my allergies to the medications

January 31, 2003

Hi Again Virginia-

Yeap- Sounds like what happened to me. Only my heart stopped for a while.

Unfortunately, I had my husband with me when I went into see the doctor after

one episode of cardiac arrest. My husband listened to what the doctor was

saying- " the discussion had to be made now. Blah blah blah... " . Then HE tried

to talk me into surgery/RAI all the way home - 40 minutes of me yelling and

him yelling. He was afraid I'd " die on " him.

Surgery would have been my choice if drugs don't bring me into remission. The

thyroid grows back so I wouldn't loose my body's ability completely, yet

there are so few expert surgeons for this procedure in this area.

What I found was the first 3 weeks that I was on tapazole was all wrong. The

doctor started me out at 20mgs a day (10 X2). A week later he raised that to

a total of 30mgs a day, then again a week after that he raised it to 40mgs a

day. I actually think he would have kept raising it until I did have a

reaction.

2 months later- I still had the prescription after talking with some of those

here who have experience with the drugs- I started taking small doses at

first (2.5 mgs a day) and only raise the amounts by 2.5mgs. I'm up to 10mgs a

day. There are people who have taken the drugs for 15+ years. The benefits (I

see) in using the drugs is -possible remission; easy to adjust according to

need; cheaper.

Some questions for you -

Do you have your lab results? Are you mild / medium / very hyper?

What dose were you on?

How long on it and how much did they raise the amount?

Are you on propranolol? It helps to reduce the damage happening to your body.

Smart doctors dish it out first. If not you have to ask for it.

You'll find that anything hyperT you go through - someone here has gone

through already. You might want to read about some experiences with surgery,

RAI and using the drugs in previous posts and some of the links listed on

iThyroid.com

Good luck- and hope you''re sleeping better. (But I know it'll be a while

before sleep comes easy.)

Sherry

January 31, 2003

]hello again,

i was on the meds for ,

about a week each. mine was deffanitly a reaction. i dont know what i

am . i have had a bunch of test done but i dont know what they all

mean or the results of them. all i know is my tsh levels, but thats

not very helpful i was .34 a couple weeks ago, last week i was .21.

but i dont know what i am now. im kind of brain dead right now this

is short. i am on tenormin to help me. but thats about it.

bye

virginia

February 1, 2003

Vanity vs. misery...that seems to be the choice you are potentially making,

Today's SF Chron has an article on using Prussian blue as an Rx against

'dirty bomb' radiation 'cause it binds with the radioactive stuff in one's

digestive system and moves it out--here's a pertinent quote to think about:

" Currently, there is only one commonly available medication for protection

against radiation, a drug called potassium iodide that people who live near

nuclear reactors often keep on hand in case of an attack or accident--to

prevent thyroid cancer by shielding the thyroid gland from exposure to

radioactive iodine. "

Think about it!

Terry

Hi Terry-

I know I'm vane. I just know that. The doctor told me about the risk of

surgery - sciatic nerve/calcium imbalance. But all I heard was scarring. He

didn't say it would be small but he did say it would be painful. But all I

heard was I would be on medications after surgery anyway. . so why would I do

the surgery if then I would be hypoT and take meds, then be " normal for a

while, " then be hyperT again. Seemed pointless. And a scar to mark for going

full circle.

Sherry

PS. I'm thinking about it- but I thought the discussion was about surgery

verse meds.

February 1, 2003