Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Laurie, At the conference, did they say Idebenone was in the process of FDA approval as a prescription drug? Interesting. I did not know that. For some reason, I had assumed it would be OTC as a supplement, but haven't followed it closely at all. Barbara > >> > >> Hello all: > >> > >> I havn't posted in awhile. I was just wondering if anyone is aware > > or > >> if they take Idebenon. It's a CoQ10 analog - a synthetic version > > of > >> CoQ10. My 18 year old son, who has mitochondrial disorder, has > > been > >> taking 400mg daily of Sam's Club brand CoQ10 and he has always had > >> difficulty sleeping - chronic fatigue. Usually he stays up all > > night > >> and goes to sleep during the day. His doctor, Dr Ambrus, said > > that > >> some of his patients tolerate this Idebenon better and allows them > > to > >> sleep. My son is to take 2 doses at 45mg per day. > >> > >> Any feedback is appreciated - also if you can recommend a place to > >> buy on line or in the Western New York area. Here is a link to > > some > >> information on Idebenon: > >> > >> http://www.smart-drugs.net/South-idebenone.htm > >> > >> Thanks > >> jim > > > > > > > > > > > > Medical advice, information, opinions, data and statements contained herein > > are not necessarily those of the list moderators. The author of this e mail is > > entirely responsible for its content. List members are reminded of their > > responsibility to evaluate the content of the postings and consult with their > > physicians regarding changes in their own treatment. > > > > Personal attacks are not permitted on the list and anyone who sends one is > > automatically moderated or removed depending on the severity of the attack. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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