Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 Dear , My husband gets this PDT therapy on a regular basis, for the very aggressive " wet " form of macular degeneration. Early last year he had 20/20 vision, and developed this very rapidly. Sounds like yours has been caught very early---wonderful! I know that retinitis pigmentosa is a part of mito, but I don't remember reading anything about AMD and mito.( My husband doesn't have mito, I do.) These treatmernts have not returned any of his severe central vision loss, unfortunately, but they have kept it stable. He is also in a clinical trial in which a new drug, injected right into the eyeball, is meant to stop the formation of the new, leaking retinal blood vessels. This new drug has not helped at all. He feels it is the PDT that has kept his vision loss stable. This time of the year, here in the Northeast US, one does not have to worry too much about reactions from the sun and the visudyne drug. The sun is very weak. I don't know where you live. Look up the Foundation Fighting Blindness and you will find very useful information. Best of luck to you! Sincerely, S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 Dear , My husband gets this PDT therapy on a regular basis, for the very aggressive " wet " form of macular degeneration. Early last year he had 20/20 vision, and developed this very rapidly. Sounds like yours has been caught very early---wonderful! I know that retinitis pigmentosa is a part of mito, but I don't remember reading anything about AMD and mito.( My husband doesn't have mito, I do.) These treatmernts have not returned any of his severe central vision loss, unfortunately, but they have kept it stable. He is also in a clinical trial in which a new drug, injected right into the eyeball, is meant to stop the formation of the new, leaking retinal blood vessels. This new drug has not helped at all. He feels it is the PDT that has kept his vision loss stable. This time of the year, here in the Northeast US, one does not have to worry too much about reactions from the sun and the visudyne drug. The sun is very weak. I don't know where you live. Look up the Foundation Fighting Blindness and you will find very useful information. Best of luck to you! Sincerely, S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 Theresa, My DR calls my eye problem progressive myopia. I have been very nearsighted. I get a stronger prescription every one to two years.What con fuses me in whether there is a mito relation is they have never been able to tell my why my eyes kept getting worse. One DR said my optic nerves did not completely develop and that my eye would comtinue to degenerate. The youg dr that took over his practise said my optic nerve were just twisted and my eye site would settle soon, this was years ago in my thirties. Now I see a different retinal guy in the same office(I did not appreciate waiting for 45 min already dialated just for the guy to show up for the day!) This guy when I asked him twisted or the other sais twisted. I first started wearing glasses in 6th grade, should have in 5th. THey also found I had considerable hearing loss in one ear when I was 9. in the last 5 years as everything has come to a head with mito symptoms, I have lost what was left of the hearing in that ear. the other one is fine. So see hwat I mean Possible mito or really not related? O in michigan sygeek reesanick@...> wrote: , Do you have wet age-related macular degeneration? I work in this field, and have a lot of info I can share with you.. Visudyne therapy is generally safe and well tolerated, even in people with mito. If AMD is your diagnosis, it is not related to mito. Theresa > Have any of you had visudyne therapy? It is a cold laser therapy for abnormal growth of a blood vessel behind the eye causing loss of central vision? I was told I need to have this done. My retinals have been deteriating and I have been using the amsler grid to check for this, but hadnot had any distortions until this sunday. I am scedule dec 1. then I can't go out side for 5 days because they inject you with a light sensitive chemical then project the laser on the eye when they dye gets their. I have to wear sunglasses a hat, mittens and lond sleeves and pants to come home from the appt. no direct sunlight, or halagon light exposure or i could have a reaction. Just wondered about the posibilities of this making the mito worse? interestingly enough the dr's wifes uncle has mito and because he doesn't have retinal probloms, this dr dosesn't think my problems are mito related! O. > > > --------------------------------- > Do you Yahoo!? > Check out the new Yahoo! Front Page. www.yahoo.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2004 Report Share Posted November 12, 2004 I lost central vision in my left eye years ago and this was discussed at length. They did retinal angiography and the vessels were determined to be alright it was caused by optic neuritis and the visudyne theraphy was dropped. I have talked with my n-o about this and he said it is a salvation for those with abnormal vessels. I have no idea about this affecting your mito, but would think the stress of losing your vision would be a worse trigger for problems than the procedure. Best wishes for your vision. Debra Quote Link to comment Share on other sites More sharing options...
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