, it's easy for EDS children to be overstressed physically, of course, and hard to say no as a child. Every EDS child has to learn to say no to adults in one way or another a whole lot more than other kids. My way to say no was withdrawal and passivity, but Oppositional defiance disorder would be another way. You know, I was always fighting infections and pneumonia when I was taking the dratted drugs.....since changing our family diets and adding the supplements and getting off the meds, I've actually sailed thru an entire spring pollen season without getting bronchitis! Reading those inserts amazes me...it always says the side effects are some of the things you're supposedly taking the meds for. What is involved in oppositional defiance? What are her symptoms/behaviors? The reason I ask is we had a young lady in our scout troops for years that whose behavior was a nightmare with parents, teachers, other kids, etc. Would fight/argue over every little detail, was never happy, always negative & grumpy. I saw her & her Mom last week at high school orientation and she was a completely changed child...bright, happy, bubbly...apologetic for the hassles she caused in scouts even. Her Mom had taken her to my chiropractor and then our same nutritionist, who had determined her diet was to blame, plus she had a chronic mineral/lysine/L-carnitine shortage. She took her off simple carbs, added complex, whole grain stuff, added several supplements and the same protein pills she gave my daughter for her migraines. Within a month she was lots better. My son was also treated with mineral complexes for his ADHD/Tourette's and got off his Adderall within a month at age 12 (we also removed several aluminum caps & silver fillings from his teeth too, which also helped). We'd also tried to follow the Feingold Diet years before for ADHD with some good results....so I wonder how many of our kids' emotional & behavioral issues could indeed be related to their food choices??!! Liza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 >>>I wonder how many of our kids' emotional & behavioral issues could indeed be related to their food choices??!! <<<< I wonder how many of US ADULTS too???? Debbi AKA: jetskideb SoCal EDS'er Re: Re: questions In a message dated 8/27/2004 5:38:53 AM Pacific Standard Time, russjjj@... writes: As for Singulair, I no longer take it because it caused chest infections in me - but only after a few weeks, it seems unlikely this would happen after one dose. Chest infections are a known side effect. As for oppositional disorder, it's easy for EDS children to be overstressed physically, of course, and hard to say no as a child. Every EDS child has to learn to say no to adults in one way or another a whole lot more than other kids. My way to say no was withdrawal and passivity, but Oppositional defiance disorder would be another way. You know, I was always fighting infections and pneumonia when I was taking the dratted drugs.....since changing our family diets and adding the supplements and getting off the meds, I've actually sailed thru an entire spring pollen season without getting bronchitis! Reading those inserts amazes me...it always says the side effects are some of the things you're supposedly taking the meds for. What is involved in oppositional defiance? What are her symptoms/behaviors? The reason I ask is we had a young lady in our scout troops for years that whose behavior was a nightmare with parents, teachers, other kids, etc. Would fight/argue over every little detail, was never happy, always negative & grumpy. I saw her & her Mom last week at high school orientation and she was a completely changed child...bright, happy, bubbly...apologetic for the hassles she caused in scouts even. Her Mom had taken her to my chiropractor and then our same nutritionist, who had determined her diet was to blame, plus she had a chronic mineral/lysine/L-carnitine shortage. She took her off simple carbs, added complex, whole grain stuff, added several supplements and the same protein pills she gave my daughter for her migraines. Within a month she was lots better. My son was also treated with mineral complexes for his ADHD/Tourette's and got off his Adderall within a month at age 12 (we also removed several aluminum caps & silver fillings from his teeth too, which also helped). We'd also tried to follow the Feingold Diet years before for ADHD with some good results....so I wonder how many of our kids' emotional & behavioral issues could indeed be related to their food choices??!! Liza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2004 Report Share Posted August 28, 2004 I am very careful what I feed kaitlyn just for this reason. I also keep benadryl on hand for when I f3eel she has been triggered by something. Autumn _____ From: Debbi Brown ~ SoCal EDSer Sent: Friday, August 27, 2004 1:58 PM To: ceda Subject: RE: Re: questions >>>I wonder how many of our kids' emotional & behavioral issues could indeed be related to their food choices??!! <<<< I wonder how many of US ADULTS too???? Debbi AKA: jetskideb SoCal EDS'er Re: Re: questions In a message dated 8/27/2004 5:38:53 AM Pacific Standard Time, russjjj@... writes: As for Singulair, I no longer take it because it caused chest infections in me - but only after a few weeks, it seems unlikely this would happen after one dose. Chest infections are a known side effect. As for oppositional disorder, it's easy for EDS children to be overstressed physically, of course, and hard to say no as a child. Every EDS child has to learn to say no to adults in one way or another a whole lot more than other kids. My way to say no was withdrawal and passivity, but Oppositional defiance disorder would be another way. You know, I was always fighting infections and pneumonia when I was taking the dratted drugs.....since changing our family diets and adding the supplements and getting off the meds, I've actually sailed thru an entire spring pollen season without getting bronchitis! Reading those inserts amazes me...it always says the side effects are some of the things you're supposedly taking the meds for. What is involved in oppositional defiance? What are her symptoms/behaviors? The reason I ask is we had a young lady in our scout troops for years that whose behavior was a nightmare with parents, teachers, other kids, etc. Would fight/argue over every little detail, was never happy, always negative & grumpy. I saw her & her Mom last week at high school orientation and she was a completely changed child...bright, happy, bubbly...apologetic for the hassles she caused in scouts even. Her Mom had taken her to my chiropractor and then our same nutritionist, who had determined her diet was to blame, plus she had a chronic mineral/lysine/L-carnitine shortage. She took her off simple carbs, added complex, whole grain stuff, added several supplements and the same protein pills she gave my daughter for her migraines. Within a month she was lots better. My son was also treated with mineral complexes for his ADHD/Tourette's and got off his Adderall within a month at age 12 (we also removed several aluminum caps & silver fillings from his teeth too, which also helped). We'd also tried to follow the Feingold Diet years before for ADHD with some good results....so I wonder how many of our kids' emotional & behavioral issues could indeed be related to their food choices??!! Liza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2004 Report Share Posted August 28, 2004 I am very careful what I feed kaitlyn just for this reason. I also keep benadryl on hand for when I f3eel she has been triggered by something. Autumn _____ From: Debbi Brown ~ SoCal EDSer Sent: Friday, August 27, 2004 1:58 PM To: ceda Subject: RE: Re: questions >>>I wonder how many of our kids' emotional & behavioral issues could indeed be related to their food choices??!! <<<< I wonder how many of US ADULTS too???? Debbi AKA: jetskideb SoCal EDS'er Re: Re: questions In a message dated 8/27/2004 5:38:53 AM Pacific Standard Time, russjjj@... writes: As for Singulair, I no longer take it because it caused chest infections in me - but only after a few weeks, it seems unlikely this would happen after one dose. Chest infections are a known side effect. As for oppositional disorder, it's easy for EDS children to be overstressed physically, of course, and hard to say no as a child. Every EDS child has to learn to say no to adults in one way or another a whole lot more than other kids. My way to say no was withdrawal and passivity, but Oppositional defiance disorder would be another way. You know, I was always fighting infections and pneumonia when I was taking the dratted drugs.....since changing our family diets and adding the supplements and getting off the meds, I've actually sailed thru an entire spring pollen season without getting bronchitis! Reading those inserts amazes me...it always says the side effects are some of the things you're supposedly taking the meds for. What is involved in oppositional defiance? What are her symptoms/behaviors? The reason I ask is we had a young lady in our scout troops for years that whose behavior was a nightmare with parents, teachers, other kids, etc. Would fight/argue over every little detail, was never happy, always negative & grumpy. I saw her & her Mom last week at high school orientation and she was a completely changed child...bright, happy, bubbly...apologetic for the hassles she caused in scouts even. Her Mom had taken her to my chiropractor and then our same nutritionist, who had determined her diet was to blame, plus she had a chronic mineral/lysine/L-carnitine shortage. She took her off simple carbs, added complex, whole grain stuff, added several supplements and the same protein pills she gave my daughter for her migraines. Within a month she was lots better. My son was also treated with mineral complexes for his ADHD/Tourette's and got off his Adderall within a month at age 12 (we also removed several aluminum caps & silver fillings from his teeth too, which also helped). We'd also tried to follow the Feingold Diet years before for ADHD with some good results....so I wonder how many of our kids' emotional & behavioral issues could indeed be related to their food choices??!! Liza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2004 Report Share Posted August 28, 2004 I am very careful what I feed kaitlyn just for this reason. I also keep benadryl on hand for when I f3eel she has been triggered by something. Autumn _____ From: Debbi Brown ~ SoCal EDSer Sent: Friday, August 27, 2004 1:58 PM To: ceda Subject: RE: Re: questions >>>I wonder how many of our kids' emotional & behavioral issues could indeed be related to their food choices??!! <<<< I wonder how many of US ADULTS too???? Debbi AKA: jetskideb SoCal EDS'er Re: Re: questions In a message dated 8/27/2004 5:38:53 AM Pacific Standard Time, russjjj@... writes: As for Singulair, I no longer take it because it caused chest infections in me - but only after a few weeks, it seems unlikely this would happen after one dose. Chest infections are a known side effect. As for oppositional disorder, it's easy for EDS children to be overstressed physically, of course, and hard to say no as a child. Every EDS child has to learn to say no to adults in one way or another a whole lot more than other kids. My way to say no was withdrawal and passivity, but Oppositional defiance disorder would be another way. You know, I was always fighting infections and pneumonia when I was taking the dratted drugs.....since changing our family diets and adding the supplements and getting off the meds, I've actually sailed thru an entire spring pollen season without getting bronchitis! Reading those inserts amazes me...it always says the side effects are some of the things you're supposedly taking the meds for. What is involved in oppositional defiance? What are her symptoms/behaviors? The reason I ask is we had a young lady in our scout troops for years that whose behavior was a nightmare with parents, teachers, other kids, etc. Would fight/argue over every little detail, was never happy, always negative & grumpy. I saw her & her Mom last week at high school orientation and she was a completely changed child...bright, happy, bubbly...apologetic for the hassles she caused in scouts even. Her Mom had taken her to my chiropractor and then our same nutritionist, who had determined her diet was to blame, plus she had a chronic mineral/lysine/L-carnitine shortage. She took her off simple carbs, added complex, whole grain stuff, added several supplements and the same protein pills she gave my daughter for her migraines. Within a month she was lots better. My son was also treated with mineral complexes for his ADHD/Tourette's and got off his Adderall within a month at age 12 (we also removed several aluminum caps & silver fillings from his teeth too, which also helped). We'd also tried to follow the Feingold Diet years before for ADHD with some good results....so I wonder how many of our kids' emotional & behavioral issues could indeed be related to their food choices??!! Liza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 T3 peaks within 2 hours after you take it, then it falls. Some folks can feel that fall, especially if they have not found their optimal dose. Or, it could be that bug you mention. There's a lot of bugs going around now. Janie ..> > I upped my armour today, from 1 grain in the a.m. to 1 1/4.. I felt pretty good up till about an hour ago and then came crashing down. I then took my afternoon dose, which I've upped from 30mg to 45mg just today... so today I've upped my dose 30mg all toll.. is it normal to take a crash like I've been doing this past week? I've also had a touch of some bug, so I can't tell which is the culprit. > > Thanks, > Robin > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 I had weak adrenals and every dose raise crahsed me for about a week. Then it would tend to get better the next week. Tish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 I had weak adrenals and every dose raise crahsed me for about a week. Then it would tend to get better the next week. Tish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 I had weak adrenals and every dose raise crahsed me for about a week. Then it would tend to get better the next week. Tish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 You don't have to have very weak adrenals for thyroid to give them a wammy. A dose increase does two things at once that make it very easy to kind of overwork the adrenals for a while. First, it increases the metabolic rate, which increases the amount of cortisol from the adrenals that is needed. A faster running body has more wear and tear and other things that increase the need for cortisol. Second, it increases the rate of breakdown and removal of cortisol from the liver. So, it's like a double wammy and sometimes can overtax even pretty good adrenals. Usually, if it's not too bad, then the adrenals recover in a couple of weeks - about as long as it takes to start an excercise program and do it long enough that it doesn't give sore muscles anymore. Tish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Thank you Tish, I wonder if I should purchase an Adrenal glandlular at the health food store or get one from my chiropractor? Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Thank you Tish, I wonder if I should purchase an Adrenal glandlular at the health food store or get one from my chiropractor? Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Thank you Tish, I wonder if I should purchase an Adrenal glandlular at the health food store or get one from my chiropractor? Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 With regard to Adrenals possibly being low.. I do take 25mg of dhea in the morning. would that be sufficent / or is it possible I need more of a boost? robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2009 Report Share Posted April 23, 2009 Good evening. I just recieved the letter from Jewish to my doctor and I cannot understand it at all. I don't know what the initials mean nor the numbers. It says for instance I have Pulmonary Hypertension and then there is a number with RAP after it. Have no idea. But my question is: Jewish wants me to get an open biopsy multilobe. What does that mean? Does that mean both lungs? And, I see the surgeon on Monday what questions should I ask him? Thank You, Joyce Rudy AZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 Joyce Multi-lobe means a sample from multi-lobes of the same lung. Typically today they take three samples. They take these from each lobe. This allows them to get a full picture of your condition. At one time, they just took a single sample. Unfortunately, that often left inconclusive results as your fibrosis may just be centered in one lobe at this time. Also, you can possibly have different indications from different lobes and even multiple conditions. So, multi-lobe has significantly increased the likelihood of getting solid answers from the biopsy. RAP is Right Arterial Pressure. This is the measure used to determine the level of pulmonary hypertension. Pulmonary hypertension is common in pulmonary fibrosis patients as a result of inadequate oxygen. This is the number one reason to use your supplemental oxygen faithfully. There are medications for pulmonary hypertension if it is deemed sufficient to require them. I have some indication of PH but my RAP as measured from my echocardiogram is not yet high enough to indicate a problem. Now, if the echocardiogram indicates a source of concern, the next step is generally a heart catheter. This sounds like a horrible procedure but isn't at all. Many here have had them and they generally are not bad at all. The heart catheter is the only way to get an accurate read of your RAP. You should ask the surgeon anything you want. Ask what to expect from the VATS. I even ask how many of that procedure my surgeon has performed and what complications he has encountered (I'm quite direct on those type things). Ask about the hospital facilities where you'll have it. Ask what to expect the day of the surgery, the day after, the next day. Ask what is important for you to do after to avoid complications (One definite is to use your incentive spirometer faithfully). The good thing to is that you got copies of your notes from National Jewish so you can ask questions of us like you did about the PH and so you can make sure your doctor and Jewish cover everything with you. You did exactly right. There was something there you didn't understand and you wanted to know what it means. > > Good evening. I just recieved the letter from Jewish to my doctor and I cannot understand it at all. I don't know what the initials mean nor the numbers. It says for instance I have Pulmonary Hypertension and then there is a number with RAP after it. Have no idea. > > But my question is: Jewish wants me to get an open biopsy multilobe. What does that mean? Does that mean both lungs? And, I see the surgeon on Monday what questions should I ask him? Thank You, Joyce Rudy AZ > Quote Link to comment Share on other sites More sharing options...
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