Re: Pregnant with twins/a

[Guest guest]

a,

I know that a number of people from Texas travel to St Louis, Missouri to see Dr

Dobbs. He practiced in Iowa with Dr Ponseti for many years before going to MO.

From all I hear, he is an exceedingly experienced and well respected doctor.

Another reason to take your son to him... He works out of a Shriner's hospital

which means--among other things--that care is provided absolutely free of

charge. This includes the shoes, the bars, everything.(Our son Jonah is treated

at the Shriner's in Sacramento, CA and we have been astounded by their

generosity)

I have heard of a few families in TX who have used Angel Flights to fly to MO

for free. If one of them sees this, perhaps they could pipe up and let you know

how that works.

Please let us know if there are other things we can help you with. Only you and

your husband can make the medical decisions for your son, but we're here to

support you and help you in the decision-making process.

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, bilteral clubfoot, FAB 14/7)

kitaki m_kitaki@...> wrote:

You are difinitely in a difficult sittuation. I was frantic when I knew in my

heart that Iowa was the only logical place to take Kai. We had to borrow money

from my dad because Angel Flights would not go as far as we needed (Seattle to

Iowa) and had to rely heavily on family to help with the other kids, but we did

it.

Honestly, if you are dealing with unusual cavus, there are only a handful of

doctors that are suggested. There may be one closer to you than Iowa.

(searching for Dr P's e-mail that has the info .... )

Okay, here is the confirmed US list:

Dr Ponseti, Iowa City, Iowa

Dr Mosca, Seattle, Washington

Dr Colburn, California (dont remember the city)

Dr Herzenberg, (help here, I dont remember!)

Dr Dobbs (again, dont remember!)

There may be more than that, but that is the confirmed list I have from Dr

Ponseti as of July for doctors that are able to correct a foot that is atypical

in any way or that has responded badly to previous casting. These are also the

doctors that have proven track records with " older " children.

Angel

Re: Re: Pregnant with twins

ok here i go spilling my guts. i know that logan's dr is not ponseti certified

but i am having a hard enough time arranging going to Houston every Monday.

Logan is in soft cast. i work for a bank that has less than 50 employees and

the FMLA does not apply to them.......yea you heard me. i am out of PTO (sick)

time. They have already taken me off of salary and put me on the clock. Dh is

in construction so the rain has put a damper on things. He has just left

Tuesday to go work out of state. How far is Iowa from Central Texas. I want

the best for Logan but WHAT DO I DO?

the cavas is the top part of his foot. kinda got a hump on them. oh yea and i

have the insurance with my job. about $400.00 withdrawn out of my check a

month.

[Guest guest]

Thanks ya'll. Logan is suppose to have his tetomy in January so i need to do

something quick. I have some major things to think about.

a

Logan 07/12/04 bicf serial casting

Naomi powellbugs@...> wrote:

a,

I know that a number of people from Texas travel to St Louis, Missouri to see Dr

Dobbs. He practiced in Iowa with Dr Ponseti for many years before going to MO.

From all I hear, he is an exceedingly experienced and well respected doctor.

Another reason to take your son to him... He works out of a Shriner's hospital

which means--among other things--that care is provided absolutely free of

charge. This includes the shoes, the bars, everything.(Our son Jonah is treated

at the Shriner's in Sacramento, CA and we have been astounded by their

generosity)

I have heard of a few families in TX who have used Angel Flights to fly to MO

for free. If one of them sees this, perhaps they could pipe up and let you know

how that works.

Please let us know if there are other things we can help you with. Only you and

your husband can make the medical decisions for your son, but we're here to

support you and help you in the decision-making process.

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, bilteral clubfoot, FAB 14/7)

kitaki m_kitaki@...> wrote:

You are difinitely in a difficult sittuation. I was frantic when I knew in my

heart that Iowa was the only logical place to take Kai. We had to borrow money

from my dad because Angel Flights would not go as far as we needed (Seattle to

Iowa) and had to rely heavily on family to help with the other kids, but we did

it.

Honestly, if you are dealing with unusual cavus, there are only a handful of

doctors that are suggested. There may be one closer to you than Iowa.

(searching for Dr P's e-mail that has the info .... )

Okay, here is the confirmed US list:

Dr Ponseti, Iowa City, Iowa

Dr Mosca, Seattle, Washington

Dr Colburn, California (dont remember the city)

Dr Herzenberg, (help here, I dont remember!)

Dr Dobbs (again, dont remember!)

There may be more than that, but that is the confirmed list I have from Dr

Ponseti as of July for doctors that are able to correct a foot that is atypical

in any way or that has responded badly to previous casting. These are also the

doctors that have proven track records with " older " children.

Angel

Re: Re: Pregnant with twins

ok here i go spilling my guts. i know that logan's dr is not ponseti certified

but i am having a hard enough time arranging going to Houston every Monday.

Logan is in soft cast. i work for a bank that has less than 50 employees and

the FMLA does not apply to them.......yea you heard me. i am out of PTO (sick)

time. They have already taken me off of salary and put me on the clock. Dh is

in construction so the rain has put a damper on things. He has just left

Tuesday to go work out of state. How far is Iowa from Central Texas. I want

the best for Logan but WHAT DO I DO?

the cavas is the top part of his foot. kinda got a hump on them. oh yea and i

have the insurance with my job. about $400.00 withdrawn out of my check a

month.

[Guest guest]

I'm sorry, who is & White? Is that your doctor? Or your

insurance? I don't think they can just tell you " no " on referrals.

If the treatment isn't working, you are entitled by law to a 2nd

opinion (I think, hehe, at least it sounds good!) A referral is just

to ensure you're not going to doctors unnecessarily, to have

treatment for something your primary doc can handle. Obviously,

these docs can't " handle " Logan's treatment. Maybe you need to get

tough with them! Be strong...grrrr :-}

, mommy of:

Guinevere, on, Ava 8/4/04 right CF DBB 23/7

> You are difinitely in a difficult sittuation. I was frantic when

I knew in my heart that Iowa was the only logical place to take

Kai. We had to borrow money from my dad because Angel Flights would

not go as far as we needed (Seattle to Iowa) and had to rely heavily

on family to help with the other kids, but we did it.

>

> Honestly, if you are dealing with unusual cavus, there are only a

handful of doctors that are suggested. There may be one closer to

you than Iowa. (searching for Dr P's e-mail that has the info .... )

>

> Okay, here is the confirmed US list:

>

> Dr Ponseti, Iowa City, Iowa

> Dr Mosca, Seattle, Washington

> Dr Colburn, California (dont remember the city)

> Dr Herzenberg, (help here, I dont remember!)

> Dr Dobbs (again, dont remember!)

>

> There may be more than that, but that is the confirmed list I have

from Dr Ponseti as of July for doctors that are able to correct a

foot that is atypical in any way or that has responded badly to

previous casting. These are also the doctors that have proven track

records with " older " children.

>

> Angel

>

> Re: Re: Pregnant with twins

>

>

>

> ok here i go spilling my guts. i know that logan's dr is not

ponseti certified but i am having a hard enough time arranging going

to Houston every Monday. Logan is in soft cast. i work for a bank

that has less than 50 employees and the FMLA does not apply to

them.......yea you heard me. i am out of PTO (sick) time. They

have already taken me off of salary and put me on the clock. Dh is

in construction so the rain has put a damper on things. He has just

left Tuesday to go work out of state. How far is Iowa from Central

Texas. I want the best for Logan but WHAT DO I DO?

> the cavas is the top part of his foot. kinda got a hump on

them. oh yea and i have the insurance with my job. about $400.00

withdrawn out of my check a month.

>

>

>

>

[Guest guest]

Sorry. It is and White Clinic and insurance. And yep this dr is our

Second Opinion> i think i really messed up this time. oh i am gonna be

strong. i gave it all to God and it is his problem with Logan's funky feet from

now on.

paula

logan 07/12/04 bicf serial casting

redskline123@...> wrote:

I'm sorry, who is & White? Is that your doctor? Or your

insurance? I don't think they can just tell you " no " on referrals.

If the treatment isn't working, you are entitled by law to a 2nd

opinion (I think, hehe, at least it sounds good!) A referral is just

to ensure you're not going to doctors unnecessarily, to have

treatment for something your primary doc can handle. Obviously,

these docs can't " handle " Logan's treatment. Maybe you need to get

tough with them! Be strong...grrrr :-}

, mommy of:

Guinevere, on, Ava 8/4/04 right CF DBB 23/7

> You are difinitely in a difficult sittuation. I was frantic when

I knew in my heart that Iowa was the only logical place to take

Kai. We had to borrow money from my dad because Angel Flights would

not go as far as we needed (Seattle to Iowa) and had to rely heavily

on family to help with the other kids, but we did it.

>

> Honestly, if you are dealing with unusual cavus, there are only a

handful of doctors that are suggested. There may be one closer to

you than Iowa. (searching for Dr P's e-mail that has the info .... )

>

> Okay, here is the confirmed US list:

>

> Dr Ponseti, Iowa City, Iowa

> Dr Mosca, Seattle, Washington

> Dr Colburn, California (dont remember the city)

> Dr Herzenberg, (help here, I dont remember!)

> Dr Dobbs (again, dont remember!)

>

> There may be more than that, but that is the confirmed list I have

from Dr Ponseti as of July for doctors that are able to correct a

foot that is atypical in any way or that has responded badly to

previous casting. These are also the doctors that have proven track

records with " older " children.

>

> Angel

>

> Re: Re: Pregnant with twins

>

>

>

> ok here i go spilling my guts. i know that logan's dr is not

ponseti certified but i am having a hard enough time arranging going

to Houston every Monday. Logan is in soft cast. i work for a bank

that has less than 50 employees and the FMLA does not apply to

them.......yea you heard me. i am out of PTO (sick) time. They

have already taken me off of salary and put me on the clock. Dh is

in construction so the rain has put a damper on things. He has just

left Tuesday to go work out of state. How far is Iowa from Central

Texas. I want the best for Logan but WHAT DO I DO?

> the cavas is the top part of his foot. kinda got a hump on

them. oh yea and i have the insurance with my job. about $400.00

withdrawn out of my check a month.

>

>

>

>