Guest guest Posted December 4, 2004 Report Share Posted December 4, 2004 Well I finally got the results of my blood and urine tests. Surprise, surprise they were all negative. From listening to all the posts on this group that is what I kind of expected. I gather it is rare to get any results the first time. However, that is as far as Dr. Enns wants to take it. He doesn't want to do a muscle biopsy or anything else. He says " There are no real treatments availible. You are already taking the vitamin coctail and so I can see no real benefit in you getting a biopsy " He does a frozen biopsy anyway and I would rather get a fresh one done the first time. He did give me Dr Di Mauro and Dr Shoffner's contact #'s as they do fresh biopsys. I have heard that they are not accepting new adult patients. Is that true? I really don't know where to go from here. If any one has some good advice I would appreciate it. I am so tired of fighting the system. I'm glad I have you guys to talk to. Don't know what I would do without you. Joanne Quote Link to comment Share on other sites More sharing options...
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