Re: mito cocktail, Dr. Schoffner's list of about 15 ???

[Guest guest]

Steve

I was disagnosed by Dr. Shoffner and checked my report - no " c " . I'm

thinking you might have run across another doctor and group of articles.

This is always a help to us.

There is a list of the different tiers of supplements in the " mito cocktail "

on the web site. It is not specifically Dr. Shoffners.

laurie

>

> Reply-To:

> Date: Thu, 14 Oct 2004 01:46:37 -0400

> To: >

> Subject: mito cocktail, Dr. Schoffner's list of about 15 ???

>

>

> Hi RH and others

>

> Regarding this " " mito cocktail " of about 15 on Dr. Shoffner's list, I found

> this wonderful review article:

>

> Mitochondrial Medicine - Molecular Pathology of Defective Oxidative

> Phosphorylation

> by Egil Fosslien

> Department of Pathology, College of Medicine, University of Illinois at

> Chicago, Chicago, Illinois

> at http://www.annclinlabsci.org/cgi/content/full/31/1/25 .

>

> Two questions:

>

> 1) The " therapy " suggestions in the above article lists Melatonin. I've

> taken same (3 mg.) at night to help me sleep (I have foot pains that keep me

> awake whenever I lie down, and I also have VERY delayed sleep onset, i.e.

> " night owl " ) and it's worked wonders. Within an hour I'm REALLY ready to

> sleep. I've recently discontinued it, as part of a series of supplement

> self-experimentations. But now I'm intrigued. Anybody use this for mito, or

> have any other comments?

>

> 2) I found the above article searching Yahoo for " schoffner mitochondrial "

> (note the " c " in the name, which appears correct) but never did find this

> list of Dr. Schoffner's. I thik I can guess SOME entries on the list.

> Nonetheless, can anybody point me to this particular list?

>

> Peace,

> Steve D.

> [54-year-old male, late-onset mito]

>

>> Date: Mon, 11 Oct 2004 19:26:28 -0000

>>

>> Subject: Re: 2nd muscle bx: to be read at Columbia-Presbyterian, NYC

>>

>> [...]

>> I was told that whether or not I have MELAS exactly, I would be

>> treated the same way, based on my symptoms and what the lab tests

>> showed. The basic thought is:

>> 1) Check out systems with problems (for me, eyes, muscles,

>> digestive).

>> 2) Get a baseline for systems without problems yet (for me, heart,

>> ears)

>> 3) Treat by going down the list of the " mito cocktail " . Starts with

>> CoQ10, and there are about 15 on Dr. Shoffner's list.

>> [...]

>>

>> Take care,

>> RH

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail is

> entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with their

> physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

[Guest guest]

I'll reiterate based on Alice's email, that this was my personal

experience and with a specific doctor. YMMV.

I think psychologically I am at peace with my current condition and

prognosis, what little there is of that , so that may be why my

opinion on my diagnosis is such.

I know before I got a muscle biopsy, I was unprepared for what detail

they gave me, but now I am waiting to hear if they find a genetic

defect.

I remember a ways back on this list, most people were " suspected "

and " undiagnosed " , but I think the number of people with confirmed

mito has increased, in my opinion increasing the value of the list.

My answers to your questions:

1) I haven't heard of Melatonin being on the list. Since I tend to

be tired more than have insomnia, I would personally stay away from

it. I have had bouts with insomnia.

2) The dr. I saw was Shoffner in Atlanta, FYI. I wouldn't feel

comfortable posting the list (and it would take some time), but I

know many people (including myself) have noted here that they are

taking various suppplements, on and off the list, with various

results. Perhaps your doctor can get a mito doctor to do a

consultation, and take their recommendations for treatment?

Take care,

RH

>

> Hi RH and others

>

> Regarding this " " mito cocktail " of about 15 on Dr. Shoffner's list,

I found

> this wonderful review article:

>

> Mitochondrial Medicine - Molecular Pathology of Defective Oxidative

> Phosphorylation

> by Egil Fosslien

> Department of Pathology, College of Medicine, University of

Illinois at

> Chicago, Chicago, Illinois

> at http://www.annclinlabsci.org/cgi/content/full/31/1/25 .

>

> Two questions:

>

> 1) The " therapy " suggestions in the above article lists Melatonin.

I've

> taken same (3 mg.) at night to help me sleep (I have foot pains

that keep me

> awake whenever I lie down, and I also have VERY delayed sleep

onset, i.e.

> " night owl " ) and it's worked wonders. Within an hour I'm REALLY

ready to

> sleep. I've recently discontinued it, as part of a series of

supplement

> self-experimentations. But now I'm intrigued. Anybody use this for

mito, or

> have any other comments?

>

> 2) I found the above article searching Yahoo for " schoffner

mitochondrial "

> (note the " c " in the name, which appears correct) but never did

find this

> list of Dr. Schoffner's. I thik I can guess SOME entries on the

list.

> Nonetheless, can anybody point me to this particular list?

>

> Peace,

> Steve D.

> [54-year-old male, late-onset mito]

>

> > Date: Mon, 11 Oct 2004 19:26:28 -0000

> > From: " ohgminion "

> > Subject: Re: 2nd muscle bx: to be read at Columbia-Presbyterian,

NYC

> >

> > [...]

> > I was told that whether or not I have MELAS exactly, I would be

> > treated the same way, based on my symptoms and what the lab tests

> > showed. The basic thought is:

> > 1) Check out systems with problems (for me, eyes, muscles,

> > digestive).

> > 2) Get a baseline for systems without problems yet (for me,

heart,

> > ears)

> > 3) Treat by going down the list of the " mito cocktail " . Starts

with

> > CoQ10, and there are about 15 on Dr. Shoffner's list.

> > [...]

> >

> > Take care,

> > RH