Sher

[Guest guest]

--Sher,

how are you?We are all anxious, you have never been away from the board like

this, pl. respond

Lots of hugs and prayers

Love

Geeta

- In Breathe-Support , Zion wrote:

>

> *Sher*, You need us tonight?

> Well, here I am...what ever I can do please let me know!!

> Hurting is no fun and feeling bad is no fun either!!!

> You are the one usually giving us the pep talks...so just remember that

> we all love you

> and want you to fell better.

>

>

> Z 65, fibriotic NSIP/05/PA

>

>

> And " mild " PH/10/07 and Reynaud's too!!

>

> No, NSIP was not self-inflicted...I never smoked!

>

> Potter, reader,carousel lover and MomMom to Darah and Sara

>

> " *I'm gonna be iron like a lion in Zion " Bob Marley*

>

> *Vinca Minor-periwinkle is my flower*

>

>

>

>

>

>

>

>

>

> Beth wrote:

> > Wow. Peggy you just read my mind. I was about to email her and see how

> > she's doing cause there hasn't been a post from her in awhile. I'm

> > sorry to hear she's struggling. I'll write to her right now.

> > Thanks for letting us know.

> >

> >

> > /* Beth*/

> >

> > */Moderator/*

> >

> > */Fibrotic NSIP 06/06 Dermatomyositis 11/08/*

> >

> >

> >

> > ------------------------------------------------------------------------

> > *From:* Peggy

> > *To:* Breathe-Support

> > *Sent:* Monday, April 13, 2009 5:45:04 PM

> > *Subject:*

> >

> > Hi Group, I just called Sher to check on her and she is just in a bad

> > way. She is in a lot of pain and depressed. So please help me pray for

> > her.

> >

> >

> > Love & Prayers, Peggy

> > Florida, IPF/UIP 2004

> >

> > " I believe that friends are quiet angels who lift us to our feet,

> > when our wings have trouble remembering how to fly. "

> >

> >

> >

> >

> >

> >

> >

> >

> >

>

[Guest guest]

> >> Wow. Peggy you just read my mind. I was about to email her and see

> >> how she's doing cause there hasn't been a post from her in awhile.

> >> I'm sorry to hear she's struggling. I'll write to her right now.

> >> Thanks for letting us know.

> >>

> >>

> >> /* Beth*/

> >>

> >> */Moderator/*

> >>

> >> */Fibrotic NSIP 06/06 Dermatomyositis 11/08/*

> >>

> >>

> >>

> >> ------------------------------------------------------------------------

> >> *From:* Peggy

> >> *To:* Breathe-Support

> >> *Sent:* Monday, April 13, 2009 5:45:04 PM

> >> *Subject:*

> >>

> >> Hi Group, I just called Sher to check on her and she is just in a bad

> >> way. She is in a lot of pain and depressed. So please help me pray

> >> for her.

> >>

> >>

> >> Love & Prayers, Peggy

> >> Florida, IPF/UIP 2004

> >>

> >> " I believe that friends are quiet angels who lift us to our feet,

> >> when our wings have trouble remembering how to fly. "

> >>

> >>

> >> <1.4057632596>

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >

> >

>

[Guest guest]

--- ,

Glad you are better,

you have been having a tough time

Hugs and prayers and alot of love

Geeta

In Breathe-Support , Zion wrote:

>

> *Peggy*, Thanks for asking..yes I'm better...my intestines are much

> calmer and I even

> got to nap today!!! The doctor thought that most likely my troubles

> were food related. I hadn't had these

> problems when I was tapering down from the higher Prednisone several

> weeks ago.and they seem to have passed.

>

>

> Z 65, fibriotic NSIP/05/PA

>

>

> And " mild " PH/10/07 and Reynaud's too!!

>

> No, NSIP was not self-inflicted…I never smoked!

>

> Potter, reader,carousel lover and MomMom to Darah and Sara

>

> " *I'm gonna be iron like a lion in Zion " Bob Marley*

>

> *Vinca Minor-periwinkle is my flower*

>

>

>

>

>

>

>

>

>

> Peggy wrote:

> > are you feeling better ? Did you get to ask your doc about the

> > possibility of pred. ?

> >

> > Love & Prayers, Peggy

> > Florida, IPF/UIP 2004

> >

> > " I believe that friends are quiet angels who lift us to our feet,

> > when our wings have trouble remembering how to fly. "

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > *Sher*, You need us tonight?

> > Well, here I am...what ever I can do please let me know!!

> > Hurting is no fun and feeling bad is no fun either!!!

> > You are the one usually giving us the pep talks...so just remember

> > that we all love you

> > and want you to fell better.

> >

> >

> > Z 65, fibriotic NSIP/05/PA

> >

> >

> > And " mild " PH/10/07 and Reynaud's too!!

> >

> > No, NSIP was not self-inflicted…I never smoked!

> >

> > Potter, reader,carousel lover and MomMom to Darah and Sara

> >

> > " *I'm gonna be iron like a lion in Zion " Bob Marley*

> >

> > *Vinca Minor-periwinkle is my flower*

> >

> >

> >

> >

> >

> >

> >

> > Beth wrote:

> >> Wow. Peggy you just read my mind. I was about to email her and see

> >> how she's doing cause there hasn't been a post from her in awhile.

> >> I'm sorry to hear she's struggling. I'll write to her right now.

> >> Thanks for letting us know.

> >>

> >>

> >> /* Beth*/

> >>

> >> */Moderator/*

> >>

> >> */Fibrotic NSIP 06/06 Dermatomyositis 11/08/*

> >>

> >>

> >>

> >> ------------------------------------------------------------------------

> >> *From:* Peggy

> >> *To:* Breathe-Support

> >> *Sent:* Monday, April 13, 2009 5:45:04 PM

> >> *Subject:*

> >>

> >> Hi Group, I just called Sher to check on her and she is just in a bad

> >> way. She is in a lot of pain and depressed. So please help me pray

> >> for her.

> >>

> >>

> >> Love & Prayers, Peggy

> >> Florida, IPF/UIP 2004

> >>

> >> " I believe that friends are quiet angels who lift us to our feet,

> >> when our wings have trouble remembering how to fly. "

> >>

> >>

> >> <1.4057632596>

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >

> >

>

[Guest guest]

I'm sorry to hear this Peggy. I love Sher so much!! Please tell her she is in my thoughts and prayers. CaroOSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi

To: Breathe-Support Sent: Monday, April 13, 2009 5:53:38 PMSubject: Sher

I'm sorry to hear this news Peggy...if you ring Sher agaoin please pass on that I'm holding Sher in my thoughts .....

GIO>> Hi Group, I just called Sher to check on her and she is just in a bad > way. She is in a lot of pain and depressed. So please help me pray > for her.> > > Love & Prayers, Peggy> Florida, IPF/UIP 2004> > "I believe that friends are quiet angels who lift us to our feet,> when our wings have trouble remembering how to fly."> > > >

[Guest guest]

BJ... do take care, as I know you will. I'm back on 5 prunes/day. I like 'em.

Get well soon!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: from Brett

Hi Sher,I have same reaction to statins. Can take NONE of them! Anyhow, have IPF so what do I care about a li'l ole heart attack!!!As for impactions, buy PRUNES!!! If you have to cut them up and take with water then get busy & eat the darn things. As a retired RN I know of what I speak and also of what you speak! Been there, done that on both ends!!!ann, IPF 1997, HP 2004

[Guest guest]

I hate prunes. I had an experience yesterday. I was in the bathroom when someone started pounding on a door that I don't use. I managed to get out of the bathroom and to the door that I do use. There were 4 or 5 Sheriff's deputies in my yard. They each had a car lined up in the road. They were looking for two escapees from somewhere. They asked if I knew who lived down the road. I didn't recognize the name but my neighbor has a son named and he lives down the road. I suspect the escapees were friends of his and they got he wrong house. I don't think that they were expecting an old lady with oxygen to come to the door. Things like that make me even more leery of living alone. I pray that I can sell this place soon. BJ

Re: from Brett

Hi Sher,I have same reaction to statins. Can take NONE of them! Anyhow, have IPF so what do I care about a li'l ole heart attack!!!As for impactions, buy PRUNES!!! If you have to cut them up and take with water then get busy & eat the darn things. As a retired RN I know of what I speak and also of what you speak! Been there, done that on both ends!!!ann, IPF 1997, HP 2004

[Guest guest]

I hate prunes. I had an experience yesterday. I was in the bathroom when someone started pounding on a door that I don't use. I managed to get out of the bathroom and to the door that I do use. There were 4 or 5 Sheriff's deputies in my yard. They each had a car lined up in the road. They were looking for two escapees from somewhere. They asked if I knew who lived down the road. I didn't recognize the name but my neighbor has a son named and he lives down the road. I suspect the escapees were friends of his and they got he wrong house. I don't think that they were expecting an old lady with oxygen to come to the door. Things like that make me even more leery of living alone. I pray that I can sell this place soon. BJ

Re: from Brett

Hi Sher,I have same reaction to statins. Can take NONE of them! Anyhow, have IPF so what do I care about a li'l ole heart attack!!!As for impactions, buy PRUNES!!! If you have to cut them up and take with water then get busy & eat the darn things. As a retired RN I know of what I speak and also of what you speak! Been there, done that on both ends!!!ann, IPF 1997, HP 2004

[Guest guest]

BJ... that experience would scare me too!

I hope your place sells soon. We'll double up our . There, that should do it!

Is it on the market yet?

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: from Brett

Hi Sher,I have same reaction to statins. Can take NONE of them! Anyhow, have IPF so what do I care about a li'l ole heart attack!!!As for impactions, buy PRUNES!!! If you have to cut them up and take with water then get busy & eat the darn things. As a retired RN I know of what I speak and also of what you speak! Been there, done that on both ends!!!ann, IPF 1997, HP 2004

[Guest guest]

Brett... hugs to you and your sweet family!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: sher

treatments are all done

I've gone through four different treatment options with no success and then tried 21-days

of this wild juice that sells for around 38 dollars a bottle in which I had to drink a bottle a day

along with a half a gallon of water (not all at once) so I have tried it all.

I feel pretty good and some days I don't , at this point Im just trying to live my life the best

I can. were trying to figure out social security disability benefits right now so I can stop working

I just don't have the energy left over for my family when I get done with work , and it seems to take the whole weekend to regain my strength just to start all over on monday .

but were getting by

Thanks Brett. How are treatments going? I pray for your family and God's Blessings on you.

Love & Prayers, Peggy

Florida, IPF/UIP 2004

"I believe that friends are quiet angels who lift us to our feet,

when our wings have trouble remembering how to fly."

<pastedGraphic.tiff>

yes but I don't have them on my computer yet

Oh Brett she is growing so fast, and so beautiful. I am so glad to hear from you.

God's continued Blessings. OH did you take Easter pictures of Sunshine?

Love & Prayers, Peggy

Florida, IPF/UIP 2004

"I believe that friends are quiet angels who lift us to our feet,

when our wings have trouble remembering how to fly."

<pastedGraphic.tiff>

Hello Mama

just take some advise from my daughter here and get some

rest and relax I'll be thinking of you ,

lot's of love.

Brett P.S. let me know if you can't see the picture

Brett Bowser 40 MI.

familial UIP/IPF 11/07

stage 4 lung cancer 7/08

<IMG_0066.jpg>

Brett Bowser

brett (AT) vectordist (DOT) com

Brett Bowser

brett (AT) vectordist (DOT) com

[Guest guest]

Hang in there Brett. Hugs from me, too. Your daughter is a little doll!! She is so cute!! Absolutely adorable!! CaroOSTEOARTHRITIS 2002, COPD 02/06, IPF 08/07, UIP 01/08, RHEUMATOID ARTHRITIS 03/08 SJOGREN SYNDROME 07/08 POLYMYOSITIS/DERMATOMYOSITIS 03/09 CANCER OF UNKNOWN ORIGIN 03/09Mississippi

To: Breathe-Support Sent: Thursday, April 16, 2009 3:29:49 PMSubject: Re: sher

Brett... hugs to you and your sweet family!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: sher

treatments are all done I've gone through four different treatment options with no success and then tried 21-days

of this wild juice that sells for around 38 dollars a bottle in which I had to drink a bottle a day

along with a half a gallon of water (not all at once) so I have tried it all.

I feel pretty good and some days I don't , at this point Im just trying to live my life the best

I can. were trying to figure out social security disability benefits right now so I can stop working

I just don't have the energy left over for my family when I get done with work , and it seems to take the whole weekend to regain my strength just to start all over on monday .

but were getting by

Thanks Brett. How are treatments going? I pray for your family and God's Blessings on you.

Love & Prayers, Peggy

Florida, IPF/UIP 2004

"I believe that friends are quiet angels who lift us to our feet,

when our wings have trouble remembering how to fly."

<pastedGraphic. tiff>

yes but I don't have them on my computer yet

Oh Brett she is growing so fast, and so beautiful. I am so glad to hear from you. God's continued Blessings. OH did you take Easter pictures of Sunshine?

Love & Prayers, Peggy

Florida, IPF/UIP 2004

"I believe that friends are quiet angels who lift us to our feet,

when our wings have trouble remembering how to fly."

<pastedGraphic. tiff>

Hello Mama just take some advise from my daughter here and get some

rest and relax I'll be thinking of you ,

lot's of love.

Brett P.S. let me know if you can't see the picture

Brett Bowser 40 MI.

familial UIP/IPF 11/07

stage 4 lung cancer 7/08

<IMG_0066.jpg>

Brett Bowser

brett (AT) vectordist (DOT) com

Brett Bowser

brett (AT) vectordist (DOT) com

[Guest guest]

Pink.... well now we know why in you we see such "good results"...... hehee

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: from Brett

Hi Sher,I have same reaction to statins. Can take NONE of them! Anyhow, have IPF so what do I care about a li'l ole heart attack!!!As for impactions, buy PRUNES!!! If you have to cut them up and take with water then get busy & eat the darn things. As a retired RN I know of what I speak and also of what you speak! Been there, done that on both ends!!!ann, IPF 1997, HP 2004

[Guest guest]

Pink.... well now we know why in you we see such "good results"...... hehee

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: from Brett

Hi Sher,I have same reaction to statins. Can take NONE of them! Anyhow, have IPF so what do I care about a li'l ole heart attack!!!As for impactions, buy PRUNES!!! If you have to cut them up and take with water then get busy & eat the darn things. As a retired RN I know of what I speak and also of what you speak! Been there, done that on both ends!!!ann, IPF 1997, HP 2004

[Guest guest]

Pink.... well now we know why in you we see such "good results"...... hehee

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: from Brett

Hi Sher,I have same reaction to statins. Can take NONE of them! Anyhow, have IPF so what do I care about a li'l ole heart attack!!!As for impactions, buy PRUNES!!! If you have to cut them up and take with water then get busy & eat the darn things. As a retired RN I know of what I speak and also of what you speak! Been there, done that on both ends!!!ann, IPF 1997, HP 2004

[Guest guest]

wow!!! what a scary story!!!

i have never tasted prunes

the brown prune juice always looked so yucky

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org---

Subject: Re: SherTo: Breathe-Support Date: Thursday, April 16, 2009, 1:41 PM

I hate prunes. I had an experience yesterday. I was in the bathroom when someone started pounding on a door that I don't use. I managed to get out of the bathroom and to the door that I do use. There were 4 or 5 Sheriff's deputies in my yard. They each had a car lined up in the road. They were looking for two escapees from somewhere. They asked if I knew who lived down the road. I didn't recognize the name but my neighbor has a son named and he lives down the road. I suspect the escapees were friends of his and they got he wrong house. I don't think that they were expecting an old lady with oxygen to come to the door. Things like that make me even more leery of living alone. I pray that I can sell this place soon. BJ

Re: from Brett

Hi Sher,I have same reaction to statins. Can take NONE of them! Anyhow, have IPF so what do I care about a li'l ole heart attack!!!As for impactions, buy PRUNES!!! If you have to cut them up and take with water then get busy & eat the darn things. As a retired RN I know of what I speak and also of what you speak! Been there, done that on both ends!!!ann, IPF 1997, HP 2004

[Guest guest]

wow!!! what a scary story!!!

i have never tasted prunes

the brown prune juice always looked so yucky

Pink Joyce IPF 3/06 Pennsylvania

Donate Life Listed 1/09 inactive 4/09

www.transplantfund.org---

Subject: Re: SherTo: Breathe-Support Date: Thursday, April 16, 2009, 1:41 PM

I hate prunes. I had an experience yesterday. I was in the bathroom when someone started pounding on a door that I don't use. I managed to get out of the bathroom and to the door that I do use. There were 4 or 5 Sheriff's deputies in my yard. They each had a car lined up in the road. They were looking for two escapees from somewhere. They asked if I knew who lived down the road. I didn't recognize the name but my neighbor has a son named and he lives down the road. I suspect the escapees were friends of his and they got he wrong house. I don't think that they were expecting an old lady with oxygen to come to the door. Things like that make me even more leery of living alone. I pray that I can sell this place soon. BJ

Re: from Brett

Hi Sher,I have same reaction to statins. Can take NONE of them! Anyhow, have IPF so what do I care about a li'l ole heart attack!!!As for impactions, buy PRUNES!!! If you have to cut them up and take with water then get busy & eat the darn things. As a retired RN I know of what I speak and also of what you speak! Been there, done that on both ends!!!ann, IPF 1997, HP 2004

[Guest guest]

Joyce

I'm with you...never tasted a prune and never planning to do so.

>

> From: Beverley Joy sparrow4@...

> Subject: Re: Sher

> To: Breathe-Support

> Date: Thursday, April 16, 2009, 1:41 PM

>

>

>

>

>

>

>

>

>

> I hate prunes. I had an experience yesterday. I was in the bathroom

when someone started pounding on a door that I don't use. I managed to

get out of the bathroom and to the door that I do use. There were 4 or 5

Sheriff's deputies in my yard. They each had a car lined up in the

road. They were looking for two escapees from somewhere. They asked if I

knew who lived down the road. I didn't recognize the name but my

neighbor has a son named and he lives down the road. I suspect

the escapees were friends of his and they got he wrong house. I don't

think that they were expecting an old lady with oxygen to come to the

door. Things like that make me even more leery of living alone. I pray

that I can sell this place soon. BJ

>

>

> Re: from Brett

>

>

>

> Hi Sher,

> I have same reaction to statins. Can take NONE of them! Anyhow, have

IPF so what do I care about a li'l ole heart attack!!!

> As for impactions, buy PRUNES!!! If you have to cut them up and take

with water then get busy & eat the darn things. As a retired RN I know

of what I speak and also of what you speak! Been there, done that on

both ends!!!

> ann, IPF 1997, HP 2004

>

[Guest guest]

Joyce

I'm with you...never tasted a prune and never planning to do so.

>

> From: Beverley Joy sparrow4@...

> Subject: Re: Sher

> To: Breathe-Support

> Date: Thursday, April 16, 2009, 1:41 PM

>

>

>

>

>

>

>

>

>

> I hate prunes. I had an experience yesterday. I was in the bathroom

when someone started pounding on a door that I don't use. I managed to

get out of the bathroom and to the door that I do use. There were 4 or 5

Sheriff's deputies in my yard. They each had a car lined up in the

road. They were looking for two escapees from somewhere. They asked if I

knew who lived down the road. I didn't recognize the name but my

neighbor has a son named and he lives down the road. I suspect

the escapees were friends of his and they got he wrong house. I don't

think that they were expecting an old lady with oxygen to come to the

door. Things like that make me even more leery of living alone. I pray

that I can sell this place soon. BJ

>

>

> Re: from Brett

>

>

>

> Hi Sher,

> I have same reaction to statins. Can take NONE of them! Anyhow, have

IPF so what do I care about a li'l ole heart attack!!!

> As for impactions, buy PRUNES!!! If you have to cut them up and take

with water then get busy & eat the darn things. As a retired RN I know

of what I speak and also of what you speak! Been there, done that on

both ends!!!

> ann, IPF 1997, HP 2004

>

[Guest guest]

Joyce

I'm with you...never tasted a prune and never planning to do so.

>

> From: Beverley Joy sparrow4@...

> Subject: Re: Sher

> To: Breathe-Support

> Date: Thursday, April 16, 2009, 1:41 PM

>

>

>

>

>

>

>

>

>

> I hate prunes. I had an experience yesterday. I was in the bathroom

when someone started pounding on a door that I don't use. I managed to

get out of the bathroom and to the door that I do use. There were 4 or 5

Sheriff's deputies in my yard. They each had a car lined up in the

road. They were looking for two escapees from somewhere. They asked if I

knew who lived down the road. I didn't recognize the name but my

neighbor has a son named and he lives down the road. I suspect

the escapees were friends of his and they got he wrong house. I don't

think that they were expecting an old lady with oxygen to come to the

door. Things like that make me even more leery of living alone. I pray

that I can sell this place soon. BJ

>

>

> Re: from Brett

>

>

>

> Hi Sher,

> I have same reaction to statins. Can take NONE of them! Anyhow, have

IPF so what do I care about a li'l ole heart attack!!!

> As for impactions, buy PRUNES!!! If you have to cut them up and take

with water then get busy & eat the darn things. As a retired RN I know

of what I speak and also of what you speak! Been there, done that on

both ends!!!

> ann, IPF 1997, HP 2004

>

[Guest guest]

It was scary and I haven't heard anything on the news. I don't know if they caught them or they could still be hiding out around here. Beverley Joy IPF/1-09 Idaho

Re: from Brett

Hi Sher,I have same reaction to statins. Can take NONE of them! Anyhow, have IPF so what do I care about a li'l ole heart attack!!!As for impactions, buy PRUNES!!! If you have to cut them up and take with water then get busy & eat the darn things. As a retired RN I know of what I speak and also of what you speak! Been there, done that on both ends!!!ann, IPF 1997, HP 2004

[Guest guest]

It was scary and I haven't heard anything on the news. I don't know if they caught them or they could still be hiding out around here. Beverley Joy IPF/1-09 Idaho

Re: from Brett

Hi Sher,I have same reaction to statins. Can take NONE of them! Anyhow, have IPF so what do I care about a li'l ole heart attack!!!As for impactions, buy PRUNES!!! If you have to cut them up and take with water then get busy & eat the darn things. As a retired RN I know of what I speak and also of what you speak! Been there, done that on both ends!!!ann, IPF 1997, HP 2004

[Guest guest]

Oh Ms Sher,

I forgot about prunes but they don't move me either! I need the senna. Seems

like my only alternative. LOL

Be blessed,

ette

Northern Delaware

SLE 99, TTP 99, Spine 98, PF noted 98, MS 04, AH/PBC 04, PF&PH 06, HS 09...???

Sent from my Verizon Wireless BlackBerry

[Guest guest]

May...thanks. Yeah, sometimes I'm on the rise and sometimes on the downslide and sometimes I meet myself in the middle!

I know you are anxious for this baby!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

sher

i'm happy to see you backon the board although i'msure you are not back to your best physically yet.mayuip 0606, glasgow

[Guest guest]

May...thanks. Yeah, sometimes I'm on the rise and sometimes on the downslide and sometimes I meet myself in the middle!

I know you are anxious for this baby!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

sher

i'm happy to see you backon the board although i'msure you are not back to your best physically yet.mayuip 0606, glasgow

[Guest guest]

Sher,

Some people report increased energy when on higher doses of prednisone. It can be a jittery, restless kind of energy and insomnia usually goes along with it. I never found it to be a productive kind of energy, it didn't allow me to accomplish anything extra. Even with that change that prednisone can make in some of us we're still limited by our diseased lungs. At least that's my experience. I know that others have been through different scenarios related to prednisone.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Saturday, April 18, 2009 12:22:50 PMSubject: Re: Hi Sher

BJ... I did miss the post...

I'm crossing my fingers for a good sale.

I guess it's not doable for your daughter to come to you and help you move. I'm sure you thought of that.

Gosh BJ you just can't do that move alone. I don't mean to be intrusive but can you hire help or can your kids hire help? Often high school boys are looking for work. Or now, grown men need the work!

Please don't do that by yourself! It's just too much for women of our 'delicate persuasion'. ;o)

I can't tell from your post... are you using O2 when you away from home? If not that sure could be dragging you down.

With my limited knowledge of prednisone (Hey, MB...give us a hand here) I think it gives you energy. At least at some level. Maybe the dosage has something to do with it...

I think you know when you are "progressing" BJ... being 'tired' after being out may not be progression. ..

Talk to your dr about your meds/O2 and what fears your sister has for you.

You could call the Police Dept and inquire about the incident.... let's hope that gives you confidence!

Do take care now!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi Sher

Sorry to hear you have been so sick. I did notice that you hadn't been posting and I mentioned it to my wife, but we have had my son, DIL, and 2 grandkids (2 & 5 yrs. old),

with us for the last 12 days and I haven't been on the computer other that 10 minutes, 3 different days. My butt is dragging trying to be involved in the activities and I do feel very tired all the time----only three more days and they will be going back to Olympia, Wa.

My last visit to the Dr. (April 6th) I did my PFTs and everything is exactly the same except for my DLCO---it has dropped from 55% down to 49%. In the last 10 months it has dropped from 68% to 49%, so needless to say it is starting to make me nervous.

What has been going on with you? You have usually been the "rock" of the group? Hope everything is OK and we can contribute it to the weather? I did hear you talking about going to the U of W medical hospital for an evaluation? I just talked to my Dr about checking at the U of W for a transplant evaluation, so I may go there also, but I don't know when.

Tell Rich hi and hopefully I will be making the trip up to Washington again and I can meet up with you guys again.

Hope you get better and back to posting!!!!! !!!!

G. UIP/ IPF 5/07

[Guest guest]

Thanks MB.... I do remember now that my neighbor from years ago was on prednisone but not with PF.... she worked around her place like 3 people and she was then, in her 80s.

Thanks for the info...

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi Sher

Sorry to hear you have been so sick. I did notice that you hadn't been posting and I mentioned it to my wife, but we have had my son, DIL, and 2 grandkids (2 & 5 yrs. old),

with us for the last 12 days and I haven't been on the computer other that 10 minutes, 3 different days. My butt is dragging trying to be involved in the activities and I do feel very tired all the time----only three more days and they will be going back to Olympia, Wa.

My last visit to the Dr. (April 6th) I did my PFTs and everything is exactly the same except for my DLCO---it has dropped from 55% down to 49%. In the last 10 months it has dropped from 68% to 49%, so needless to say it is starting to make me nervous.

What has been going on with you? You have usually been the "rock" of the group? Hope everything is OK and we can contribute it to the weather? I did hear you talking about going to the U of W medical hospital for an evaluation? I just talked to my Dr about checking at the U of W for a transplant evaluation, so I may go there also, but I don't know when.

Tell Rich hi and hopefully I will be making the trip up to Washington again and I can meet up with you guys again.

Hope you get better and back to posting!!!!! !!!!

G. UIP/ IPF 5/07