Re: Listen to Your Medical Team

[Guest guest]

Hi, Alice

That is certainly a very very good reminder. Personally, I find the

information here very helpful, so that I can ask more intelligent

questions, understand the docs better, have better use of the time in

the docs office, and make better choices, IF and WHEN the docs give me

a choice. Of course, finding the right doctor, as you mentioned, is on

the very top of this list. In the case of taking thyroxin for thlyroid

nodules, that endo clearly left it up to me to decide. He said " You

could try a course of thyroxin.... ..........if you want to " and did

not give me a recommendation either way. That has happened before to

me. So, yes, we need to be careful, but the information here is

wonderful, imo.

Regards

Sunny

> It's important for all of us to remember that internet searching

> brings up good information and education but we also need to remember

> that our doctors are our professional advisors.  We all need to

> carefully weigh what we find on the internet and if we feel the need

> to share it with our medical team because we feel it applies to us, we

> should do so but keep in mind that many doctors resent patients who

> supply internet information and many tell the patients to stop reading

> from the internet.  I guess what I'm trying to say is to tread

> carefully and consider the experience of others but please keep in

> mind that this is a support group and we do not recommend following

> medical advice given here but instead recommend seeking doctors who

> are qualified to treat your symptoms.

>

> Alice

>

>

>

[Guest guest]

Hi, Alice

That is certainly a very very good reminder. Personally, I find the

information here very helpful, so that I can ask more intelligent

questions, understand the docs better, have better use of the time in

the docs office, and make better choices, IF and WHEN the docs give me

a choice. Of course, finding the right doctor, as you mentioned, is on

the very top of this list. In the case of taking thyroxin for thlyroid

nodules, that endo clearly left it up to me to decide. He said " You

could try a course of thyroxin.... ..........if you want to " and did

not give me a recommendation either way. That has happened before to

me. So, yes, we need to be careful, but the information here is

wonderful, imo.

Regards

Sunny

> It's important for all of us to remember that internet searching

> brings up good information and education but we also need to remember

> that our doctors are our professional advisors.  We all need to

> carefully weigh what we find on the internet and if we feel the need

> to share it with our medical team because we feel it applies to us, we

> should do so but keep in mind that many doctors resent patients who

> supply internet information and many tell the patients to stop reading

> from the internet.  I guess what I'm trying to say is to tread

> carefully and consider the experience of others but please keep in

> mind that this is a support group and we do not recommend following

> medical advice given here but instead recommend seeking doctors who

> are qualified to treat your symptoms.

>

> Alice

>

>

>

[Guest guest]

Alice

I agree. It might be helpful to keep in mind that we can use phrases like

" in my experience " or " you might want to ask your doctor " , etc. This way we

aren't coming across as having all the answers. We certainly can gain from

the experience of others, but it is still up to the doctors, hopefully along

with the patient to make the decisions for each individual.

laurie

>

> Reply-To:

> Date: Thu, 14 Oct 2004 09:38:38 -0600

> To: >

> Subject: Listen to Your Medical Team

>

> It's important for all of us to remember that internet searching brings up

> good information and education but we also need to remember that our doctors

> are our professional advisors. We all need to carefully weigh what we find on

> the internet and if we feel the need to share it with our medical team because

> we feel it applies to us, we should do so but keep in mind that many doctors

> resent patients who supply internet information and many tell the patients to

> stop reading from the internet. I guess what I'm trying to say is to tread

> carefully and consider the experience of others but please keep in mind that

> this is a support group and we do not recommend following medical advice given

> here but instead recommend seeking doctors who are qualified to treat your

> symptoms.

>

> Alice

>

>

>

[Guest guest]

Alice

I agree. It might be helpful to keep in mind that we can use phrases like

" in my experience " or " you might want to ask your doctor " , etc. This way we

aren't coming across as having all the answers. We certainly can gain from

the experience of others, but it is still up to the doctors, hopefully along

with the patient to make the decisions for each individual.

laurie

>

> Reply-To:

> Date: Thu, 14 Oct 2004 09:38:38 -0600

> To: >

> Subject: Listen to Your Medical Team

>

> It's important for all of us to remember that internet searching brings up

> good information and education but we also need to remember that our doctors

> are our professional advisors. We all need to carefully weigh what we find on

> the internet and if we feel the need to share it with our medical team because

> we feel it applies to us, we should do so but keep in mind that many doctors

> resent patients who supply internet information and many tell the patients to

> stop reading from the internet. I guess what I'm trying to say is to tread

> carefully and consider the experience of others but please keep in mind that

> this is a support group and we do not recommend following medical advice given

> here but instead recommend seeking doctors who are qualified to treat your

> symptoms.

>

> Alice

>

>

>

[Guest guest]

I have to totally agree with this. I would never want to give someone

advice and then something terribly wrong happen. That's why saying " in my

experience " or " run this by your doctor first " is a great thing to remember.

Cindy

[Guest guest]

I have to totally agree with this. I would never want to give someone

advice and then something terribly wrong happen. That's why saying " in my

experience " or " run this by your doctor first " is a great thing to remember.

Cindy

[Guest guest]

Yes, I guess I share my experiences because sometimes I feel alone in

having a certain reaction or intolerance for something that " everyone

else " does fine with. And it is interesting how vehemently some

medical professionals are one way or another, there are no clear cut

answers in medicine. YMMV, IMHO apply to all posts (at least mine

These are opinions, all in all...

Of course the fact that a good many of us are dealing with cognitive

issues makes us less likely to grab the correct words and phrases

when describing our experiences

Take care,

RH

> It's important for all of us to remember that internet searching

brings up good information and education but we also need to remember

that our doctors are our professional advisors. We all need to

carefully weigh what we find on the internet and if we feel the need

to share it with our medical team because we feel it applies to us,

we should do so but keep in mind that many doctors resent patients

who supply internet information and many tell the patients to stop

reading from the internet. I guess what I'm trying to say is to

tread carefully and consider the experience of others but please keep

in mind that this is a support group and we do not recommend

following medical advice given here but instead recommend seeking

doctors who are qualified to treat your symptoms.

>

> Alice

>

>

>

[Guest guest]

I agree completely with Alice. Perhaps it would be a good idea for people

to use the phrases " in my experience " , " in my opinion " when posting about

personal responses to medical treatments; much like we do with the " NMR or

Non Mito Related " in the subject line when a post is off topic.

Kristie

Message: 7

Date: Thu, 14 Oct 2004 13:54:12 -0400

From: z39z@...

Subject: Re: Listen to Your Medical Team

Hi, Alice

That is certainly a very very good reminder. Personally, I find the

information here very helpful, so that I can ask more intelligent questions,

understand the docs better, have better use of the time in the docs office,

and make better choices, IF and WHEN the docs give me a choice. Of course,

finding the right doctor, as you mentioned, is on the very top of this list.

In the case of taking thyroxin for thlyroid nodules, that endo clearly left

it up to me to decide. He said " You could try a course of thyroxin....

...........if you want to " and did not give me a recommendation either way.

That has happened before to me. So, yes, we need to be careful, but the

information here is wonderful, imo.

Regards

Sunny

> It's important for all of us to remember that internet searching

> brings up good information and education but we also need to remember

> that our doctors are our professional advisors. We all need to

> carefully weigh what we find on the internet and if we feel the need

> to share it with our medical team because we feel it applies to us, we

> should do so but keep in mind that many doctors resent patients who

> supply internet information and many tell the patients to stop reading

> from the internet. I guess what I'm trying to say is to tread

> carefully and consider the experience of others but please keep in

> mind that this is a support group and we do not recommend following

> medical advice given here but instead recommend seeking doctors who

> are qualified to treat your symptoms.

>

> Alice