Thanks for the support! About Graces appt.

[Guest guest]

Thank you everyone for all of your support. I really need it. I

think you all understand so much better than my family does! I had

clubfoot surgery back in 78 and am starting to develop some strange

pain from it this year. So, I think that is partly what is worrying

me so much about Grace needing surgery. I had a much more extensive

type though and by looking at me you would think one of my feet was

used to practice on!

A few people asked questions to me about my post and I am just

going to try and remember them all at once. Grace was seen Jan last

year because I was terribley worried about how her feet looked and

she was not walking normally. She pretty much swung her legs out to

the side and pulled her foot forward dragging it on the inside.

Also her knees do weird bending out to the side. So we saw Dr

Herzenberg and he said her heels had not dropped and to wait because

most kids do not walk with a normal gait until age 3. The

frustrating part was that he didn't even watch her walk for more

than 4 steps from the exam bed to me. I came home feelign like I

wasted my time and began taking pictures for Dr Ponseti and that was

when I noticed the lumps on Graces feet. I emailed them and Dr

Ponseti said it was rockerbottom and that it would get better with

walking.

I did talk to Annikas mother Lori I believe is her name. Her

daughter was casted to try and correct the rocker bottom. Why this

was not suggested for us I do not know. I don't think Annika was

having any walking problems at all and I believe she was about the

same age as Grace. When I spoke to Lori she said her daughters

rocker bottom was not visible any longer. I haven't talked to her

since then.......January. I would be interested to know if Annika

is better now or eventually required surgery.

Dr Frick told me yesterday that he will discuss Grace with Dr

Ponseti. He said he has asked guidance on a couple of his patients

that developed rocker bottom. He said Dr Ponseti advises to leave

the rocker bottom alone that it is worse to do the surgery. Dr

Frick said he usually watches those children for a year and then if

it doesn't get better he does the posterior release. He said he can

not see leaving it alone. He would not see Graces feet as being

functional this way later in life.

On a brighter note Graces forefoot is perfect and straight. She

does have no dorsiflexion really on her right. What bit it does

move is actually bending at the center of her foot which is not

good. I think that is why casting is not suggested at this point

becuase I think it would be so hard to bring a bone down that much.

Everythign has just tightened up so much from the last two years of

her heels never being corrected.

We are hanging in here though! I am still very thankful we

have managed to avoid the full release surgery and despite all of

this Grace has so much else going for her. I really appreciate

everything. Thanks again, and Grace

Oh, I met another Mommy from this board in the waiting room and hope

she posts how her baby boys checkup up went!

[Guest guest]

Hi ,

My name is Missy and I'm the mommy you met in the waiting room. It

took me a while to catch up on your posts as we spent the night in

Charlotte with family before driving back home. I'm sorry to hear

that your visit didn't go as well as expected. I was thinking of you

as we left the dr's office. I was hoping to see you before we left,

but it was so hectic!!

Everything seemed to be ok with Nate. Dr Frick told us that he

didn't see any reason why we would need to come back to him. We had

been seeing a dr in Greenville, SC, but I wanted to get a 2nd

opinion on his condition. We're 11 days in on the shoes and dbb and

we're hoping for the best. I'll keep an eye out for another post

about Grace with good news!! Hopefully, the new year with bring

promise and good cheer.

Missy

>

> Thank you everyone for all of your support. I really need it.

I

> think you all understand so much better than my family does! I

had

> clubfoot surgery back in 78 and am starting to develop some

strange

> pain from it this year. So, I think that is partly what is

worrying

> me so much about Grace needing surgery. I had a much more

extensive

> type though and by looking at me you would think one of my feet

was

> used to practice on!

> A few people asked questions to me about my post and I am just

> going to try and remember them all at once. Grace was seen Jan

last

> year because I was terribley worried about how her feet looked and

> she was not walking normally. She pretty much swung her legs out

to

> the side and pulled her foot forward dragging it on the inside.

> Also her knees do weird bending out to the side. So we saw Dr

> Herzenberg and he said her heels had not dropped and to wait

because

> most kids do not walk with a normal gait until age 3. The

> frustrating part was that he didn't even watch her walk for more

> than 4 steps from the exam bed to me. I came home feelign like I

> wasted my time and began taking pictures for Dr Ponseti and that

was

> when I noticed the lumps on Graces feet. I emailed them and Dr

> Ponseti said it was rockerbottom and that it would get better with

> walking.

>

> I did talk to Annikas mother Lori I believe is her name. Her

> daughter was casted to try and correct the rocker bottom. Why

this

> was not suggested for us I do not know. I don't think Annika was

> having any walking problems at all and I believe she was about the

> same age as Grace. When I spoke to Lori she said her daughters

> rocker bottom was not visible any longer. I haven't talked to her

> since then.......January. I would be interested to know if Annika

> is better now or eventually required surgery.

> Dr Frick told me yesterday that he will discuss Grace with Dr

> Ponseti. He said he has asked guidance on a couple of his

patients

> that developed rocker bottom. He said Dr Ponseti advises to leave

> the rocker bottom alone that it is worse to do the surgery. Dr

> Frick said he usually watches those children for a year and then

if

> it doesn't get better he does the posterior release. He said he

can

> not see leaving it alone. He would not see Graces feet as being

> functional this way later in life.

> On a brighter note Graces forefoot is perfect and straight.

She

> does have no dorsiflexion really on her right. What bit it does

> move is actually bending at the center of her foot which is not

> good. I think that is why casting is not suggested at this point

> becuase I think it would be so hard to bring a bone down that

much.

> Everythign has just tightened up so much from the last two years

of

> her heels never being corrected.

> We are hanging in here though! I am still very thankful

we

> have managed to avoid the full release surgery and despite all of

> this Grace has so much else going for her. I really appreciate

> everything. Thanks again, and Grace

> Oh, I met another Mommy from this board in the waiting room and

hope

> she posts how her baby boys checkup up went!