Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 Hi Everyone, I have posted here only a few times, but I have read A LOT of posts over the past few months and I just want to say " Thank you " to all of you here. The information that I gathered here and all that I learned from you about clubfoot and its treatment helped me to open up a dialog with my son's doctor and, ultimately, avoid major reconstructive surgery for him. My son, was born March 30 with a right unilateral clubfoot. We went through all of the serial casting and he had his first tendon release surgery in May. After getting the cast off, a series of events resulted in a relapse and his foot and tendon were very stiff. The next option presented to us was that of reconstructive surgery. Reading the posts on this site combined with my own very strong belief that my son did not have optimal conditions for the first tenotomy to work, gave me the resolve to talk to my doctor and explore the possibility of another tendon-release as an alternative to major reconstructive surgery at this time. Well, my son's Dr. is a true professional. She didn't let me just walk all over her. But she openly and honestly discussed his situation with me. We took it week by week beginning again with casts. And ultimately, she opted for the second tendon release. It was done Aug. 27th and it did the trick!! 's foot looked fabulous after 3 weeks when his cast was removed. He's doing great with his DBB and we are feeling unbelievable relief. This positive outcome would not have come about without the wonderful dialog that goes on at these bulletin boards. So thank you thank you thank you to all of you who invest your time. I also want to pass on a valuable lesson I've learned from this experience. It is this: You are your child's best advocate. Never forget that. You know him/her best. Go with your instincts and never be afraid to ask questions. There is no one who looks after the best interests of a child better than his/her parents. My husband and I learned this lesson in a big way these past 7 months. When faced with the possibility of surgery for our son, we decided that whatever happened, we needed to be at peace with our decisions because we are his guardians and protectors. What an awesome responsibility. But I know that all of you here on this board are up to the challenge and are succeeding at being wonderful parents for your children. Keep up the wonderful work! Again, thank you from the bottom of my heart. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.