Re: Re: muscle biopsy results...Dawn

[Guest guest]

Dawn,

I would recommend Cleveland Clinic for you. It takes a few months to get in but

it is worth your wait.

dawnanich manich@...> wrote:

It is interesting to hear information regarding muscle biopsies. I

am definitely begining to believe mine was botched. THey did not

rush my biopsy off after it was doen. The nurse took her time. I

also know that it sat in the refridgerator over the weekend before

anything was done to it. It was then flash frozen to be sent out. I

was wondering if this could make a difference. My biopsy showed mild

abnormalities with some accumulation of mitochondria and lipids. The

electron transport chain was normal and I was told I do not have

mito. I believe this is incorrect due to family members symptoms and

medical status. I am convinced that this has to be mito. The next

biopsy I have will be fresh.

Bob good luck, I hope you find answers soon!

Dawn A

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