Re: Re: [Attn: Dawn-Marie]Last call for Markell shoes and Fillauer bar up for grabs

[Guest guest]

I've found that those problems we see when they're really little and first

in the shoes just aren't the same after they've been wearing them for a

while and the foot is more developed and less fat baby paw like. So for

us, whole sizes larger have been just fine. The shoes should ABSOLUTELY

*fit* when they're first in them or yes, you do run the risk of slipping

and problems. But they should not be too small either, I think the toes

should be about at the end of the leather on the sides.

Kori

At 08:41 AM 11/17/2004, you wrote:

>Dawn-Marie,

>

>Something to consider about having a shoe that doesn't fit right:

>When they put Devlin in the DBB, they gave us the 00 so she " had room

>to grow " (I think the guy was trying to help us out because we had to

>pay for it all ourselves). However, it turned out to be a disaster.

>Her heels were always lifting up in the shoe and I kept having to try

>to make it tighter and tighter (she ended up with all kinds of red

>marks on her ankles and feet---and the heels were still lifting

>out). When we went back to the orthotist he gave us the 000 for free-

>--he seemed to feel badly that his idea wasn't working AT ALL for

>us. She was only in that smaller shoe for a few days. By then her

>feet had regressed already and she went back into casts (in Iowa---

>that's when we gave up on finding decent treatment in Philadelphia).

>

>Now, Devlin's condition IS a rare form of atypical clubfoot---she

>mostly has only had the equinous deformity and that made the " pull "

>of the heel to straighten very pronounced. So, you may not have that

>problem but it's something to consider. The $55 the orthotist was

>trying to save us contributed to our having to spend a LOT more later.

>

>I'll send the shoes to . It sounds like she'll be able to use

>them for a bit anyway.

>

>I'm glad your little one does so well with the nursing! Devlin

>gained no weight at all until I started supplementing with formula at

>6 weeks. She still nursed until 8 months, but I always gave her some

>formula too. Sometimes I wonder if it was the extra calories she was

>burning moving those casts around all day long! I guess we'll never

>know...

>

>

>

>-- In nosurgery4clubfoot , Dawn-Marie

> wrote:

> > He has only been in these shoes since 10/18 but he is growing like

>a weed. Breastmilk really agrees with him. He will be 4 months at

>the end of the week and is almost grown out of 6 to 9 months

>clothing, he was only 7.5 at birth and at his 2 month check up was

>already 14.5 pounds. I am going to ask for the shoes to be 1 size

>too big because I think he will out grow them too fast and I have to

>pay out of pocket and get reimbursed. I swear that veternarian

>insurance would be better than the plan that I have.

> >

> > Dawn

> >

> >

> > frogabog wrote:

> > how long has he been in the 00's? Darbi grows through a half size

>every 3

> > months. So (each size in the markells is a half size larger, so a

>0 is

> > half size larger than a 00, and a full size larger than the 000,

>etc.) she

> > needs a full size larger every 6 months. I will never again get a

>half

> > size larger, she went through those too fast. But Darbs has larger

>feet

> > (as compared to most CF babies) and seems to grow faster too.

>She's 19mo

> > old, wearing size 5's in regular shoes and 4's in Markells. I

>still think

> > whole sizes larger are best though, especially if you have to pay

>for them

> > yourself. Unless they're just swimming in them, they can wear them

>large

> > without any problems. It's not like they're walking in them and

>they're

> > too long for their feet and they trip.

> >

> > Kori

> >

> >

> >

> >

> >

> > At 04:38 PM 11/15/2004, you wrote:

> >

> > >I should say how do I know what size he needs. I just checked his

>shoes

> > >and we are in 00, Is a 0 next or 000?

> > >

> > >Dawn-Marie wrote:

> > >I would love them. How do you know what size he needs?

> > >

> > > Seel wrote:

> > >I posted this before and got no response, but maybe now someone

>has a

> > >baby coming out of their casts soon. We have a barely used set of

> > >000 and 00 Markell shoes and a red Fillauer bar (#6) that I would

> > >love to pass on to anyone who can use them. It would add insult to

> > >injury to see this stuff go to no use whatsoever after we had to

>pay

> > >so much for it!

> > >

> > >Just let me know if you want them---you cover the postage and

>they're

> > >yours. Or, do you know of anyone in Iowa that gathers this stuff

>for

> > >families who can't pay? We'll be there again in December and I can

> > >drop it off there.

> >

> >

> >

> >